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Heather Mills - Amputee Forum

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Showing content with the highest reputation since 08/26/2012 in all areas

  1. 5 points
    Hi Everyone, Really sorry for the long delay in getting the forum back up and running but it should be back for good now with proper monthly updates. The reason for the forum being down for so long is the constant hacking of the forum that was causing huge issues for the server. As of now, we will be doing regular security patches and updates to keep it up and running. The first proper upgrade will be on Monday but it will only be down for around 30-60 minutes. If we need to run any other updates in future that will mean down time we'll give you all a few days notice right here. We'd just like to give a quick nod to Johnny V for his constant support and passion for the forum. It wouldn't be here without him. Many thanks again and thanks for your patience.
  2. 5 points
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  3. 4 points
    Nice to be back. Just received the e-mail
  4. 4 points
    Just want to say hello and pleased we are back up and running .
  5. 4 points
    Hooray!! I've missed this place! Three cheers for everyone who worked to bring the site back to life!
  6. 3 points
    Hey...the gang's getting back together! Good to hear from everyone!
  7. 3 points
    It's much, much better on the foot front, Tammie...and very strange on the prosthesis side of things! My foot wound has totally healed and I was back up and walking again. Then........I was asked to be the BK "fit model" for a seminar by Otto Bock demonstrating how to cast and fit for the Harmony elevated-vacuum system. It was a fascinating experience, and I wound up with a test socket by the end of the day. I was thrilled! Then....well....we took the test socket from the seminar and set me up with a full trial leg. It's been a love/hate relationship ever since! I love, love, love the stability of the leg and the feeling of having a fully natural stride again. I HATE the fact that I'm getting a LOT of skin breakdown! The Otto Bock guys have been called in to advise on revisions, and they think the problem is in the liner, since I'm not a "clear" standard size. Next step is to try a custom liner and see if that will stop the leg from trying to eat me alive. In the meantime, I'm currently out of all prosthetic devices and back in the wheelchair until things heal up on the stump. I really and truly hope and pray that they'll be able to adjust things so that I can go on using this leg...even with it trying to eat me alive, there's a lot to love about this leg. Sooooo....wish me luck, gang!
  8. 3 points
    I hope your fittings go well...... I always loose patience with the time thing.......Ideally, it would fit right with the first try on....
  9. 3 points
    Ajax is too harsh. I use body soap when I take my shower.
  10. 3 points
    My heart goes out to every person on these forums who is struggling. I'm so thankful this forum exists, so we can all find help from people who understand. When I was doing my pre-surgery research back in 2003 (when the internet was pretty slim on information!) I could never find a book about an every day amputee, not the super athlete amputee, but a person who lived with a prosthetic in real life. Once I had my surgery, and it went well, I decided there needed to be a book out there for all of us who will never run in the Paralympics or climb a mountain. I'm a writer, by trade, so I dove in. My book, called "Just One Foot: How Amputation Cured My Disability." is now available, along with it's website, at justonefoot.com I'm trying my best to get a flier about the book (and some day a copy of the book) in every prosthetist office, and every orthopedic hospital waiting room. I want those considering this option to know they are not alone and that life can be very good afterward. Every time I get a tiny bit of proceeds from the book sales, I go buy postage, to send the word out to others who might need it. I hope to also speak to the orthopedic resident doctors at the med school here in Denver, to let them know that amputation doesn't always mean failure. Sometimes it can mean a better life...better than years of surgery and more crutches and pain pills. I hope to get a new generation of docs thinking in a new way - more about what is best for the patient, when a limb refuses to heal. Sometimes amputation means they can go on with their lives and be more active than they were before. I was so encouraged and supported by this forum when I was doing my research. I wanted you all to know it was very appreciated and that I'm trying to give back, by getting this 'everyday amputee' book out there. Thanks again!
  11. 2 points
    Hi Mick, It really stinks to hear some people are so angry that some one else won't just sit on their backside and not try to regain their life. I guess that probably makes me naive to think common sense should prevail. Perhaps it is over simplifying but it is their loss and your gain Mick. And to anyone else who wants to do so - give it your all! What's to lose! Jane
  12. 2 points
    UPDATE TIME: I've been declared "technically healed" of the FFW!!!!!! That "technically" part is that the new skin is still very, very delicate...so Doc has requested that I spend another ten days in the wheelchair (but without a footrest), so that the new skin will have a chance to "toughen up" a bit before I start walking again. I can do that! On a related note, in the three weeks since my last appointment there has been a new, non-surgical, possibility that's popped up to try and take some stress off the FFW spot. I've been given some small, adhesive teflon-ish patches which, once I'm back in a regular shoe, I am supposed to stick onto my orthotics where my darling little sesamoid bones hit. The theory is that the sesamoids will slide harmlessly over the slick patch, so there will be no pulling on the skin...and therefore no FFW. It's an experiment, but if it works I should be able to walk without fear of breaking the skin. If it doesn't work, we're back to doing the pair of surgeries...so think good thoughts about small, adhesive, teflon-ish patches for me, gang! Hooray! I should be walking and driving again well before Thanksgiving this year!
  13. 2 points
    Yes, indeed...we can't let the Brits take all the credit for living in beautiful places! I've never gotten to see much of the east coast, Jane, so bring on the NH pics!
  14. 2 points
    Hi Everyone, I don't have any of Mick's photographic skiklllllllllllllllllllllllllllllllllll,jmnnnnnnnnnnnnnnnnnnnnnnnnnnnn...cat on the key board input.....any one relate? Going on.....I plan to be on my brothers sail boat off the the coast of NH (USA) seacoast and if I can find my camera charger perhaps I can add some, none as energetic, but, very nice photos from our shore. In our case "shore" is not plural. NH shore is yyyyyyyyyyyhvgffffffffffffffffffffffa (cat editorial input again ) very small 13 mile expanse. In case anyone asks, yes they have been fed, but if you ask them they will deny having food anytime in the last year or more. My teenagers must have coached them in this mindset. They give the same response no matter what the questions. Good thoughts to all! Jane
  15. 2 points
    I agree on the great pics, Mick...and I'm glad I checked out Bob's description of the trek, since I kept looking and looking at that photo of him sniffing at heaven-knows-what and thinking "bird? bunny? some kind of odd reptile in a pile of fur?" "Dead sheep's head" would never have crossed my mind, although it made perfect sense once I knew what it was!
  16. 2 points
    LOL Kate, perhaps he just doesn't want a new shower!! I have just been 'project managing' my first ever adaptations to our home to make part of it more wheelchair accessible, its been quite interesting working with different builders and firms trying to get what i wanted and more or less have succeeded in getting it how I needed and wanted it. It never ceases to amaze me what other people 'think' I need and don't realize that what might be helpful to some people with certain disabilities isn't always what is helpful to amputees. I did get in touch with an OT to start off with, because I thought we might be able to get a grant to help with costs (we couldn't), who insisted on checking out the rest of the home too, but I think they did realize I was quite clear on what I wanted done, but found really was only there as sort of admin to give advice on the process of possible grants not to really help on the building side of things, might be different with showers though. Cheryl ..... I too have been using a 'naked leg' this year and get stuff like that all the time, some interesting comments have come from other amps, like 'why is one socket longer than the other' and recently from someone else 'oh you haven't got a proper leg on'.
  17. 2 points
    Hi Friends Old and New! Been away for too long but had to share this with you all. When the hot weather comes I like many of you suffer from a sweaty stump, last week my chiropodist gave me a tip, been doing it ever since and it works no more sweaty stumps! He told me to try Witch hazel a natural product applied with a cotton pad, don't ask me ehy or how it works but it does may also help swelling and itching. http://en.wikipedia.org/wiki/Witch-hazel Take care all of you Neil x
  18. 2 points
    Nice to see all of you back.........
  19. 2 points
    Well thanks for the email. I thought this forum was gone for good! Glad to know you are back up and running! Freddy
  20. 2 points
    Yes, should have said...thanks to all who made it happen!!
  21. 2 points
    More appreciated than ever.
  22. 2 points
    Great to be back in the saddle again.
  23. 2 points
    yep Marcia I think it is to do with all the gear, perhaps also less blood going around the system, less sweat glands etc., I've had my amps for over four decades and always felt the heat ... meno heat is different ....just an added bonus for us lady amps! lol
  24. 2 points
    ATTENTION LADIES! You are invited to take part in our FIRST gathering of women (who happen to be amputees) in Florida! (and if you don't happen to live here but are visiting at the time, you are welcome to join us!!) Date: Saturday, October 6, 2012 Time: 10am-2pm Where: Prosthetic & Orthotic Associates (POA) 3160 Southgate Commerce Blvd., #38, Orlando, FL Organized by: Karen Hughes Dress: Casual/Comfortable This is a great opportunity for us to get together as members of our unique community for a day of fun, fellowship, and food for mind, body and spirit! After everyone has arrived and introductions have been made, Donna, a certified yoga instructor (who happens to be an above-knee amputee), will lead us in a session of adaptive yoga. After lunch we will have an open discussion of issues exclusive to women amputees - no subject will be off limits!! This event is open to ALL women in the amputee community with any level of limb loss and abilities. Please spread the word! The more, the merrier!!! Please RSVP to Karen at khughes@poacfl.com or call/text 407.721.3946 as soon as possible so I have a headcount for seating, lunch...and a few surprises. :-) http://www.poacfl.com
  25. 2 points
    What Ann says makes sense. Tell your legman you want to try different systems. If he is unwilling to do this, try another legman. It is your longterm comfort and health that is important here. He can make suggestions, but only you know what works best. I don't have a skin graft, but cannot wear the pin system because of the pulling on the end of the stump. I've never used the Harmony system, but have used a vacuum system. I liked the way it made the leg feel like it was really part of me, but I didn't like the way it kept it's tight fit while sitting. It all boils down to the fact that no one system is good for all of us. I've been using Ossur's Seal-in X5 liner for the past 4 years and love it. It has the convenience of a pin system without the pulling and yet the snug fit I like as in the vacuum without that tight fit of a vacuum. It works quite well for me.
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