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Falstaff1485

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Everything posted by Falstaff1485

  1. Falstaff1485

    The Silence of the Amps

    I have been very busy over the past few months too. As far as my amp and pegleg is concerned, there's nothing much to say. I've had this new leg with a flexible foot for about a year now and it's just fabby! The only think of note has come from from my involvement with Diabetes UK as a media volunteer. It's mainly concerned with my dealing with diabetes (incredibly badly) I did a stint on ITV news on Diabetes Awareness Day and some interviews with BBC radio 5 and some national press. I was also asked to do some filming for Jamie Oliver's "Dream School". The production company sent a crew and a couple of the lads to my little flat and we chatted. I suppose I was a reverse role model. I'm still not sure if or when I'll be on. If I'm going to be a TV star (not) I'll post it on here...if you miss it I'll post the address on the on demand site. Best wishes to all amps of whatever configuration! Regards Roger
  2. Falstaff1485

    Just wondering?

    I decided to pack it in after my amputation. I was a drama teacher and that involved being on my feet pretty much all day and sitting on the floor of drama studios. The first was very painful and uncomfortable at the time. The second was ungainly, difficult ugly and laughter provoking! The trouble is I’m an old, unfit and fat amp! I know, I know, I should be leaner and fitter, but there you are. And do you know what? I don’t miss it a bit!
  3. Falstaff1485

    Suction Socket

    I have had my new Echelon foot and it’s great. It has transformed my way of walking. It has led to a problem with my leg, however. This foot sits a little higher than my previous foot, and because I’m a shortarse with quite a long socket, my pylon with its lovely shock absorber was cut to its absolute minimal length. In order to have this shock absorber I have to have a longer pylon and this necessitates a shorter socket. My wonderful leggist has suggested, and I quote, a “total contact style of socket fitting and combine it with a suction suspension system in view to gain space under the socket to accommodate for the Torque and shock absorber.” I went for the recast this morning. The liner feels lighter and more comfortable than my present gel liner with a pin, but obviously I won’t know what it’s going to be like until the new leg is fitted. I thought that I would ask my fellow amps if anyone has experience of this, and can make any comments or give any suggestions or advice? Anything you say is, as always, gratefully appreciated. I’ll keep you posted on progress. Cheers, thanks and regards Roger
  4. Falstaff1485

    Smoke and mirrors?

    From "The Daily Telegraph" 15th June 2010. http://www.telegraph.co.uk/science/steve-jones/7829753/Phantom-limbs-and-smoke-and-mirrors.html
  5. Falstaff1485

    Suction Socket

    I thought that I'd report back after a week of wearing my new leg. Overall I'm very pleased with it. The suction socket is much snugger than my previous pin socket. It's moulded closer to the bottom of my stump and this allows me to have my shock absorber on the pylon, which combined with my echelon foot is really lovely. During the process my wonderful leggist found why I'm having horrible pains in my right ankle (the amputated one). A nerve ending receives a lot of pressure from my prosthetic leg and this causes the referred pain. I've had it since my amputation; at least it's nice to know the reason. At present I can't find any negative points about the new leg, but I'll let you know. As always thanks a million for all your comments and support. May the Easter Bunny nibble gently on all your peglegs! Cheers Roger
  6. Falstaff1485

    Echelon Foot

    I've just come back from an examination by my leggist. He wants to prescribe me an Echelon foot in the new year. I've had a quick peek at the website and it looks great. As we all know the only people who REALLY understand these things are amps. Have any of you any experience of this particular foot, and if so, were those experiences good, bad or indifferent? Any observations or advice would be much appreciated. Regards Roger
  7. Falstaff1485

    Echelon Foot

    Had the echelon foot fitted this morning. Obviously very early days, but it feels fantastic! Thanks to all who responded. Roger
  8. Falstaff1485

    Echelon Foot

    Just had an e-mail from my prosthetist. The new foot is arriving at the limb fitting centre next week, so I'll be going over there for a fitting as soon as pssible after that. Aftrer listening to people's experiences on the website and readingthe comments here, I'm very excited. I will report back when I've been using it for a few days. Thanks for your comments Roger
  9. Falstaff1485

    Attention UK Diabetes Amputees

    Please find below details of an event that Huw Beale of Diabetes UK sent to me. If you're interested contact him directly, but it would be nice to know if you're going to take part. Who knows...we might even meet there...for those of you who live away from London, it may be an expenses trip to the smoke? Roger Dear Sir/Madam I am emailing in the hope you may be able to help Diabetes UK with an awareness-raising event being planning for Diabetes Week 2009 (14-20 June). We are currently researching a media story around diabetic amputations that will be sent to the press in time for the Monday of the Week (15 June). It will be similar to another story we wrote last year around the fact that there are 100 diabetic amputations a week in the UK. To run alongside the story we are organising a photo call at our stand at the O2 Bodyworlds Exhibition (visit www.visitlondon.com/bodyworlds for more info) on the Tuesday morning (16) and it's for this that I need your help. I want to bring together as many diabetic amputees as possible for the photo (maybe even as many as 100 to fit in with 100 a week headline) and, only if they agreed, to be interviewed about their experiences. We realise, of course, that amputation is a very sensitive issue. We do believe, however, that if there are willing volunteers then this event will go a long way in raising awareness of diabetic amputation - even now, very few people in the UK realise diabetes can lead to this often devastating complication. If this event serves to avert just one amputation then we believe it will have been worth it. It should create a large amount of media coverage through which we can detail the more positive aspect about what we can do to reduce the number of amputations, what people without diabetes can do to reduce their risk of developing Type 2 and what people with diabetes can do to reduce their risk of developing complications. It will also serve to promote the work of the Diabetes UK/NHS Diabetes Specialist Services for the Management of Foot Disease in Diabetes group, being led by Bridget Turner, our Head of Healthcare Policy. Bridget's group is launching a protocol for commissioners that defines a high quality specialist foot care service, a care pathway to inform healthcare professionals how they should be managing the complex diabetic foot and a top tips resource for people with diabetes to inform them about how to get the best possible foot care. We have budget to pay for the case studies' travel expenses and they will receive free entry to the exhibition for the rest of the day. The photo call will take place at 11am and should not last longer than 45 minutes. I really hope to find as many case studies as soon as possible so I can speak with them at length over the phone and give them time to plan for what may be a day off work etc. Please feel free to forward this request on to anyone you think may be able to help. I am willing to speak about any of this over the phone if preferential to email. I look forward to hearing from you. With thanks and kind regards Huw Beale Media Officer Diabetes UK 020 7424 1152 Huw.Beale@diabetes.org.uk
  10. Falstaff1485

    Some Good News

    I have just got back from my limb fitting centre at the Royal National Orthopaedic Hospital at Stanmore. I had a recast in October after a lovely holiday in Spain, when I was walking well. The new socket was fitted to the pylon of the leg wonkily, and had to be constantly realigned until there was no more give. The prosthetist who did this leg was new to me and didn’t do a check socket because he didn’t do them. Anyway after 4 months of poor balance, pain, growing loss of confidence and almost zero walking, I went back to Stanmore saying, very politely, that I thought the situation was not right; I was transferred to the head clinician who was a completely refreshing change. He looked at my old leg, where I could not by this time get the pin into the clutch mechanism and with a wonderful Gallic shrug (he’s French) said that the old one would have to go and a new leg would be produced forthwith. I had a recast, the check socket was produced the following day, I went home in my wet leg and a week later I returned to have the new leg fitted. My leggist was meticulous, thorough and professional. After 90 minutes I had a leg that was amazingly comfortable and perfectly aligned. I walked to my car as if I was walking with two natural legs. I felt that I could have danced through the corridors. It’s lovely to report something good! Regards and a Happy New Year to you all. Roger
  11. Falstaff1485

    Some Good News

    Thank you to all for your good wishes. I have been to the gym a couple of times and am walking a littlt bit. I went to see my physio yesterday and she says that I am swinging my hip round a little rather than pushing it through to compensate for the fact that it's a tiny bit too long. This the confirms the opinion of my missis and myself. I'll phone my leggist in the morning..... Roger
  12. Falstaff1485

    Jet 2 Airline

    Did anyone see this? (BBC WEBSITE 5/11/08) An airline has apologised for charging an amputee who wanted to take a spare pair of prosthetic legs on holiday an additional £10 each way. Mick Skee, 47, of Wardley, Gateshead, lost both legs after contracting meningitis two years ago. He wanted to take a spare pair of false limbs on his holiday to Majorca next May but Jet2 told him he would have to pay a surcharge. The airline has now refunded the money, and said it had changed its guidelines. Jet2 also said it was allowing Mr Skee to fly for free on the holiday by way of an apology. Mr Skee said it was "ridiculous" that he could take a wheelchair on the flight free of charge, but his spare prosthetic legs would cost him extra. A Jet2 spokesman said: "Mr Skee's specific request was not one we had ever encountered previously and the carriage of an additional set of prosthetic limbs was not featured in our terms and conditions. "It is impossible to cover every possible permutation for travellers' requests. "We have now reviewed our guidelines and are moving forward. Requests such as Mr Skee's will be covered under our mobility guidelines rather than our medical excess guidelines." What a disgrace!?! Roger
  13. Falstaff1485

    Holiday Report

    My wife and I travelled by easyJet from Luton Airport to Alicante, leaving on 27th September, returning on 4th October this year. It was the first time we’d been on holiday (as opposed to visiting family) broad and the last time I flew from Heathrow, the journey, both outward and return, was a humiliating nightmare that left me ashamed to be British. I was naturally very concerned when I booked our holiday flights. I couldn’t have been happier or more satisfied with the service that we received from both airports and from easyJet. We arrived at check in at 3 o’clock in the morning. There was a helpful guy at the special assistance desk. We were checked in very quickly and efficiently and transferred to the foot of the stairs of the plane and were then put in the front row of the cabin. The crew were solicitous, friendly and helpful throughout. They looked after us brilliantly, At Alicante, they arranged for a mechanical monster to get us off the plane, and when it disgorged us into baggage, a wonderful lady then made our transition to the taxi effortless and pleasant. We stayed at a hotel called the Castiila in Playa San Juan, Alicante. Look it up on Google maps, I’ve just posted a review. We’d told them about me being an amp and they gave us a great room, with accessible bath, balcony, etc. They’d never had an amp before, and went out of their way to be kind and helpful. Fantastic location, near the beach, little bars and restaurants and the bus to Alicante was 50 metres away. I walked more than I had since my amputation, swam every day and came back to cold, gey, rainy England feeling great! I’m a terrible old moaner and will feature heavily in any future “Grumpy Old Amputees” programme. I had a wonderful time, and have a lot of people to thank, principally my marvellous missis, but also the airports, easyJet and the hotel! Take Care Roger
  14. Falstaff1485

    RELAX liner

    I went to see my doctor at the Limb Fitting Centre today. He was pretty pleased with my progress and we discussed my phantom aches and pains. He asked me if I would like to take part in the trials for a new bit of kit called the RELAX liner. It’s an attempt to provide long term relief from stump pain by using magnetic fibres in the liner, and it’s being trialled in Germany, UK and USA. Apparently it is thought that this might be effective. I’ll let you know how it goes. Roger
  15. We're in the process of booking our holidays in Spain. Looks like we're going by EasyJet. I wanted to make sure that we've got a bit of latitude on our baggage allowance if my shower leg takes me over the 20kg limit. Apparantly my shower leg can be regarded as disabled equipment if I get a letter from a hospital or doctor stating that this was indeed a prosthetic leg, and I did need it for showering. Can you Adam and Eve it? Regards Roger
  16. Falstaff1485

    Prosthetic pain

    Hi The excrutiating pain??? Been there, done that and it's bloody awful! I can really empathise with you. I wondered how the hell I was going to make any progress at all. All I can say is that hopefully things WILL get better. It's about building up strength in your stump and residual limb, getting confidence in what you're doing and getting your pegleg comfotable. That usually means your body adapting itself a bit. None of this is easy, none of this is quick (at least it wasn't for me). You're younger, fitter and much more handsome than me. Nobody said this amputee lark was easy, but it can be very rewarding. There's one thing that I've found though in my thirteen months of 5 toed-ness. The amputee community is on the whole, one of the finest bunch of human beings I've encountered either actually or virtually. If this sounds pompous and pontificating, I apologise; I'm capable of being both! I really hope things improve for you, and one of the great things about this board is that the ONLY people who will understand what you're going through are amputees. You can use this board to pour your heart out and no-one will think any the less of you. Keep going, keep improving! My very best wishes Roger
  17. Falstaff1485

    My Stump Surgery Is Set

    Your progress is inspiring! Keep going....I hope that you and your leg will become better friends very soon. With my very best wishes Falstaff
  18. Falstaff1485

    Back to work after illnes

    Samuel, congrats. I'm just back from my first day at work after my amputation (one year ago next Friday), and I was going to post it on the forum when I saw you beat me to it. Grr! Good for your self respect innit? Roger
  19. Falstaff1485

    Ooch! Ouch!! Waah!!!

    Had my new leg on Thursday. It felt OK when I put it on; there's a different kind of pressure from the last leg. It's an all round pressure, rather than under the kneecap. After a few hours it was pressing so hard on the bones on either side of the kneecap, that I was almost in tears (you big wuss, Roger). Olly, my leggist told me to come back yesterday morning. He'd put some lining in the socket and gouged out some of that around the sides of the knee. It was a little easier. I've put on weight because I haven't been able to exercise much on my old leg. My fluid retention has been fairly high, so I took some Frusemide this morning and have been peeing like a good 'un. My leg feels slightly better. Anyone else walked (or limped) this path? I feel that I need to perservere and be patient (how often have we heard that mantra?), but I'd welcome feedback, criticism, advice, encouragement, whatever. Many thanks Roger
  20. Falstaff1485

    Ooch! Ouch!! Waah!!!

    THE LEG Well the leg and I are getting better acquainted! I'm not sure who has made the compromise, it or me. Whether it's grown to fit my little fat stump, or my little fat stump has shrunk to fit it! Anyway it's much more comfortable now. It stays on all day and yesterday I had to put on a stump sock over the liner as the leg felt a bit wibbly and wobbly! THE FOOT As far as I know, the foot is just a bog standard one. It's in the ankle that all the bionic bits are. There's an excellent article in the recent issue of the Limbless Association's magazine about the new Proprio Foot; it looks fantastic, but it's not available on the NHS and won't be for some time. Unless I win the lottery, it's well outside my wallet , I can't afford a prosthetic toenail privately! THE GOLF I haven't yet played golf yet! The weather, as they would say in St. Andrews is driech! ("driech" is an old Gallic word meaning "bloody awful"!) Well it is Wimbledon fortnight, isn't it? When it improves I'll get out there! Thanks for help and support both publicly and privately!! Roger
  21. Falstaff1485

    Ooch! Ouch!! Waah!!!

    I have been going back to my limb fitting centre a couple of times. Ollie, my leggist has been adjusting and adjusting and every day the leg gets more comfortable. It's now at the point where I can wear it all day without discomfort and I'm not prefacing each first step with that horrible anticipation of "this is going to hurt!” I'm getting to really like this new leg. I'm getting used to the ankle, and of course it's wonderful to be able to just pop the leg on in the morning and walk a cup of tea in to my wife rather than wheel it in the chair. It gives my wife a few minutes extra in bed as well. Your support and advice has been invaluable! I've also had a wonderful response from the Limbless Association, who saw my original post. I hope I didn't offend anyone with my imperialist comments; they were meant to be a joke! I'm going to go up to the driving range later on this week and see if I can hit a golf ball.
  22. Falstaff1485

    Ooch! Ouch!! Waah!!!

    I really appreciate the support and advice, people. I wear a Juzo sock every night, like a good soldier! It sometimes falls off though. When I first had my amp, 11 months ago, the Juzo sock was a XXL. Now it's small. Now I know all you chaps are from the former colonies and the term "Juzo Sock" might be confined to the mother country, but I presume that's the same as the shrinkers that you speak of. If not, what? I might ask at the Limbless Association if there are any shrinkers available on the open market. In the meantime I understand that you lot have been managing reasonably well without us.... Cheers guys Roger
  23. Falstaff1485

    1 year today & ride next week

    Congrats Skully You are an inspiration! Roger
  24. Falstaff1485

    Hello from AK Drummer in Tampa!

    Welcome!
  25. I went to be cast for my new leg yesterday. This isn't a recast on my existing leg, but a whole new leg. I don't know if there's a technical name for my leg, so I'll try and describe it. (I'm a RBKA with my amp 10 months old) The leg has a silicone liner with a threaded bolt on the bottom of it. I had the liner on for about 30 minutes yesteday and the feeling was incredibubble! Firstly my stump is bulbous at the bottom and this liner managed to sqeeze the floppy tissue so that if felt less like a butternut squash. I'll be able to screw myself in if I get wobbly, and best of all, I'll be able to put the leg on by myself. At the moment it's a two person job every morning. The ankle will be able to pronate (not sure exactly what this means, but apparently I'll be able to play golf again!). Ollie, my leggist said that I'll feel drunk for the first couple of days while I get used to it. Now this may be old hat to many of you, but I'm really excited. I go for a check fitting on 31st May and get the leg on 7th June. if any of you have experienced this leg and want to pass on advice or tips, I'd be grateful. Incidentally, reading some of the comments from across the pond, some of you were talking about changing leggists, legs etc with gay abandon. Am I right in assuming that all your prosthetic work is private? If so, it must be due to that unfortunate little tiff between us in 1776. I'm not being snide, honest, just ignorant. Regards Roger
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