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Heather Mills - Amputee Forum

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Showing content with the highest reputation since 07/17/2012 in all areas

  1. 5 points
    Hi Everyone, Really sorry for the long delay in getting the forum back up and running but it should be back for good now with proper monthly updates. The reason for the forum being down for so long is the constant hacking of the forum that was causing huge issues for the server. As of now, we will be doing regular security patches and updates to keep it up and running. The first proper upgrade will be on Monday but it will only be down for around 30-60 minutes. If we need to run any other updates in future that will mean down time we'll give you all a few days notice right here. We'd just like to give a quick nod to Johnny V for his constant support and passion for the forum. It wouldn't be here without him. Many thanks again and thanks for your patience.
  2. 5 points
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  3. 4 points
    Nice to be back. Just received the e-mail
  4. 4 points
    Just want to say hello and pleased we are back up and running .
  5. 4 points
    Hooray!! I've missed this place! Three cheers for everyone who worked to bring the site back to life!
  6. 3 points
    Hey...the gang's getting back together! Good to hear from everyone!
  7. 3 points
    It's much, much better on the foot front, Tammie...and very strange on the prosthesis side of things! My foot wound has totally healed and I was back up and walking again. Then........I was asked to be the BK "fit model" for a seminar by Otto Bock demonstrating how to cast and fit for the Harmony elevated-vacuum system. It was a fascinating experience, and I wound up with a test socket by the end of the day. I was thrilled! Then....well....we took the test socket from the seminar and set me up with a full trial leg. It's been a love/hate relationship ever since! I love, love, love the stability of the leg and the feeling of having a fully natural stride again. I HATE the fact that I'm getting a LOT of skin breakdown! The Otto Bock guys have been called in to advise on revisions, and they think the problem is in the liner, since I'm not a "clear" standard size. Next step is to try a custom liner and see if that will stop the leg from trying to eat me alive. In the meantime, I'm currently out of all prosthetic devices and back in the wheelchair until things heal up on the stump. I really and truly hope and pray that they'll be able to adjust things so that I can go on using this leg...even with it trying to eat me alive, there's a lot to love about this leg. Sooooo....wish me luck, gang!
  8. 3 points
    I hope your fittings go well...... I always loose patience with the time thing.......Ideally, it would fit right with the first try on....
  9. 3 points
    Ajax is too harsh. I use body soap when I take my shower.
  10. 3 points
    My heart goes out to every person on these forums who is struggling. I'm so thankful this forum exists, so we can all find help from people who understand. When I was doing my pre-surgery research back in 2003 (when the internet was pretty slim on information!) I could never find a book about an every day amputee, not the super athlete amputee, but a person who lived with a prosthetic in real life. Once I had my surgery, and it went well, I decided there needed to be a book out there for all of us who will never run in the Paralympics or climb a mountain. I'm a writer, by trade, so I dove in. My book, called "Just One Foot: How Amputation Cured My Disability." is now available, along with it's website, at justonefoot.com I'm trying my best to get a flier about the book (and some day a copy of the book) in every prosthetist office, and every orthopedic hospital waiting room. I want those considering this option to know they are not alone and that life can be very good afterward. Every time I get a tiny bit of proceeds from the book sales, I go buy postage, to send the word out to others who might need it. I hope to also speak to the orthopedic resident doctors at the med school here in Denver, to let them know that amputation doesn't always mean failure. Sometimes it can mean a better life...better than years of surgery and more crutches and pain pills. I hope to get a new generation of docs thinking in a new way - more about what is best for the patient, when a limb refuses to heal. Sometimes amputation means they can go on with their lives and be more active than they were before. I was so encouraged and supported by this forum when I was doing my research. I wanted you all to know it was very appreciated and that I'm trying to give back, by getting this 'everyday amputee' book out there. Thanks again!
  11. 3 points
    I know that I am probably posting this "out of the blue", but briefly, I have never have funds to walk well. This year I faced the daunting task of never walking again. That broke 3R60? Remember? Anyway, Ed Dean sent me a knee that was such a life saver at the beginning of this year.......and such a blessing...... This is my story....from after receiving my knee from Ed.....until my conniving CP and Ed put their heads together and turned my whole world upside down. Wednesday 25 July 2012 - A very special day in the life of an ordinary RAK amputee from Africa I think it was round about the middle of July maybe, when Marco (my legman) gave me a call and asked for a favour. He had a group of student prosthetists coming to his practice and he needed a body to use to show them how to build and fit a test socket. Test sockets. My favourite thing, sigh. But for Marco, anything. I'm normally quite good at self motivation.......stuff like, well, how bad can it be? I've done it a hundred times before. I'm not walking so badly on this 3R60 that Ed Dean sent me. In fact, I'm doing quite well considering that the knee is built for someone almost twice my weight. I'm lucky to be walking at all. There's a click in my foot, Marco can fix it for me. I need to get off this farm and see real people. I don't hate the fitting, and pinching, and tweaking, and donning, and "ow" here, and "ow" there. Marco standing behind me like a sergeant major yelling "walk walk!" Nah. Not so bad. Dawns the morning of Wednesday 25 July, and I am ready to go. Dressed as only a seasoned AK amp can be for a fitting. Girlie brooks, passion killer brooks, boy short brooks, short shorts, long shorts, and finally tracksuit pants. Yip, as ready as I am ever going to be. And I hie off to Pretoria, a goodly one-hour-and-a-bit drive. And I arrive in Pretoria, well on time (I'm usually late) and then I realise that I must have taken the wrong off-ramp. Every single street name is foreign. And when I say foreign, I mean foreign to a white South African chick. They are all black and ethnic names! No man. Names I can't even pronounce! I drive straight (which I always do when I am lost) and then pull over about 25 kilometres down the road to find out where I am, and what they've done with Marco's offramp. Is it even called Pretoria now? Maybe it's Tswane..... Ja, ja, I get the "oh didn't you know?", and the "but all the street names change all the time", and the "come back down for 25 kilometres and look for "January Maselela". Sigh - that is SO far removed from the original "General Louis Botha Drive" it's not even funny. So I'm late......but I get my coffee and walk into the rooms. Three people there, one with a camera (oh my hat, no man), and two with note pads (that I can handle). Yip, gonna be a long day. Marco smiles, thanks me for coming and introduces me to the three strange people in the room. And says "I have a confession to make....." I knew it! I just knew it! The b*gger told me that I wouldn't have to go through the whole plaster-of-paris rigmarole and now he is going to make me do it! Still smiling, he hands me a huge beautifully framed letter, and says "this is from Ed". I read most of it, get a bit teary......and hand it back to Marco. He has tons of beautiful letters and pictures up at his practice. He says "no, it's for you....to keep". Mine? Ah man....my heart. How precious is this? Marco says "by now you probably have guessed that these aren't students". Huh? Well no, the thought hadn't even crossed my mind. Then who the hell are they? These strange people, taking notes, smiling at me, sharing my private Ed and Ally and Marco moment? "They're from the media" says Marco. Oh. OH? Marco hands me a very familiar and deadly expensive box, a gift from Ed, he says. It's an Iceross Liner! A brand new Iceross Liner! I'm so confused, so very confused now. I manage to sputter out "but what size is it? How did Ed know?" Marco tells me that Ed asked him to buy it for me, a gift, from my Ed. I am properly finished. This is a hugely expensive piece of silicone. And the three strange people are smiling and taking notes and taking pictures, and I am cradling my liner like a brand new baby. And I am blessed. Then the journalists are asking questions. Tons of questions. Old questions that most people would find boring about my life. My accident, how did you cope, what was it like - nothing, I swear nothing in my life is this interesting that three journalists would take time to write down the complete normalcy of my every day existence. Then Marco says "Ed sent you one more thing" and hands me a tiny little box wrapped in pretty pink paper. Can I open it now? Yes, yes, and Marco is smiling and the strange people are smiling, and I am warm inside. So very warm because Ed has done so much for me already, and still he continues. I think my scream may have shattered Marco's glass doors. I think one of the strange people snapped his pencil in half. And I am screaming, and crying, and shaking my head "no no no". This cannot be. Marco is smiling and nodding, yes, yes it is. And then I am silent, tears falling down my cheeks. I am holding sixty thousand rand in my hands. I am holding my first brand new prosthetic knee. And it's hard to breathe, and it's harder to believe. And there is one more thing.......Marco says "are you ready to speak to Ed?" And he hands me the phone, and I speak with my Ed in person for the first time in all the years I have known him. I forget the conversation now, truely I do. I remember standing in the corner, trying to hide from the strange people, trying to say thank you, trying to not be so overwhelmed that I fall into a heap on the floor. And then we fit the knee. It is so pretty, so small, so light! And I am walking, and walking, and outside I am leaping in the air, and the strange people are laughing and taking pictures and I am queen of the universe. Queen of Pretoria, or Tswane.....who cares - today I am standing tall. And I am wrapped in a bubble of love and compassion and complete awe. The journalists leave, still smiling.....and the biggest black chap turns to me and says....."well, you have a good day. Oh hang on, never mind, you already are!" And I impulsively bear hug him which I guess isn't the most culturally correct thing to do in Africa, but I don't care because I am after all, a woman with a new knee. And I am blessed. Who knew that two most extraordinary people would take such time and care and effort, and conspire for nearly 5 months to make this awesome day a reality for me. And present it to me so beautifully and so lovingly. Lots of hugs, tears, laughter and kind words later, I am on my way home. Light as a feather. Smiling like a crazy woman at people in the traffic. Smiling at nothing and smiling at everything. Smiling and smiling and I just can't stop. My mind is ticking over, my head is going to explode.....I have so many special people to tell. I have so many special people that must read my letter from Ed. There is much to do. Much to do, my Ed, today, and for a long time to come. You are my golden, my PLU. You have blessed me in abundance. And I thank you from the bottom of my heart.
  12. 3 points
    OK...this is my "moderator" self speaking here, so forgive me if it sounds "odd" or even "cruel"...but I'm so glad that we have two new members looking at recovery from an HP! Not that I want either of you fellows to have to go through the operation and recovery...but it's so good that you'll have each other to share the process, work out coping strategies, appreciate accomplishments, advise each other on "what works" or "what doesn't"...and just be able to have someone to consult who is actually going through the same thing at the same time! When you're looking at such a severe operation, it's sometimes very hard to find someone who can fully relate to the situation. So take advantage of this, guys...it's a good thing!
  13. 3 points
    Ok, so if you laugh, you are NOT a bad person. This was taken 3 days after I received the most precious gift of a brand new 3R60 from Ed Dean. My one amputee pitbull is also somewhere in this vid, laughing (I hope), but probably thinking "what a chop"! PS : I am normally quite sane......yip, I am :) http://www.youtube.com/watch?v=0ievUE-fhLU&feature=plcp
  14. 2 points
    How amazing is this forum that, almost ten years ago I started this thread because I loved hearing other amputee's stories, and it's still here, almost a decade later? I just had to pop back in and say I'm no longer in Utah... have since lived in NY for five years, and now reside in Colorado. But I'm still an amputee (it didn't grow back!) and I'm thrilled that this thread is still going strong...30K posts later. Cheers to all the amputees out there, reaching out to help each other...for decades! Judy Berna (jberna, or judyb back in the day)
  15. 2 points
    I don't think there is anything wrong with using a wheelchair or a walker or crutches. I have all 3 and find that around my house, before I put my leg on in the morning and after I take it off at night, I mainly use the wheelchair. The walker is second for getting in and out of the shower and the crutches mostly stand by themselves in a corner. The reason for me is simple - function. The wheelchair is faster and safer and I can carry things when I use it. The walker is stable and I value that when showering. If I did a lot of walking without my leg on then crutches would be the better choice for speed and overall efficiency. It is all about mobility and what works for you.
  16. 2 points
    Cheryl, I hope this third test socket will be your last one, but even if it’s not, there’s nothing much to worry about I guess.Precise socket fit is essential but I’m sure you know how it works with all these modifications and tweaks till you get that ideal one.You seem to be a very seasoned and experienced person in this regard..... in other regard, well, I see you’re an enchantingly adorable and nice individual, in fact like many others here on this great site. As for this suction suspension system, I basiacally had a similar experience to yours. I was once fit with one and it felt damn good too at the beginning. Though again, I’m an AK and the whole system was a bit different as it wasn’t exactly a roll-on liner just being put into a rigid socket but a direct (flexible) contact suction socket ( also called a ‘dynamic suction socket’ I guess) being fit into a hard carbon supportive frame. The whole thing is based on the idea that it should be the most intimate fit possible between the human body and any mechanical ‘thing’. The limb then is in full contact with the socket wall with nothing in between whatsoever. I don’t think they use these direct sockets for below knee amputess. Like I said it felt great at the beginning but with the a couple of test sockets to go through, the longer I was on that system, the more I could feel it was not for me. One day the leg just fell off just in the middle of a crowded street. That was a real ‘bummer’, to say the least. Can you imagine a 6’2, 220-pound ugly-as-a-mud-fence guy starting to leap and tumble like crazy all of a sudden, trying to prevent himself from hitting the ground, almost like that Jackie Chan? I was on the Rheo knee then but it didn’t help much. I hit the ground like a sack of wet cement. After that I remember I even tried a couple of seal-ins with rings and stuff but apparently I didn’t feel it was any better alternative either. That was basically my last ‘fling’ with the suction any-system. That’s pretty much it. I’m sure it can work perfecrtly for some AKs and even for more BKs. I wasn’t the one. Then I switched to C-Leg and this old good pin-lock socket , like you’re saying.Oh yeah, ‘walk baby walk like no ever does’. I’ve been on the pin lock since then. It never fell off and it never will. Well, I mean it could but only together with the stump I guess. I categorically reject such ‘possibility’ though. Take care Cheryl, and thank you all good people for being here. Whenever I happen to lurk on this forum, I feel real good. I don’t know, it somehow feels like ‘home, just like that.
  17. 2 points
    Well thanks for the email. I thought this forum was gone for good! Glad to know you are back up and running! Freddy
  18. 2 points
    Hi Everyone, I'm in my second week using the Ossur Iceross 5 ring liner with a light sock under and in a new socket and so far so good! I had been plagued with scar breakdown, infection, yadaa, yadaa.... since Christmas. The last round kept me out of a leg for a month. I so wish my crutches were wood so I could burn at least one pair as a sign of freedom from the retched things. When the wounds were being so stubborn to heal my wound care person gave me a goop called "Medihoney". The stuff helped work off the dead tissue allowing the new stuff to form. It has worked great and helped me to avoid the Plastic Surgeon office that was next on my wound care person's suggestions. The stuff is a New Zealand product made in Canada. I'm going on line later to order a tube just in case the problem comes back. I'm off to the gym to further test the liner and socket. I also can show off my new socket colors. I went to a "smoke shop" type store were amongst other things they had a great collector of colorful tie dye shirts. Usually the resin coating mute’s colors bur in this case they popped. Bright yellow, vibrant pink blue and green are great. Happy colors and certainly no trying to hide what it is. Why should I. Like my glasses it is part of the package. Have a great day all. Jane
  19. 2 points
    Great to be back in the saddle again.
  20. 2 points
    Latest update....... It looks like the wound vac is coming off for good. There's been a fair amount of improvement in the wound. I can now hobble on my heel for 200 feet without resting (walker assisted). I've met all my PT and OT goals. I'm being cut back to every-other-day PT, OT, and dressing changes....... All of this is stuff I've been hoping and praying for...but it has me concerned. The fact that all my various services are being cut to every-other-day means that my insurance may well not continue to cover me to stay here...but the center of the wound is still so deep and raw that I'm really reluctant to be at home on my own just yet. I'm so nervous about one little "slip, slide, n' tear" on the ball of my foot ripping the small amount of tissue covering the bone and opening things up to infection that I'm quaking! Ideal situation: I'd get to stay here another week-or-thereabouts, the wound continues to heal more, and THEN I transfer home with something where one little slip won't "doom" me. At first they were talking about discharging me on Friday......but boy I'd feel better with a few more days of on-the-spot care! The last I heard, they were going to discuss it all again on Friday and then try to make a definite call on a discharge date. That's likely to mean I'm OK until Sunday...and, who knows, maybe that will be enough time for all my worries to resolve themselves. At any rate, it does look like "home for Thanksgiving" may be a distinct possibility and I'm glad of that!
  21. 2 points
    yep Marcia I think it is to do with all the gear, perhaps also less blood going around the system, less sweat glands etc., I've had my amps for over four decades and always felt the heat ... meno heat is different ....just an added bonus for us lady amps! lol
  22. 2 points
    Wonderful for you Ally, its good to know that there are some truly good people out there who go out of their way to help others. Reading your story also made me more appreciative of our NHS services over here in the UK, although we often moan about the services etc. etc., most/prob all of us get our prostheses provided in some shape or form, know I for one probably take this for granted much of the time, and have my share of moans about it, but do tend to forget that not everyone everywhere in the world gets a service such as this.
  23. 2 points
    Not only watching but attending. My daughter really wanted to go and my sister lives in London so... I was able to get tickets for the men's individual all around gymnastics finals, judo (lightweight) quarterfinals, beach volleyball qualifying and women's field hockey qualifying. Just got back last night. Had such a great time and all of the venues were beautiful. London has done a great job with transportation and directions. I understand a lot of people volunteered to work in these areas. I was kind of dreading all the crowds but it was really a very pleasant experience. I also am really pleased with all the interest in the ParaOlympics. Wish our schedules had allowed us to attend some of those events as well. Cheering for all the athletes.
  24. 2 points
    Well, it says a lot for us Brits that none of us has joined in this conversation yet! I love the Olympics too, and I live a mere half an hour from the stadium! (cant afford or get hold of a ticket, but that;s another story...) considering the UK is broke, I think we've done a fab job and I.m really pleased you all seem to think so too. I have been enjoying the Diving - the team GB pracrice in our town and when I was at the Gym the other day they all came down to the pool for a session. My daughter went to school with one of our cyclists (Emma Pooley) so we've been watching that too. The sailing has been fun as well
  25. 2 points
    I've adored the Olympics ever since I was a little kid...when I was just 5 years old, the Winter Olympics was held in Squaw Valley and my parents were avidly watching the coverage. When I asked them "why is there so much skiing on TV?" they told me about the Olympics and how "all the best athletes in the world have come right here to California to compete." That was it...I was enchanted, and I've been an Olympics junkie--winter and summer games, both--for the rest of my life! One of the great experiences of my life was getting to attend so many of the various competitions in 1984, when I was living smack dab in the middle of several of the venues for the L.A. Olympics! I think London's doing a great job of hosting...the lighting of the torch was, I think, more reflective of the true Olympic spirit than a lot of the "star-studded" torch lightings that we've had over the years. When all those copper petals, representing all of the competing countries and lit by those young "athletes of the future" rose up to form the torch cauldron, I literally dissolved in tears! Okay...I'm done emoting...now I'm just really watching all the competitions! Go, Olympians!!!
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