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Heather Mills - Amputee Forum

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  1. Earlier
  2. hi, i ordered one of these amputee ID e-cards, took about a week to arrive. i dont much like to display my below knee prosthetic and have found this e-card handy a couple of times in the last few months. thinkin others may find the same.. amputee-ecard.mozello.com/amputee-ecards/
  3. clearcna27

    Long time

    hey everyone it’s been awhile since I’ve been here. Just checking in, doing ok, just got a new socket it’s really comfortable except I’m having a lil problem with my fibula head hopefully I can walk it out soon. Feel free to say hey anytime
  4. kim wilson

    Sleeve repair

    No, I’m referring to the sleeve that goes over the socket then over your liner. Doesn’t have contact with the skin accept at the top to create vacuum.😊
  5. MON52

    Sleeve repair

    Hi, I assume you are referring to the sleeve that goes directly onto your stump? I would not be repairing this tbh - I have been told my prosthesist to request a new one if it is at all damaged as this could cause skin breakdown - I do recall there used to be some 'repair' patches that came with new sleeves??
  6. kim wilson

    Sleeve repair

    Help! I keep puncturing my sleeve on my elevated vac system. I was told to use duct tape to repair hole! It just melts and slides and makes a mess! Anyone know of a tape or DYI patch that works??? I can’t find anything that will stick to the gel without rolling off.
  7. Donj307

    Anyone free to talk

    I had my leg off 2 years in October. I'm struggling with pain. And phantom pain and having real trouble getting my prosthesis to fit. We get a good few weeks and then its not fitting again. Had about 10 new sockets so far. Really frustrating. Would appreciate any input or information. Thank you
  8. Donj307

    Newbie

    Hey everyone... are you guys still around?
  9. FordGuy48

    Perspiration Issue In Liner

    Bump
  10. Hello, All of a sudden I am having a lot of excessive perspiration in my OttoBock liner, just the last two days now. I think it might be due to taking furosemide. I have a new socket, two weeks now. I have noticed this in past sockets after a lot of activity, but I haven't been doing a lot the last few days. I had an episode like this a couple of months ago, and it lasted a day or two. Anybody have anything like this, and any results taking care of it? Thanks Tom
  11. BethMarie

    reTred

    Hi Ellen. Welcome to the Heather group. This use to be a very active site, but since the Amputee Coalition also has a site like this it has been very quiet here, so please don't feel slighted or rejected if you do not get many replies. I can relate to what you are saying. I too do not Present as to what I have lost--I am a right below knee amp from about 10 years ago--hit by a woman who did not look where she was turning. I went through 3 years of multiple surgeries to fix my badly broken ankle until I said enough is enough and got it amputated. It was the very best solution and I had about 9 years of doing what I wanted to do until my left hip had to be replaced. I have had multiple issues with that leg--I say my right leg (amp) is my good leg! I too have made it appear relatively easy to people around me and that has not given me the support I really need. People have been great, But I too feel very alone. If it weren't for my Labrador I don't think I would have done as well. She is sadly aging and I don't know what I would do without her/. Realizing this I have gotten a now 4 month old Labrador puppy. It is a wild ride, but she will be a great dog after puppy-hood! Feel free to contact me if you are feeling low or .... Peace, Beth Marie
  12. MakingTracs

    Hello from the middle of Kentucky

    Kudos Dave.. relating to blink of an eye LBK from trauma, also the blink of an eye. CPV West Coast USA, Keep farming and sharing the reality that there is abundance of life after. Take care
  13. How about a UK brand Ice Recumbents Love my wheels hope to be back in the saddle soon
  14. MakingTracs

    reTred

    why reTred. Ive been walking this road a while. I'm processing a lot of life changes and realized I wasn't talking. I'm an introvert who can turn it on when it's not about 'me' and not up to be flamed with comments of 'get over it' move on and all the well meaning (in some cases) from an all to self focused society. I'm a Certified Peer Mentor for Limb Loss Survivors and their loved ones and work in the medical field of orthopedics. I don't identify myself by what is missing so I use the term amputee selectively. (save your flaming posts if you dont get it dont attack me) I am a limb loss survivor and I say that because of what I went through. I was hit head on by a drunk driver on the wrong side of the freeway in 1988, two NDEs and a bucket full of surgeries later the foot was removed in 2004. I dont identify by what is missing because I worked so hard to recover. I have been feeling isolated because of my ability to push through and make it 'look easy'. Just these few sentences and signing on is a hopeful step forward. a very truncated 2 cents of meh. I am alive I am not invisible and I need help as much as I help others. Remember this, the nearest helping hand is at the end of your arm/foot/words Reach out with what ever means you have and connect. this is ME, reaching out Ellen in US
  15. Donj307

    Newbie

    Hey girls! Just wondered if you were all ok. We had a chat happening and then it all stopped and I was thinking today, I wonder how their getting on. Hope you all good 😊 be nice to catch up and see how your all getting on. X
  16. Hey Keith, only just noticed your message sorry. I just had an elective amputation a couple of months ago - 11 weeks ago I think. I looked back over my posts and can’t believe how long I agonized over this for. I wouldn’t wish this decision on anyone. I have no regrets, it’s been a rough few months and the stress of the decision was horrible - but I am back chasing my toddler, riding my bike, climbing ladders and living my life. I’m still trying to take it easy and rest during the day, but I have been on no painkillers for a couple of months and I am so much better off than I was before. It’s a tough decision and no one can make it for you, I guess I decided that both options (keeping my foot or chopping it off) were both bad options, so I decided to do the one that had a chance of being pain free and just decide to be positive and “own” the decision either way. Happy to answer any questions. Good luck
  17. Hello, Earlier this year, I had a lot of problems with my stump changing shape after taking a strong steroid for a blood issue. I had to get a new socket fitting, OttoBock Harmony unit, wearing the liner, doing much better now. I still have some rough skin on the distal end of my stump, where all the problems were, I guess "dead" skin, and it's been starting to peel finally. I didn't think it would take this long. I've been using AdaptSkin on the area and on the rest of my stump. Any suggestions for dealing with this? Doesn't hurt.
  18. Dlovull1

    Best prosthetist in Orlando??

    I had a similar problem and went to POA! I am from Rochester New York. Dave
  19. FordGuy48

    Sweating in urethane liner.

    Well, this odd, the area around the end of my tibia has been bothering me about a week, and has felt good since Wednesday, Now I’m getting some fluid, so it’s not sweat..
  20. FordGuy48

    Sweating in urethane liner.

    Hi, I haven’t visited here in a while. I am a BK, I have an OttoBock Harmony unit, urethane liner. I tend to sweat a lot inside it, I have a two month old socket and custom liner. I was having some trouble getting used to the socket, and was aching at a point on the end of my tibia, that soreness is better, but I have some macerated skin at that point, and wonder if anyone has any suggestions for dealing with this. It’s like the skin is trying to restore at the point, does that make sense? I’ve had similar before, but been so long I can’t remember how long it took to clear. I’d appreciate any ideas.
  21. Keith

    Decisions Decisions

    BethMarie, I guess you're right. I pretty much have made my decision, but am keeping an open mind until next week, when I have my next appointment with my surgeon. I contacted the orthotics office that fit me for the brace I'm currently using. The technician had told me he had other patients that had made the decision to amputate and he would be glad to get me in touch with some of them before I make up my mind. One gentleman called me and talked about his experience, which was a big help. I'm sure I'll have some more conversations and questions for him. If I do decide to amputate, I think the next part will possibly be the most difficult. My wife. She doesn't seem to understand the level of pain I have each day. She keeps trying to talk me into using gimmick cures, like taking spice capsules and smearing magnesium ointment on it. This morning she made the comment, "oh well, getting old is painful. Going to have to get used to it". I don't think she will agree with or understand my decision, and I don't want it to become an issue between us. I have actually tried to think of ways to help her understand how it feels. I thought I could tie a cord very tightly around her ankle until it starts to hurt, tape a small leggo to the top of her foot and a few to the bottom and have her put on her shoes to try walking like that. Maybe if she understood that that's the best analogy I can come up with to describe how it feels for me every day. Of course, I wouldn't do any of that, but can be very frustrated when she just doesn't seem to understand. Not to mention, I'm sure she wouldn't volunteer for it either. She'd probably think I finally lost my mind. :)
  22. BethMarie

    Decisions Decisions

  23. BigDaveinKY

    Hello from the middle of Kentucky

    Hello folks, I've been lurking around the site for quite a while, decided to join, and hopefully help someone with my experiences from fifteen years as an AK amputee. My amputation was from an accident, in the blink of an eye, with no going back, so I go forward. I am an active CPV with the Amputee Coalition, though thankfully, not very active. I'm a retired elevator service person and enjoy spending my time just farming.
  24. Keith

    Decisions Decisions

    Beth Marie, I must admit I am a little disappointed by the lack of response here, from people other than you. Thank you for your input. I guess I will check out the coalition site and see if the members there are any more responsive.
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