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Showing content with the highest reputation since 12/09/2013 in all areas

  1. 4 points
    I to would like to wish every one a happy Christmas and a healthy new year , but most of all I would like to thank the mods and the few regular posters that still take the time to read and reply to anyone who posts on here , without them this forum would slowly disappear into cyberspace or where ever they go , I know face book seems to be taking over but being of the older generation I am not really happy over there............. so once again big thanks all and have a great Christmas Take care all …….Mick
  2. 3 points
    I hesitate to say this, because it's going to both frustrate you and sound like a "cop out," but the "best prosthetist" is the one who can fit you properly...it can change radically from person to person. Now, that said, there are some questions you can ask and some research you can do to try and improve your chances of meeting up with that "best prosthetist." When you're meeting a prospective prosthetist, have you asked them about their education and experience? They really should be a certified prosthetist, they should be doing continuing education to keep up to date with current developments in the industry, and they should have a significant amount of experience successfully fitting people like you — same type and level of amp, similar activity levels, same physical condition, etc... They should also be willing to explain what, how, and why they are doing what they're doing in the construction of your leg and how it will benefit you. For example, they should be ready and willing to tell you why they are "reluctant" to put you into anything other than a pin-lock system. (It could be as simple as the fact that a pin-lock is extremely unlikely to fall off under high activity...or you could still be shrinking, odd as that would be after four years, and a pin-lock is more forgiving with a changing limb. What ever it is, you should be able to get an explanation that makes sense to you.) If you've done all of that and it still seems like they are being forthright with you, then you may have to look at how you are approaching your fittings. Can you explain to them, clearly and in great detail, exactly how your prosthesis is painful and under what circumstances it hurts? Can you point out the painful spots? Does it hurt constantly, or only when doing a certain activity? Does it hurt when you sit? When you're standing still? Only if you're walking up or down an incline? When you're biking? The more specific and "picky" you can be, they more clues you provide for them to try and fix the issue. I once got really fed up with going to prosthesis fittings (I was still shrinking rapidly and I was going through a LOT of fittings), along with a number of other issues, and I just basically gave up and sat like a bump on a log with a sort of "YOU'RE the professional...YOU make it work for me" attitude. The result was the worst-fitting leg I've ever had. After several more visits attempting to "fix" the leg, again with next-to-no input from me, the technician got frustrated enough to demand, "What's UP with you, anyway? WHY aren't you talking to me?" And once I did start talking, we were able to work out a fix for the leg. That "two hours on/two hours off" break-in routine actually is a good idea if the socket construction is truly radically different from your past legs...the "crappy used foot" sounds like it's just a lousy (and I hope a temporary) compromise...could the foot be part of the pain issue? If you can even "practice" explaining your pain situation to us here, perhaps someone will have either a solution or be able to suggest ways to better communicate the situation. Do hang in there...you deserve to have a leg that can stand up to your activity level!
  3. 3 points
    Let's see...I'm upright, I'm walking, I have a lovely prosthesis that fits like a dream, and I have a ticket for what sounds like it's going to be a lovely and rather elegant New Year's Eve gathering..........May 2014 continue in this vein for all of us! Happy New Year, gang!
  4. 3 points
    I don't know about anyone else, {BUT} I just love Christmas., all the decorations, cantatas, food and of course we can't forget the Drink. But just look into the kids eyes {sparkle & dancing} why even the adults are acting much more civilized. There is actually love in the air {sometime}. Just want to wish each and everyone of you the most blessed & healthy Christmas & New Year you have ever had. ann
  5. 2 points
    Hi Marian, I am not an arm amputee but a RBK. I thought you and your daughter might find the following you tube channel a useful and inspirational resource: Tisha Unarmed - on You Tube. Tisha is a 26 year old women who was born without arms and her right leg shorter than the left. Tisha has posted 52 different videos on her you tube channel demonstrating how she does everyday tasks with her feet including: Going shopping/Cooking Taking care of her dog Doing her laundry & other tasks Painting her toenails/Putting make up on Many more topics included on her channel documenting her active/independent lifestyle Kind regards, Sara
  6. 2 points
    It is normal that an initial socket (when you first became an amputee) and a socket made after you've been an amputee for 4 years and your limb has stabilized to look completely different. As your limb atrophies and shrinks the shape changes from round to more angular and the socket usually looks more triangular inside as well as having contours specific to your limb. It should not hurt as it is made to fit you exactly. If your pain is point specific then the socket needs to be modified at that spot. If the pain is in the entire limb and excruciating after about 30-45 minutes it is possible that it is pressing on the popliteal artery behind your knee and cutting off the blood supply to your limb. That usually means that the distance from the front to back of your socket is too short. A socket for an active person is made to fit snugly but it doesn't take much to make it too snug. Cheryl is right that you have to really be able to describe what you are feeling for a prosthetist to be able to fix it. I am also a physical therapist and 2 hours on and 2 hours off is typical for breaking in a new brace or leg but if you're not tolerating it significantly better after a couple of days then there is a problem and the socket needs to be modified or re-made. Don't sign anything until your leg is wearable.
  7. 2 points
    http://www.change.org/en-GB/petitions/david-cameron-to-make-all-microprocessor-controlled-knees-available-on-the-nhs?share_id=pHngwpjvjh&utm_campaign=share_button_mobile&utm_medium=facebook&utm_source=share_petition
  8. 2 points
    Hi everyone!!! A big part of me thinks some animals have it right when they hibernate over the winter - but then we'd miss out on all the holiday fun Sorry I haven't really posted on here, been one of those years since the forum 're-launched' itself. Currently out of work and having no joy trying to find employment - which means I can't blame lack of time for not contributing! Due to have my third grandchild in the next 2 or 3 weeks, so if I disappear for a while, I will return! All the best everyone, and may 2014 be as good as it can for you all.
  9. 2 points
    Wishing you all a very happy New Year and best wishes for the year to come. Thanks to the Heather Mills moderators and other 'workers' in the back rooms of cyberspace who continue to keep the website up, running and safe.
  10. 2 points
    AGREE!!!! A very happy future to all & may this YEAR be the best.
  11. 2 points
    HEAR HEAR TO ALL THOSE GOOD WISHES. May it be a happy and healthy 2014. I am now getting geared up for New Year celebrations - as an expat Scot living in London, we have to lead the way so, folks I shall be sort of dancing the night away come next Tuesday. A VERY HAPPY FUTURE TO ALL AND MAY THIS YEAR BE THE BEST YET!
  12. 2 points
    Well , the turkeys been eaten , the last cracker pulled and we're onto the Stilton and Port so all that's left to do today is to wish all of you a very Merry Christmas and here's hoping for a healthy and Happy New Year to come!!
  13. 2 points
    Thank you all for the comments , it wasn’t meant to be anything special photo wise just a sort of dairy of where I walked this year , something to look back on when I am having one of those bad spells that we all get now and then .
  14. 2 points
    Okay...one final update, plus some info on the "teflon-ish" patches. I saw the doctor today and he was very, very pleased with the way things are holding up! On several occasions, he's pulled in all the various podiatry residents to show off and discuss my FFWs, and he did so again today. After letting everyone take a look at the former site of the latest FFW, he informed us all that my right foot is currently "the best he's ever seen it." My former callus has settled into just nice, flat, durable skin, and the patch looks like it's going to work. (Hooray!!) After the little celebration in the exam room, I asked for more info about the little blue teflon-ish thing hanging out in my right shoe. So here goes........... It's called a "PTFE patch." It's a strong, tough, waxy, nonflammable synthetic resin produced by the polymerization of tetrafluoroethylene. It actually is a variety of teflon, and it's manufactured to fill in microscopic spaces. The PTFE part of this patch is commonly available at just about any home improvement center...where it's known as PLUMBERS' TAPE. Yeah...you fasten plumbers' tape to an adhesive paper backing and you get the thing that saved my right foot. (Good grief! ) Doc says that it's becoming popular in podiatry circles and orthotics manufactuing. He's never heard of it being used in a prosthesis, but those prosthetists who also build/fit orthotics are most likely aware of the PTFE patch...if you have a "sticking problem" that leads to skin shear injuries, you might want to talk to your prosthetist about giving it a try. So that's the story of the 2013 FFW. May it never recur again!
  15. 1 point
    Thank you Johnny! I will definitely check that out. I have been on that site before - It's a great resource for arm amputees. I really appreciate you thinking of us. Cheryl, you're so right - Lauren definitely is still in "overload" mode. It's all so new to her and every day presents a new challenge. She is definitely resourceful, though, and she's starting to make progress. Though small so far, the progress is exciting. Seeing her change the channels on the TV with the remote in her feet, for example, is exciting - As it's something she flat out could not do when she first came home. We look forward to celebrating more achievements in both the short and long term. Deep down, I think Lauren knows that she isn't and never has been defined by her arms or her lack of them, but with it being so new, and with so many challenges in front of her, I think it becomes something for her to dwell on. In other news, I have made contact with her college. They seem very willing to assist Lauren in any way! There is still the question of timing. If you were to ask Lauren, she'd tell you that she'd absolutely want to go back next semester, but to be honest, I think it's probably a bit too soon, especially as she's working so hard in rehab and focusing on learning new ways to do things. I have mixed feelings - On the one hand, I love the fact that she wants to get back to life, but on the other hand, she's undergone major, major physical and emotional trauma and I feel that she needs to focus on her rehab. If she does go back sooner rather than later, naturally the plan would be for aid to be with her - As she definitely needs help with basic tasks. It's something that we're going to have to decide soon though. Thank you, all, for your continued support and advice - It is very much appreciated!
  16. 1 point
    Thank you Beth Marie, I appreciate it. There are definitely many examples of people with similar challenges as Lauren who have done amazing things. I know she'll get there too - It's just going to take a lot of time. As a mother, it pains me to see my daughter struggling, but I am trying to hold it together so that I can be her cheerleader. This is certainly going to be a long journey.
  17. 1 point
    I think it boils down to whatever is comforting to you.
  18. 1 point
    Welcome Andrew, As Eldar well said hang in there! You will get your life back again. Just try to not kick the next person who says "have patience". They do mean well but unless some one has really been seriously side lined physically they really can't perceive how you feel. Do ask questions. Nothing is stupid. Your life has been tossed up in the air and you come back down with out all parts attached. This forum can be a life line for info and support. My last point, which I learned the hard way, is to give yourself time to learn to walk again. After 40+ years moving about with what you were born with the new leg does take time to adjust too. Remembering to think about putting one foot in front of the other - with new parts - does have a learning curve. Jane
  19. 1 point
    Hi All, I was very lucky to be able to get out of New England and venture to a warmer climate for 10 days. While I have had no issues wearing my leg full time I still brought along my wheel chair in addition to my crutches. Security blanket yes but it is also a great way to carry bags through airports. After all the gate you need to get to is always on the other side of the airport. Hefting a well stuffed carry on isn't great for balance when walking and it makes it difficult to carry a drink. To those who haven't gone through an airport since gimpification a couple a pointers: - the airport self check-in machines won't allow you to exclude crutches, wheelchairs etc from being charged. - going through the "special needs" line will allow this equipment to put through at no charge - even if you wait in the regular line you will probably be told to step aside so you various parts can be checked out - porters want to help you out getting to your gate and on your plane. - well worth a good tip when Boston traffic jams make your arrive at the airport way to close to the departure time. - you won't be required to take off your shoes like everyone else - the line is usually very short -you get to hear all sorts of bells and whistles despite your telling them you have extra metal to declare - one checked bag with leg stuff (liners, socks, water cover etc) will not be charged - at least in my experience with American Airlines who charge for everything Becoming gimpified in order to get these perks is a bit extreme but why not. I'm very stubborn in showing independence but as a friend put it to me "what part of being a gimp isn't clear to me"? Happy traveling to all. Jane
  20. 1 point
    Wishing you all Love, Peace, Happiness and Mince Pies for Christmas. May it be Face Book-free.....
  21. 1 point
    Could be either a dirty liner or the soap that you are using to clean it. Did you recently change the detergent soap? Consider what may have changed.
  22. 1 point
    Hi Mike, I read your post yesterday but didn't have time to write! I am sort of elective as an RBK-I had hoped to save some of the foot but eventually told the surgeons to 'just chop the b****y thing off' as it was causing so much trouble. I can't pretend it's been an easy time since, but now I am up and walking I would just say that dealing with the UK prosthetists can be difficult sometimes. Since the cutbacks we seem to get even less choice and if you want to move to another centre you will have to get yourself there and back as transport is sometimes not funded. Your stump will shrink over time and you will need to have your leg recast: depending on where you live that can be a good or frustratingly annoying experience! I would advise you to check out your prosthetic centre through its User Group (if it has one) to find out any local problems. The professionals are not often amps themselves, so it can get frustrating at times! Don't be afraid to say if the leg is uncomfortable or painful - and keep on saying it until they get it to fit properly. Hopefully this wont be a problem...but in the early days it's hard to know what feels 'right' and what doesn't.I found the most important thing is to keep positive. And the help of a loving family is immeasurable. This forum is a wonderful place to feel sane, amongst people who understand exactly what you are going through and who are very supportive. Check out Mick's walks with his dogs to see how active amputees can be!
  23. 1 point
    Hi Friends Old and New! Been away for too long but had to share this with you all. When the hot weather comes I like many of you suffer from a sweaty stump, last week my chiropodist gave me a tip, been doing it ever since and it works no more sweaty stumps! He told me to try Witch hazel a natural product applied with a cotton pad, don't ask me ehy or how it works but it does may also help swelling and itching. http://en.wikipedia.org/wiki/Witch-hazel Take care all of you Neil x
  24. 1 point
    I agree with you... having a dedicate swimm leg is a luxury. The good thing (IMO) about the Aqualeg cover I have is that it is that ... a cover.. meaning that I can keep it and use it with my future prosthesis or if I have to change my socket or the foot I can just take off the cover, do whatever i have to do and then put it back on and it is suppose to last for many years. In terms of price you know that it will depend on your prothesist, because the people from Aqualeg sell it to your prothesist and then your prothesist sells it to you (like any other component) but it should be around 2,500 euros.
  25. 1 point
    I've updated the article massively, have a peek here and let me know what you all think.. http://91.151.214.107/viewtopic.php?f=38&t=10729
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