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Heather Mills - Amputee Forum

Lynne

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Lynne last won the day on December 7 2013

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About Lynne

  • Rank
    Advanced Member
  • Birthday 01/16/1961

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Profile Information

  • Gender
    Female
  • Location
    Northumberland. UK

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    Left above knee
  • Amputation Date:
    18-04-2005
  • Amputation Cause:
    Failed knee fusion
  1. Lynne

    Hi from pre-amp in uk

    Hi Mike, I am in Uk. I had 30 operations to try to save my leg...including wearing a full leg Ilazirov frame for 18 months, turning the bolts every 4 hours.....it was a nightmare! I opted for above knee amputation after the fusions failed. I had my amputation 8 years ago, I ended up having 6 further surgeries after amputation because of other issues. I too had closed compartment syndrome, I did not have the information that you have, from the consultants you have seen, ie muscle salvage etc. it seems clear to me that your amputation is not a straight forward one. I think that if you decide to go ahead with it you must accept that it is not going to be an easy process, you probably won't have you amputation, heal, get fitted with leg and walk within the normal time period, ie a few months. Your journey is going to be a hard one. Sounds like you have decided already. I guess I just want to wish you and your family the best possible outcome for you, it will be a hard journey for you all. If you are aware of that initially it may help. I remember having such high expectations, get rid of leg, get rid of pain, more mobile. I looked at active above knee amps and thought that would be me after my amputation. I was wrong, lots more surgeries, failed leg fittings, spending thousands trying to get fitted. Now having to accept that although after 8 years I have a leg I can wear, I can only wear it for short periods of time, I can't walk without crutches. I am not being negative, just stating my facts. I really do hope that your amputation improves things for you, just be realistic about your personal situation and complications and make sure you have the right people on board both medically and personally. The very best if luck to you. I would not wish an Ilazirov frame on anyone so, either way you would have a hard journey ahead of you. I don't frequent this site often these days but just wanted to reply as my situation is so similar to yours except that I am above knee amp. Keep us up to date with your progress. Good luck.
  2. I wear a total contact suction socket, just a test socket at moment. I pull myself in with a lanyard bag, through the valve hole, leaving just the skin nect to the socket wall, no socks. Suspension works great ...now just have to get the fit good enough to wear it for any length of time. Interested to know why your leg man says that the suspension method you have used for so many years, won't work anymore? What has changed, apart from your leg man. Does he not have the skills of your old legman? Hope you find a solution soon.
  3. Lynne

    Air Legs

    Hi Ann, Are you talking about a vacuum assisted socket? Not sure they are used much in here in the uk. Used a lot in USA. There are various types. Sounds interesting. Are you going to go with them?
  4. Lynne

    Good to be back

    Hi Cherylm, One day when I have more time and eregy, I will bring you up to date with my amputee journey......it is not good, still no definitive socket! Eight years and counting......is this a record?
  5. Lynne

    Good to be back

    At last, up and running again. Gave up checking in, so good to find out we are active again. Thanks Ann.
  6. Lynne

    Neuromas are a pain!

    Hope you heal well Sue and that it will be an improvement for you. Also hope you get a good result from your orthopaedic appointment. Be kind to yourself, rest and recover well. Lynne
  7. Lynne

    Neuromas are a pain!

    I agree with Jonny, seems like separate things going on, neuroma's can be easily dealt with. Instability in your knee joint is an orthopaedic issue and I would seek a second opinion. Becoming an above knee amp is the last thing you need, understand your fears. Hope you manage to get the help you need with this.
  8. Lynne

    Disability Living Allowance debate

    OMG....I am in shock......lol There are quite a few stories on other sites of people who have been reassessed scoring 0 points under the new work assessments and to get the equivalent rate if PIP that means you can still join the Motability car scheme you have to be a permanent wheelchair user. Rules out a lot of amputees. People are having to hand their cars back. Some of us have been very proactive in trying to highlight the inadequacy of the new scheme, writing to MP's, house of commons, replying to questionnaires etc, but it seems to no avail. We need to stand as one on this....pardon the pun. Sue us around somewhere....hope she drops in soon.
  9. Lynne

    DIY Paint Job Prosthetic Socket

    Check out this site, also stuff on YouTube http://www.gtopi.com/ Might give you a few tips, even if you just want a plain colour. Let us see the finished result.
  10. Lynne

    DIY Paint Job Prosthetic Socket

    I have heard of people doing fantastic art work on their sockets using an airbrush. I would suggest a base coat, colour then laquer. It will smell for some time. Hope this helps.
  11. Lynne

    I'm looking for some tips and tricks...

    Hi Cheryl, Oh dear, not good. I agree with what everyone else has said and the only thing I can add is that it sounds like you will have to approach his aftercare in a similar way to caring for someone after a stroke. After all it is one side of his body effected. Perhaps you could research it, 'caring for someone following a stroke' ...just an idea. Hopefully when he is fixed up, either surgically or in casts, perhaps you will be suprised how much he can do. Good luck......Lynne
  12. Lynne

    Pain Managment Dr calls me Crazy!

    Hi Firstborn, I do understand your situation, although I found out after my above knee amputation that I had a condition (EDS) that would make it very difficult for me to be fitted with a prosthesis. Interesting also that as well as this condition, my pain management consultant and rheumatoligist also feel that I have RSD, this accounts for the level of pain I still experience following amputation and the way pain medications just do not work on me. I have had 38 operations now, 31 of them prior to amputation, so the pain levels were pretty severe at the time of my amputation and still are. However I would not say they were worse, they are just the same....if that makes sense. I am not sure what I would have done had I known about the EDS and RSD, I was in so much pain at the time, I just wanted it all to end. I am not sure I would have been in a right mind to believe what they were telling me had they suggested that amputation would make me worse......I would have probably gone ahead anyway. When you are in that much pain and it is effecting your life so much you just want some hope...however small... that things will improve, I would still have gone for the amputation. I hope I am making sense. I still can't accept that things won't improve for me, ironically it's that, that keeps me going. I don't know many amputees who have not been fitted 6 years on, or had to have so many revisions. I am in the process of being fitted, but the amount of pain I feel in my stump makes using a prosthesis very difficult. The problems you face are specific to you and only you can make the decisions. I would be asking lots of questions, no one can tell you how much pain you will be left with afterwards, short term or long term, but they should be able to tell you if the amputation will give you better mobility and function. You need to ask yourself if you can live with the continued pain, long term if it means an improvement in your mobility. Would that be worth it? One last thing is to be kind to yourself, in this situation it is so very easy for your mental health to suffer. Believe me....I know. Feel free to send me a message if you want to.
  13. Lynne

    Pain due to prosthetic

    Snuba, Very interesting. I have a similar issue when I put my liner on. If I stand without liner or leg on my stump hangs down as would be expected. Then I put the liber on and it pulls my stump up towards the ceiling, giving the effect of a hip contracture. Obviously there are forces being applied to the stump but I do wonder what effect this has on the donning of the prosthesis. By the way, my leg also moves out to the side when I take weight off it. I don't have muscles attached to bone, so may be that is why? This is interesting, wonder if others experience it too. Lynne
  14. Lynne

    Hip Hiking?? And NOT the leg you would expect!

    Wonder if it has anything to do with you being knee disartic and your knee being off centre....just a thought. Also agree with what was said about using your pelvis more. A good exercise is to wrap a dyna band around your pelvis and get someone to hold the ends they walk behind you. The idea is that they pull on each side as you step into the resistance of the tightened band. Think an exaggerated model down cat walk....kinda walk. Not the high heels just the pelvis swing. Hope this helps.
  15. Lynne

    UK Hip Disartic / HP Amputees FYI

    Just to say, good luck with the facebook group and well done for doing something so positive.
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