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Heather Mills - Amputee Forum

jocko

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About jocko

  • Rank
    Newbie
  • Birthday 05/06/1964

Profile Information

  • Gender
    Male
  • Location
    Minnesota, USA
  • Interests
    Golf, Computers, Fishing, Hunting

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    RAK
  • Amputation Date:
    01-01-1970
  • Amputation Cause:
    BD

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  1. Figured I’d give an update on the Rheo/Proprio symbionic rig I’ve had for a little over a year now… First, this is without a doubt the best “pure walking” leg I’ve ever had, and I’ve had a lot of them…totally stiff, free swinger piano hinges, mach hydraulics, total knees, c-legs, etc. This set-up knows what you’re going to do before you know what you’re going to do. There’s no need for a second thought on slopes, uphill or down. I play a lot of golf on some very hilly courses, and nothing compares to this. I haven’t had anything close to a fall…probably because of the Proprio is never in danger of toe dragging, even on hills. The way it goes “flat” in sitting mode makes those 2 hour conference room meetings much more comfortable. I also hunt a lot, and walking through woods with many obstacles on the ground has never been easier. So far, the only downside for me is battery life…I charge during the night and put it on around 5am. About 10pm I’ll hear the 2 warning beeps that means it has a couple of hours left. Usually, with normal activity, it’ll go to about 2am…so not quite 24 hours. Of course, me being up and about at 2am is a rarity, but it still happens. When it does die, it becomes a free swinger and that’s when the fun really begins…after being able to virtually ignore it for days/months, one has to be a little more careful about making sure one foot is going in front of the other, if you get my meaning. For years I was one of those guys who thought all this computer knee stuff was hype…I got along fine without one for 40 years so who needed something that would inevitably need constant service and attention. Boy was I off base on that one. Both this unit and my former c-leg needed only the routine service required by the manufacturer…bolt on the loaner and I’m in and out in 10 minutes. In fact, I’m wearing the loaner unit right now since mine is out there somewhere getting routine maintenance. Cost-wise…all I can say is WOW. It billed out (with a very simple suction socket) at $109,000…insurance ended up paying $70,000…I was not responsible for the rest. All I paid was about the $400 I had remaining on my deductible. The reason I went for a new one in the first place was that I had lost a bunch of weight and needed a new socket. Since the c-leg I was on was about 5 years old, my leg guy figured it was best to just go all new…I tried the Rheo/Proprio for a month and was sold. Ended up putting my c-leg on eBay and got $3000 for it. There also is a subculture of pervs around that like the sockets, so I eBay them for about $150 each…to each his own I guess. All in all, I highly recommended the symbionic rig, provided your insurance will pay of course.
  2. Prior to C-Leg I had a 3r80 for several years...best mechanical knee I ever used. Beat the sh*t out of it, got it wet on occasion and, with pretty much annual piston rebuilds, never had a problem.
  3. jocko

    New AK Setup...

    A few years ago I made the plunge into microprocessor knees and after a bunch of tests, decided on the C-Leg. The Rheo was a close close second (I think I posted long ago on what I liked and disliked about each one). I've been on a Rheo + Proprio setup for the last few days testing, and they have improved a whole lot IMO. So. I pulled the trigger and work on it starts this Thursday. Sticking with the old reliable suction socket...I've lost about 35 pounds since the start of the year so this one is basically falling off...he's adding padding to tighten things up, so I can live with it a few more weeks until the new one is ready. Even 5 years ago (or whenever it was) I actually liked the walking better on the Rheo, but other factors steered me to the C-Leg. The walking IMO has even improved now, and the addition of the Proprio makes it a no-brainer for me. Up and down pretty significant slopes was effortless (yes, even more effortless than the C-Leg, which says alot). Hopefully I learn to love the tiny little charging hole I have to deal with, and I'll see if I actually consistently turn the foot off at night (the rep said it's recommended, but I'm pretty lazy by nature when it comes to that stuff).
  4. Instead the bag thing (I've heard it called a parachute) I use a very thin sock to pull thru the valve. And yes, it's a one-way. I tried the parachute thing a few years ago, and yes it does work. BUT, the thing makes more noise than a busted chainsaw at 4am in the dark with a still-sleeping wife! Every time I visit the leg guy, I conveniently forget a sock, which makes him give me one. So, I have one hidden in every possible place I might need one...golf bag, tackle box, hunting bibs, etc.
  5. jocko

    Opinions Wanted:

    I'm obviosly super-late to the game here, but prior to my CLeg a few years ago, I was using a 3R80 for many years...best mechanical I've ever had. In fact, I was hesitant to go MP thinking it couldn't get any better than the 3R80. As it stands, I still have the 3R80 on an old set-up and use it for fishing and skiing...still works great.
  6. I've been using suction since the early 80's...I've had a CLeg for about 5 years now. I've never really had a problem with the suction socket. I'm actually in the midst of getting a new leg built and have been experimenting with the various MP knees and foot combos. My new socket though will be suction. I'm the type that is too lazy to go thru the steps of donning liners, spraying alcohol, etc. (just ask my wife). The suction socket usually takes 3 or 4 visits/adjustments to get it right, but once it's a good fit, it ain't going anywhere! :)
  7. jocko

    LEEDS limb fitting Centre

    Can't help either, but The Who - Live At Leeds is the best live album ever made!
  8. jocko

    BBC study- if your interested

    I thought the best thing about the BBC was "The Office" and "Life On Mars"....now they're gonna grow us new legs? Woohoooo !!!!!!!!!!!!!!
  9. jocko

    C-Leg / Rheo Comparison

    That looks sharp Jeff!
  10. jocko

    C-Leg / Rheo Comparison

    Damn...I woulda if I had even known about it....oh well! I moved out here from NJ in late 2002. This one was built by Rebound Prsothetics up here around me (I'm about 35 miles due west of the Cities).
  11. jocko

    C-Leg / Rheo Comparison

    You can do those things with other legs. There are legs designed for greater activity than C-Legs, and for other activities. No one NEEDS legs which cost £58k full stop. Of course, if you've got one and it works well for you, you will feel protective of it and defend it's use. I feel the same about my leg, but for different reasons. I had taken an extra long break from this forum, not because I wanted to, but because of some computer issues. Anyway, as a follow-up to this discussion I started long ago, here's what the finished leg looks like...
  12. A man with no arms walked up to a bar and asked for a beer. The bartender shoved the foaming glass in front of him. "Look," said the customer, "I have no arms - would you please hold the glass up to my mouth?" "Sure," said the bartender, and he did. "Now," said the customer, "I wonder if you'd be so kind as to get my handkerchief out of my pocket and wipe the foam off my mouth." "Certainly." And it was done. "If," said the armless man, "you'd reach in my right hand pants pocket, you'll find the money for the beer." The bartender got it. "You've been very kind," said the customer. "Just one thing more. Where is the men's room?" "Out the door," said the bartender, "turn left, walk two blocks, and there's one in a filling station on the corner."
  13. jocko

    C-Leg / Rheo Comparison

    Tough crowd, tough crowd. Well, having grown up right next to the BIg Apple, I know an average city block in NYC is 1/20th of a mile. So, an average 8 block walk in a city (which I was in, but it was Minneapolis instead of NYC) is about 2/5 of a mile. Adding in the actual widths of the streets you must cross at each bock, I would guess our unwillingness to pay for parking causes us to walk 1/2 mile...and that's with a beer in one hand and a smoke in the other (in addition to the sniper fire and other hazards I've previosuly noted)!
  14. jocko

    C-Leg / Rheo Comparison

    Yes, and it was uphill both ways...and there was a blizzard...and we were dodging sniper fire even worse than Hillary ever saw !!!!!!!
  15. jocko

    C-Leg / Rheo Comparison

    With my 3R80 (rec'd in 2002) I used the Axtion foot...first time I tried the Flex with the Rheo the difference was unbelievable. The 3R80 is definitely a fine unit...I had only 1 rebuild in 2007. The older Mauch hydraulics always seemed to need rebuilding every 18 months or so. The real driving force for me getting a new leg at all was, while doing the rebuild on the knee, my leg guy noticed the foot was pretty much falling apart. Looking closer at the socket also we noticed some cracks, so I decided to go new. At first, I had no interest at all in the microprocessors...I honestly thought they were all hype. While my 3R80 was in for repair, the loaner knee I got was, you guessed it, a C-Leg. After about 2 weeks my knee came back from Ohio and he took back the C-Leg. I didn't realize how accustomed I got to the C-Leg until I took the first couple of steps with the newly rebuilt 3R80. It was night and day. He ended up letting me keep the loaner C-Leg for another 3 weeks or so, then he put me on the Rheo. Basically, I'm keeping my old leg (with the new 3R80)...he's putting a used Axcion on it and I'll end up using it in situations where I might put the C-Leg at risk...you know, going to the beach, using waders while fishing, that kind of thing. Again though, I don't think anyone would go wrong choosing a Rheo now, but I think in 5 years it'll be even better. Hopefully also, the powers that be at Otto Bock will eventually allow other feet...a Flex on the C-Leg would be unbeatable I think. And it's not only the warranty issue, it's the design and pylon length required that seems to negate the Flex ability. I was all for trying to match a Flex to the C-Leg, figuring screw the warranty. My size 12 though requires such a height in the foot that it simply can't work with the pylon of the C-Leg. Now, as far as what kind of improvements you would see with a microprocessor over the 3R80, it's tough to describe. After a day or so, your mind seems to be retrained to not even think about your next step. All the work seems be done for you by the knee. I've been walking on these things in various incarnations since 1970. I thought I was pretty good at controlling them in all sorts of situations. Even you probably don't even think about your "next step" all the time. Your body knows what to do and muscle memory just seems to take over. The C-Leg (and Rheo) takes that concept to a whole new level. The foot is in the position I want before I even knew I wanted it there, if that makes sense. I had to get rid of nearly 40 years of "pushing" that knee forward to ensure a smooth landing. Now that pushing is done for you. The main thing I've noticed is my ability to simply walk faster with less effort...I notice it everywhere. I went to an NHL game the other night with a friend. We're cheap bastards by nature, so we park about 8 blocks away for free rather than pay $15 at the arena. I've made that walk a dozen times this season...I'm in decent shape, but was always a little winded by the time we would reach our seats. The first time I made that walk with the C-Leg, I felt totally different. I realized only a fraction of the effort was required to accomplish the same thing. I've talked to others that say they've reduced lower back pain, had more energy during the day, didn't bother using handicap parking spaces anymore, etc. It's still tough to describe though. If you get the chance, definitely try one.
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