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Heather Mills - Amputee Forum

Caveman

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Posts posted by Caveman


  1. Like and agree with Kitkat's / Lizzie's last and the previous is all very interesting.

    I am above knee RHS with a weak left knee. On good days I am very active. On bad days due to stump issues, crutches only. On very bad days bum shuffling around the house is all I can do. My car is a adapted; it is essential.

    I want to work while I can. If and when my left knee gives up that will change.

    Whilst I hospital there were 2 very significant role models one good the other bad.

    GOOD: Consultant anesthetist above knee for 25 years and dodgy other leg - 50-60hospital working week, + a batch of hobbies. A full life at nudging 60.

    BAD: a 34 year old relative of a ward nurse, 3 years post work injury; below knee amputation , never planning on working again with insurance and state payouts.

    on another front, abuse of Blue Badges really winds me up!!!

    best


  2. Thanks all.

    and OneBlue - good to hear from you again!

    Had a 2-week trial on a 2nd hand C and was very impressed. Went out to France on on survey for a week and was very impressed on all fronts. Climb ladders, crawl in bilges ++.

    Compared to the Rheo the C is better. period. Noticed it most on down slopes. If I had the money I would go fot it; I havent and there is no insurance. I hear the Genium is better....

    In the UK I guess there is a post code lottery. I am surprised Grum had to to fight for a Mauch (I think they are advanced rather thans simple in the mechanical hierarchy!). When I lost my leg If I had been Portsmouth based I could have ad a C!! I tried a number of knees and thought the Mauch was the best for me: control, stairs, free for cylicng, locked for ladders. I rejected the endolite ip.

    My NHS service has been brilliant from day 1.

    Just been given a water aciivity leg with a water reisistant verion of the 3R95 and an ankle that can rotate 90 degrees. So can get under boats when on a drying mooring (work); sail and dive.

    ...and with Grum's last point, yes I would sell the house to escape the castle/prison to go private if I had to; fortunately the NHS has delivered. i was working in Turkey and Spain last week; UK and Sardinia this week, Italy and France the week after.

    and best to all


  3. Hello All.

    Havent posted for a long time.

    My privately funded Rheo knee died a couple of months back; just heard it is not economic to repair it. I have been offered a new Rheo at a 20% discount. I haven't got the funds.

    Very poor considering that I have had it for less than 5 years and has only been used no more than 50% of elapsed time.

    My NHS Mauch has worked admirably without issues over the same period.

    My NHS socket on the Mauch is not as smart looking but just (possible more) comfortable.

    OK the performance of the Rheo is better than the Mauch but is it worth the cost? Is it worth paying double for a "C"? I have no diect knoweldge of the ever increasing intelligent knees that are on the market.

    Where I am now after a few years of being an amputee is that socket fit is all and technology is secondary. I would like to have a new intelligent knee but cannot justify the cost. I guess the same logic goes for prescribing within a PCT. I guess expensive components are only for those on an insurance payout.

    What are the thoughts of others regarding benefits of "going "private"


  4. I've had my prosthesis since 5/1/09 and my ultimate goal was to ski and teach skiing again. I've realized both goals over the last 35 days.

    If you don't like hearing doctors or prothetists telling you you can't, fire them and find new ones!

    Here's a YouTube url of my C-Leg in action.

    Toby have you gone out yet with the X-T9? I'm getting that leg next week and will have to learn how to ski all over again. Oh well! Let us know when you get out on your board.

    <a href="

    target="_blank">

    Have you progressed to reds+ since the video? I was was concerned about taking my weak leg out if I tried to revisit what I used to do (all ountain on and off piste) Goy the mojo fully back this year and will be closing out the year in Zermatt where younger daughter is doing a season.


  5. I have had a Rheo for two years. I use an Elation foot, I find the adjustable heel very useful to tune a leg for the exact heel/toe action and have the same foot on my Mauch leg.

    I had a limp before losing my leg due to messy left leg; on good days and people who dont me are surprise I am am amputee. The gait is very natural.

    I did not get a chance to try the C. My Prosthetist thought was the best for me. When shopping around 2 other were going for the C; that I think is down to the ubiquity of the C its a safe prescription.

    The Rheo is cheaper.

    The C has 2 modes. the Rheo has as many as you wasnt which can be set up on a PDA. I don't bother as the knee adapts so fast.

    Will look to try a c when it is time to replace.

    there is nothing I cant do on the Mauch, but the Rheo is easier.


  6. I suspect most of the people that use this site with varying degrees of reduced mobility should get some form of DLA.

    In the UK I get severely wound up by the abuse of the benefits system (various incarnations) DLA and able bodied builders/familes etc using their late Auntie Mabel's blue badge for car parking.

    At the same time the system doesn't always pay when there is genuine need. When I was scraped off the road after my accident I lost one leg above knee and the other was a mess. I was wholly immobile for 5 months. I tried to get a benefit for that period. Was told I had to claim against my employer. They were oblivious to to the point that as a one-man-band, the employer was me and the "company" had no income whilst I was not working. the only way I could get benefits was to wind up my company and lose 20 odd years of credit and profile. Was a good incentive to get back to worK ASAP. but grossly unfair.


  7. I am above knee and very hairy. I have a suction socket. Long hairs pull and I cant get sores from the hair skin abrasion.

    Shaving gives good suction but the ingrowing hairs can create "zits".

    The solution (for me) that is comfortable and stable is to use a hair/beard trimmer at 0 -length. I also make sure the skin is always clean and use adaptskin or babycream


  8. Hi

    I expect u tried cycling by now, but if not..

    Im an AKA and do lots of miles, through trial and error id say:

    Get a bike, and cycling shoes with compatible pedals (recessed SPD cleats are easier to walk in and use)

    Adjust the pedals to allow yourself to unclip the shoes easily. For above knee amps, adjust the seat height so that its high enough to avoid full knee flexion (and a clunk on every rotation) and low enough to avoid full knee extension (which sometimes jolts your leg if the knee locks)

    Practice clipping in and out of the pedals with one leg on the ground. To begin riding, clip in the prosthetic side first, push off with your good leg, then clip in and away you go. It helps if you have a torsion pylon on your prosthesis as this allows for flexibility of the foot when pedaling

    Prior to stopping transfer your weight to your 'good' side, twist your foot and unclip. I tried many times to master unclipping on either side but found that it was much easier to just depend on the unaffected side. Providing that you transfer your weight off the seat and unclip the good side prior to stopping you will always lean to the correct side.

    If you are really enthusiastic get hold of a turbo trainer and clock up some miles while your bike is attached to it first.

    Short clip of me cycling with my dog:

    http://www.youtube.com/watch?v=tV1XVZFnj0k


  9. no - Its last weekend instructing at Shoreham; its taking up too much time with the amount of other stuff I do. Will carry on instructing but hope to do more for amputees at Lasham, (and not every sat). Also need to do some sailing ......


  10. Hi, I have just taken delivery of my first suction socket (RAK) and will have a follow up appointment in about 5 weeks. Before this I had a neoprene belt to keep the leg on so this feels so much more comfortable.

    My problem is this....................my work involves mainly sitting at a desk which isn't a problem but when I go to the loo and sit on the loo seat I loose suction! The other night I also tried using my exercise bike at home and after a few peddles I lost suction and I could shake the leg off!! Is it because of sitting on uneven surfaces or is the fit just not right? When the leg first goes on it feels really secure and not loose at all. Any ideas or suggestions.

    Thanks

    getting it on properly taks some time, its 100% or not working properly. And when not working you know.

    Can lose suction on loo/cycling - I push the valve and re-seat - usually works without redonning.


  11. RTA Blakbird lorry. right above knee, left messed. Nov 2006

    I have now managed to do everything I used to do before, sometimes takes longer, sometimes hurts. life is good and full.

    Welcome.

    used to do 20k miles per annum, would have a divorce if got on a bike again. fancey an aril atom tho'


  12. congratulations that is good, i wish i could manage that, im working on it but its taking a while.

    well done.

    I am now carrying up the morning tea on a tray (when up first which I admit is rare!)

    Another "normalisation"

    thats the kinda thing you conveniently cant do, you should be able to carry bags, bricks and all sorts up stairs but tea and breakfast is too much.

    p.s ive now learnt to do foot over foot so might be able to keep up with you next time.

    "one step at a time" sums it up!


  13. I have a simple "shower leg", its UK NHS and similiar to OBL description. Real leg is bent and full of metal after skiing and RT accidents.

    I also use it on the beach; not good for "work out swim" but ine for colling off and splashing about.

    I have a suction socket.

    Photo is just after some snorkelling off the back of a boat.

    post-2200-1240175064_thumb.jpg


  14. Hi all - have been hiding for a while.

    All is well.

    I am fortunate, most of my days are "good days". But the bottom line is that I am chopped on the right above the knee and the left is a mess. I do a lot, somtimes it hurts, badge helps.

    I hate the abuse of blue badges in the UK, particularly family members usng auntie mabels in their builder's transit vans etc.

    I see the badge as being one of the few benefits of the modified state.

    I always use a walking stick when flying ; helps on the ques. Last week week would have been 45mins getting through security - That is uncomfortable.

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