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Heather Mills - Amputee Forum


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About Gibby

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    Minnesota, USA
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    Work, cooking, reading, travel, fitness, walking, tennis, sailing, kayaking, biking, cats, native plant gardening, nature & wildlife

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  • Amputation Cause:
    Ewings Sarcoma
  1. Sorry I can't offer any advice as I drive with my left foot vs. hand controls - have done so for 35 years.
  2. Gibby

    Ottobock Genium X3

    I'm quite happy with mine. It could be quite useless if you don't have a properly fitted socket.
  3. Gibby

    Hey, I'm Mike.

    I think it would be helpful if you can find an amputee peer visitor program so she could meet someone like herself who has adjusted successfully to being an amputee. I'm 60 and have been an above knee amputee since I was 26. I had my amputation due to cancer and was at a cancer hospital where I had the opportunity to meet other amputees like me. It was very inspiring and motivated me to do well because I could see what was possible. It is different though to go through this when you're older. However meeting another amputee would be good I think as long as she is interested in doing so.
  4. Gibby

    Surgery scheduled in two days

    I can't add much to all the good advice you've received. I had Ewing's sarcoma in the right tibia as well. I had an above knee amputation though - 31 years ago. I didn't go through any of the limb salvage stuff, just straight to the amputation since it was a recurrence and I'd previously had radiation therapy to the leg which causes increased risk of radiation induced sarcoma. It sounds like you are keeping your knee which does make it easier to do a lot of things. Even with AK though I've done great. A lot depends on having a good prosthetist and believing in yourself and your ability to do what you set your mind to. I had about nine months warning before my surgery and I remember wondering how I would drive. Fortunately I knew another guy who was a right AK and he said you just drive with your left foot. Seemed so simple - why didn't I think of that. I know some people have vehicle modifications but the left foot has always worked for me. Good luck. Hope to hear how you are doing. It's nice to have a forum like this so you can chat with others. Didn't have this back in my day.
  5. Oh ya, now that you describe it I recall my prosthetist telling me about this type of socket. Something worth considering next time around.
  6. Thanks for the info. I have read tons since first diagnosed with this a few years ago. I pretty much do all things good for osteop except the weight bearing on the amputated side. I like you don't think it's really possible to get much of that unless you bear weight directly on the end of the residual limb - something I would find unbearably uncomfortable.
  7. Oh I see what you're saying. You're standing with all your weight on your prosthetic leg and lifting your full leg off the ground. I guess the "god given" concept went right over my head. I'll give that a try and see what that's like.
  8. Not sure what you mean by a brimless socket. My current socket, which is awesome, doesn't have a brim like I had in the olden days. It mainly has a little piece that extends to the ischium. My socket is really great so I can't imagine messing with it.
  9. Thanks for the info. Everything I've been told is that there is very limited weight bearing on the hip on the amputated side which is consistent with the osteop. I've always worn a prosthesis pretty much all my waking hours and as long as it fits have done quite a bit of walking for exercise. So walking just isn't doing it for me. What would be the difference between leaning against a wall and holding your leg out behind vs just standing straight on your full leg and holding the prosthetic leg out behind? That is one of the yoga poses I do on a regular basis.
  10. This thread makes me somewhat happy I didn't get a Genium. I'm not an early adopter due to these kinds of problems but I did try to get one. Insurance would not cover so got a new cleg instead and have been quite satisfied with it. I do hate that you cannot "legally" use whatever foot you want especially since OB feet are so horribly limited for women. On the plus side I forgot my charger one weekend and the thing stayed fully charged from Friday morning at 6:30 until I took it off Sunday night at 23:00. Not sure howuch longer it might have gone. I was very pleasantly surprised.
  11. Has anyone had much experience with treating/preventing this? I'm 56 and have been AKA for 30 years. No osteo anywhere but the hip due to lack of weight bearing on the hip joint since weight is pretty much on the ischium with the prosthesis. I've been taking medication for a few years which has kept it stable but would do much better if there was a way to do some kind of weight bearing activity on this side. Is there any way to do that?
  12. Gibby

    Genium Trial

    Just an update that I opted not to get the Genium. Thought it would be covered by insurance since Blue Cross of Minnesota pays but my employer's Blue Cross is Illinois and they denied. I think that inconsistency would have been useful in an appeal but frankly I just didn't have time to deal with it. My old leg needed replacement ASAP and I'd already spent months getting the necessary letters, etc. to submit for the first go round. Just too busy with work and too much travel to keep dealing with the old leg plus the appeal nonsense. I was quite happy with the c-leg and so far no one I've talked to is really raving about how great the Genium is.
  13. Gibby

    Possible Revision Surgery

    There are certainly no guarantees you'll be able to run and be free of sores and prosthetic problems as a BK. And though wearing high heels might seem like an important part of your life right now, it's a relatively minor issue in the long run. The more of your leg you have removed the greater the burden on what's left and you could find yourself with much greater challenges some day than not being able to wear high heels. If you can get up in the morning or the middle of the night or at the beach or at the pool without a prosthesis or crutches that's a big deal - something you might currently take for granted.
  14. Gibby

    Getting a new leg

    Ya I feel really fortunate that I've had great luck over the last nine years. I couldn't believe it has been that long. Fortunately my legwoman is only about 15 minutes from my office. She is also an excellent prosthetist - who I fortunately found after about 20 years of lousy ones. That makes all the difference in the world - something I don't think you can fully comprehend when you're a new amputee.
  15. Started the project of getting a new ak leg today - completely new. I haven't had an entirely new leg in about nine years. My c-leg is nine years old and is shot and socket fit is out of whack beyond adjustment. I did just get a new foot last year and got a new socket maybe 5 years ago and also had one major expensive c-leg repair in the middle. But now it's time to start from scratch. This got me to wondering about others' experiences with new legs. How often have you had to get an entirely new leg? When you do, how long does it take you to go from start to finish - finish being when it's working good and no further adjustments needed from the initial fitting/construction? Do you often just replace parts like the socket, knee, etc. or get a whole new leg if something goes wrong with a major component? This is the longest I've ever gone without getting an entirely new leg. I think it has often taken me six months or more to get a new leg perfected. The last one though was less than this - new prosthetist finally figured out something unique about my alignment and got it right pretty quick. It was maybe 6-8 weeks. I also stopped getting a cosmetic cover when I got a c-leg so that saved A LOT of time as I was so picky about getting the shape of that thing perfect - which of course it never is. How about you?