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Heather Mills - Amputee Forum
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  1. Last week
  2. Donj307

    Newbie

    Hey all... I recently had a through knee amputation in October last year. I'd been on crutches for the last 16 years before getting to the amputation. I have an existing nerve condition complex regional pain syndrome. So I had the op and I'm struggling a little if I'm honest phantom limb pain is a problem. And me mentally getting my head around all this is hard and I feel as much as I have amazing friends and family supporting me. I don't feel like there getting it. Any advice... Information or just general guidance is Appreciated =)
  3. Earlier
  4. allen-uk

    Half socks

    Thanks monopod, all interesting and useful. There are loads of solutions which the NHS (in my case Blatchfords-NHS) keep private, I am sure. Ok, they have limited funds, and the NHS won't pay for everything, but I'm getting fed up over the years with being old and unimportant, and therefore pushed to the bottom of each pile! Sounds as if you know the score. For example, I've had an open ulcer on the point of my stump for getting on for a year, with minimal interest or support from Stanmore, while to me it is THE most important part of my physical life - if it wasn't so sore, I could 'operate' much better. Anyway, rant over for me too. My old mate Ted used to say "Don't get old, Al," and boy was he right. Allen
  5. Yvon

    Performing crutches

    Hello I am a new member of your group. Although I am amputated above my knee for 23 years, unfortunately, additional surgeries after my amputation deprive me of all prostheses. I am therefore only travelling in crutches or scooters. I tried about all the classic markings crutches up to now. I'm looking now for more expensive crutches, but probably more comfortable and more reliable. (I change the classic one about every two monts ). Is there anyone among you who would have useful suggestions for making me the best marks? I am a active male measuring 5 feet 10 inches and weighing about 190 pounds.
  6. monopod

    Half socks

    Hello, I'm new back here with 26 years hard experience. Wish I had any guidance on many of the problems that I've faced. I had your dilemma when my ALAC informed me that they "supplied no socks with holes in." I've been on Iceross system many years, and had to use my modest inventiveness to get me round the "can't supply it " problems. I have a thin nylon sheath which apparently isn't Kosher for my system. I took an idea from ladies' "hold-ups" with the band of silicone around the top which keeps them from turning into "Nora Batties". ( See Last of the Summer Wine.) I appropriated a no longer needed foam liner from my old leg system. ..... this may or may not be within your experience, but there is a lot of use of silicone rubber in the prosthetics trade. I put my stocking on the liner with the inside facing out, which was the side that I wanted to render "non-slip." Then took my tube of silicone-rubber bathroom sealer, either white or clear is OK...... then I massaged it well into the textile , ( in your case terry fabric or some stretchy cotton weave ?) ... forming a band of about 25 to 35 mm width in the fabric. The idea is to make it stretch enough to hold up, but not too tight. When it's set, you should have a non-fraying , hold up sock which will have enough inherent tackiness to grip the surface which it is put on. For my Iceross I have to do similar with the hole which I have to cut in the bottom for the retaining-pin system. This approach has met with some raised eyebrows from various prosthetists, some suggest that I should patent it, but the fact is that the "System" can, or will not supply widgets that can make an amps life more tolerable. This approach is symptomatic of how I view Mohammad and The mountain. Okay, I'll do the bloody thing myself. At my last but one visit to the Limb Centre, I met an arm amputee who had designed and made his own functioning prosthetic hand . The "system" couldn't supply one, so he had the same approach as me. This situation is deplorable, but life is for living Innit ? The politicians proudly announce that more funds are being made available for the Servicemen who suffer the IED's blowing them to bits. What they don't say is that they're robbing the money from the older people, and providing less than the gear we need .... such as water-activity legs, and spare legs. Who needs two ? well my new leg fell to bits half a mile from home with my dogs in the middle of a field. My "shower" leg was constructed from various bits saved from the dustbin at the ALAC. That's my rant finished. Hope it may do you some good.
  7. MaggieH

    Ertl in the uk

    Thanks, Johnny - I've already visited the site, but there's nothing about UK surgeons. I've sent a query in, hopefully I'll get a reply.
  8. JohnnyV

    Ertl in the uk

    Hello Maggie, Here is the website. Should give you everything you need to get you heading in the right direction. http://www.ertlreconstruction.com/ Best wishes on your journey ahead !!
  9. Does anyone know who does Ertl amputation/reconstruction in the UK? Preferably in the Midlands, but anywhere is ok. Thanks, Maggie.
  10. Its been a while since Ive been here. To get to the point I slipped and fell badly on my prosthetic. The fall resulted in a crushed and sheared tibia plateau fracture. I had to have surgery which required two bone graphs, a bone cement repair on the 7cm vertical fracture and a complete repair of the meniscus. Also plates and screws were required. I wont be able to weight bare for 4 months. Have any here dealt with such as this? I am worried about how I may or not healmor walk. Thank You Derrick
  11. lisa

    Neuromas are a pain!

    Hi Sue I know you had your surgery 6 years ago, but I wondered whether this surgery helped you with your pain? Lisa
  12. lisa

    Do I have a neuroma?

    Thank you everyone for responding. For some reason I haven't received any notifications, so didn't realise anyone had replied. I definitely have a neuroma and from what the Doctor has said, it's a big one. Stupid thing is, if you read my posts on here, I have thought this for a while and I did go to my GP and she brushed off my concerns and prescribed tramadol. I am being referred to a specialist and will definitely base my decision on everything but I am going to go through all the posts on here first.
  13. lisa

    Electric Shock Type Spasm

    Hi Kathy I didn't realise anyone had responded. Anyway I have had my MRI scan results today and it is a neuroma. I am just waiting to see a specialist, but if surgery is an option, then I will definitely have it removed. The Doctor seems to think it is 13cm's long, but even she thought that must be wrong.
  14. Hay guys and girls I’m new to the amputee world just about a year having a lot of trouble with phantom pain any tips other then pain medication for me thanks 

  15. BethMarie

    New to the forum.

    Welcome to the journey. I am sorry no one has replied to you, but this forum is far less active than it was in past years. I think it is due to the fact most people have migrated to the forum on the Amputation Coalition website. This is a GREAT place to chat with other amputees, get excellent information on living as an amputee. Without this organization I would not be a happy amputee. I am not sure where you live, but it is open to all no matter where you live and joining us free. I hope you will investigate it and join in! Peace, Beth Marie
  16. C4RL3N3

    New to the forum.

    Hello everyone I am just starting my journey on this life changing road. I keen to get your understanding on how you feel about things and your families have either supported you or been in denial and rejection of it all. Please, I value your thoughts.
  17. Hello all, I haven't been on for ages but do have a problem. I was offered to try out the suspension sleeve system following a new socket fitting. The socket is very very soft and comfortable BUT when wearing it with the socket, after about an hour my stump starts to cramp and becomes so painful that I have to take the sleeve and socket off till it settles down. This happens on a regular basis and when I examine my stump it is red and had a circular, raised weal at the end of it. My question is does anybody else have this problem? and is it because the rubber sleeve is squashing the arteries or is the socket still not right? I've had 3 fittings for this socket and although comfortable I don't know what the problem is. My leg lady says it should start to ease but this has been going on for 8 months - not every day - but enough to stop me in my tracks. Any tips or ideas on what I should do? I am tempted to go back to the 'elastic strap and buckle' system but not sure. Any advice would be so much appreciated.
  18. JohnnyV

    Return after many years

    Welcome back Glen !! A lot has changed in 15 years. There is a lot more social media option for individuals effected by limb loss. As a result, the traffic on this site has slowed down, but it's still here. Glad that you decided to still be here too. Best,
  19. 7feet

    Return after many years

    Hello everyone, its been about 15 years since I last looked at this forum or posted, life and family prioritised and just became too busy, and I probably thought I didn't have anything else of value to contribute. Anyway I now have time and a real interest in helping especially new amputees. Briefly, 62 yrs old, right above knee amp since 1991, retired, living Queensland Australia. I was a socket wearer up to July 2012, when I underwent Osseointegration by Prof Munjed Al Muderis, I was his 13th Osseo patient. It changed my life in so many ways due to no more socket issues and being able to feel the ground through my prosthesis, which makes walking feel so much more normal, being able to sit on a bar stool, and not break toilet seats, and not wear out the back on a pair of pants. As said my interest is helping fellow Amputees, I am a volunteer Peer Support for Limbs 4 Life Australia, as such we visit mainly new amputees, or "prospective amputees" either in hospital or elsewhere to provide an ear etc. All those years ago I suggested to Johnny V that there should be a forum named "A funny thing happened on the way to the forum". i just had another look and there are still some great stories. Regards to all Glenn
  20. BethMarie

    Oh well

    Hi, You are not really being ignored, although I sure understand why you feel left out to dry. This forum used to be VERY active and usually there would be many responses. This forum has lost that activity, mostly I believe that the participants have migrated to Amputation Coalition site. If you do not know it, it is well worth exploring it. There is a similar site as Heather's and a great source of information and other amputees. I am finding answering on this forum difficult, but I wanted to help you!
  21. rehjaeger

    Oh well

    I posted 6 days ago hoping to be able to reach out to some in the amputee community for some camaraderie, some input... wasn't looking for sympathy, just someone who might understand a little about the things an amputee faces. But, no one has bothered to reply, even just to say "hi" or something. so I guess I'll find another forum that may have more active participants. Thanks anyway, Heather Mills.
  22. Hello, all - My first posting here. I am 63 and a L AKA which was the result of a freak accident involving a garden tiller, the tiller hit a rock and jumped, gouged my left leg above the knee. Hospital visit, the usual - they irrigated the wound (which was about 3/4" deep and about 5" long), stapled it up and sent me home. About a week later my wife, who is an RN, said it was beginning to "stink" - I have a poor sense of smell and it didn't look bad to me anyway, but off to the hospital where, after rounds and rounds and rounds of IV antibiotic therapy and debridement they told me they couldn't save my leg. I was in a great deal of pain and nearly delirious by this point, not to mention the pain meds' having altered my consciousness, so I went ahead and let them hack my leg off. If I knew then what I know now, I would never have let them do it, I would have forced them to let me die. After some PT with my new (very primitive, friction-actuated) leg, I was doing a little better, but having to remember to kick the leg out every time I took a step to lock it was hard to remember, and I fell a lot. Then, after a couple of months' PT I began to not be able to do much of anything without losing my breath, no stamina, etc. Long story short, a cardiologist visit turned up that I had not one but two blocked arteries in my heart, so bad that the doctor said that a simple piece of wire could have completely blocked them. I had a 2-artery CABG procedure. After the surgery, I was told that the prosthesis, a newer one, was too heavy for me to lift with the weight restrictions after surgery, so I did not walk afterward. By the time the restrictions were lifted, my stump had swollen to the point that I could no longer get my socket on. The cardiologist said this was "not uncommon." So, now, I have to fight the insurance company to get another socket made, and that took about 2 months. Meanwhile, losing stamina and will to live. Finally got the new socket, and began having malfunctions on the new leg (now that it was being used more) and could not keep it working. It was like an old 70's British sports car, nice to look at (in a gruesome kind of way) but very unreliable. Lost more ground. Was finally beginning to see the light of day on this (I thought) but it turned out to be another damned train. Very bad case of the flu turned into viral bronchitis for which I had another hospital visit. Seriously, I'm not making this up. The next step was that the depression drugs I have been taking since (the also-bizarre circumstances regarding) my mother's death began to become ineffective. I have a wonderful counselor and psychiatrist, and they have been trying their best with various therapies and drugs. The last one I was on was a drug for ADHD, since all of the ones they'd tried before just had no effect at best, and at worst made me a crying vegetable. The ADHD drug killed my appetite, and guess what - now the socket doesn't fit again. I used to hunt, and fish, and had a beautiful collection of vintage motorcycles (which I have had to sell) which I rode almost every day all over the countryside, I built a raised stone garden since I love to garden and we live on a hill where there is no soil (this is where the accident occurred, btw), I was a competition shooter and was on an international team.... I think you get it. All of this has been taken away from me. Every time I try to get back into PT and start where I got dumped the last time, something else happens. I was on a single-point cane, for pete's sake, and now I'm back on a rolling walker. For the third time. The last time I went for endurance I walked less than 100' before I was completely, totally flattened with exhaustion. My life consists of getting up in the morning, feeding the dogs and cats, working (fortunately I work from home), taking a nap when I get off work, and then feeding the dogs and cats again and going to bed. My wife travels a lot so I'm by myself pretty much all the time, with extremely limited opportunities to get out or do anything since I cannot load or unload my wheelchair by myself. Like I said - had I known then what I know now, I would have elected just to go into hospice and get buried with both legs. Sorry for the long, drawn-out whine. I'm just completely at the bottom of the barrel for "try" and my anger and rage at my situation and not being able to do anything boils over from time to time. Thanks for letting me vent.
  23. Hi all, my names Lianne and was just looking for someone to talk to, people who may be in the same position as myself or my mum. My mum had a motorbike accident 5 weeks ago which resulted in having an emergency amputation above the knee of her right leg to save her life. Also she has no feeling in her right arm at all at the minute but the doctors are looking at the nerve damages. My mum is worried about not being able to have a prosthesis as her amputation is quite high, does anyone have any thing they can relate and share with me? And also how independent my mum will be able to be as she is a strong woman who loves her independence. Thank you xxx
  24. Kathycmc

    Electric Shock Type Spasm

    Has your Dr. ruled out a neuroma?
  25. Kathycmc

    Need advice leg irratation

    Hi Clay. Firstly it sounds like you need a new socket. 6 months is a long time to go with your initial socket. I needed a new one after 3 months and 30 ply of socks. Secondly they sell lotions to control the sweat (get from your prosthetist) but I use certain dri which is a clinical antiperspirant I can find at most drug stores. I put it on my stump in the evening and then wash my leg in the morning before putting on my leg. It takes a week or so of using every night and then you can decrease to 3 times a week or whatever frequency works. Having said that there are times when you just have to take everything off, dry the liner and your stump and put everything back on. It is important to keep your skin as dry as possible to avoid irritation, skin breakdown and /or blisters. If you've tried all that you may be allergic or sensitive to whatever your liner is made of. If that ends up being the case your prosthetist can get you different liners - not all use the same material on the inside.
  26. I am a recent below the knee amputi, Jan 1 this year, as my stub has sruck i have had to add socks and half socks to make my prothstes manageable. I am on my leg 8 hors a day and due to the heat and sweat my leg has become irritated to the point that its pianful. If anyone has any recomendations to solve this problem it would be greatly appreciated.
  27. Hi Everyone It's been a while since I have posted, but I am hoping that someone maybe able to help and advise me. I became an amputee 12 years ago and have always suffered with phantom limb pain, and in the early days I would experience an electric shock type spasm approximately twice a year. Over the years this has increased and I am now suffering on average once a month. It is now so bad, that even with tramadol, I can be screaming for days. The only relief I get is when I punch my stump, as this seems to distribute the pain, so it isn't so intense. I am literally at my wits end, because to be honest I would pretty much would try anything, at this point. I know I'm not alone in this pain, but am willing to try any suggestions. Thanks in advance Lisa
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