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Heather Mills - Amputee Forum

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  1. 5 points
    Hi desperatewalker! OK well let me start off by saying your not alone. With that you may draw the inference this means there is very very limited funds that centers draw upon for prosthetics and their ultimate provision. To be able to grasp what your issue is could you tell us your amputation type, how long have you been an amputee, what is your current provision, your level of mobility or capability and finally which DSC you attend . Off the bat I can tell you from personal experience that if you can demonstrate levels of capability, need and beneficial results from provision , the there are numerous limbs the NHS can provide to assist in helping you fulfill your potential. If you are ultimately looking for that shiny plug in kit lime the ex military lads get via the NHS then your likely to be wasting your time. Unfortunately there is a real two tier prosthetics provision system in our NHS where ex military ( using redirected public funds from the NHS - into a special funding scheme for ex military only) not only get fastracked access to NHS specialist center treatment but are also given exclusive access to prosthetic componentry that civilian users are not considered for and unable to be provided with. Disgusting and unfair YES of course it is- limb loss is traumatic and devastating regardless of how we end up with it. Many of us do not get the chance to choose a scenario where that risk is increased or demolished - ex military to some extent had the opportunity not to sign up and thus reduce their exposure to such risks - I'm sure most of us civies would love to of had a chance to do something to help avoid our limbloss. Anyway that's a whole nest of hornets for another post and day!!! So let me know about the things I mentioned and we'll take it from there- I'm sure I can help you see it from a rational perspective and realistic viewpoint. One last thing - being the NHS be prepared for the long haul and to jump through the proverbial hoops to get the stuff you need. Do you also have any underlying conditions that caused or contributed to your amputation or are you otherwise fit and well? Hope I've helped a bit and I'll do what I can to steer you in the right direction .
  2. 2 points
    Hi Everyone, I hope you're all doing well. I truly appreciate the well wishes. It means so much. Things are slowly but surely getting back to normal around here, which is good - Being busy makes it easier. Lauren is now back at school. It's amazing that just a year ago, we were so unsure of how she'd do, but now, one year later, she's excelling. She was very excited to get back to her friends and her routine, and since she took summer classes, she's back up to pace with her peers. She continues to have 24/7 help at school, which is so helpful for her, even as she has become more independent. After my mother's passing, Lauren spent a lot of time with us and her sister, and just spent time relaxing. I think she needed it, and she seemed energized as we left her back at school. I know that she's going to have a great year! She continues to make strides physically, as her phantom pain has gotten a lot better, and as her feet and legs have gotten stronger. I know that Lauren still misses the way things were, but she's so good at just continuing to adapt. The hot, humid weather in NY (and now back at school) has made it tough for her to wear her cosmetic arms, so she has been going without them, which I think has made her a bit more comfortable in her own skin. Every day, it gets easier it seems. I hope everyone has a great long weekend... And thanks again for all of the support. Best, Marion
  3. 2 points
    Hey cobber.............. Just updating as well...........
  4. 2 points
    Hi Please tell everyone you know about the new beginner's cycling book for amputees coming out soon. Visit www.stumpsandcranks.co.uk to register your interest. It really is the best fun on less than four wheels that you could ever have! Thanks...
  5. 1 point
    A friend of mine said I should write up an article with all the things I use to help me ride and something about myself tp put it in perspective and this is the result. I hope you find it useful and please feel free to either post or email me comments good or bad :) Enjoy. --------------------------------------------------- An Amputee and a Mountain Bike January 06 I had an operation on my ankle to lengthen every tendon to allow me to put my foot flat on the floor, this was a left over from a large accident I had in 1983 which left me as a RBK amputee and my left leg having loss of muscle and joint movement. After a second operation to treat the arthritis in the ankle and lots of physio it was time to sort my fitness out. I started at Redbridge Sport and Leisure Centre as the people where great and it was fully accessible, after 4 months I was talking to a friend at work about getting fit and he said “why not get a mountain bike, you love the countryside?” I laughed thinking to myself yea right like I could do that..... But it had started me thinking, perhaps I could, I used an exercise bike at the gym.....hmm maybe. I bought my mountain bike a month later with no idea what I was actually getting but luckily enough was steered very well by the shop I bought it from. The first ride wasn’t very interesting consisting of a ride up the road to the local park once around and back home (about 1.5 miles) I was tired out and very sore, but buzzing from the feeling of freedom. That ride immediately showed I needed to make some changes as the back of my knee where the socket had dug in was a nice red sore mess. I needed something to stop the need to bend the knee to much, lots of internet searching later this turned up. This helped massively and solved the problem almost totally although has it’s own drawbacks as we’ll see soon. I’d also been trying different ways of keeping my feet on the pedals especially the prosthetic one. I tried normal pedals...bad, toe clips which where ok till you needed to stop and get the tin leg out quick then I ended up on the floor then a suggestion from a mtb forum was to get some GOOD quality flat pedals and a pair of 5:10 Impact mtb boots. WOW what a difference, the soles of the 5:10’s are made from the same rubber as rock climbing shoes and they stick like a limpet, problem solved. For a good 3-4 months I was a happy bunny going further and further around the park then venturing to Hainault forest which had........HILLS, this is when you find out how unfit you are again after all that time on the flat. During this period I’d signed up and been chatting on a cycling forum (www.uk-mtb.com) and the guys on there had been and still are incredibly helpful and supportive, a group of them went every weekend to another nearby forest called Thorndon Country park and after lots of prodding and cajoling finally got me to join them. They kept to a much easier route than they normally did and also kept the pace down but boy oh boy was it hard work especially as it was deep winter and the mud was 6-8inches deep in places and I’d never been off the fire roads before. I didn’t do bad but it showed up two things. The first I still wasn’t anywhere near as fit as I thought I was and the swing crank once you get properly off-road was hitting every root and rock and making going extremely hard, also because of the way it works you lose power on that leg as well. I bowed out halfway round finding the going very hard but more due to being totally exhausted, finding my way back was interesting going the wrong way at one point and finding myself face to face with a 25 foot deep V gully covered in mud and roots, I cycled down then got off and proceeded to spend a good 10 minutes getting up the other side then sliding all the way back down in the mud and finally getting up by holding onto a fence and pulling myself and the bike up an inch at a time. By the time I got back to the car I was so past exhausted it wasn’t funny and covered head to toe in thick mud, but DAMN had I enjoyed myself or what. This was the start of a slippery slope I’m still on. The realisation dawned that I needed to take the swing crank off if I wanted to get off-road to any great extent so one afternoon took the bull by the horns, well my spare leg anyway and took a saw to it. I cut it 4 inches shorter and also cut out the back of the socket with a Dremel to allow the knee to bend further and the various tendons in the area to work unhindered. It was amazing, so much more comfortable and quite a bit more power as well. This was what I ended up with Needless to say my prosthetist Laura was none to happy and I got a good tongue lashing, but now months down the line the legs been lengthened back to normal with some other tweaks being made and we’re both happy The next month was great fun out and about all the time in the mud and rain but two big issues I still had where getting up hills and getting off the bike. Hills, the problems here is power and the ability to stand and pedal. With the pedals in the 6/12 position the only way to move forward is to push with one knee and pull with the other till the pedals are in 1/7 then you put your weight into it. For a BK it’s very hard to do this and for an AK impossible on one side so on anything slightly steep I would just run out of steam without the ability to stand and power up the last section. Off I go back to the internet hunting for a solution and finally found the Rotor. This is geared so the power pedal is always in the 1 position when the other pedal is at 6, this allows you to always be putting power into a stroke. After this was fitted the difference was amazing, I could now get up hills I previously walked and could stand and pedal for short periods allowing me to get over tough obstacles. In all honesty this one item has made more difference to my cycling than anything else and is the one thing I would NOT give up even if I had to give everything else away. Ok, getting off and on the bike how hard is that? Well on the road or in the park it’s not, but once you start getting to do off-road area’s no matter easy they look it becomes a problem. If you have the seat adjusted as it should be it’s quite hard for an amputee as you can’t point the toes on the prosthetic leg to keep in contact with the pedals, this gets really stupid if you on an off camber slope. I mentioned this on the uk-mtb forum and said wouldn’t it be great if someone made a seat post that went up and down so I could click a button before stopping and the seat would drop. The immediate responce was “have you looked at the Gravity Dropper?” Well blow me down its exactly what the doctor ordered. Short time later it was installed, solved the problem totally and has been superb ever since. Roll forward 6-8 months and I’m out 2-4 times a week doing things I’d never have thought I could of over distances I could of only dreamed about and loving every damn minute of it, well apart from the huge muddy puddles full of horse poo, as it tastes awful. Now before I end with a list of all the bits I’ve found useful I’d like to thank a few special people who’ve helped me greatly. Trent, for always pushing me but knowing when not to Luke and Tony at Triton Cycles (http://www.tritoncycles.co.uk/), for putting up with my constant upgrades and being a really great couple of blokes always willing to help www.uk-mtb.com, to many people to mention who all helped me get going with support, suggestions and endless patience with my noobie questions Laura, my prosthetist who’s always patient, understanding and doesn’t mind trying something a little different. Hope you found this useful and please if you have any comments or suggestions drop me an email rikk@golum.co.uk ............Rikk Flat Pedals Something like these that are large and have a lot of pins to dig into the sole. 5:10 Impacts http://www.stif.co.uk/shop/mb_software_pro...ten&cat=211 http://www.fiveten.com/ Swing Crank http://www.highpath.co.uk/cycles/special/index.html Rotor UK Supplier http://www.velotechservices.co.uk/rotors.htm Manufacturer (lot more info here) http://www.rotorbike.com/2006/rotorgen.htm Gravity Dropper http://www.gravitydropper.com/ Pump Having to pump a tyre up on the trail can be a pain as we’re not very good at crouching so take a peek at this pump :- You basically stand on it and pull the rope handle like starting an outboard motor, pumps very quickly and no need to crouch or sit on the floor as you’d do with a normal mini pump  http://www.cyclaire.com/bikepump.html Ergon Grips The grips they do are fantastic for stopping numbness and tingling in the hands/fingers and as most of us use either crutches or a stick at times it affects us more. http://www.ergon-bike.com/en/grips/index.html Lifeventure Towels These little things are superb, pack down really tiny but absorb so much sweat and dry out in no time at all. I always carry one on the bike and stop for a dry off every 40-60 mins and finds it helps massively. You can pick these up in most hiking/outdoors shops like Milletts. http://www.lifeventure.co.uk/htm/washgear/...ibre-towels.htm X-Static Liner Liner These are liners that go in between your stump and the normal silicon liner, they soak up sweat and stop rashes/infections/smells due to the sweat. I used to stop every 30-60 mins depending how hot it was to dry off, now most of the time using these I either don’t stop or at most have one change halfway through. They are so much more comfortable and my stump dosn’t look like you fingers do when they have been in the bath for an hour anymore  Apart from the Rotor these have made the biggest impact on my cycling since I got them recently. http://www.kingsleymfg.com/KMFGStore/Catal...mp;advmode=True UK Supplier. CHANECO® Chris Hanley & Partners 4 Kilvey Road Brackmills Northampton, NN4 7BQ United Kingdom Tel: 01604-709999 Fax: 01604-700057 Dermasalve Great general purpose cream for the end of the day, very refreshing and soothing. http://www.pharmacy2u.co.uk/ Sheabutter This stuff is the dogs and I’ve not found any better moisturizer, a friend’s wife told me about this as it’s the base ingredient in every expensive moisturizer but unrefined it’s all natural with nothing extra. The stuff lasts for ages, a must try and even if you don’t like it give it to the wife she’ll love it  http://www.sheabuttercottage.co.uk/ Bodyglide This is a lubricant/protectorant for the body, idea is you get a sore spot/blister you pop this on and it stops the chaffing in the area, not had a chance to try it as since moving to suspension liners I’ve not had any. http://www.wiggle.co.uk/ProductSearchAdvan...e&cat=cycle Adaptskin Only just started trying this. Specifically for amputees, check the site out. https://www.adaptlabs.com/adaptskin.htm And lastly for anyone who’s interested my injuries where :- Left tib/fib compound fracture Left Femur compound fracture Left hip 1/3 of ball broken off 30% muscle loss on left side due to injuries Right below knee amp Right femur fractured Punctured lung For 20+ years I’d been walking on tip toe due to the muscles and tendons in my left foot shrinking till the operation mentioned at the start.
  6. 1 point
    Hi Julie, I can relate oh so well to your story although mine only went on for three years before I opted for a BKA. I was in a bad car accident--the woman was not looking where she was going. I was in hospital for two week, but the swelling had to g0 down. The orthopaedic surgeon I drew (was flown back to Canada by air ambulance and he was the surgeon on call--bad choice) He was a really bad doctor as even though the doctors in Boston, where I was injured, said I would need surgeon. This guy's pronouncement was, "well, I dunno what I would operate on." I finally became such a headache for him he transferred me to the ankle specialist. It was like night and day--this fellow was GREAT and as soon as I was transferred I had surgery within in the week. It was plated and screwed, but it never really healed and I was in pain and in a wheelchair. About 4 months later he decised an ankle replacement was the key--no such luck. Finally he decided to fuse it--the cure all he told me--no such luck. He was a great surgeon and a great doctor, so I couldn't blame the surgeries. Once again the surgery failed. I was fed up with being in a wheelchair--my boss refused to do any kind of accomodation to allow me to get into work except by crawling--that is another whole story. I decided my best bet was an amputation, but my doctor thought that was too radical--he questioned whether I realized it was forever--ugh yes! He scheduled an appointment with the amputation doctor who evaluates for amputation and by good fortune I never got to see him before my surgery as I know he would have said NO from a later encounter. I did lots of research, talked to the Prosthetic department (prosthetics were under a provincial plan) . They were great and encouraging. So, I had the RBK amp and have never looked back. In fact I went to see the doctor 18 months later doing very well and he said to me, "We probably should have done this 2 years ago!" Like you I was very active and was more than fed up being in a wheelchair. Even though the first year was tough, I have regained my life. I have totally renovated my house (95% myself), I care for my yard and I got back to leading tours to Viet Nam (I was a nurse in the American War and fell in love with the country and people) So, there are some things I am working on like getting back to Rock Climbing--but it is coming. And I am no spring chicken at 69. I found the trick is don't let others tell you what you can/are able do as my friends have not been correct. If I think reasonable I can do it--I do it. OIn your research be sure you at the Amputation Coalition http://www.amputee-coalition.org/and https://www.facebook.com/AmputeeUSAThey hold a conterence each year and the first one I went to gave me my life back. Next year June in Greenville, NC Yesterday I got a new foot which is more technology advanced and although each new foot takes getting use to, I already love it and feel more secure. If you have more questions please ask. Peace, Beth Marie Murphy, Kamloops British Columbia
  7. 1 point
    Hi Everyone, I hope everyone is having a great Fall! Here in NY, the weather is finally getting a bit cooler, which is a nice change. Some exciting news -- Lauren is officially dating!! She met a wonderful young gentleman named James in one of her classes at school, and they seem to have hit it off. Lauren was surprised that he took such an interest in her, but he seems to be genuinely interested in her for who she is, arms or no arms. They went on a few dates, and Lauren just seems so happy. She called me up so excited the other day to tell us all about it. They went to a movie the other night, and he even held her foot like one might hold hands. Lauren's exact words were that he makes her feel so normal. I think that the fact that she see that she can still be attractive (even physically) is going to be a major, major step forward for Lauren. It was so exciting to here how excited she was on the phone that I just had to share the update. Everything else is going well -- She's doing well at school, and continuing to adapt and grow. All the best, Marion
  8. 1 point
    Hello! I am a new member in this forum since yesterday. I became a bilateral amputee (right, below knee; left, hip-disarticulated) after a traumatic traffic accident in 2012 at age 46. I got my below the knee prosthesis while in rehab about 4 months after the accident. I had to have a few reconstructive surgeries and it had required a lengthy healing period, before I could finally be fitted for an HD prosthesis in the beginning of this year. I have gone (and I am still going) through all the ups and downs of a long recovery journey any amputee could possibly ever face. Like some of you on this site had been looking for the right support group which I was never able to find. I had a look at the website www.hphdhelp.org which has not recently been updated. I couldn't find any group on Facebook that really addressed the needs and issues of high level amputees. So I decided two weeks ago to found a group for hip disarticulation and hemipelvectomy amputees ONLY. Initially, I thought about a small group of max. 15 members, as we are so rare. The more surprised I have been, that the group has already 39 members, all HD or HP amputees, with the exception of a few prosthetists. Someone in this forum mentioned Dr. Christina Skoski, the founder of the hphdhelp.org site. She now is a member in my newly founded group as well as a few other members from the hphdhelp site. My group is accessible through Facebook. I made it a closed group for the protection and safety of the members. Therefore, the content can only be seen by members. I am so pleased to see how many people contribute with tips, advice and sharing their stories. I feel so honoured to have two renowned prosthetists in the group, Tony van der Waarde from BC, Canada, and John Hattingh from VA, USA. Whoever is interested to have a look at it, please send me a request through my group site on Facebook. The group is called "High Level Amputee Support Group".
  9. 1 point
    Hi Desperatewalker Sorry to read you are having problems. Generally, think the usual route to complain is via your Centre first, then upwards to Trust and Commissioning Team. NHS England is now Commissioning Prosthetics as a specialist service. Hope you are able to get things sorted. Were you aware of this https://petition.parliament.uk/petitions/105361
  10. 1 point
    I'd recommend exhausting all reasonable options. You've been referred to a pain specialist, but not all pain specialists are alike. If you're getting meds and psychological treatment without adequate results, you might benefit from an *interventional* pain specialist, who might be able to dramatically improve pain with nerve blocks, perhaps. He'd at least be a second opinion on your pain regimen, which you really should have before an amputation. I hope you've had at least a trial of TENS. You might benefit from topical capsaicin gel, which is over the counter. Pain can usually be resolved without amputation, one way or another.
  11. 1 point
    I resemble that remark and have no regrets with getting old ! Thank you for the birthday wishes and also for the update. Best wishes to all !!!
  12. 1 point
    Hi old friends It's been a while since I posted here and thought I'd just check in. Life gets busy! Ruth and I both have new jobs, a new car and a new address. We were seriously trying to make it across the pond this year for the conference, but sadly that didn't happen. Would have been lovely to catch up with old friends. Maybe we can make it to the next one. It's been a wild ride these past 3 years. Some of you know what happened with our daughter so I don't need to rehash that stuff here. We have both moved on but it's been difficult. We are both in a good place now. Our youngest has moved to Perth and recently got engaged to one of the most lovely girls I have ever met. Really looking forward to the wedding next April. Hopefully picking up a new bike this week. I am totally looking forward to getting out on the roads and cycling again. Also have an appointment on Tuesday coming with my Doc to get a new leg started. The one I have has been getting uncomfortable and I suddenly realised it's over 5 years old. Time for an update! Over at Limbs4Life Mel has been working tirelessly. We have our Aussie forum up and running which keeps me busy administering it. We also have a new forum for kids and their parents to get involved. Our kids program is now a national program and has been rolling out for the last few months. It's been a testing time for all involved and I have been in the office now and then helping with mail outs and doing whatever needed done whenever time allows. We had a our first national conference 3 years ago and I had the pleasure of hosting the great Johnny V at my house. (happy birthday Johnny by the way). Enough from me just wanted to say G'day and here I am writing a novel. I shall try to poke my head in here more often.
  13. 1 point
    Hi All, I hope you're all doing great! We are in the process of trying to make the schedule work to attend the conference in Tucson. Lauren is doing a a summer program at NYU here in New York for a few weeks to get her back on track in terms of credits for college from when she had the accident, so we are just trying to work it out so that she doesn't miss any necessary days. We expect to hear back within the next day or two. Lauren officially finished the semester! Words simply can't express how proud of her we truly are. This has been the most trying year of our lives by far, but she's persevered and has made an enormous amount of progress. It's really hard to believe that one year ago, she was 100% completely dependent on others for even the simplest of tasks, and now she's able to write, eat, and excel in college, with just minimal assistance. I thank this whole group as well for all of the support and words of encouragement. Lauren has been relaxing a bit since she got home from school, and has really enjoyed being back with her closest friends, and of course, her sister. While she of course sill has her difficult days, they're getting less frequent, and I think she's moved past the "grief" stage and has accepted that this is the new normal. I really credit her going back to school and trying to get back into a normal routine for that progress. I also think that having a really good set of cosmetic arms has helped her self confidence in those sticky social situations as well. We had a visit with the Dr. and the prosthetist last week, and thankfully, everything is good on the health side, and her stumps have really healed very nicely. Certainly most, if not all of the scarring is gone, and the medication has really helped her phantom pains and sensations. While she's still not a good candidate for prosthetics, that day is getting closer thanks to all of the technological advances. It's amazing. I will keep you all updated as we make our plan for AZ - We are really, really trying to get there. All the best, Marion
  14. 1 point
    Hi Everyone! It's been a crazy few weeks here, with some travel and family commitments. Lauren is doing well, and is getting ready to wrap up the semester at school. It's hard to believe that the year is basically done for her - and that it's been a year since she lost her arms. The amount of progress that she has made is remarkable - A year ago, we would have never imagined that she'd be back at school and doing even the simplest things for herself, and yet, thanks to hard work and an amazing attitude, Lauren has excelled. She still needs plenty of assistance, of course, but the progress has been amazing as she's really learned to use her feet and even her mouth. I have told Lauren about the event and about Tisha. I'm sure that once the semester is over, she will reach out. I agree - Meeting others who are in a similar situation (which for Lauren and Tisha, is very rare) is such a valuable thing. All the best, Marion
  15. 1 point
    I have not been on here for quite a long time but have some good news on new technology that I am now using If you haven't heard of the EMS socket system, you will soon. I was the 2nd to receive this new inner socketry. First being a 40 year amputee BK and me being a 5 year amputee AK. Think of a golf ball and envision what the cover of a golf ball would look like inside out. Think dimple out or raised dimples. Your cast the same but the end result is a pliable socket thousands of "raised" dimples (oxymoron I know). Once my leg doc receives this piece from the manufacturer I am cast again while wearing it. When I came back the next time the socket is complete and in one piece. The inner socket is epoxied inside the carbon socket. I also use a proprietary pump system. Here is what is so cool about this new socket: The thousand of raised areas create a larger surface mass, 60% larger mass to be exact. Now I have a much larger area holding vacuum on my stump liner. The raised area also acts in a gripping fashion and the combination creates hold that I have never felt before. There are now about 15 of us on the globe with this new tech. They are designed by an amputee business associate of my leg doc and are now being made by Otto Bock I'm about 5 months in and the socket feels more part of me and the vacuum hold is amazing
  16. 1 point
    Hi Friends Old and New! Been away for too long but had to share this with you all. When the hot weather comes I like many of you suffer from a sweaty stump, last week my chiropodist gave me a tip, been doing it ever since and it works no more sweaty stumps! He told me to try Witch hazel a natural product applied with a cotton pad, don't ask me ehy or how it works but it does may also help swelling and itching. http://en.wikipedia.org/wiki/Witch-hazel Take care all of you Neil x
  17. 1 point
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  18. 1 point
    What Ann says makes sense. Tell your legman you want to try different systems. If he is unwilling to do this, try another legman. It is your longterm comfort and health that is important here. He can make suggestions, but only you know what works best. I don't have a skin graft, but cannot wear the pin system because of the pulling on the end of the stump. I've never used the Harmony system, but have used a vacuum system. I liked the way it made the leg feel like it was really part of me, but I didn't like the way it kept it's tight fit while sitting. It all boils down to the fact that no one system is good for all of us. I've been using Ossur's Seal-in X5 liner for the past 4 years and love it. It has the convenience of a pin system without the pulling and yet the snug fit I like as in the vacuum without that tight fit of a vacuum. It works quite well for me.
  19. 1 point
    I've updated the article massively, have a peek here and let me know what you all think.. http://91.151.214.107/viewtopic.php?f=38&t=10729
  20. 1 point
    Going to update the article soon as lots of stuff has changed so more advice to give, but on a different tack I treated myself to a helmet camera so here's a little video of me and friend at thetford forest. Enjoy :) http://rikk.smugmug.com/gallery/2860915_HL...4118_UinSV-A-LB
  21. 1 point
    Susan, when I get a rash like you are describing, I have used a Benedryle (?) cream, or the aloe gel version on it. Either one.. The cream is going to give you some "slip" if it's a new liner, and the gel won't.. Also, the local CVS pharmacy carries the same things in the generic brand too, and they work just as well. I get a rash at the top of a new liner, every time, and have found that the aloe version works really well for the itching and the rash will heal in no time. You might try something like that.....I hope it heals soon, those things can drive you crazy.
  22. 1 point
    HI I dont think I am even wanting to write on this post, because I picked something along the lines of dating still exists, it was the other one that tied with this one, but I have heard so many times that theres a guy out there for you and I am like ok...but my leg doesnt bother me, and I wear shorts all the time to school and I think every guy knows there is something wrong, but I havent been on a date and I think I am too young to actually know what love is, because all I hear and see at school is PDA and breakups, so I dont see where in my case, and age that I could know what love is, I know I am pretty, because GOD made me special. So if a guy likes me, someday he will sweep me off my feet, sometimes I get so overwhelmed and forget to think about whats really important to me, believing and trusting in yourself and knowing who you are and how much you have to offer this world is everything, for all people who havent dated and dont want to, I dont blame you, but if you get the chance, then have a great time. At my age that is what every girl is doing, going out on dates and ending up saying things they dont mean. I am not sure I guess I have mixed emotions on what is love really? Lesley
  23. 1 point
    Here's mine again! My Own Story I had been joking with other patients on the orthopaedic ward that the doctors didn’t know what was wrong with me and despite flu-like symptoms for the ten days previously, I wasn’t unduly concerned about my health. The aches in my leg as well as a couple of scabs on my knee that were taking longer than usual to heal were causing slight concern, but I had no reason to expect the sudden flurry of activity around my bed. A group of doctors, consultants and other medical staff all turned up to see me and seconds later the curtains remained closed, and the top surgeon Mr Ashley Brown & his Team at Southend General Hospital broke the news to me in no uncertain terms. He told me he had to operate immediately and even then he could not be certain he could save my life. He said he had no choice but to continue cutting until he was certain he had removed all the infected tissue. I was suffering from Necrotising Fasciitsis,a Tissue -eating bacteria which cuts off the blood supply and attacks organs, muscle and body tissue at a rate of 2cm an hour! Antibiotics can’t treat it, and if not dealt with swiftly it can kill and often does. When the bacteria is removed from the body, it leaves toxins into the bloodstream causing the body to go into toxic shock, and sufferers often die from this rather than the NF. I couldn’t believe what I was hearing and there was barely time for the news to sink in. I had just two hours to prepare myself for an operation that at best I would survive, with a leg missing, but at worst I would not survive at all. There was just enough time to see my German girlfriend Silke and my two daughters, Amy 12 and Louise 15. ( I am divorced) It was an emotional time for everyone, but at least I didn’t have long to dwell on what was about to happen. It was hard to believe that just a couple of weeks earlier life had been perfectly normal, and now I was being told I could die. I worked as a roofer, and only twelve days previously had been working on a flat roof, where there had been some stagnant water in a blocked outlet. It was nothing unusual and I am quite used to have clear leaves and other debris from such ducts. This time, the foul-smelling water obviously harboured this deadly germ and a couple of scabs on my knee provided the point of entry for the infection. Sore knees are just one of the hazards of working as a roofer, and as one of my hobbies is scuba-diving, they sometimes don’t get a chance to heal very quickly. Just a day after working on the roof I began to feel unwell, with flu-like symptoms, and aches and pains in my leg, which I put down to a pulled muscle while I had been working. This continued for almost a week, before a friend took one look at me and said I really ought to go into hospital. Even then staff didn’t know what the problem was, apart from the Dermatologist a Mrs Henderson who’s quick thinking in sending away cultures for analysis confirmed the diagnosis of NF. Following the operation, I was put in a sedated coma for ten days, as the toxic shock took over my body, and I was left to fight for my life. It’s a little like having sunburn on the inside as the body heats itself to such a high temperature to fight the bacteria, and all this overheating causes the body to burn up many calories. It as very fortunate I weighed a hefty sixteen stone because those who don’t have any excess weight, literally waste away. Afterwards I weighed just 11 1/2 stone, and soon after I came out of the coma, I remember my mother trying to force me to eat chocolate as nursing staff had told her how important it was that I should eat. My leg had been cut eight inches above the knee, and because it wasn’t a planned amputation, and surrounding muscles were infected, it wasn’t finished in quite the same way. Fortunately an eminent plastic surgeon happened to be at the hospital that day. Mr Lotion Kengesu He, along with many other doctors were present during the operation, as it is something very rare. His expertise ensured I was left with a stump that could accept a prosthesis ( walking aid) without the need for further surgery. During the ten days I was in the coma, Silke, an osteopath, talked me through what had happened, and I did take in things she had been saying. The first time I was fully conscious I didn’t want to look at what was left of my leg, but it is vital to do so as part of the recovery process. You have to accept what has happened, andI was given counselling by some wonderful nurses, (by this time I had been moved to a specialist Plastic sugery unit St Andrews in Chelmsford ) who helped to look at my leg, touch the wound and see what had been done. It is hard to describe my feelings afterwards, as it is something none of can ever imagine happening. The first time I tried to sit up was awful. I had been lying down for two weeks, and as I raised my head the room began to spin, I felt nauseous and it was very emotional. It took a while to come to terms with what had happened. I spent a couple of months in rehabilitation , before finally coming home, and learning to adapt to a totally new way of life. I now wear a prosthesis and prefer not to wear a cover on it to make it look like a real leg. The phantom pains that amputees can suffer from are very painful, as the nerve endings look for a path, and if you start kidding yourself the false leg is a real one, the pains can be far worse. My family has coped well with what has happened to me and my girlfriend has been very supportive. Obviously I had to give up my job as a roofer, and am now still keeping busy. Studying for a diploma in I.T. Scuba diving & playing chess! I plan to go to University in January for a short course to train as an Access Auditor, helping to ensure public buildings come into line with various disability requirements. I also Work as a voluntary visitor for amputees and the disabled. Disablement has opened my eyes and made me reflect on how fragile our lives can be. Until this happened I was just like every other able bodied person, not really caring much about the disabled. But I now know just how much discrimination there is amongst the British whose ,traditional stereotypical stiff upper lip, and dislike of anything not quite normal prevents them from really looking at what’s going on and seeing how they can help. I am very different to the man I was a year ago and despite the trauma I have been through, I have emerged a much better person. As long as I get up one more time than I fall down! (sic Chris Moon) 1 leg still standing! :D Ps Since writing this piece 4 years ago, I now work as a Access Officer at Chelmsford Borough Council, I work as a model part time also. I have married my beloved Silke and I have continued working within the disabled movement: I play amputee football for Southend United, Scuba dive, play chess for Essex.
  24. 1 point
    My story I was a paratrooper in the army and I was deployed in northern Iraq. I was sleeping in one of Chemical Alis palaces. At about 3am I woke up and had a bad feeling didnt know what it was when all of a sudden BOOM an RPG came in through the window bounced off a wall and blew up at my feet. I crawled for my weapon when one of my sergeants saw that i was hurt and called a medic. I didnt really know how bad they were until i got back to the states about 10 days later. They originally told me I would only lose my left leg but when I finally saw my right foot I knew it was gone to.
  25. 1 point
    I've found dating to be actually a little easier now that I'm an amputee. I'm more comfortable with my body....as if the things I was worried about before have become so unimportant. I'm relaxed in my own skin, and I think that helps project a sense of confidence & ease. My only advice (& I learned this the hard way) is be up front about your disability. Honesty is a good starting point, and if the person decides they can't handle it, then you are better off without them.
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