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Heather Mills - Amputee Forum

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Showing content with the highest reputation since 10/13/2012 in all areas

  1. 5 points
    Hi Everyone, Really sorry for the long delay in getting the forum back up and running but it should be back for good now with proper monthly updates. The reason for the forum being down for so long is the constant hacking of the forum that was causing huge issues for the server. As of now, we will be doing regular security patches and updates to keep it up and running. The first proper upgrade will be on Monday but it will only be down for around 30-60 minutes. If we need to run any other updates in future that will mean down time we'll give you all a few days notice right here. We'd just like to give a quick nod to Johnny V for his constant support and passion for the forum. It wouldn't be here without him. Many thanks again and thanks for your patience.
  2. 5 points
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  3. 4 points
    Nice to be back. Just received the e-mail
  4. 4 points
    Just want to say hello and pleased we are back up and running .
  5. 4 points
    Hooray!! I've missed this place! Three cheers for everyone who worked to bring the site back to life!
  6. 3 points
    Hi there Mike and welcome to our little corner of the world. For those of us in the USA, we're just coming off a long holiday weekend, so that might account for the lack of replies on this end...don't know what's got our Brits distracted, but I'm sure you'll start getting some responses soon. I'm an elective left below-knee amp myself. Have been for almost nine years, now...suffered a bad break in my left foot that kept breaking down every time they thought they'd gotten a repair and good healing. Yeah, the pain was not fun, and eventually the foot broke down one time too many and I developed a MRSA infection. After that got cleared up, I was offered a choice kind of like yours: re-try the longest-lasting of the previous repair attempts and keep me in a cast for many, many more months than what is considered "usual," or do the LBK amputation. It took me only about an hour to decide that I needed to lose my foot in order to reclaim my life. For what it's worth, I've never regretted that decision. It sounds to me like having a plastic surgeon involved might be a good thing, considering the extent of your previous injuries. My own amp was done by an Ortho, but I didn't have major issues at the site of my surgery. I've heard good things about Plastics and creating a limb that will be good for walking with a prosthesis. Do try to educate your self as much as possible about what you're going to be facing. Don't be afraid to ask questions of your doctors, ask to meet with a prosthetist, and, if at all possible, see if you can meet some other BK amps...just seeing how others get about and being able to get their input on "how to get on with life" can be a tremendous reassurance. And post any questions that come up here as well...when you're facing such a drastic change in your life, there is absolutely no such thing as a "stupid question." You're young and you deserve to be able to be active and enjoy your kids...and for your "basic BK amp," that's a real, attainable goal. Hang in there...you'll manage it!
  7. 3 points
    Hey...the gang's getting back together! Good to hear from everyone!
  8. 3 points
    It's much, much better on the foot front, Tammie...and very strange on the prosthesis side of things! My foot wound has totally healed and I was back up and walking again. Then........I was asked to be the BK "fit model" for a seminar by Otto Bock demonstrating how to cast and fit for the Harmony elevated-vacuum system. It was a fascinating experience, and I wound up with a test socket by the end of the day. I was thrilled! Then....well....we took the test socket from the seminar and set me up with a full trial leg. It's been a love/hate relationship ever since! I love, love, love the stability of the leg and the feeling of having a fully natural stride again. I HATE the fact that I'm getting a LOT of skin breakdown! The Otto Bock guys have been called in to advise on revisions, and they think the problem is in the liner, since I'm not a "clear" standard size. Next step is to try a custom liner and see if that will stop the leg from trying to eat me alive. In the meantime, I'm currently out of all prosthetic devices and back in the wheelchair until things heal up on the stump. I really and truly hope and pray that they'll be able to adjust things so that I can go on using this leg...even with it trying to eat me alive, there's a lot to love about this leg. Sooooo....wish me luck, gang!
  9. 3 points
    I hope your fittings go well...... I always loose patience with the time thing.......Ideally, it would fit right with the first try on....
  10. 3 points
    Ajax is too harsh. I use body soap when I take my shower.
  11. 2 points
    Hi Mick, It really stinks to hear some people are so angry that some one else won't just sit on their backside and not try to regain their life. I guess that probably makes me naive to think common sense should prevail. Perhaps it is over simplifying but it is their loss and your gain Mick. And to anyone else who wants to do so - give it your all! What's to lose! Jane
  12. 2 points
    UPDATE TIME: I've been declared "technically healed" of the FFW!!!!!! That "technically" part is that the new skin is still very, very delicate...so Doc has requested that I spend another ten days in the wheelchair (but without a footrest), so that the new skin will have a chance to "toughen up" a bit before I start walking again. I can do that! On a related note, in the three weeks since my last appointment there has been a new, non-surgical, possibility that's popped up to try and take some stress off the FFW spot. I've been given some small, adhesive teflon-ish patches which, once I'm back in a regular shoe, I am supposed to stick onto my orthotics where my darling little sesamoid bones hit. The theory is that the sesamoids will slide harmlessly over the slick patch, so there will be no pulling on the skin...and therefore no FFW. It's an experiment, but if it works I should be able to walk without fear of breaking the skin. If it doesn't work, we're back to doing the pair of surgeries...so think good thoughts about small, adhesive, teflon-ish patches for me, gang! Hooray! I should be walking and driving again well before Thanksgiving this year!
  13. 2 points
    Yes, indeed...we can't let the Brits take all the credit for living in beautiful places! I've never gotten to see much of the east coast, Jane, so bring on the NH pics!
  14. 2 points
    Thanks, Ann! Yeah, my choral group has just started working on material for both a Veteran's Day performance for the city and our annual holiday concert. Last year my nasty little sore kept me hospitalized for all of Fall and Winter...I think I was discharged just two days before Christmas. This year, the FFW is much smaller and not infected, so I'm able to be at home...and since our rehearsal hall is right next door to my apartment building, I've even made it to rehearsals! (I'm just really hoping that any foot surgery that comes up can be scheduled around performances .) I did a dressing change today, and I think the sore is getting better.........let's hope I'm right!
  15. 2 points
    I agree on the great pics, Mick...and I'm glad I checked out Bob's description of the trek, since I kept looking and looking at that photo of him sniffing at heaven-knows-what and thinking "bird? bunny? some kind of odd reptile in a pile of fur?" "Dead sheep's head" would never have crossed my mind, although it made perfect sense once I knew what it was!
  16. 2 points
    LOL Kate, perhaps he just doesn't want a new shower!! I have just been 'project managing' my first ever adaptations to our home to make part of it more wheelchair accessible, its been quite interesting working with different builders and firms trying to get what i wanted and more or less have succeeded in getting it how I needed and wanted it. It never ceases to amaze me what other people 'think' I need and don't realize that what might be helpful to some people with certain disabilities isn't always what is helpful to amputees. I did get in touch with an OT to start off with, because I thought we might be able to get a grant to help with costs (we couldn't), who insisted on checking out the rest of the home too, but I think they did realize I was quite clear on what I wanted done, but found really was only there as sort of admin to give advice on the process of possible grants not to really help on the building side of things, might be different with showers though. Cheryl ..... I too have been using a 'naked leg' this year and get stuff like that all the time, some interesting comments have come from other amps, like 'why is one socket longer than the other' and recently from someone else 'oh you haven't got a proper leg on'.
  17. 2 points
    We wheelchair folks are not "inferior" to crutch users, Marcia...just "different." Seriously, though, it would be nice to be able to function on crutches as well as some of our members do!
  18. 2 points
    yes it is & we where very lucky with the weather . a short clip from today :- thanks mick
  19. 2 points
    Nice to see all of you back.........
  20. 2 points
    Hi All.. I was very glad to get the email that this site was back up and running!! Thank you..
  21. 2 points
    Hi Everybody, here's one from across the pond, happy to have this forum back.
  22. 2 points
    Hi Everyone, I'm in my second week using the Ossur Iceross 5 ring liner with a light sock under and in a new socket and so far so good! I had been plagued with scar breakdown, infection, yadaa, yadaa.... since Christmas. The last round kept me out of a leg for a month. I so wish my crutches were wood so I could burn at least one pair as a sign of freedom from the retched things. When the wounds were being so stubborn to heal my wound care person gave me a goop called "Medihoney". The stuff helped work off the dead tissue allowing the new stuff to form. It has worked great and helped me to avoid the Plastic Surgeon office that was next on my wound care person's suggestions. The stuff is a New Zealand product made in Canada. I'm going on line later to order a tube just in case the problem comes back. I'm off to the gym to further test the liner and socket. I also can show off my new socket colors. I went to a "smoke shop" type store were amongst other things they had a great collector of colorful tie dye shirts. Usually the resin coating mute’s colors bur in this case they popped. Bright yellow, vibrant pink blue and green are great. Happy colors and certainly no trying to hide what it is. Why should I. Like my glasses it is part of the package. Have a great day all. Jane
  23. 2 points
    Wow ... nice to be back again as missed everyone on this forum. Not a lot of news to report, leg-wise lots of ups and downs and still struggling with getting prosthetics that fit again, such is the system here, but am on the case again and fingers crossed.
  24. 2 points
    OK...Everyone of a certain age, please sing along with me........ Oh It's another Saturday night, And I'm stuck here in Rehab, With a wound vac sucking on my foot............ Had a pretty good visit with my doctor yesterday...he's still not going to promise me that I'm completely out of the woods (there's still a small piece of bone that's very close to being fully exposed), but he's continued to be impressed with the healing and is starting to make noises that I may be able to head home with visiting nurse care much sooner than anticipated. (Hooray!) The trade-off? I have to promise (and then prove to all and sundry) that I am capable of hobbling gingerly about on my right heel for, possibly, another two-to-three months. I'm getting better at this, so I may have a chance! I'm a bit of a puzzlement to the rehab team...they deal mostly withstroke victims, broken bones, and new amputees, so one who's been at it for several years shakes up their usual routine. I can already do so many things that they have to train other patients to do (transfers, wheelchair protocol, self-care, awareness of my body, etc....) that sometimes we just run through a whole session of me doing my "tricks" and them checking me off. Then we go back to "Hobbling on my right heel" and I become as weak and fearful as any of the other little old folks here......very odd.... Anyway, progress continues to be made and I continue to hope!
  25. 2 points
    What Ann says makes sense. Tell your legman you want to try different systems. If he is unwilling to do this, try another legman. It is your longterm comfort and health that is important here. He can make suggestions, but only you know what works best. I don't have a skin graft, but cannot wear the pin system because of the pulling on the end of the stump. I've never used the Harmony system, but have used a vacuum system. I liked the way it made the leg feel like it was really part of me, but I didn't like the way it kept it's tight fit while sitting. It all boils down to the fact that no one system is good for all of us. I've been using Ossur's Seal-in X5 liner for the past 4 years and love it. It has the convenience of a pin system without the pulling and yet the snug fit I like as in the vacuum without that tight fit of a vacuum. It works quite well for me.
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