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Heather Mills - Amputee Forum

peachgurlieinga

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  • Content Count

    9
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About peachgurlieinga

  • Rank
    Newbie
  • Birthday 12/19/1981

Contact Methods

  • Yahoo
    made_you_look_411

Profile Information

  • Gender
    Female
  • Location
    Atl

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    ale-lae
  • Amputation Date:
    11-18-1984
  • Amputation Cause:
    misdiagnosed
  1. peachgurlieinga

    watch me on Tyra Banks Show!

    On their website, the date is wrong.. I am obviously 'I Have a Rare Medical Condition'.. On their site it says Thursday Feb 24th, but Thursday is Feb 25th.. :) I see it as being shown on the 24th, not the 25th. is that correct or is your mom a "couger"?
  2. peachgurlieinga

    watch me on Tyra Banks Show!

    Just wanted to pass on the news.. Mom and I were flown to NYC last month to do the filming.. We just got word that my episode will air on the CW’s Tyra Banks Show on Thursday, February 25th to see my episode at 4:00pm EST!! Check out these 2 sites for your local listing: http://cwtv.com/thecw/stations http://tyrashow.warnerbros.com/whenitson/index.php The preview of the show: http://tyrashow.warnerbros.com/thisweek/ Also, abcnews.com did an interview.. check it out: http://abcnews.go.com/Health/Wellness/fibr...tory?id=9853121 ~ Ashley
  3. peachgurlieinga

    Hey its Chad

    hey chad! i dont post much here.. but saw yours so thought id drop in.. ill be talking with ya via facebook and or celly before you check this im sure.. keep moving that foot!! i'll see you next month buddy.. ~ your fav arm-less friend ashley
  4. peachgurlieinga

    ACA's 2009 19th Annual Educational Conference

    hey all !! i had a fantastic time in the atl with everyone !! i hated to see sunday come.. it goes by too quick!! ive met so many new friends this past week.. i forget whos where.. but ill be in minneapolis july 16-20.. san diego august 6-12.. and i fly into moline august 15-18.. if anyone is round there let me know!! ~ ash
  5. peachgurlieinga

    ACA's 2009 19th Annual Educational Conference

    i'll be there !! :) my 2nd time ..
  6. peachgurlieinga

    Good segment on GMA

    I met Susan & her hubby Josh at the ACA Conference '08 in Atlanta.. They are a sweet couple!! I spoke with Susan a few weeks ago and they plan on coming to ACA in Atlanta this year and she hopes to bring their 2 sons with them.. :)
  7. Hi all- I'm Ashley!! I'm new here to HM- but a few of you here know me.. I wanted to pass this onto everyone so copy and pasted the article on me from: http://corporate.discovery.com/discovery-n...ders-to-partne/ They may send me to NYC to be on the Today Show or Good Morning America to help promote Rare Disease Day and NORD !! I'll keep ya'll posted!! National Organization for Rare Disorders to Partner with Discovery Health and "MYSTERY DIAGNOSIS" for Rare Disease Day 2009 -- NORD Names Discovery Health Media Partner and MYSTERY DIAGNOSIS Program Partner for First Rare Disease Day in U.S. on February 28, 2009 -- February 9, 2009 (Danbury, Ct.) The National Organization for Rare Disorders (NORD) announced that Discovery Health and its popular series, MYSTERY DIAGNOSIS, will serve as media and program partners for Rare Disease Day on February 28, 2009. This year represents the first U.S. observance of Rare Disease Day, an event designed to call attention to the public health issues associated with rare diseases affecting nearly 30 million Americans and countless others worldwide. NORD and its 145 partner organizations serve as advocates for these patients by helping heighten awareness of their conditions and the need for increased research funding for effective treatments. Information on Rare Disease Day will also be featured on Discovery Health and online on DiscoveryHealth.com. Discovery Health's award-winning MYSTERY DIAGNOSIS chronicles the experiences of patients who suffer from conditions outside of the medical mainstream. Often the diseases profiled on MYSTERY DIAGNOSIS are the rare or "orphan" conditions represented by NORD. Each episode features patients who are initially misdiagnosed or undiagnosed altogether due to the uncommon nature of their symptoms and general lack of awareness regarding their conditions. Ashley Kurpiel of Atlanta has been selected to serve as a patient spokesperson for Rare Disease Day. Featured on the episode of MYSTERY DIAGNOSIS premiering March 2 at 10PM ET/PT, Ashley had her arm erroneously amputated due to a doctor's misdiagnosis of her rare disease during her childhood. At the age of 3, Ashley was finally diagnosed with Fibrodysplasia Ossificans Progressiva (FOP,) one of the most disabling conditions known to medicine-and through NORD, Ashley's family connected with one of the world's leading experts on FOP who has helped the family understand and cope with her condition. Although she was not expected to live past age 10, Ashley is currently 26 years old and leads a very active life despite the crippling disease. "Far too often, individuals with rare diseases are left to fight for themselves while suffering through multiple misdiagnoses or a lack of effective treatments," stated Carole Tomko, President and General Manager of Discovery Health. "Discovery Health is proud to join NORD in its efforts to generate awareness of these orphan conditions and raise the quality of life for the patients affected by them." This year represents the second Rare Disease Day worldwide, with the U.S., Canada, Australia, and China joining the nations of the European Union in observing the event in 2009. Overall, approximately 180 patient organizations, medical societies, companies developing orphan products, and others, have joined NORD as Rare Disease Day partners. For more information, visit NORD's Web site at rarediseases.org. About NORD Established in 1983, NORD is a nonprofit organization which represents the interests of all patients and families whose lives have been impacted by rare diseases. A rare disease is defined as one that affects fewer than 200,000 people in the United States. According to the National Institutes of Health (NIH), there are nearly 7,000 such diseases, affecting nearly 30 million Americans. NORD provides research grants and fellowships, educational services for patients, the public and medical professionals, and patient assistance programs. NORD provides advocacy in Washington DC on behalf of the rare disease community. About Mystery Diagnosis MYSTERY DIAGNOSIS is produced for Discovery Health by True Entertainment. For Discovery Health, Alon Orstein is executive producer and for True Entertainment, Steven Weinstock, Glenda Hersh and Stephanya J. Miller are executive producers. About Discovery Health Discovery Health Media includes the Discovery Health and FitTV television networks and online assets including www.discoveryhealth.com, as well as its Continuing Medical Education (CME) business and Discovery's first stand-alone VOD service, Discovery Health On-Call. Discovery Health Media is part of Discovery Communications (Nasdaq: DISCA, DISCB, DISCK), the world's number one nonfiction media company reaching more than 1.5 billion cumulative subscribers in over 170 countries. Discovery empowers people to explore their world and satisfy their curiosity through 100-plus worldwide networks, led by Discovery Channel, TLC, Animal Planet, Science Channel, Planet Green, Investigation Discovery and HD Theater, as well as leading consumer and educational products and services, and a diversified portfolio of digital media services including HowStuffWorks.com. For more information, please visit http://www.discoverycommunications.com.
  8. peachgurlieinga

    Where Y'all from

    I'm a southern gal.. Born in SC- but been an Atlanta girl for 24 years :) ..
  9. peachgurlieinga

    ACA's 2009 19th Annual Educational Conference

    Johnny and Jerry already know- but I'll be there in June!! Even tho Johny doesn't remember me when I was there last year.. It's a 40 min drive to the hotel.. Had a blast last year and wouldn't miss it..
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