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Heather Mills - Amputee Forum

Mandy

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About Mandy

  • Rank
    Advanced Member
  • Birthday 06/14/1973

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  • MSN
    freezer_uk
  • Website URL
    http://
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Profile Information

  • Location
    London, UK
  • Interests
    Computers, Reading, Gardening

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    Right leg AKA
  • Amputation Date:
    1974
  • Amputation Cause:
    Congenital Limb Deficiency
  1. Hi Susan My amputation happened when I was very young so I learned to drive with my left foot from the start. It can be a problem with different cars due to placement of pedals but I find the Japanese cars are easiest for me. Never tried the left accelerator adaptor but it could be an idea. OBL - my uncle (LAK) occasionally drives his farm vehicles which are manual using a walking stick for the clutch.....yikes! I wouldn't advise this though! HTH!
  2. Thank You everybody! I'm learning a lot from this topic. This morning I went to see a private prosthetist to see if he could suggest anything in the interim. He has come up with a solution I think will do me until the birth and beyond for a couple of months. He is going to extend the 'windows' in the hard exoskeleton and make a new thinner liner as my current one is quite thick. He also removed some padding from inside the socket which I couldn't get out myself and already I feel I have more room so its all looking very hopeful. The best part is he can do this for me before Christmas! My usual clinic are so busy I couldn't see my normal prosthetist until Jan (not their fault obviously), although I do have an 'emergency' appointment next week to sort out a squeaky foot and dodgy knee. While I was there I met Kiera (on maternity leave from the LLA) and she gave me lots of very useful advice. One thing I found interesting is her suggestion of drinking water throughout the day (small bottle before bed and one in the morning mostly) as well as having a proper breakfast to help with shedding some of the retained water. I'm so pleased I went as I feel much better about being able to cope with it all. I was on quite a downer yesterday contemplating alternative forms of mobility. Just have to get the foot and knee seen to and then I can look forward to meeting our little guy. Thanks again, Mandy
  3. Oh my word, I've never heard of anything like that! Well I am incredibly unfit so hopefully it won't happen! Well the idea is to have a water birth but we will see how it all pans out. So far everything looks good so this baby had better not turn at the last moment! Don't worry about putting me off - I am going to give it a proper go so any side effects I will just have to live with. If it means getting a new socket then so be it - as long as it can be adjusted somehow further on down the line when I manage to shift the weight. Will let you know if my prosthetist comes up with anything interesting.
  4. Wow Lizzie, can't imagine giving birth with it on! I'm going to try for a water birth so would have to remove it anyway. I have nightmares of them losing my leg! I didn't realise breastfeeding meant the water retention continued......*sigh* OBL, I'm not averse to something else being made in the interim, only something expensive being made! What you're suggesting makes sense and I will see what my prosthetist says. Hopefully he can come up with a solution that won't cost the earth. Thanks for the advice Ann. I guess its just difficult for me to consider not wearing my limb as I've been on it since 18 months of age! (Well not the same one obviously ). But its such a part of me I'm going to find it wierd not wearing it. I am also pretty pathetic on crutches and live in a 2 storey house. Having visions of moving the bedroom downstairs and trying to look after a newborn while on crutches is scaring the bej*sus out of me!
  5. Hi there I am currently 7 months pregnant and my AK limb has become a battle to put on. It doesn't fit me properly any more (too small) and is contributing to back and hip problems because the height is all wrong now. I suspect the problem is half additional fat (too many chocolate cakes!) and half water retention. I don't know how much my residual limb will shrink after the birth so am a bit wary of getting a new socket made in case it doesn't fit 3 months down the line (I have to go private as have lost faith in NHS). My current limb is a suction socket with flexible plastic inner and hard exoskeleton. Does anyone know of any short term solutions to this problem? I have an appointment with Dorset Ortho next week but suspect they will tell me I have to get a new socket made. Thanks Mandy
  6. Mandy

    Roehampton UK

    Thanks for the replies Ann and Sue. As it turns out Roehampton is within my area so I think I can count myself lucky! I have already had a limb made there but they used the laser to analyse my existing socket which was a bit big for me to cast a new socket and then made adjustments. I find the fit is comfortable but I lose suction very easily so am just gearing myself up to a series of further adjustments! I was very impressed with the service I did get though. Just one question Sue: Did you get yours at the Douglas Bader Centre or the NHS section? (think its called RSL Steepers)
  7. Mandy

    Roehampton UK

    Hi There Do any of the UK amps use the Roehampton limb fitting centre? Its meant to be quite good - any experiences to share?
  8. Mandy

    Need quick advise re knees

    Hi Ally How are you doing? It sounds like the change in alignment has shifted where you are taking weight on your socket. Get your pros to check it out as bad alignment can cause all sorts of problems, including back and joint pain in your other leg!
  9. Mandy

    Need quick advise re knees

    Hi Ally I haven't tried the Total Knee so can't really offer any advice on that, other than I've heard from a lot of amps its bril. If you find the knee is fine for fast walking and a lot of activity but too stiff for home use it might just be they need to loosen it up a bit for you. I know what you mean about learning to trust a component and we all go through it, but the human body is quite amazing at adaptation. Have you tried walking on it for a few days? You might feel more confident if you had longer with it. I know time is not something they've given you so its tricky. I would get them to loosen the knee up a bit and then do some more walking/home activities. Sorry I can't be much more help.
  10. Mandy

    Hi from South Africa

    Good Grief!!! Has inflation gone silly in SA since I left then? I had a limb made at Rosebank Ortho in 95 'ish and paid in the region of R7000 (I didn't have med aid). It was a suction socket with hydraulic knee and some fancy foot. It lasted a very long time and was one of the most comfortable legs I'd had. I can't believe how much the cost has skyrocketed! Poor you, I'm glad you've got some good luck coming your way. I'm very jealous - I really want a MAS socket as they are said to be the best but they are soooo pricey due to the intensive amount of labour that goes into them. You must tell us how it all pans out! Good Luck for your modelling assignment and upcoming guinea pig trial. ;)
  11. Mandy

    Hi from South Africa

    Hi Ally and welcome! I haven't posted for a long time but saw your post and had to respond. I'm from SA but have settled in London. Been in the UK for 6 years now, can't believe how time flies. You're right, you don't get to meet other amps in SA.....unless you're in my family of course! We have 3 >> my dad (LBK), my uncle (RBK) and me (RAK since 18 months)! What an oddball family hey? :P When I lived in Joburg I had my prosthesis made at Rosebank Orthopaedic. They're excellent, but being private its obviously expensive. Where do you go? Glad you found these forums, they are a great support and provider of information.
  12. Mandy

    OUCH

    AKA's can have comfortable limbs without any pain as long as the socket has been cast correctly and there are no other issues like healing bone/wounds. If you are feeling pain something is not right - its as simple as that and don't let the CP's tell you any different! Exactly what kind of pain are you experiencing? Is it skin, bone, or muscle related? If its skin then you need to look out for pressure points: After wearing the limb a bit take it off and check for any red areas on your stump. If there are any then they need to be pointed out to your CP. The same goes for any blisters you might be getting. I tend to notice these sorts of indicators where I have a bony prominence and always point it out to my CP. If the pain you are experiencing seems to be a bone ache then you are probably not bearing weight evenly and taking it all on the end of your stump. I would have thought for a recent amputee this is undesirable, but that's a guess. Your CP should ask you if it hurts to take all your weight on the end of your stump before casting the socket as an end weight-bearing one. Suction sockets are usually better for those who do not suffer from large volume fluctuations, and have a longish and smooth-surfaced stump. When a suction socket fits its great - the best fit you can get, but if your volume changes during the day it will either leave you feeling very uncomfortable/squeezed or you could lose suction. Let us know how you get on and best of luck!
  13. Mandy

    Amputee Competitor on Survivor

    Sign me up for the old timers' club then....30 years now wearing it from when I wake up to when I go to bed (except of course if I bath/shower or swim :P )
  14. Hi Afet What wonderful news, I'm so pleased for you! Let us know how the 'fine tuning' goes. Best wishes
  15. Mandy

    Turntables/Rotators

    I hadn't heard of them until you mentioned it a while ago :P
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