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  1. 5 points
    Hi desperatewalker! OK well let me start off by saying your not alone. With that you may draw the inference this means there is very very limited funds that centers draw upon for prosthetics and their ultimate provision. To be able to grasp what your issue is could you tell us your amputation type, how long have you been an amputee, what is your current provision, your level of mobility or capability and finally which DSC you attend . Off the bat I can tell you from personal experience that if you can demonstrate levels of capability, need and beneficial results from provision , the there are numerous limbs the NHS can provide to assist in helping you fulfill your potential. If you are ultimately looking for that shiny plug in kit lime the ex military lads get via the NHS then your likely to be wasting your time. Unfortunately there is a real two tier prosthetics provision system in our NHS where ex military ( using redirected public funds from the NHS - into a special funding scheme for ex military only) not only get fastracked access to NHS specialist center treatment but are also given exclusive access to prosthetic componentry that civilian users are not considered for and unable to be provided with. Disgusting and unfair YES of course it is- limb loss is traumatic and devastating regardless of how we end up with it. Many of us do not get the chance to choose a scenario where that risk is increased or demolished - ex military to some extent had the opportunity not to sign up and thus reduce their exposure to such risks - I'm sure most of us civies would love to of had a chance to do something to help avoid our limbloss. Anyway that's a whole nest of hornets for another post and day!!! So let me know about the things I mentioned and we'll take it from there- I'm sure I can help you see it from a rational perspective and realistic viewpoint. One last thing - being the NHS be prepared for the long haul and to jump through the proverbial hoops to get the stuff you need. Do you also have any underlying conditions that caused or contributed to your amputation or are you otherwise fit and well? Hope I've helped a bit and I'll do what I can to steer you in the right direction .
  2. 5 points
    Hi Everyone, Really sorry for the long delay in getting the forum back up and running but it should be back for good now with proper monthly updates. The reason for the forum being down for so long is the constant hacking of the forum that was causing huge issues for the server. As of now, we will be doing regular security patches and updates to keep it up and running. The first proper upgrade will be on Monday but it will only be down for around 30-60 minutes. If we need to run any other updates in future that will mean down time we'll give you all a few days notice right here. We'd just like to give a quick nod to Johnny V for his constant support and passion for the forum. It wouldn't be here without him. Many thanks again and thanks for your patience.
  3. 5 points
    You all deserve one as well for all the work you do in the background to make this forum work for all of us...We do appreciate it!
  4. 5 points
    Just to explain a bit Disability Living Allowance isn't a benefit as such to replace earnings, its an allowance, graded to the disability, to help with the extra cost of living with that disability and help keep people independent. Its not enough to live on, but helps financially with support for people who can't walk very far or can't cook their own meals, or have learning disability or whatever, and it is given to people who are working also, and has been in place in the UK since the 1970's. Certain conditions including those who had two limbs or more missing were automatically given the higher rate mobility component, single amputees or other conditions were assessed and granted on need. The reforms are changing things and DLA is being replaced by PIP. I think what has upset a lot of people is not that the veterans shouldn't get what they are getting , most of us fully support them. Its more really the way civilian amputees are being treated and thought of, and this week there seemed to be almost a media attack on us. On Tuesday, a Government Minister said that using a prosthetic limb did not undermine mobilty and that many amputees would no longer be entitled to DLA, this was followed by an announcement from the PM that Veteran amputees would receive DLA or the new PIP automatically for life. What came across was that civilians didn't need it, but veterans did. This is happening against the background of what Lizzie2 is saying about civilian amps struggling with the services they receive, lack of employment opps, and also of course the general cuts that are happening throughout the country for everyone. The problem is that most of our gov ministers and probably the general public are quite misinformed over the situation and most don't realize the situation for civilian amps., unless they personally know someone and the media talks constantly about the 'technology' that allows amputees to do virtually anything, going alongside media clips of veterans who are doing amazing things on their prosthetics, and everyone seems to assume that civilian amps are able to achieve these levels too. However there are differences in levels of care here, the veterans are given a long period of inpatient specialist rehab, and high spec tech limbs ... which I know doesn't necessarily 'fix' everything, but for the main their care is streamlined, quick access to things that don't leave them waiting weeks or months for appointments, new sockets, components, etc., which is often the case for civilians, and this all helps to allow them reach their full potential and be very active, making it much easier for them to live independent lives and obtain employment .... nothing wrong in this, in fact this is how things used to be in a way for civilians but not always the case now and some, particularly complex amps, have to fight long and hard to get the kind of input they need because really the system has got very overloaded, there are many more amputees nowadays, which is good because people are often surviving things they didn't previously, but the resources haven't increased to meet this demand and I think our NHS system is struggling a bit to cope. I know its all political and media spin but to me it does seem a bit unjust.
  5. 4 points
    I to would like to wish every one a happy Christmas and a healthy new year , but most of all I would like to thank the mods and the few regular posters that still take the time to read and reply to anyone who posts on here , without them this forum would slowly disappear into cyberspace or where ever they go , I know face book seems to be taking over but being of the older generation I am not really happy over there............. so once again big thanks all and have a great Christmas Take care all …….Mick
  6. 4 points
    Nice to be back. Just received the e-mail
  7. 4 points
    Just want to say hello and pleased we are back up and running .
  8. 4 points
    Hooray!! I've missed this place! Three cheers for everyone who worked to bring the site back to life!
  9. 3 points
    Higgy, I spent the entire six weeks computer-less this last time! Drove me batty! My other stays in rehab, there's been at least one computer available for patients...when I asked at this one, though, their response was "No...but we have free wi-fi." I guess it's time for me to get myself a tablet or laptop...my desktop home computer does me no good at all when trapped at a place with free wi-fi............. With a little luck, this new surgery will only keep me out of circulation for a couple of days...at present, I'm scheduled to stay overnight, but there's a chance that, if the surgery goes spectacularly well, they could discharge me the same day. They already know I can meet all their physical therapy goals, since I just met them during my six weeks in rehab. Heaven knows I'd much rather be at at home! I'd appreciate some good vibes sent my way on Tuesday morning!
  10. 3 points
    The last time I was in the local hospital for a small surgery, the LPN came in early one morning wanting to give me my insulin injection before breakfast.... At least an hour and 15 minutes before breakfast. It is fast acting insulin. I argued and refused the injection, no matter what she said, until my breakfast tray was in front of me. I was released that day, and the more I thought about it, afterward the more bugged I was. I'm a big enough loud mouth to make a point.. but what if I were an unsuspecting senior who wouldn't stand up for themselves, being afraid to say no..Well, about a week after I got home, I ended up calling and asking for the director of nursing. I then explained that what would of happened to someone, myself included, if I had taken fast acting insulin with nothing to eat. That maybe they should train the nurses better if they think they aren't understanding just what happens when giving fast acting insulin with no food. I don't blame you a bit for writing a letter and letting the powers that be know what had happened. Stick to your guns girl! I hope all goes well for you in the days ahead.. Will you have a way to stay online?
  11. 3 points
    Hi Cheryl, You should definitely report the incident. It would be doing the facility a favor as people like this give the hospital a bad reputation. At the very least she needs further training in how to treat patients with respect and closer supervision for a time. She most likely is not suited to this type of work and the sooner she is made aware of it the better for everyone. I would write down exactly what happened and hand deliver it, if possible, to the Director of Nursing. What happened is totally inexcusable and inappropriate. Do all future patients a favor and report her.
  12. 3 points
    Sorry to hear about your ongoing problems Cheryl and I wish you all the best for your forthcoming surgery. Yes, it's a pain, but as you say, better than losing part of your foot... I honestly don't think you're overreacting (sp?) about your alarming experience - I'd be fuming too!The woman showed not only extreme ignorance, but her insensitivity is unacceptable for someone in her position. I'm sure that her 'boss' ( I think here in the UK it would be the Sister-in-Charge) would want to know about the incident. As you so rightly point out, there are other patients who may not be as alert and assertive as yourself who will also have to experience her bizarre and unorthodox practices! There are so many people who are unemployed who would LOVE a job like hers, and if she doesn't like her work I'm sure there are plenty of competent, sensitive and professional women who would gladly do it for her. You can always temper your complaint by praising those areas of care which you found to be excellent. Good luck and do let us know what you decide to do - and what the response is. And keep us posted about your surgery too!
  13. 3 points
    I hesitate to say this, because it's going to both frustrate you and sound like a "cop out," but the "best prosthetist" is the one who can fit you properly...it can change radically from person to person. Now, that said, there are some questions you can ask and some research you can do to try and improve your chances of meeting up with that "best prosthetist." When you're meeting a prospective prosthetist, have you asked them about their education and experience? They really should be a certified prosthetist, they should be doing continuing education to keep up to date with current developments in the industry, and they should have a significant amount of experience successfully fitting people like you — same type and level of amp, similar activity levels, same physical condition, etc... They should also be willing to explain what, how, and why they are doing what they're doing in the construction of your leg and how it will benefit you. For example, they should be ready and willing to tell you why they are "reluctant" to put you into anything other than a pin-lock system. (It could be as simple as the fact that a pin-lock is extremely unlikely to fall off under high activity...or you could still be shrinking, odd as that would be after four years, and a pin-lock is more forgiving with a changing limb. What ever it is, you should be able to get an explanation that makes sense to you.) If you've done all of that and it still seems like they are being forthright with you, then you may have to look at how you are approaching your fittings. Can you explain to them, clearly and in great detail, exactly how your prosthesis is painful and under what circumstances it hurts? Can you point out the painful spots? Does it hurt constantly, or only when doing a certain activity? Does it hurt when you sit? When you're standing still? Only if you're walking up or down an incline? When you're biking? The more specific and "picky" you can be, they more clues you provide for them to try and fix the issue. I once got really fed up with going to prosthesis fittings (I was still shrinking rapidly and I was going through a LOT of fittings), along with a number of other issues, and I just basically gave up and sat like a bump on a log with a sort of "YOU'RE the professional...YOU make it work for me" attitude. The result was the worst-fitting leg I've ever had. After several more visits attempting to "fix" the leg, again with next-to-no input from me, the technician got frustrated enough to demand, "What's UP with you, anyway? WHY aren't you talking to me?" And once I did start talking, we were able to work out a fix for the leg. That "two hours on/two hours off" break-in routine actually is a good idea if the socket construction is truly radically different from your past legs...the "crappy used foot" sounds like it's just a lousy (and I hope a temporary) compromise...could the foot be part of the pain issue? If you can even "practice" explaining your pain situation to us here, perhaps someone will have either a solution or be able to suggest ways to better communicate the situation. Do hang in there...you deserve to have a leg that can stand up to your activity level!
  14. 3 points
    Let's see...I'm upright, I'm walking, I have a lovely prosthesis that fits like a dream, and I have a ticket for what sounds like it's going to be a lovely and rather elegant New Year's Eve gathering..........May 2014 continue in this vein for all of us! Happy New Year, gang!
  15. 3 points
    I don't know about anyone else, {BUT} I just love Christmas., all the decorations, cantatas, food and of course we can't forget the Drink. But just look into the kids eyes {sparkle & dancing} why even the adults are acting much more civilized. There is actually love in the air {sometime}. Just want to wish each and everyone of you the most blessed & healthy Christmas & New Year you have ever had. ann
  16. 3 points
    Hi there Mike and welcome to our little corner of the world. For those of us in the USA, we're just coming off a long holiday weekend, so that might account for the lack of replies on this end...don't know what's got our Brits distracted, but I'm sure you'll start getting some responses soon. I'm an elective left below-knee amp myself. Have been for almost nine years, now...suffered a bad break in my left foot that kept breaking down every time they thought they'd gotten a repair and good healing. Yeah, the pain was not fun, and eventually the foot broke down one time too many and I developed a MRSA infection. After that got cleared up, I was offered a choice kind of like yours: re-try the longest-lasting of the previous repair attempts and keep me in a cast for many, many more months than what is considered "usual," or do the LBK amputation. It took me only about an hour to decide that I needed to lose my foot in order to reclaim my life. For what it's worth, I've never regretted that decision. It sounds to me like having a plastic surgeon involved might be a good thing, considering the extent of your previous injuries. My own amp was done by an Ortho, but I didn't have major issues at the site of my surgery. I've heard good things about Plastics and creating a limb that will be good for walking with a prosthesis. Do try to educate your self as much as possible about what you're going to be facing. Don't be afraid to ask questions of your doctors, ask to meet with a prosthetist, and, if at all possible, see if you can meet some other BK amps...just seeing how others get about and being able to get their input on "how to get on with life" can be a tremendous reassurance. And post any questions that come up here as well...when you're facing such a drastic change in your life, there is absolutely no such thing as a "stupid question." You're young and you deserve to be able to be active and enjoy your kids...and for your "basic BK amp," that's a real, attainable goal. Hang in there...you'll manage it!
  17. 3 points
    Hey...the gang's getting back together! Good to hear from everyone!
  18. 3 points
    It's much, much better on the foot front, Tammie...and very strange on the prosthesis side of things! My foot wound has totally healed and I was back up and walking again. Then........I was asked to be the BK "fit model" for a seminar by Otto Bock demonstrating how to cast and fit for the Harmony elevated-vacuum system. It was a fascinating experience, and I wound up with a test socket by the end of the day. I was thrilled! Then....well....we took the test socket from the seminar and set me up with a full trial leg. It's been a love/hate relationship ever since! I love, love, love the stability of the leg and the feeling of having a fully natural stride again. I HATE the fact that I'm getting a LOT of skin breakdown! The Otto Bock guys have been called in to advise on revisions, and they think the problem is in the liner, since I'm not a "clear" standard size. Next step is to try a custom liner and see if that will stop the leg from trying to eat me alive. In the meantime, I'm currently out of all prosthetic devices and back in the wheelchair until things heal up on the stump. I really and truly hope and pray that they'll be able to adjust things so that I can go on using this leg...even with it trying to eat me alive, there's a lot to love about this leg. Sooooo....wish me luck, gang!
  19. 3 points
    I hope your fittings go well...... I always loose patience with the time thing.......Ideally, it would fit right with the first try on....
  20. 3 points
    Ajax is too harsh. I use body soap when I take my shower.
  21. 3 points
    My heart goes out to every person on these forums who is struggling. I'm so thankful this forum exists, so we can all find help from people who understand. When I was doing my pre-surgery research back in 2003 (when the internet was pretty slim on information!) I could never find a book about an every day amputee, not the super athlete amputee, but a person who lived with a prosthetic in real life. Once I had my surgery, and it went well, I decided there needed to be a book out there for all of us who will never run in the Paralympics or climb a mountain. I'm a writer, by trade, so I dove in. My book, called "Just One Foot: How Amputation Cured My Disability." is now available, along with it's website, at justonefoot.com I'm trying my best to get a flier about the book (and some day a copy of the book) in every prosthetist office, and every orthopedic hospital waiting room. I want those considering this option to know they are not alone and that life can be very good afterward. Every time I get a tiny bit of proceeds from the book sales, I go buy postage, to send the word out to others who might need it. I hope to also speak to the orthopedic resident doctors at the med school here in Denver, to let them know that amputation doesn't always mean failure. Sometimes it can mean a better life...better than years of surgery and more crutches and pain pills. I hope to get a new generation of docs thinking in a new way - more about what is best for the patient, when a limb refuses to heal. Sometimes amputation means they can go on with their lives and be more active than they were before. I was so encouraged and supported by this forum when I was doing my research. I wanted you all to know it was very appreciated and that I'm trying to give back, by getting this 'everyday amputee' book out there. Thanks again!
  22. 3 points
    I know that I am probably posting this "out of the blue", but briefly, I have never have funds to walk well. This year I faced the daunting task of never walking again. That broke 3R60? Remember? Anyway, Ed Dean sent me a knee that was such a life saver at the beginning of this year.......and such a blessing...... This is my story....from after receiving my knee from Ed.....until my conniving CP and Ed put their heads together and turned my whole world upside down. Wednesday 25 July 2012 - A very special day in the life of an ordinary RAK amputee from Africa I think it was round about the middle of July maybe, when Marco (my legman) gave me a call and asked for a favour. He had a group of student prosthetists coming to his practice and he needed a body to use to show them how to build and fit a test socket. Test sockets. My favourite thing, sigh. But for Marco, anything. I'm normally quite good at self motivation.......stuff like, well, how bad can it be? I've done it a hundred times before. I'm not walking so badly on this 3R60 that Ed Dean sent me. In fact, I'm doing quite well considering that the knee is built for someone almost twice my weight. I'm lucky to be walking at all. There's a click in my foot, Marco can fix it for me. I need to get off this farm and see real people. I don't hate the fitting, and pinching, and tweaking, and donning, and "ow" here, and "ow" there. Marco standing behind me like a sergeant major yelling "walk walk!" Nah. Not so bad. Dawns the morning of Wednesday 25 July, and I am ready to go. Dressed as only a seasoned AK amp can be for a fitting. Girlie brooks, passion killer brooks, boy short brooks, short shorts, long shorts, and finally tracksuit pants. Yip, as ready as I am ever going to be. And I hie off to Pretoria, a goodly one-hour-and-a-bit drive. And I arrive in Pretoria, well on time (I'm usually late) and then I realise that I must have taken the wrong off-ramp. Every single street name is foreign. And when I say foreign, I mean foreign to a white South African chick. They are all black and ethnic names! No man. Names I can't even pronounce! I drive straight (which I always do when I am lost) and then pull over about 25 kilometres down the road to find out where I am, and what they've done with Marco's offramp. Is it even called Pretoria now? Maybe it's Tswane..... Ja, ja, I get the "oh didn't you know?", and the "but all the street names change all the time", and the "come back down for 25 kilometres and look for "January Maselela". Sigh - that is SO far removed from the original "General Louis Botha Drive" it's not even funny. So I'm late......but I get my coffee and walk into the rooms. Three people there, one with a camera (oh my hat, no man), and two with note pads (that I can handle). Yip, gonna be a long day. Marco smiles, thanks me for coming and introduces me to the three strange people in the room. And says "I have a confession to make....." I knew it! I just knew it! The b*gger told me that I wouldn't have to go through the whole plaster-of-paris rigmarole and now he is going to make me do it! Still smiling, he hands me a huge beautifully framed letter, and says "this is from Ed". I read most of it, get a bit teary......and hand it back to Marco. He has tons of beautiful letters and pictures up at his practice. He says "no, it's for you....to keep". Mine? Ah man....my heart. How precious is this? Marco says "by now you probably have guessed that these aren't students". Huh? Well no, the thought hadn't even crossed my mind. Then who the hell are they? These strange people, taking notes, smiling at me, sharing my private Ed and Ally and Marco moment? "They're from the media" says Marco. Oh. OH? Marco hands me a very familiar and deadly expensive box, a gift from Ed, he says. It's an Iceross Liner! A brand new Iceross Liner! I'm so confused, so very confused now. I manage to sputter out "but what size is it? How did Ed know?" Marco tells me that Ed asked him to buy it for me, a gift, from my Ed. I am properly finished. This is a hugely expensive piece of silicone. And the three strange people are smiling and taking notes and taking pictures, and I am cradling my liner like a brand new baby. And I am blessed. Then the journalists are asking questions. Tons of questions. Old questions that most people would find boring about my life. My accident, how did you cope, what was it like - nothing, I swear nothing in my life is this interesting that three journalists would take time to write down the complete normalcy of my every day existence. Then Marco says "Ed sent you one more thing" and hands me a tiny little box wrapped in pretty pink paper. Can I open it now? Yes, yes, and Marco is smiling and the strange people are smiling, and I am warm inside. So very warm because Ed has done so much for me already, and still he continues. I think my scream may have shattered Marco's glass doors. I think one of the strange people snapped his pencil in half. And I am screaming, and crying, and shaking my head "no no no". This cannot be. Marco is smiling and nodding, yes, yes it is. And then I am silent, tears falling down my cheeks. I am holding sixty thousand rand in my hands. I am holding my first brand new prosthetic knee. And it's hard to breathe, and it's harder to believe. And there is one more thing.......Marco says "are you ready to speak to Ed?" And he hands me the phone, and I speak with my Ed in person for the first time in all the years I have known him. I forget the conversation now, truely I do. I remember standing in the corner, trying to hide from the strange people, trying to say thank you, trying to not be so overwhelmed that I fall into a heap on the floor. And then we fit the knee. It is so pretty, so small, so light! And I am walking, and walking, and outside I am leaping in the air, and the strange people are laughing and taking pictures and I am queen of the universe. Queen of Pretoria, or Tswane.....who cares - today I am standing tall. And I am wrapped in a bubble of love and compassion and complete awe. The journalists leave, still smiling.....and the biggest black chap turns to me and says....."well, you have a good day. Oh hang on, never mind, you already are!" And I impulsively bear hug him which I guess isn't the most culturally correct thing to do in Africa, but I don't care because I am after all, a woman with a new knee. And I am blessed. Who knew that two most extraordinary people would take such time and care and effort, and conspire for nearly 5 months to make this awesome day a reality for me. And present it to me so beautifully and so lovingly. Lots of hugs, tears, laughter and kind words later, I am on my way home. Light as a feather. Smiling like a crazy woman at people in the traffic. Smiling at nothing and smiling at everything. Smiling and smiling and I just can't stop. My mind is ticking over, my head is going to explode.....I have so many special people to tell. I have so many special people that must read my letter from Ed. There is much to do. Much to do, my Ed, today, and for a long time to come. You are my golden, my PLU. You have blessed me in abundance. And I thank you from the bottom of my heart.
  23. 3 points
    OK...this is my "moderator" self speaking here, so forgive me if it sounds "odd" or even "cruel"...but I'm so glad that we have two new members looking at recovery from an HP! Not that I want either of you fellows to have to go through the operation and recovery...but it's so good that you'll have each other to share the process, work out coping strategies, appreciate accomplishments, advise each other on "what works" or "what doesn't"...and just be able to have someone to consult who is actually going through the same thing at the same time! When you're looking at such a severe operation, it's sometimes very hard to find someone who can fully relate to the situation. So take advantage of this, guys...it's a good thing!
  24. 3 points
    Ok, so if you laugh, you are NOT a bad person. This was taken 3 days after I received the most precious gift of a brand new 3R60 from Ed Dean. My one amputee pitbull is also somewhere in this vid, laughing (I hope), but probably thinking "what a chop"! PS : I am normally quite sane......yip, I am :) http://www.youtube.com/watch?v=0ievUE-fhLU&feature=plcp
  25. 3 points
    Celebrating 10 years survivorship of cancer and Limb Loss today. It's great to be here with all of my friends and family. What an awsome journey that has been created with so many new opportunities, causes, friends and associates. Thank you God.
  26. 3 points
    I changed Leg docs. I had the new C-leg and the choice of three great feet, sub atmospheric electric pump vacuum blah blah.......... I ran across this younger Leg man who still lectures at Northwestern University. He developed a brimless socket for me that has a frame that is wrapped in a rubberized plastic. Harder in some areas, softer in others where my muscle is to allow for flex while walking, skiing , whatever. It is sooooooooooooooooo comfortable not to have anything around my crotch or high thigh. The brimless flexible socket allows me to sit for hours in comfort. Ride a bike with no interference. My gait has gotten better since my feet are about 5 inches apart now when walking. Still suction socket using the Limb Logic which now has the new seal ring. It is so quite and rarely goes off. Still have the new c-leg and I use the New AT-1 Renegade which is perfect for my walking style, weight and airport hopping. Another difference is the liner. The liner he uses is a Medi-Pro which is specially designed for the vacuum system. It also is partly made from UMBRELLAN the material used to help with Phantom pain. It feels like butter is what I told my new leg man. Just had to share since you folks are the only people that would understand. Kirk
  27. 2 points
    Hey cobber.............. Just updating as well...........
  28. 2 points
    I'm doing good Ann...... Has anyone heard from Cheryl yet? Ann, why am I just reading about you in and out of the hospital last year? If you facebooked me, I probably have cancer brain and missed it........ You ok? Cheryl..................... OH Cheryl.................. Where are you????????? maybe she snuck out to see 50 Shades of Grey......lol
  29. 2 points
    Hi Cheryl , Firstly sorry to read about all the bother you are having with your foot and I hope that you can get it sorted soon. Now to your post , as you may or may not know as far as amputation and all the stuff that goes with it I tend to treat mine as a huge joke , make jokes about it ,couldn’t care less what other people think or say don’t give a monkeys who see my “stump” when I stop to sort it out …………….but after reading your post I must admit I would feel outraged at what happened , in fact not even my wife would carry on like that and like I say I’m so easy , I can honestly say I would most likely punch the person and report them ……………….unless she was a tall leggy blond wearing a skimpy outfit and a drop dead beauty but then I think I’m on about a different scenario (mick slaps himself round the face) No I can honestly say if that happened to me I would report the person and kick up a right stink not only for myself but for any other people who might end up in the same situation as you
  30. 2 points
    Thank you Ann and Cheryl! We've been very, very busy getting Lauren ready for school! We flew down there last week to start preparations for her return (we're back in NY now), met with the therapists who she will be working with, and met with the 24/7 aide who will be with Lauren. She's very nice, and very willing to help, which is great. Lauren is definitely excited to get back to school, but I think she is nervous at the same time. It's absolutely going to be a challenge for her on many levels, but I know she's going to be able to conquer it. I think the emotional aspect of seeing people for the first time since losing her arms is going to be very hard for her, but I know that her true friends at school will help her get thru it. On the physical side, David and I are comfortable knowing that she's going to have the help she needs when she needs it, and that she'll be continuing her therapy. Lauren is continuing to make progress on all fronts, and her feet are getting more and more flexible as they continue to learn and adapt. She still needs help eating and still needs to be dressed, but she's making progress slowly but surely. She does sometimes get upset about the fact that progress seems slow, so we try to remind her that Rome wasn't built in a day, and that she's undergone a major, major physical change that will take time to adapt. I think she was initially expecting that it would be a matter of a few weeks until she was fully independent, but that's just simply not realistic, and it's going to be a marathon rather than a sprint. We leave Tuesday to head back to school to finish getting all set up - We will keep you posted!
  31. 2 points
    It is normal that an initial socket (when you first became an amputee) and a socket made after you've been an amputee for 4 years and your limb has stabilized to look completely different. As your limb atrophies and shrinks the shape changes from round to more angular and the socket usually looks more triangular inside as well as having contours specific to your limb. It should not hurt as it is made to fit you exactly. If your pain is point specific then the socket needs to be modified at that spot. If the pain is in the entire limb and excruciating after about 30-45 minutes it is possible that it is pressing on the popliteal artery behind your knee and cutting off the blood supply to your limb. That usually means that the distance from the front to back of your socket is too short. A socket for an active person is made to fit snugly but it doesn't take much to make it too snug. Cheryl is right that you have to really be able to describe what you are feeling for a prosthetist to be able to fix it. I am also a physical therapist and 2 hours on and 2 hours off is typical for breaking in a new brace or leg but if you're not tolerating it significantly better after a couple of days then there is a problem and the socket needs to be modified or re-made. Don't sign anything until your leg is wearable.
  32. 2 points
    http://www.change.org/en-GB/petitions/david-cameron-to-make-all-microprocessor-controlled-knees-available-on-the-nhs?share_id=pHngwpjvjh&utm_campaign=share_button_mobile&utm_medium=facebook&utm_source=share_petition
  33. 2 points
    Hi everyone!!! A big part of me thinks some animals have it right when they hibernate over the winter - but then we'd miss out on all the holiday fun Sorry I haven't really posted on here, been one of those years since the forum 're-launched' itself. Currently out of work and having no joy trying to find employment - which means I can't blame lack of time for not contributing! Due to have my third grandchild in the next 2 or 3 weeks, so if I disappear for a while, I will return! All the best everyone, and may 2014 be as good as it can for you all.
  34. 2 points
    Wishing you all a very happy New Year and best wishes for the year to come. Thanks to the Heather Mills moderators and other 'workers' in the back rooms of cyberspace who continue to keep the website up, running and safe.
  35. 2 points
    Okay...one final update, plus some info on the "teflon-ish" patches. I saw the doctor today and he was very, very pleased with the way things are holding up! On several occasions, he's pulled in all the various podiatry residents to show off and discuss my FFWs, and he did so again today. After letting everyone take a look at the former site of the latest FFW, he informed us all that my right foot is currently "the best he's ever seen it." My former callus has settled into just nice, flat, durable skin, and the patch looks like it's going to work. (Hooray!!) After the little celebration in the exam room, I asked for more info about the little blue teflon-ish thing hanging out in my right shoe. So here goes........... It's called a "PTFE patch." It's a strong, tough, waxy, nonflammable synthetic resin produced by the polymerization of tetrafluoroethylene. It actually is a variety of teflon, and it's manufactured to fill in microscopic spaces. The PTFE part of this patch is commonly available at just about any home improvement center...where it's known as PLUMBERS' TAPE. Yeah...you fasten plumbers' tape to an adhesive paper backing and you get the thing that saved my right foot. (Good grief! ) Doc says that it's becoming popular in podiatry circles and orthotics manufactuing. He's never heard of it being used in a prosthesis, but those prosthetists who also build/fit orthotics are most likely aware of the PTFE patch...if you have a "sticking problem" that leads to skin shear injuries, you might want to talk to your prosthetist about giving it a try. So that's the story of the 2013 FFW. May it never recur again!
  36. 2 points
    Hi Mick, It really stinks to hear some people are so angry that some one else won't just sit on their backside and not try to regain their life. I guess that probably makes me naive to think common sense should prevail. Perhaps it is over simplifying but it is their loss and your gain Mick. And to anyone else who wants to do so - give it your all! What's to lose! Jane
  37. 2 points
    UPDATE TIME: I've been declared "technically healed" of the FFW!!!!!! That "technically" part is that the new skin is still very, very delicate...so Doc has requested that I spend another ten days in the wheelchair (but without a footrest), so that the new skin will have a chance to "toughen up" a bit before I start walking again. I can do that! On a related note, in the three weeks since my last appointment there has been a new, non-surgical, possibility that's popped up to try and take some stress off the FFW spot. I've been given some small, adhesive teflon-ish patches which, once I'm back in a regular shoe, I am supposed to stick onto my orthotics where my darling little sesamoid bones hit. The theory is that the sesamoids will slide harmlessly over the slick patch, so there will be no pulling on the skin...and therefore no FFW. It's an experiment, but if it works I should be able to walk without fear of breaking the skin. If it doesn't work, we're back to doing the pair of surgeries...so think good thoughts about small, adhesive, teflon-ish patches for me, gang! Hooray! I should be walking and driving again well before Thanksgiving this year!
  38. 2 points
    Hi Friends Old and New! Been away for too long but had to share this with you all. When the hot weather comes I like many of you suffer from a sweaty stump, last week my chiropodist gave me a tip, been doing it ever since and it works no more sweaty stumps! He told me to try Witch hazel a natural product applied with a cotton pad, don't ask me ehy or how it works but it does may also help swelling and itching. http://en.wikipedia.org/wiki/Witch-hazel Take care all of you Neil x
  39. 2 points
    I don't think there is anything wrong with using a wheelchair or a walker or crutches. I have all 3 and find that around my house, before I put my leg on in the morning and after I take it off at night, I mainly use the wheelchair. The walker is second for getting in and out of the shower and the crutches mostly stand by themselves in a corner. The reason for me is simple - function. The wheelchair is faster and safer and I can carry things when I use it. The walker is stable and I value that when showering. If I did a lot of walking without my leg on then crutches would be the better choice for speed and overall efficiency. It is all about mobility and what works for you.
  40. 2 points
    yes it is & we where very lucky with the weather . a short clip from today :- thanks mick
  41. 2 points
    Hi Everyone, I'm in my second week using the Ossur Iceross 5 ring liner with a light sock under and in a new socket and so far so good! I had been plagued with scar breakdown, infection, yadaa, yadaa.... since Christmas. The last round kept me out of a leg for a month. I so wish my crutches were wood so I could burn at least one pair as a sign of freedom from the retched things. When the wounds were being so stubborn to heal my wound care person gave me a goop called "Medihoney". The stuff helped work off the dead tissue allowing the new stuff to form. It has worked great and helped me to avoid the Plastic Surgeon office that was next on my wound care person's suggestions. The stuff is a New Zealand product made in Canada. I'm going on line later to order a tube just in case the problem comes back. I'm off to the gym to further test the liner and socket. I also can show off my new socket colors. I went to a "smoke shop" type store were amongst other things they had a great collector of colorful tie dye shirts. Usually the resin coating mute’s colors bur in this case they popped. Bright yellow, vibrant pink blue and green are great. Happy colors and certainly no trying to hide what it is. Why should I. Like my glasses it is part of the package. Have a great day all. Jane
  42. 2 points
    More appreciated than ever.
  43. 2 points
    ATTENTION LADIES! You are invited to take part in our FIRST gathering of women (who happen to be amputees) in Florida! (and if you don't happen to live here but are visiting at the time, you are welcome to join us!!) Date: Saturday, October 6, 2012 Time: 10am-2pm Where: Prosthetic & Orthotic Associates (POA) 3160 Southgate Commerce Blvd., #38, Orlando, FL Organized by: Karen Hughes Dress: Casual/Comfortable This is a great opportunity for us to get together as members of our unique community for a day of fun, fellowship, and food for mind, body and spirit! After everyone has arrived and introductions have been made, Donna, a certified yoga instructor (who happens to be an above-knee amputee), will lead us in a session of adaptive yoga. After lunch we will have an open discussion of issues exclusive to women amputees - no subject will be off limits!! This event is open to ALL women in the amputee community with any level of limb loss and abilities. Please spread the word! The more, the merrier!!! Please RSVP to Karen at khughes@poacfl.com or call/text 407.721.3946 as soon as possible so I have a headcount for seating, lunch...and a few surprises. :-) http://www.poacfl.com
  44. 2 points
    The zip line that they have in Labadee is 2600 feet long, and goes out over the Caribean.. That is one that is definitely on my bucket ist......Ziplines are a blast.
  45. 2 points
    Hi i only had my below knee 7 weeks ago and around a week after the phantoms kicked in and wow did they kick in!!! I tryed meds and am now slowly stopping them,, the cure for me was mirror therapy wow it works,, i have no phantoms now but if i do get any i will right back to my mirror,
  46. 2 points
    I do think people look at men with artificial limbs and women with artificial limbs differently. Seems like men are "cool", women sometimes are felt sorry for which is ridiculous. I want to be cool too :)
  47. 2 points
    Thanks everyone. This past week was great! Got a leg. Learning to walk. Okayed to drive. And started PT. Oh yea, got my first blister too. I am happy.
  48. 2 points
    Congratulations to you!. Everyday is one more day that you are blessed! Here's. to another 10!!!!!!!
  49. 2 points
    Funny how many surgeries there are in March and April...my 5th anniversary will be Monday, 4/9...much better off today than 5 years ago :)
  50. 2 points
    Congratulations to both of you - you are both such great models for others.
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