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  1. 4 points
    I to would like to wish every one a happy Christmas and a healthy new year , but most of all I would like to thank the mods and the few regular posters that still take the time to read and reply to anyone who posts on here , without them this forum would slowly disappear into cyberspace or where ever they go , I know face book seems to be taking over but being of the older generation I am not really happy over there............. so once again big thanks all and have a great Christmas Take care all …….Mick
  2. 3 points
    I hesitate to say this, because it's going to both frustrate you and sound like a "cop out," but the "best prosthetist" is the one who can fit you properly...it can change radically from person to person. Now, that said, there are some questions you can ask and some research you can do to try and improve your chances of meeting up with that "best prosthetist." When you're meeting a prospective prosthetist, have you asked them about their education and experience? They really should be a certified prosthetist, they should be doing continuing education to keep up to date with current developments in the industry, and they should have a significant amount of experience successfully fitting people like you — same type and level of amp, similar activity levels, same physical condition, etc... They should also be willing to explain what, how, and why they are doing what they're doing in the construction of your leg and how it will benefit you. For example, they should be ready and willing to tell you why they are "reluctant" to put you into anything other than a pin-lock system. (It could be as simple as the fact that a pin-lock is extremely unlikely to fall off under high activity...or you could still be shrinking, odd as that would be after four years, and a pin-lock is more forgiving with a changing limb. What ever it is, you should be able to get an explanation that makes sense to you.) If you've done all of that and it still seems like they are being forthright with you, then you may have to look at how you are approaching your fittings. Can you explain to them, clearly and in great detail, exactly how your prosthesis is painful and under what circumstances it hurts? Can you point out the painful spots? Does it hurt constantly, or only when doing a certain activity? Does it hurt when you sit? When you're standing still? Only if you're walking up or down an incline? When you're biking? The more specific and "picky" you can be, they more clues you provide for them to try and fix the issue. I once got really fed up with going to prosthesis fittings (I was still shrinking rapidly and I was going through a LOT of fittings), along with a number of other issues, and I just basically gave up and sat like a bump on a log with a sort of "YOU'RE the professional...YOU make it work for me" attitude. The result was the worst-fitting leg I've ever had. After several more visits attempting to "fix" the leg, again with next-to-no input from me, the technician got frustrated enough to demand, "What's UP with you, anyway? WHY aren't you talking to me?" And once I did start talking, we were able to work out a fix for the leg. That "two hours on/two hours off" break-in routine actually is a good idea if the socket construction is truly radically different from your past legs...the "crappy used foot" sounds like it's just a lousy (and I hope a temporary) compromise...could the foot be part of the pain issue? If you can even "practice" explaining your pain situation to us here, perhaps someone will have either a solution or be able to suggest ways to better communicate the situation. Do hang in there...you deserve to have a leg that can stand up to your activity level!
  3. 3 points
    I don't know about anyone else, {BUT} I just love Christmas., all the decorations, cantatas, food and of course we can't forget the Drink. But just look into the kids eyes {sparkle & dancing} why even the adults are acting much more civilized. There is actually love in the air {sometime}. Just want to wish each and everyone of you the most blessed & healthy Christmas & New Year you have ever had. ann
  4. 3 points
    Let's see...I'm upright, I'm walking, I have a lovely prosthesis that fits like a dream, and I have a ticket for what sounds like it's going to be a lovely and rather elegant New Year's Eve gathering..........May 2014 continue in this vein for all of us! Happy New Year, gang!
  5. 2 points
    Hi Marian, I am not an arm amputee but a RBK. I thought you and your daughter might find the following you tube channel a useful and inspirational resource: Tisha Unarmed - on You Tube. Tisha is a 26 year old women who was born without arms and her right leg shorter than the left. Tisha has posted 52 different videos on her you tube channel demonstrating how she does everyday tasks with her feet including: Going shopping/Cooking Taking care of her dog Doing her laundry & other tasks Painting her toenails/Putting make up on Many more topics included on her channel documenting her active/independent lifestyle Kind regards, Sara
  6. 2 points
    It is normal that an initial socket (when you first became an amputee) and a socket made after you've been an amputee for 4 years and your limb has stabilized to look completely different. As your limb atrophies and shrinks the shape changes from round to more angular and the socket usually looks more triangular inside as well as having contours specific to your limb. It should not hurt as it is made to fit you exactly. If your pain is point specific then the socket needs to be modified at that spot. If the pain is in the entire limb and excruciating after about 30-45 minutes it is possible that it is pressing on the popliteal artery behind your knee and cutting off the blood supply to your limb. That usually means that the distance from the front to back of your socket is too short. A socket for an active person is made to fit snugly but it doesn't take much to make it too snug. Cheryl is right that you have to really be able to describe what you are feeling for a prosthetist to be able to fix it. I am also a physical therapist and 2 hours on and 2 hours off is typical for breaking in a new brace or leg but if you're not tolerating it significantly better after a couple of days then there is a problem and the socket needs to be modified or re-made. Don't sign anything until your leg is wearable.
  7. 2 points
    http://www.change.org/en-GB/petitions/david-cameron-to-make-all-microprocessor-controlled-knees-available-on-the-nhs?share_id=pHngwpjvjh&utm_campaign=share_button_mobile&utm_medium=facebook&utm_source=share_petition
  8. 2 points
    Hi everyone!!! A big part of me thinks some animals have it right when they hibernate over the winter - but then we'd miss out on all the holiday fun Sorry I haven't really posted on here, been one of those years since the forum 're-launched' itself. Currently out of work and having no joy trying to find employment - which means I can't blame lack of time for not contributing! Due to have my third grandchild in the next 2 or 3 weeks, so if I disappear for a while, I will return! All the best everyone, and may 2014 be as good as it can for you all.
  9. 2 points
    Wishing you all a very happy New Year and best wishes for the year to come. Thanks to the Heather Mills moderators and other 'workers' in the back rooms of cyberspace who continue to keep the website up, running and safe.
  10. 2 points
    AGREE!!!! A very happy future to all & may this YEAR be the best.
  11. 2 points
    HEAR HEAR TO ALL THOSE GOOD WISHES. May it be a happy and healthy 2014. I am now getting geared up for New Year celebrations - as an expat Scot living in London, we have to lead the way so, folks I shall be sort of dancing the night away come next Tuesday. A VERY HAPPY FUTURE TO ALL AND MAY THIS YEAR BE THE BEST YET!
  12. 2 points
    Well , the turkeys been eaten , the last cracker pulled and we're onto the Stilton and Port so all that's left to do today is to wish all of you a very Merry Christmas and here's hoping for a healthy and Happy New Year to come!!
  13. 2 points
    Thank you all for the comments , it wasn’t meant to be anything special photo wise just a sort of dairy of where I walked this year , something to look back on when I am having one of those bad spells that we all get now and then .
  14. 2 points
    Okay...one final update, plus some info on the "teflon-ish" patches. I saw the doctor today and he was very, very pleased with the way things are holding up! On several occasions, he's pulled in all the various podiatry residents to show off and discuss my FFWs, and he did so again today. After letting everyone take a look at the former site of the latest FFW, he informed us all that my right foot is currently "the best he's ever seen it." My former callus has settled into just nice, flat, durable skin, and the patch looks like it's going to work. (Hooray!!) After the little celebration in the exam room, I asked for more info about the little blue teflon-ish thing hanging out in my right shoe. So here goes........... It's called a "PTFE patch." It's a strong, tough, waxy, nonflammable synthetic resin produced by the polymerization of tetrafluoroethylene. It actually is a variety of teflon, and it's manufactured to fill in microscopic spaces. The PTFE part of this patch is commonly available at just about any home improvement center...where it's known as PLUMBERS' TAPE. Yeah...you fasten plumbers' tape to an adhesive paper backing and you get the thing that saved my right foot. (Good grief! ) Doc says that it's becoming popular in podiatry circles and orthotics manufactuing. He's never heard of it being used in a prosthesis, but those prosthetists who also build/fit orthotics are most likely aware of the PTFE patch...if you have a "sticking problem" that leads to skin shear injuries, you might want to talk to your prosthetist about giving it a try. So that's the story of the 2013 FFW. May it never recur again!
  15. 1 point
    I was looking through on your website and came across your contact info. I read that because of so many letter's and short staff that not all letter's would be read. But I decided to go a head and write a letter to you anyways, and it would be self healing for myself since my amputation was so tramatic. I was so surprised when I received an email and a phone call from one of your people. I never thought this would happen. It was very heart warming to know that someone does care about the pain I am living everyday. For the first time in almost 3 years I feel that there is hope for me and that I might be able to get my life back again!! It's been a very difficult few years for me, but I now have hope!! Thank you so much for everything you do for people, and for your website because without it I wouldn't have learned the things I have or to have been able to talk to people, even becoming friends with some. It is very much appreciated! Mary Farquhar
  16. 1 point
    Thank you Johnny! We will definitely check out that organization. It's been a struggle to find other arm amputees similar in age to Lauren, let alone someone with the same level of her amputations. This weekend went surprisingly well. We had a family wedding over the weekend. Originally we didn't think Lauren would want to go, seeing as it was so soon after her accident, but surprisingly, she told us 2 weeks ago that she absolutely wanted to attend. I was absolutely surprised, but in the best way possible - My daughter wasn't going to let amputations stand in the way of having a good time and being with family! Needless to say, the entire family (including my niece, the bride) was overjoyed that Lauren was able to attend. Lauren definitely did well up and cry a bit as we were getting her dressed and when she looked in the mirror, but we were able to pep her up and she got over it. Arms or no arms, she looked absolutely beautiful! I will try to figure out how to post a picture. She did surprisingly well at the wedding, which I know was so tough because there were so many people there who hadn't seen her since she had her amputations. Many of our relatives told me that they couldn't believe how well she seems to be doing. She stayed with us most of the night, and we fed her and took care of her. I know she would have rather been out there on the dance floor, but that will come with time. Overall, I couldn't be more pleased at how it all shook out! Best, Marion
  17. 1 point
    Thank you Kitkat - sound advice as always. At least I know I'm on the right track - I'm using bits and bobs like long-arm reachers etc. to help with dressing and undressing and I'm scouring the internet for other useful gizmos. I do find though that in theory the gadgets are a fab idea but in reality they never quite live up to the expectation. I think you may also be right about needing to go to a rehab centre .I know my family are more than happy to help, but I am going to be so incapacitated for a while I just want to be as prepared as possible beforehand!
  18. 1 point
    I'm just crazy busy at work this month...... Our office is one of them doing the Affordable Care Act applications...... Plus, remember I now work for a Center for Independent Living..... They can keep you mighty busy........ but, I love it.....
  19. 1 point
    Well its coming to that time of the year again when I sit back and think about how it all went walking wise or should I say leg wise. Once again despite another year going past, I still havent got to that stage where I just put my leg on and take it as normal, I am beginning to think that I never will, pre haps its all in the mind I really dont know, all I know is that I still dread that first initial donning of the leg first thing in the morning and that all important first weight bearing step, will it hurt or is it going to be ok? Fortunately the vast amount of times it fine but there is still that moment of dread where my heart beats that little bit faster and I get that cold sweaty feeling even for a micro second . Maybe thing will change next year who know ..I hope so Its been (as normal) a bit of a mixed year with a few success stories, the main highlight being walking Hadrians wall with a group of fellow amputees and some mega hard boggy walks in the Cheviots, but I have a lot of down time as well mainly due to either my stump playing up or arty leg breaking down and a huge amount of time waiting for the NHS to fix it ,& the really hot weather we had during the summer didnt help neither , with all the sweating which literally caused the leg to drop off. Still cant complain (well I could but it would change anything) Sadly I didnt get any walking done across the Lake District this year and my long suffering walking buddy Yvonnes circumstances have changed & she has moved on in her new life and I wish her nothing but the best. But it means I will have to find a new walking buddy .not as easy as it sounds , I am happy out there on my own but I think my wife is starting to worry about me when I disappear into the hills on my own On the good side I am now the very proud owner of three young JackAwawa (spelling?) pups , who turned out to be a life saver for me in the hot summer months when I could hardly walk at all , between them they have helped me keep moving when I would have given up and spent the day sitting on my arse . And even if I say this myself it is nice to have a bit of company when I am out in the hills someplace even if they do as they want rather than do as I want but its early days yet and I am confident that with a bit more training we will all get our act together . The Future:- I dont have any real planes for the coming year walking wise, other than to get out as much as possible ,there are a few things I would like to see but nothing that cant wait I would also like to be able to get away a lot more in our little van for some extended long weekends parking up in remote but lovley parts of the country and seeing / doing stuff that wouldnt be possible on a normal day trip , if I find a walking buddy I would love to spend a few more days across the Lakes ,but I will have to wait and see on that . I would really really like to have a holiday back up in Skye , but my better half wont even hear of it after the bad weather we had last time , I was hoping that she would have forgotten about that by now , but even the smallest mention of Skye and she goes into rant mode. Sooooooooo I will put that on hold for a while as well. Anyway thats enough for this year and now a moving photo thingy showing one photo from each walk done this year enjoy :-
  20. 1 point
    I'm sure none of you are on the naughty list, so enjoy a very Merry Christmas.
  21. 1 point
    I kind of get the same reaction that you describe from new liners, Kate. If I get them, wash them very very well a couple of times with a little extra soap, then I'm ok. If I don't I will end up almost blistered from them each and every time. It has to do with what they have in them for moisturizing that does it. They are supposed to be aloe embedded, but I use straight aloe when I am very dry. What ever it is, if I don't follow that rule, then I will have a red rash that will itch so bad it blisters. Then, I have to use a Benadryl get to get every thing calmed down again. The gel lotion allows thing to calm down and heal without really itching much. It doesn't hurt the liner either. (Better than swallowing more pills) The Benadryl gel is over where the calamine lotions are. That and poison ivy itch relief. Hope something helps..
  22. 1 point
    Hi Kate, Sorry to read about your problems, I don’t know if this will be of any use but I tend to clean mine with whatever soap, shower gel that is lying around and in easy reach (I know I’m lazy) I have only ever once started to develop a rash and that was when the liner started to “break down” on the inside …….instead of being nice and smooth it went sort of rough and bitty, my limb centre changed it (almost straight away and sent it back for “tests” ) never did find out what went wrong but as soon as I got a new one on my rash cleared up straight away …..Pre haps I got a bad one who knows? Or just a guess here, could it be with the colder weather you are dressing a bit more warmly and your stump could be sweating that little bit more without you knowing it Hope you get it sorted & take care ……………Mick
  23. 1 point
    A couple of other thoughts. Are you using any lotions and/or doing hair removal?
  24. 1 point
    Hi there, I am myself a hip disartic and live in Australia. I have done quite a lot of searching for information in relation to legs. I have a young prosthetist who is willing to try different things. I have had one leg which did not work so well for me as it did not have padding in places where I needed it. I visited a prothetist in the US who works with Iraqi vet who have lost limbs and he uses body armor pants with gel bonded inside to give greater comfort. I know a couple of other disartic men who don't have those kinds of issues but they have been amp for many many years! I need comfort. I will get the leg on 5th Nov and am happy to send photos. My prothetist will be happy to share what he is doing. It has been a learning eperience for him! We use a socket that hugs your buttock and hooks over your hip bone. It does not go over to the other side as the old ones used to. He either used a velcor belt system or a ratchet (like the kind you get on a skate boot). I like the ratchet as once tight it does not move. Ask me questions and I will see if I can help. Good luck Linda .
  25. 1 point
    I met an AKA the other day at my rehab centre, he told me that the DWP had re-assessed him and told him he nolonger qualified for DLA. Unfortunately I could not question him further as I had been called away by my physio. Sparky
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