Jump to content
Heather Mills - Amputee Forum

Leaderboard


Popular Content

Showing content with the highest reputation since 08/26/2012 in all areas

  1. 5 points
    Hi Everyone, Really sorry for the long delay in getting the forum back up and running but it should be back for good now with proper monthly updates. The reason for the forum being down for so long is the constant hacking of the forum that was causing huge issues for the server. As of now, we will be doing regular security patches and updates to keep it up and running. The first proper upgrade will be on Monday but it will only be down for around 30-60 minutes. If we need to run any other updates in future that will mean down time we'll give you all a few days notice right here. We'd just like to give a quick nod to Johnny V for his constant support and passion for the forum. It wouldn't be here without him. Many thanks again and thanks for your patience.
  2. 5 points
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  3. 4 points
    Nice to be back. Just received the e-mail
  4. 4 points
    Just want to say hello and pleased we are back up and running .
  5. 4 points
    Hooray!! I've missed this place! Three cheers for everyone who worked to bring the site back to life!
  6. 3 points
    Hey...the gang's getting back together! Good to hear from everyone!
  7. 3 points
    It's much, much better on the foot front, Tammie...and very strange on the prosthesis side of things! My foot wound has totally healed and I was back up and walking again. Then........I was asked to be the BK "fit model" for a seminar by Otto Bock demonstrating how to cast and fit for the Harmony elevated-vacuum system. It was a fascinating experience, and I wound up with a test socket by the end of the day. I was thrilled! Then....well....we took the test socket from the seminar and set me up with a full trial leg. It's been a love/hate relationship ever since! I love, love, love the stability of the leg and the feeling of having a fully natural stride again. I HATE the fact that I'm getting a LOT of skin breakdown! The Otto Bock guys have been called in to advise on revisions, and they think the problem is in the liner, since I'm not a "clear" standard size. Next step is to try a custom liner and see if that will stop the leg from trying to eat me alive. In the meantime, I'm currently out of all prosthetic devices and back in the wheelchair until things heal up on the stump. I really and truly hope and pray that they'll be able to adjust things so that I can go on using this leg...even with it trying to eat me alive, there's a lot to love about this leg. Sooooo....wish me luck, gang!
  8. 3 points
    I hope your fittings go well...... I always loose patience with the time thing.......Ideally, it would fit right with the first try on....
  9. 3 points
    Ajax is too harsh. I use body soap when I take my shower.
  10. 3 points
    My heart goes out to every person on these forums who is struggling. I'm so thankful this forum exists, so we can all find help from people who understand. When I was doing my pre-surgery research back in 2003 (when the internet was pretty slim on information!) I could never find a book about an every day amputee, not the super athlete amputee, but a person who lived with a prosthetic in real life. Once I had my surgery, and it went well, I decided there needed to be a book out there for all of us who will never run in the Paralympics or climb a mountain. I'm a writer, by trade, so I dove in. My book, called "Just One Foot: How Amputation Cured My Disability." is now available, along with it's website, at justonefoot.com I'm trying my best to get a flier about the book (and some day a copy of the book) in every prosthetist office, and every orthopedic hospital waiting room. I want those considering this option to know they are not alone and that life can be very good afterward. Every time I get a tiny bit of proceeds from the book sales, I go buy postage, to send the word out to others who might need it. I hope to also speak to the orthopedic resident doctors at the med school here in Denver, to let them know that amputation doesn't always mean failure. Sometimes it can mean a better life...better than years of surgery and more crutches and pain pills. I hope to get a new generation of docs thinking in a new way - more about what is best for the patient, when a limb refuses to heal. Sometimes amputation means they can go on with their lives and be more active than they were before. I was so encouraged and supported by this forum when I was doing my research. I wanted you all to know it was very appreciated and that I'm trying to give back, by getting this 'everyday amputee' book out there. Thanks again!
  11. 2 points
    How amazing is this forum that, almost ten years ago I started this thread because I loved hearing other amputee's stories, and it's still here, almost a decade later? I just had to pop back in and say I'm no longer in Utah... have since lived in NY for five years, and now reside in Colorado. But I'm still an amputee (it didn't grow back!) and I'm thrilled that this thread is still going strong...30K posts later. Cheers to all the amputees out there, reaching out to help each other...for decades! Judy Berna (jberna, or judyb back in the day)
  12. 2 points
    We wheelchair folks are not "inferior" to crutch users, Marcia...just "different." Seriously, though, it would be nice to be able to function on crutches as well as some of our members do!
  13. 2 points
    yes it is & we where very lucky with the weather . a short clip from today :- thanks mick
  14. 2 points
    Cheryl, I hope this third test socket will be your last one, but even if it’s not, there’s nothing much to worry about I guess.Precise socket fit is essential but I’m sure you know how it works with all these modifications and tweaks till you get that ideal one.You seem to be a very seasoned and experienced person in this regard..... in other regard, well, I see you’re an enchantingly adorable and nice individual, in fact like many others here on this great site. As for this suction suspension system, I basiacally had a similar experience to yours. I was once fit with one and it felt damn good too at the beginning. Though again, I’m an AK and the whole system was a bit different as it wasn’t exactly a roll-on liner just being put into a rigid socket but a direct (flexible) contact suction socket ( also called a ‘dynamic suction socket’ I guess) being fit into a hard carbon supportive frame. The whole thing is based on the idea that it should be the most intimate fit possible between the human body and any mechanical ‘thing’. The limb then is in full contact with the socket wall with nothing in between whatsoever. I don’t think they use these direct sockets for below knee amputess. Like I said it felt great at the beginning but with the a couple of test sockets to go through, the longer I was on that system, the more I could feel it was not for me. One day the leg just fell off just in the middle of a crowded street. That was a real ‘bummer’, to say the least. Can you imagine a 6’2, 220-pound ugly-as-a-mud-fence guy starting to leap and tumble like crazy all of a sudden, trying to prevent himself from hitting the ground, almost like that Jackie Chan? I was on the Rheo knee then but it didn’t help much. I hit the ground like a sack of wet cement. After that I remember I even tried a couple of seal-ins with rings and stuff but apparently I didn’t feel it was any better alternative either. That was basically my last ‘fling’ with the suction any-system. That’s pretty much it. I’m sure it can work perfecrtly for some AKs and even for more BKs. I wasn’t the one. Then I switched to C-Leg and this old good pin-lock socket , like you’re saying.Oh yeah, ‘walk baby walk like no ever does’. I’ve been on the pin lock since then. It never fell off and it never will. Well, I mean it could but only together with the stump I guess. I categorically reject such ‘possibility’ though. Take care Cheryl, and thank you all good people for being here. Whenever I happen to lurk on this forum, I feel real good. I don’t know, it somehow feels like ‘home, just like that.
  15. 2 points
    Nice to see all of you back.........
  16. 2 points
    Hi All.. I was very glad to get the email that this site was back up and running!! Thank you..
  17. 2 points
    Hi Everybody, here's one from across the pond, happy to have this forum back.
  18. 2 points
    Hi Again to All, Since the site was down for so long folks may not know it has resumed. Would it be appropriate to have a email notification sent to members on record? Could it logistically be done by those masterfull computer folks? Jane
  19. 2 points
    More appreciated than ever.
  20. 2 points
    Wow ... nice to be back again as missed everyone on this forum. Not a lot of news to report, leg-wise lots of ups and downs and still struggling with getting prosthetics that fit again, such is the system here, but am on the case again and fingers crossed.
  21. 2 points
    Latest update....... It looks like the wound vac is coming off for good. There's been a fair amount of improvement in the wound. I can now hobble on my heel for 200 feet without resting (walker assisted). I've met all my PT and OT goals. I'm being cut back to every-other-day PT, OT, and dressing changes....... All of this is stuff I've been hoping and praying for...but it has me concerned. The fact that all my various services are being cut to every-other-day means that my insurance may well not continue to cover me to stay here...but the center of the wound is still so deep and raw that I'm really reluctant to be at home on my own just yet. I'm so nervous about one little "slip, slide, n' tear" on the ball of my foot ripping the small amount of tissue covering the bone and opening things up to infection that I'm quaking! Ideal situation: I'd get to stay here another week-or-thereabouts, the wound continues to heal more, and THEN I transfer home with something where one little slip won't "doom" me. At first they were talking about discharging me on Friday......but boy I'd feel better with a few more days of on-the-spot care! The last I heard, they were going to discuss it all again on Friday and then try to make a definite call on a discharge date. That's likely to mean I'm OK until Sunday...and, who knows, maybe that will be enough time for all my worries to resolve themselves. At any rate, it does look like "home for Thanksgiving" may be a distinct possibility and I'm glad of that!
  22. 2 points
    OK...Everyone of a certain age, please sing along with me........ Oh It's another Saturday night, And I'm stuck here in Rehab, With a wound vac sucking on my foot............ Had a pretty good visit with my doctor yesterday...he's still not going to promise me that I'm completely out of the woods (there's still a small piece of bone that's very close to being fully exposed), but he's continued to be impressed with the healing and is starting to make noises that I may be able to head home with visiting nurse care much sooner than anticipated. (Hooray!) The trade-off? I have to promise (and then prove to all and sundry) that I am capable of hobbling gingerly about on my right heel for, possibly, another two-to-three months. I'm getting better at this, so I may have a chance! I'm a bit of a puzzlement to the rehab team...they deal mostly withstroke victims, broken bones, and new amputees, so one who's been at it for several years shakes up their usual routine. I can already do so many things that they have to train other patients to do (transfers, wheelchair protocol, self-care, awareness of my body, etc....) that sometimes we just run through a whole session of me doing my "tricks" and them checking me off. Then we go back to "Hobbling on my right heel" and I become as weak and fearful as any of the other little old folks here......very odd.... Anyway, progress continues to be made and I continue to hope!
  23. 2 points
    Just wanted to say how thankful I am for my wonderful prosthetist. Had a problem with my air valve - making a wierd, and fairly loud, noise. Called on Friday and he came in on Saturday morning to fix it. Took a couple of hours and a couple of tries but we got it fixed. By the way, he was leaving later that day for a week long vacation so it wasn't at all convenient for him. So grateful that he is such a caring provider and didn't minimize the importance of my concerns but insisted on taking the time to make it right for me. It is easy to get frustrated and complain about my leg, fit, comfort, etc., so I wanted to put out something positive for someone who went above and beyond for me.
  24. 2 points
    yep Marcia I think it is to do with all the gear, perhaps also less blood going around the system, less sweat glands etc., I've had my amps for over four decades and always felt the heat ... meno heat is different ....just an added bonus for us lady amps! lol
  25. 2 points
    ATTENTION LADIES! You are invited to take part in our FIRST gathering of women (who happen to be amputees) in Florida! (and if you don't happen to live here but are visiting at the time, you are welcome to join us!!) Date: Saturday, October 6, 2012 Time: 10am-2pm Where: Prosthetic & Orthotic Associates (POA) 3160 Southgate Commerce Blvd., #38, Orlando, FL Organized by: Karen Hughes Dress: Casual/Comfortable This is a great opportunity for us to get together as members of our unique community for a day of fun, fellowship, and food for mind, body and spirit! After everyone has arrived and introductions have been made, Donna, a certified yoga instructor (who happens to be an above-knee amputee), will lead us in a session of adaptive yoga. After lunch we will have an open discussion of issues exclusive to women amputees - no subject will be off limits!! This event is open to ALL women in the amputee community with any level of limb loss and abilities. Please spread the word! The more, the merrier!!! Please RSVP to Karen at khughes@poacfl.com or call/text 407.721.3946 as soon as possible so I have a headcount for seating, lunch...and a few surprises. :-) http://www.poacfl.com
×