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Heather Mills - Amputee Forum

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Showing content with the highest reputation since 03/15/2017 in all areas

  1. 1 point
    Hi Everyone, Wow - Hard to believe it's been almost a year since I've posted here! It's crazy how time flies. I hope everyone is doing well and getting ready for the holidays! This update is going to be quick, which is a good thing. Lauren is doing very well. Every day continues to get easier for her, and she has really settled into her new norm. The days of thinking about "pre amputation" and "post amputation" are getting fewer and further between for Lauren, and she had an amazingly good semester at school. She's home now, and it's great having her here for the holidays! She continues to use her cosmetic arms regularly, and I think they've given her more confidence to go out and just be herself, even though they aren't functional unto themselves. Cold weather is always a little harder for Lauren given that it's not as easy to go barefoot or in sandals, but she doesn't let it get in her way, and it is truly amazing how her feet and teeth can do so much. The human body truly is amazingly adaptable. I'm going to try to post some new pictures here a little later so you can see just how far Lauren has come. I hope everyone is well. Best wishes for a fantastic holiday season. -Marion
  2. 1 point
    Wow, 8 months now on this socket, been a really good fit!
  3. 1 point
    Hi desperatewalker! OK well let me start off by saying your not alone. With that you may draw the inference this means there is very very limited funds that centers draw upon for prosthetics and their ultimate provision. To be able to grasp what your issue is could you tell us your amputation type, how long have you been an amputee, what is your current provision, your level of mobility or capability and finally which DSC you attend . Off the bat I can tell you from personal experience that if you can demonstrate levels of capability, need and beneficial results from provision , the there are numerous limbs the NHS can provide to assist in helping you fulfill your potential. If you are ultimately looking for that shiny plug in kit lime the ex military lads get via the NHS then your likely to be wasting your time. Unfortunately there is a real two tier prosthetics provision system in our NHS where ex military ( using redirected public funds from the NHS - into a special funding scheme for ex military only) not only get fastracked access to NHS specialist center treatment but are also given exclusive access to prosthetic componentry that civilian users are not considered for and unable to be provided with. Disgusting and unfair YES of course it is- limb loss is traumatic and devastating regardless of how we end up with it. Many of us do not get the chance to choose a scenario where that risk is increased or demolished - ex military to some extent had the opportunity not to sign up and thus reduce their exposure to such risks - I'm sure most of us civies would love to of had a chance to do something to help avoid our limbloss. Anyway that's a whole nest of hornets for another post and day!!! So let me know about the things I mentioned and we'll take it from there- I'm sure I can help you see it from a rational perspective and realistic viewpoint. One last thing - being the NHS be prepared for the long haul and to jump through the proverbial hoops to get the stuff you need. Do you also have any underlying conditions that caused or contributed to your amputation or are you otherwise fit and well? Hope I've helped a bit and I'll do what I can to steer you in the right direction .
  4. 1 point
    What Ann says makes sense. Tell your legman you want to try different systems. If he is unwilling to do this, try another legman. It is your longterm comfort and health that is important here. He can make suggestions, but only you know what works best. I don't have a skin graft, but cannot wear the pin system because of the pulling on the end of the stump. I've never used the Harmony system, but have used a vacuum system. I liked the way it made the leg feel like it was really part of me, but I didn't like the way it kept it's tight fit while sitting. It all boils down to the fact that no one system is good for all of us. I've been using Ossur's Seal-in X5 liner for the past 4 years and love it. It has the convenience of a pin system without the pulling and yet the snug fit I like as in the vacuum without that tight fit of a vacuum. It works quite well for me.
  5. 1 point
    Susan, when I get a rash like you are describing, I have used a Benedryle (?) cream, or the aloe gel version on it. Either one.. The cream is going to give you some "slip" if it's a new liner, and the gel won't.. Also, the local CVS pharmacy carries the same things in the generic brand too, and they work just as well. I get a rash at the top of a new liner, every time, and have found that the aloe version works really well for the itching and the rash will heal in no time. You might try something like that.....I hope it heals soon, those things can drive you crazy.
  6. 0 points
    Hi All, I'm not sure how much this will help me, so consequently, I'm unsure how much help I'll be in return, But I think I need to reach out a little. My name is Ben, I just turned 50 last October. On April 6th 2002 at 13:40, I was sat astride my Kawasaki 650, that I was driving home after buying it around 13:00 feeling really elated. I waited in a line of stationary traffic right behind my girlfriends car, as she had dropped me off to buy it. To my left was a small road leading to a park, I was watching the traffic flowing freely on my right, and saw a woman talking to her passenger with her indicators blinking, showing that she was wanting to turn to her right. I assumed she could see me, before I could blink, I felt the impact. my left foot was on the road holding the bike up as I waited. I heard the noise and saw my leg pointing the wrong way. I felt a hard push as the lady, in panic I assume, put her foot on the accelerator instead of the brake. The right leg was a mess. As I zoned in and out laying in the road. I could hear crying, shouting and screaming. the next two weeks are completely missing. I am trying to keep this short but I need to explain the nightmare. If its too long you can skip to the last three lines. My right leg was broken in multiple places, ditto the foot and ankle. it was nailed and had two halo x-fix holding the bones in line. I'd had compartmental syndrome in the first few days, so had a large open wound. The left leg was supposed to be a straight forward compound fracture that ended up having pieces of my hip inserted, it got infected. So the piece was removed. Large dose of antibiotics and a piece from the other hip was removed and tried again. failed again! this time it was MRSA. The thing would heal partially then break down again and again. I had really strong antibiotics again and again with no success. Two years of enduring terrible nerve pains, it was decided removal of the leg was best. they unwrapped it after 7 days to see...…. the infection was still there. I was devastated, I felt so ill. I had further surgeries to try to "cure" it. All this time the bone pieces had been shifting in the right leg, enough to say it would need the nail removing and bones realigned. Eventually I sought out a plastic surgeon based in Oxford, the plan was to take a piece from my lateral muscle on my back, connect it so blood flowed freely and increasing my hopes of getting a prosthetic leg. At the same time the nail removal and realignment would take place. I came round and was mentally feeling hopeful. The surgeons came to see me telling me first that the nail couldn't be removed as the head on one of the bolts holding it had sheared. meaning I couldn't weight bear on it. the stump operation seemed ok at first. Then the piece of muscle was losing its blood supply due to another infection. The upshot of this has left me with a pretty useless right leg, an ugly stump and confined to a wheelchair. I had dark times, as I am sure most of you have. I tried to live as normal as possible, but I was a six foot 1 warehouse manager and a kickboxer that rode mountain bikes on incredible tracks and terrain. Obviously my job went as I was in hospital for just over 7 months initially. They were as good as they could be about it, and I completely understand their position. My hobbies were now completely gone, so lost touch with a lot of friends over time, as the months passed. My partner and her two sons were great I sort of house husbanded, as I got some compensation my brother talked me into a great idea for a business, that I sank a lot into it, but it failed 4 years later, with a tax bill to follow. The boys grew and the eldest now lives in Surrey and has a great job so I'm so proud of him. The youngest is at Liverpool university and is studying Mathematics, and theoretical Physics. Two clever lads, so I did a good job as a stepdad. Then 3 years ago out of the blue my partner said she didn't love me anymore and was at least honest enough to say the wheelchair was a huge deciding factor. So I feel totally emasculated, very very low at times again and feel almost unlovable. I had an infection in the leg recently that I had to have a "midline cannula", I believe its called and had worked out how I could "medicate myself" to end it all. I've re-written this whole thing several times now and think I'm going to post it as is. I'm still projecting confident, happy Ben. I tried internet dating, the ladies that did reply didn't read my full profile and contact either stopped or some were honest enough to say "thanks but..." as soon as they heard wheelchair, Its only below my knees that's useless! I feel so lonely inside, I haven't had even a hug for over a year. I'm not saying woe is me, its just I have always been a physical person. I miss contact, even just holding somebody or being held. Jeez! I really sound pathetic don't I! Well this is me, as I said I don't know if this will help me or any of you, but I'm just reaching out I guess.
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