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Heather Mills - Amputee Forum

harpoid

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harpoid last won the day on January 16 2015

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About harpoid

  • Rank
    Newbie

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    hip disatric
  • Amputation Date:
    01-01-0001
  • Amputation Cause:
    cancer
  1. All, I been posting on here for a little while now about my various experiences and frustrations as a Hip Disartic Patient, and the lack of support advice and information available to us. As we make up such a small group of amps in the scheme of things, my experience is that we tend to get over looked, whilst we do have lots in common with all other amputees we also have very specific needs and requirements. I have written on here before about about various things (usually negative) but also on a positive note I have managed to obtain an advanced NHS funded prosthetic that has had a significant positive impact on my life. I have spoken to other Hip Disatric patients in the UK and found it helpful to share experiences and advice and generally talk to someone of a simliar mind set. To help make this easier, should anyone want to join, I have set up a Facebook Group specifically for Hip Disartic / HP Amputees. Group to share information and advice for the Hip Disarticulated people, specifically for but not limited to people in the UK. The intention is to raise awareness of what can be done for high level amps specifically and just a place to come to for some support / advice / info with like minded individuals as during my experiences I found absolutley nothing helpful and it was a very lonely place. If you search Facebook for Hip Disartics UK you should find a group to join, I've made the content hidden so only if you join the group can you see whats in it. Its early days so not much on it but have quite a few ideas of information, videos etc that can put in here that hopefully will help. The offer is there should anyone want to join and at least talk to people who are in the same boat. Time to help ourselves I think
  2. All, I been posting on here for a little while now about my various experiences and frustrations as a Hip Disartic Patient, and the lack of support advice and information available to us. As we make up such a small group of amps in the scheme of things, my experience is that we tend to get over looked, whilst we do have lots in common with all other amputees we also have very specific needs and requirements. I have written on here before about about various things (usually negative) but also on a positive note I have managed to obtain an advanced NHS funded prosthetic that has had a significant positive impact on my life. I have spoken to other Hip Disartic patients in the UK and found it helpful to share experiences and advice and generally talk to someone of a simliar mind set. To help make this easier, should anyone want to join, I have set up a Facebook Group specifically for Hip Disartic / HP Amputees. Group to share information and advice for the Hip Disarticulated people, specifically for, but not limited to people in the UK. The intention is to raise awareness of what can be done for high level amps specifically and just a place to come to for some support / advice / info with like minded individuals as during my experiences I found absolutley nothing helpful and it was a very lonely place. If you search Facebook for Hip Disartics UK you should find a group to join, I've made the content hidden so only if you join the group can you see whats in it. Its early days so not much on it but have quite a few ideas of information, videos etc that can put in here that hopefully will help. The offer is there should anyone want to join and at least talk to people who are in the same boat. Time to help ourselves I think
  3. Hi, Sorry I did not reply sooner but have been away and not really checking emails. Happy to take a photo of socket that fits around your amputated buttock and either uses a velcro belt or ratchet system that goes aroung the other hip. Not very good at describing!It feels quite firm. I am still practising.....Getting comfort level right is a little difficult.Nice to hear from someone Linda

  4. Hi, was reading your post regarding hip disartics, I like the spound of your new socket but cant understand how it works without going round both hips, any chance you could describe it a little more, or take a pic of it, thanks

  5. Welcome to the forum, Harpoid.

  6. harpoid

    Hip Disarticulation Prosthetics

    Hi I'm a hip disartic too I dont understand how your socket works but sounds good if it doesn't have to go over both hips can you possibly post a pic of it? Thanks
  7. Hi Harpoid, welcome to the forum.

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