1 pointHi Mike, I am in Uk. I had 30 operations to try to save my leg...including wearing a full leg Ilazirov frame for 18 months, turning the bolts every 4 hours.....it was a nightmare! I opted for above knee amputation after the fusions failed. I had my amputation 8 years ago, I ended up having 6 further surgeries after amputation because of other issues. I too had closed compartment syndrome, I did not have the information that you have, from the consultants you have seen, ie muscle salvage etc. it seems clear to me that your amputation is not a straight forward one. I think that if you decide to go ahead with it you must accept that it is not going to be an easy process, you probably won't have you amputation, heal, get fitted with leg and walk within the normal time period, ie a few months. Your journey is going to be a hard one. Sounds like you have decided already. I guess I just want to wish you and your family the best possible outcome for you, it will be a hard journey for you all. If you are aware of that initially it may help. I remember having such high expectations, get rid of leg, get rid of pain, more mobile. I looked at active above knee amps and thought that would be me after my amputation. I was wrong, lots more surgeries, failed leg fittings, spending thousands trying to get fitted. Now having to accept that although after 8 years I have a leg I can wear, I can only wear it for short periods of time, I can't walk without crutches. I am not being negative, just stating my facts. I really do hope that your amputation improves things for you, just be realistic about your personal situation and complications and make sure you have the right people on board both medically and personally. The very best if luck to you. I would not wish an Ilazirov frame on anyone so, either way you would have a hard journey ahead of you. I don't frequent this site often these days but just wanted to reply as my situation is so similar to yours except that I am above knee amp. Keep us up to date with your progress. Good luck.
1 pointHi there Mike and welcome to our little corner of the world. For those of us in the USA, we're just coming off a long holiday weekend, so that might account for the lack of replies on this end...don't know what's got our Brits distracted, but I'm sure you'll start getting some responses soon. I'm an elective left below-knee amp myself. Have been for almost nine years, now...suffered a bad break in my left foot that kept breaking down every time they thought they'd gotten a repair and good healing. Yeah, the pain was not fun, and eventually the foot broke down one time too many and I developed a MRSA infection. After that got cleared up, I was offered a choice kind of like yours: re-try the longest-lasting of the previous repair attempts and keep me in a cast for many, many more months than what is considered "usual," or do the LBK amputation. It took me only about an hour to decide that I needed to lose my foot in order to reclaim my life. For what it's worth, I've never regretted that decision. It sounds to me like having a plastic surgeon involved might be a good thing, considering the extent of your previous injuries. My own amp was done by an Ortho, but I didn't have major issues at the site of my surgery. I've heard good things about Plastics and creating a limb that will be good for walking with a prosthesis. Do try to educate your self as much as possible about what you're going to be facing. Don't be afraid to ask questions of your doctors, ask to meet with a prosthetist, and, if at all possible, see if you can meet some other BK amps...just seeing how others get about and being able to get their input on "how to get on with life" can be a tremendous reassurance. And post any questions that come up here as well...when you're facing such a drastic change in your life, there is absolutely no such thing as a "stupid question." You're young and you deserve to be able to be active and enjoy your kids...and for your "basic BK amp," that's a real, attainable goal. Hang in there...you'll manage it!