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Heather Mills - Amputee Forum

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Showing content with the highest reputation since 07/04/2014 in all areas

  1. 3 points
    Higgy, I spent the entire six weeks computer-less this last time! Drove me batty! My other stays in rehab, there's been at least one computer available for patients...when I asked at this one, though, their response was "No...but we have free wi-fi." I guess it's time for me to get myself a tablet or laptop...my desktop home computer does me no good at all when trapped at a place with free wi-fi............. With a little luck, this new surgery will only keep me out of circulation for a couple of days...at present, I'm scheduled to stay overnight, but there's a chance that, if the surgery goes spectacularly well, they could discharge me the same day. They already know I can meet all their physical therapy goals, since I just met them during my six weeks in rehab. Heaven knows I'd much rather be at at home! I'd appreciate some good vibes sent my way on Tuesday morning!
  2. 3 points
    The last time I was in the local hospital for a small surgery, the LPN came in early one morning wanting to give me my insulin injection before breakfast.... At least an hour and 15 minutes before breakfast. It is fast acting insulin. I argued and refused the injection, no matter what she said, until my breakfast tray was in front of me. I was released that day, and the more I thought about it, afterward the more bugged I was. I'm a big enough loud mouth to make a point.. but what if I were an unsuspecting senior who wouldn't stand up for themselves, being afraid to say no..Well, about a week after I got home, I ended up calling and asking for the director of nursing. I then explained that what would of happened to someone, myself included, if I had taken fast acting insulin with nothing to eat. That maybe they should train the nurses better if they think they aren't understanding just what happens when giving fast acting insulin with no food. I don't blame you a bit for writing a letter and letting the powers that be know what had happened. Stick to your guns girl! I hope all goes well for you in the days ahead.. Will you have a way to stay online?
  3. 3 points
    Hi Cheryl, You should definitely report the incident. It would be doing the facility a favor as people like this give the hospital a bad reputation. At the very least she needs further training in how to treat patients with respect and closer supervision for a time. She most likely is not suited to this type of work and the sooner she is made aware of it the better for everyone. I would write down exactly what happened and hand deliver it, if possible, to the Director of Nursing. What happened is totally inexcusable and inappropriate. Do all future patients a favor and report her.
  4. 3 points
    Sorry to hear about your ongoing problems Cheryl and I wish you all the best for your forthcoming surgery. Yes, it's a pain, but as you say, better than losing part of your foot... I honestly don't think you're overreacting (sp?) about your alarming experience - I'd be fuming too!The woman showed not only extreme ignorance, but her insensitivity is unacceptable for someone in her position. I'm sure that her 'boss' ( I think here in the UK it would be the Sister-in-Charge) would want to know about the incident. As you so rightly point out, there are other patients who may not be as alert and assertive as yourself who will also have to experience her bizarre and unorthodox practices! There are so many people who are unemployed who would LOVE a job like hers, and if she doesn't like her work I'm sure there are plenty of competent, sensitive and professional women who would gladly do it for her. You can always temper your complaint by praising those areas of care which you found to be excellent. Good luck and do let us know what you decide to do - and what the response is. And keep us posted about your surgery too!
  5. 2 points
    Okay, gang...I've calmed down enough to write a coherent letter, and you've reassured me that I wasn't over-reacting. A letter is on the way to the facility! Thanks!
  6. 2 points
    Hi Cheryl , Firstly sorry to read about all the bother you are having with your foot and I hope that you can get it sorted soon. Now to your post , as you may or may not know as far as amputation and all the stuff that goes with it I tend to treat mine as a huge joke , make jokes about it ,couldn’t care less what other people think or say don’t give a monkeys who see my “stump” when I stop to sort it out …………….but after reading your post I must admit I would feel outraged at what happened , in fact not even my wife would carry on like that and like I say I’m so easy , I can honestly say I would most likely punch the person and report them ……………….unless she was a tall leggy blond wearing a skimpy outfit and a drop dead beauty but then I think I’m on about a different scenario (mick slaps himself round the face) No I can honestly say if that happened to me I would report the person and kick up a right stink not only for myself but for any other people who might end up in the same situation as you
  7. 2 points
    Hi Everyone, I hope you are all doing well - And greetings from snowy, cold NYC! I just wanted to send a quick update - Lauren is doing well. She's back at school now for the second semester and so far, it's going very well. We really enjoyed having her home for the winter holidays and for the new year. While there are still many things that she can't do independently, it's gotten so much better as she's adapted to using her feet and even her mouth. There are highs and lows, of course, but the lows are getting less frequent. She has been dealing with some bursts of phantom pain the last week, so we are getting that checked out - There may need to be a change in her meds. I will continue to keep everyone updated. And again, thank you all for your support.
  8. 2 points
    Hi All, Lauren has officially started school! Yesterday was her first day back, and we're back in NY now. Overall, I think it was a very good day for Lauren. She is definitely excited to be back, as school really is where she should be now. She's always loved the freedom and independence of being away, as well as the social aspects of being at a large, dynamic university. I think being surrounded by her friends will only be a good thing for her, and I can tell you that they are all very glad that she is back. It is going to be a major adjustment in that some of that independence and freedom doesn't quite exist just yet, but it will over time. Lauren told me that it felt really weird to be sitting in a class and not have the ability to raise her hand, take notes, etc, but she does have a note taker in each and every class. She did mention that there were plenty of stares, but I (and she) are expecting that -- It is very, very rare to see a double arm amputee, let alone one of Lauren's age, and people are curious. She did not wear the cosmetics yesterday as the weather was so warm. The aide seems to be very helpful and kind, and Lauren is getting used to her. I expect this will take time as well, as there's no doubt that it's an adjustment to have someone brand new touching you, bathing you, feeding you, etc. We are excited to see how she progresses - And I am looking forward to my daily call from her! Thank you for all of your love and support!
  9. 2 points
    Thank you Ann and Cheryl! We've been very, very busy getting Lauren ready for school! We flew down there last week to start preparations for her return (we're back in NY now), met with the therapists who she will be working with, and met with the 24/7 aide who will be with Lauren. She's very nice, and very willing to help, which is great. Lauren is definitely excited to get back to school, but I think she is nervous at the same time. It's absolutely going to be a challenge for her on many levels, but I know she's going to be able to conquer it. I think the emotional aspect of seeing people for the first time since losing her arms is going to be very hard for her, but I know that her true friends at school will help her get thru it. On the physical side, David and I are comfortable knowing that she's going to have the help she needs when she needs it, and that she'll be continuing her therapy. Lauren is continuing to make progress on all fronts, and her feet are getting more and more flexible as they continue to learn and adapt. She still needs help eating and still needs to be dressed, but she's making progress slowly but surely. She does sometimes get upset about the fact that progress seems slow, so we try to remind her that Rome wasn't built in a day, and that she's undergone a major, major physical change that will take time to adapt. I think she was initially expecting that it would be a matter of a few weeks until she was fully independent, but that's just simply not realistic, and it's going to be a marathon rather than a sprint. We leave Tuesday to head back to school to finish getting all set up - We will keep you posted!
  10. 1 point
    Good luck to you to Higgy on Tuesday, vibes heading your way too.
  11. 1 point
    Hi Charu, Welcome to the forum! I haven’t been here in quite a while but I did see your post and your message. It is a pleasure to see another hip disarticulation amputee on the board. Yes, we are rare! That is one of the reasons I haven’t been on the forum much. It will be 6 years since my amputation on February 10th. I was 42 years old when my leg was amputated and I am now 48. I certainly respect your decision to not use a prosthetic. It is a very personal decision and especially for hip disarticulations, it can be a very challenge process to use a prosthetic leg. And I completely understand your reasons why. I almost made the same decision because I had walked on crutches for 15 years prior to my amputation and I had become so good at walking on them. It just seemed so easy just to keep using crutches. I do use a prosthetic leg now, but it is not always easy. I do enjoy the liberation of being out of my leg and walking on crutches, but I also enjoy being able to use my prosthetic and have the freedom from the crutches. For me, there are advantages and disadvantages to both worlds. If you feel more comfortable in not using a leg, then by all means that is that is what is best for you. The most important thing is for you to be happy, healthy and cancer free! But I would encourage you keep an open mind for the future. You are still so very young and there are so many new advancements in hip disarticulation prosthetics that have come out just in the past 6 years since my amputation. They are becoming more comfortable and less tiring to use. Your young age is definitely to your advantage! Please feel free to private message me again. I look forward to getting to know you Charu!
  12. 1 point
    You gave me a good laugh there, Jane! I wonder what Lucey thought of the "show!"
  13. 1 point
    Thank you, All! Lauren came home to visit last weekend and it was so good to see her! She is definitely making progress. It's hard to imagine that just less than 2 months ago, she was so completely dependent on others, and now she's able to do some things on her own, with just minimal assistance. She has gotten very good at feeding herself, and really only needs help with cutting. She's also gotten much better at dressing herself, and really only needs help with pants, dresses, etc. It's so amazing to see her do things like put a shirt on or brush her teeth! These things seem so mundane to us, but relative to where Lauren was just a few months ago, major progress has been made, and I know that she's continuing to develop her skills and her independence. She also is definitely gaining confidence. I think part of this is driven by her growing independence, but it's also being driven by the fact that she's surrounded by friends and a great support system at school who are rooting for her. While she still does definitely have her down moments, she's come to really rely on her friends to be there for her, and they have been! I hope everyone is enjoying fall, and I will definitely continue to post updates! Best, Marion
  14. 1 point
    Hi Marion and Lauren, It is great news that Lauren (you) are doing so well at school. Really, I am not surprised as you arer a real gutsy person--both of you!! Peace, Beth Marie
  15. 1 point
    Fabulous, Marion! As Lauren continues to branch out and develop what will become her "new normal" life, the rest of your family will also develop a new normality. I know that it can sound odd now, but you'll all get to the point where any limitations that Lauren may have will be considered more of an "inconvenience" than anything else. Please do keep checking in with us, whether you have questions or want to report new developments...even though Lauren is off on her own, we all feel that we know her through you, and we care about what happens to all of you!
  16. 1 point
    Hi Marion and Lauren, I am not sure where the post on returning to school is , but CONGRATULATIONS Lauren for taking on the challenges. It seems like your mom and dad have helped put in some great support. Not even knowing you well at all I am sure you will conquer each challenge month by month--you are a gutsy young woman!l! Know I will be thinking of and pray for you and look forward to updates. One thing all amps need to adjust to is the staring--it really helped me when I realize they were curious not judgmental. A funny incident happened to me last week. I volunteer two afternoons a week at the Habitat Restore. Over the last two years I have gotten to know a number of the "regulars" well. I have a service dog to help me and when a regular saw her--I guess for the first time (she is very quiet and good) she asked why I had her. I said I had no leg. She said, "What do you mean? I came around the corner of the desk and pointed to my prothesis and she almost had a heart attack, she kept telling me she was sorry, she was sorry, probably 10-15 times. When I got her calmed and told her I was doing very well and it wasn't much of an issuel any more. I knew she wasn't being judgemental, but concerned about me. In the begining I had to remind myself that they were not judging. One thing I have been dealing with in the last couple of years is people being too helpful. I know I have hurt a few feelings by insisting I can really do it--I almost lost a friendship with this. Your true friends need to realize this and let you do what you can do even if they could do it faster. As time progresses you will be doing more and more things and your friends have to adjust to that too. Blessings on your new great adventure!!! Peace and blessings, Beth Marie
  17. 1 point
    The adaptive yoga class went very well! Lauren really had a good time, and told Alison that doing something that she always used to do made her feel normal. While it is a definite change from the way she used to do yoga, at least she was able to participate and enjoy herself! I'm also glad that this is a way for her to stay physically active. The girls had a great time together, and Alison is being amazing - Always willing to help her sister with anything and everything. In other news, Lauren's feet are feeling a bit better thankfully - And we are going back to the podiatrist tomorrow for the next round of shots. Also, her scars are beginning to fade a bit, which is very good news!
  18. 1 point
    Hi Everyone, It has been a busy week! Lauren got her cosmetic arms earlier this week, and they look really good! They did an amazing job of matching her skin color, and Lauren is extremely happy with how she looks with them on - From a distance, you'd have no clue that she was a double amputee. Of course, they're not functional and do remain stiff at her sides, but Lauren is obviously really excited to look and feel normal with them on. She did say that they are hot and quite heavy (as we suspected and were warned about), so she's definitely not going to wear them 24/7... Especially as they do get in the way as she continues to learn to use her feet. I am going to load up all the pictures at some point this weekend. The appointment with the podiatrist went well. It turns out that Lauren has Plantar Fasciitis, and that's the primary reason for the pain she's been getting in her feet (in addition to using them in ways that they've never been used before). They gave her cortisone shots, and she has to go back for 2 more shots over the next 2 weeks. Hopefully that helps! Lauren continues to make progress, and yesterday she was even able to brush her teeth using her feet, after we applied toothpaste to the brush for her. She propped herself up near the basin of the sink and used her feet to move the brush. It was incredible to see her do something semi independently again. She continues to make progress with feeding herself when food is cut up for her, and she's making progress on using a knife as well. She's getting there. More to come this weekend! Best, Marion
  19. 1 point
    Thank you all so much for your advice, I think what I may do then is just wait and see how it all feels when I have got used to my prosthesis. I will definitely let the DVLA know when I feel I am fit to drive, something that I didn't even think about before. Thanks again everyone xxx
  20. 1 point
    I have not been on here for quite a long time but have some good news on new technology that I am now using If you haven't heard of the EMS socket system, you will soon. I was the 2nd to receive this new inner socketry. First being a 40 year amputee BK and me being a 5 year amputee AK. Think of a golf ball and envision what the cover of a golf ball would look like inside out. Think dimple out or raised dimples. Your cast the same but the end result is a pliable socket thousands of "raised" dimples (oxymoron I know). Once my leg doc receives this piece from the manufacturer I am cast again while wearing it. When I came back the next time the socket is complete and in one piece. The inner socket is epoxied inside the carbon socket. I also use a proprietary pump system. Here is what is so cool about this new socket: The thousand of raised areas create a larger surface mass, 60% larger mass to be exact. Now I have a much larger area holding vacuum on my stump liner. The raised area also acts in a gripping fashion and the combination creates hold that I have never felt before. There are now about 15 of us on the globe with this new tech. They are designed by an amputee business associate of my leg doc and are now being made by Otto Bock I'm about 5 months in and the socket feels more part of me and the vacuum hold is amazing
  21. 1 point
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  22. 1 point
    I have a Comfort Flex socket as a LAK. I use a more firmer plastic that still is flexable but not flimsey. Also, I pull my stump into the socket using the parachute material. There is no liner as my skin is tight against the plastic socket which fits inside the frame. No problems at this time.
  23. 1 point
    I've updated the article massively, have a peek here and let me know what you all think.. http://91.151.214.107/viewtopic.php?f=38&t=10729
  24. 1 point
    I met an AKA the other day at my rehab centre, he told me that the DWP had re-assessed him and told him he nolonger qualified for DLA. Unfortunately I could not question him further as I had been called away by my physio. Sparky
  25. 1 point
    My story I was a paratrooper in the army and I was deployed in northern Iraq. I was sleeping in one of Chemical Alis palaces. At about 3am I woke up and had a bad feeling didnt know what it was when all of a sudden BOOM an RPG came in through the window bounced off a wall and blew up at my feet. I crawled for my weapon when one of my sergeants saw that i was hurt and called a medic. I didnt really know how bad they were until i got back to the states about 10 days later. They originally told me I would only lose my left leg but when I finally saw my right foot I knew it was gone to.
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