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Jane K

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Everything posted by Jane K

  1. Good Morning Everyone, Sue, Peter & Mick thank you for your thoughts. Peter - I particularly like your levitation suggestion. It certainly would solve many issues for all and would be a blast to do. I'll work on the patent asap. And as a added bonus the work thing would be unnecessary...less need for continual up and down... What can anyone say about the down side? I am heeding all your advise to take it easy as I opted to skip the pool this am, enjoy morning tea and then head to the office with the wheel chair in tow. I will admit here - but deny any where else - I was perhaps too busy this weekend. I didn't pick up anything heavy but I was on my feet quite a bit. Friends came over and helped schlepped furniture, boxes and more stuff from my Mom's place. Cosy would not quite adequately describe the house. Cluttered and general chaos rules. Such is life. Have a great day all. Jane
  2. Hi Cheryl, Thanks for your thoughts. I will scroll through past input on this site. As you say this isn't a uncommon problem in this club. A new year is fast approaching. Onwards & upwards! Best wishes to all! Jane
  3. Jane K

    Getting up from the floor

    Rum and orange juice work quite nicely too. And if you use OJ with calcium you can work on strengthening your bones. Two for one benefit! Jane
  4. Jane K

    Isn't It Lovely......?

    Hi Cheryl, Your leg looks great! Naked is a great way to go!. Jane
  5. Jane K

    Getting up from the floor

    Hi Loz, I use a small sturdy foot stool to get up off the floor when I am getting up into bed at night. I had refused to give up my upstairs bedroom after my initial amp recovery but to pacify family concerns about using crutches on the stairs I went up on my butt. To make it easier to get up off the floor I first used a plastic utility like two step stool but the anti slip grooves were uncomfortable on my tosh. I later found a nice looking, and padded, old style foot stool that works great and doesn't look like a pantry stool cast off. If you exercise in the same area each day perhaps this might be a workaround for you. It is cheating a bit but why not if it helps you keep exercising. Good luck. Jane
  6. Hi Cheryl, I'm a member of the naked leg club and I wouldn't change it even if I had the opportunity to do so. Additional weight is one factor but even more so my legs are what they are. One moves fairly well on its own but does require maintenance shaving at least a few times a year. The other can have magnets attached if I so choose. And the later can make a great, and rather unique, gonging noise when a horse shoe is tapped against it. Lastly - how many folks have a upper leg area that has "space for rent" room. In this political season think of the income potential. With all these pluses would want to hide either one! Jane
  7. Jane K

    Proseal Socket from Otto Bock

    Hi, I just picked up my second socket with the Proseal system this morning. This socket is my third since I became an right through knee amputee in August 2010. My first socket had a seal attached to a stocking type hose. The seal was okay to start but soon didn't hold the suction very well. Any time I got up after sitting down I had to be sure to get back into the socket fully or I would be riding high on that side. The second socket using the Proseal system gave me great suction. I had no leakage what so ever when I sat down even on a hard surface. The need for this third socket was the ongoing limb shrinkage that made the overall socket way to roomy. I hope the limb shrinkage will slow down since I'm a year plus from the surgery. I'm not sure if it makes a difference but I do wear a silicone liner under the socket to help protect scaring and a graft site. If you do decide to try it let me know what you think of the seal. Good luck.
  8. Hi Everyone, While getting fitted for a new socket I happened to ask about any programs that might be able to help cover the 20% patient cost. I'm already paying off $2,000 from my original leg purchase and the second socket. My original leg company was willing to do in-house 0% loan. My new leg company doesn't offer this great option. It was suggested to check out NH Vocational Rehabilitation Program. I contacted them and am delighted to say the program is picking up my 20% of my new socket which is almost $1,400. I don't know if other US states have similar programs but if may be worth folks time to check the possibilities. At first I didn't think they would be willing to help me since their literature seems geared to help people who need to find new work due to their physical issues. I am working, and very great full that I am, but I needed a new socket so I can keep working without issues from a out of date socket. While filling out paperwork one of the questions was why did I need help if I was already employed. My answer "so my leg doesn't fall off". If anyone has any further questions please let me know. Have a great day everyone! Jane
  9. Jane K

    from Barcelona

    Hi Rick, Welcome to the club! Today is my one year anniversary from my amputation. I am a right leg AK and my amputation was by my choice. I can say without any hesitation I'm so far ahead of where I was last year. Some of best advise I was given even before the amputation is too set your goals far ahead. Thinking where you can be in six months, ten months etc makes everything much less daunting and much more manageable. The support and experiences shared by others on this site is fantastic! You will feel good about your self again. And you will find someone who cares for who you are as a person and not how many toes you have. Besides growing up I always was told to look other people in the eye when speaking to them. Maybe I could rig up a sign for my fake let that says "look up" - "you don't know what you could be missing". It could take the place of my current sign "SPACE FOR RENT". Hang in there! Jane
  10. Jane K

    Tennis Anyone?

    Hi All, I'm looking for input from any AK's about their luck playing tennis. I use to be a very avid player and I'm curious if other folks have still been able to play with a AK. My knee is a Endolite KX06. The knee allows for great walking and offers a small range of resistance when the knee is pressured but if the knee is fully weighted it will allow user to fall. I certainly recognize my newness and the ongoing learning curve but I was hoping to hear from another person how they did playing tennis. Having been out now twice with a friend to hit some balls I know I shouldn't give up my day job! Mick has mentioned in earlier emails he has the same knee and is able to do all types of hiking. He adjusts his knee - another Endolite KX06 - depending on what he is doing. He even sent me the manufactures specs. However when I asked my leg guy about making adjusts he cautioned me that the ability to change setting is very precise and if done wrong the knee can be ruined.
  11. Jane K

    Tennis Anyone?

    Hi Mick, Thanks for the feedback. I'll wait a day or two and see if Ooneblueleg is available for input. I would love to learn first hand what more my leg can do and what I can do with my leg. Thanks again, Jane
  12. Jane K

    Hi I am new here

    Hi Lauren, The many uses of a garbage bag! On my last visit to my leg guy he showed me a new to market water leg protector. It looked like a high tech fishing gator with a draw string top. All for the mere price of $1000. It makes the rental price on a scooter look like peanuts in comparison. Jane
  13. Jane K

    Where Y'all from

    Hi All, Greetings from southern NH. Home to the "Old Man on the Mountain" up in Franconia Notch NH. The "Old Man" slipped off the mt a few years ago but like all of us - we continue on! Jane
  14. Jane K

    Hi I am new here

    Hi Lauren, I read you are planning a trip this fall and hope to go on rides at a theme park. If it is available can you rent a scooter? If you could it would be far less taxing then walking all over a amusement park and would save your energy for all the rides. I rented a scooter several years ago when I took my sons to a amusement park. My initial thought renting the scooter was to be sure I was not too exhausted and sore to drive home. At the time I still had both legs but my bum knee was in a locked out drop hinge brace. The scooter was about the cost of the admission but it was so well worth it. And it was really fun! It was peppy enough that my boys had to hustle to keep up with me. At the end of day they were dragging from all the walking but I felt great and had a ball riding all the rides. I became a AK right leg amputee last August and while I haven't returned to the amusement park (yet) I don't foresee any reason why this trip will be much different except I won't be in miserable pain with failed knee. Although thinking about it more - I guess that water parks and roller skating may be off my choice of rides/ activities. I do hope you go and have a great time! This new life sure does make living each day interesting to say the least. Hang in there! Jane Jane
  15. Jane K


    Hi Everyone, I have used velcro straps to hold my foot on a rowing machine foot base. I found just using the machines regular foot strap alone wasn't enough to keep my foot in place. My gym has a great machine called a "Arc Trainer". I describe it as a cross between an elliptical and a cross country machine. The foot pedal has a toe solid cover that seems to be just enough to help me keep my foot on the pedal. Time, practice and strengthening butt muscles has made this my favorite torture devise. The treadmill is another good conditioning machine. Swimming feels great too! I hit some tennis balls yesterday for the first time in seven years. It was fun to be on the court again but I shouldn't plan to give up on my day job. Via a gym friend I have learned that Loon Ski Area (Lincoln NH) adaptive program is completely free. They provide the equipment, lessons and ticket at no charge. I plan to see if some of the areas closer to me offer the same perks. I can't wait for winter to come now.
  16. Jane K

    New here

    Hi David, Welcome. I'm glad you found this site. It is filled with so my great people who can offer their knowledge, experience and support. I am a right leg AK. My amp is also called a through knee amputation or a disarticulation amputation as I have a intact femur. Your note didn't elaborate at what point on your leg was your amputation. I can offer two valuable pointers given to me. First - Set your goals long term. Think about what you hope to do 6 months out, 9 months, a year. Second - Once you get your new leg really, really, only think about one step at a time. Avoid multi-tasking. This probably sounds overly simple but it is really important to keep you safe while learning to walk again. I definitely leaned this the hard way and hope you don't do the same. Hang in there! Jane
  17. Jane K

    The Silence of the Amps

    Hi All - Happy 4th! Cheryl and Neil - best wishes for a good and quick resolutions to your problems. On this holiday weekend I have marveled about how much a year has made in my life. One year ago I decided to join my sister who was getting together for lunch with a old high school friend. Amongst other conversations the saga of my trashed knee was discussed. My sister's friend mentioned an on line friend who had chosen an elective amputation of a bum foot. She said her friend would probably be willing to talk with me about her situation if I wanted. Shortly later I did connect with her and began the decision to take control of my life again. My ticking time bomb knee was going no where good. I lived in pain and could only get around wearing a locked out drop hinge brace. I also learned about this site and the experiences of others gave me great support and insight. I realized I didn't have quality living and I had enough. By the end of July I had made the decision to amputate my right knee. The surgery was done in mid August and I can say almost a year out what a good chose it was! Recovery was a bit bumpy - doing in my shoulder and its surgical repair - but in the end my life now is wonderful. I have back the freedom to live again and I love it! Mid day today I'm off to a friends party. After that I plan to hit the gym to offset that food intake and work on getting this now 50 year old body back in shape. The later is ongoing and while the progress is a bit slower that I like it is moving forward. Gaining ground is great. Had someone told me in my 20's that the same exercising effort would have to be doubled in my later years and might not have worked so hard then. Such is life. Have a great 4th everyone! Jane
  18. Jane K

    Find my Balance

    Hi David, It is great you have found this site. The folks here offer a wealth of experiences, helpful suggestions and great humor. The later is very useful in getting use to your new world. Relearning balance is without a doubt one of the most important items to work on. I can personally relate to your issue having dumped multiple times while learning to walk again. For me I had to learn to stop thinking about multiple ideas and literally think about making one step at a time. Being a type A person it took practice to alter habits. As to your problem about getting up at night and forgetting your leg issues - my fix was to put my crutches leaning up against the night table beside my bed. If I tried to get out of bed I would be blocked by the crutches. Good luck! Jane
  19. Jane K


    Hi Kevin, I have used a product made by Monistat called "Soothing Care". It is a chaffing relief powder gel that has worked very well for me. If Neil's suggestions don't help maybe this product will. Good luck! Jane
  20. Jane K

    I'm looking for some tips and tricks...

    5/28/2011 Hi Cheryl, Perhaps a "Visiting Nurse" type program can offer their thoughts once they have seen your brother-in-laws home. A PT / Rehap. person is usually part of their staffing. I am just about recovered from a right shoulder rotator cuff repair surgery that happened just 4 1/2 months after my right leg disarticulation work. And I'm also right handed so I can well relate to his problems ahead. A few tricks that really helped me was renting a hospital bed with a trapeze attachment. A 2-inch memory foam mattress pad made the bed pretty comfortable. Our bathroom is also really small so we removed the door and put up a shower curtain in its place. This enabled me to get my wheelchair into the room and still allowed privacy. My boys grumble a bit but my cats love the access. Without the door I was also able to have a shower seat that extended out beyond the tub to make taking a shower much easier. The Visiting Nurse office lent my a extended shower chair from their donated equipment supplies. Lastly I suggest a good dose of humor where ever it can be seen. Laughter won't cure the problems but it can make the recuperation time more tolerable. Best of luck to your brother-in-law and family. Jane
  21. Jane K

    New guy in town

    5/14/2011 Hi Joe: Welcome to the club. I am also a elective amputee as of August 2010. It is a world none of us ever thought we would be part of but I know for me it was the best answer to move ahead with life. Some of the best advise I got was to set long range goals. Looking ahead, be it six months or looking ahead "to this time next year" helps keep me from being too frustrated or overwhelmed adjusting to this new life. Hang in there! Jane
  22. 4/9/2011 Hi Everyone: I'm looking to see how other knee disartic amps have been able to control shearing problems at the end of their leg. This issue has caused scar tissue to open up so much that my Ortho. office insists I stay out of my leg until everything heals. I was recasted earlier this week and tried out a new see through test socket yesterday afternoon. Even with a new socket I still can flex the end of my limb. I will be talking with my leg fellow again Monday but I thought I would through out the problem to anyone who may have experienced similar problems.
  23. Jane K

    Swimming Amps....

    3/27/2011 Hi Everyone, I am also very interested what all the described water legs look like. Any pictures would be greatly appreciated. I was able to do a bit of swimming post right knee dis. but was sidelined by a visit to yet another ortho. doc visit to fix a torn rotator cuff acquired while relearning to walk again. I'm hoping to be back in water soon but with short term unorthodox arm movements for a while. Thanks, Jane
  24. Jane K

    A/K Forum n00b With Prosthetic Questions

    Hi Arthur, Before surgery I wondered about the same ideas. As well expressed by many contributors to this site as a new comer it is very hard to know what will work for you in the beginning. I'm a new comer to this world as of August 2010. I have a through knee amp also known as a knee disarticulation amputation of my right leg. (This means my entire femur is intact.) I'm considered to be a AK amputee but my issues will be very different than someone who has an higher thigh amputation. Has the height of your amp been discussed? You might have a Plan A and a Plan B going into the surgery which makes it more difficult to research options now - but not impossible. Do talk with as many multiple prosthesis as possible. Those much more experienced than me sum it up well that you will be spending a lot of time with this person. And do get any names and contact info available for other amputees. Check references for the prosthesis too. Ask if it is possible to test drive different components. I was able to try 4 different knees, 3 of which I brought home to try out in the real world. Every amps needs & desires are so different no one fit works for all. There is one piece of advise from my own experience - that I hope you will not need to learn first hand - is that when learning to walk again focus all your attention & feeling on each step. Concentrate only on feeling your new leg/foot hit the floor before weighting that leg. Don't multitask! The concept is a no brainer - yet it took multiple falls to really make myself do it. Relearning to walk shouldn't be under estimated! I am now two weeks out from a torn rotary cuff repair that I hope no one else has to experience. At least if some one has to be injured I hope they can have a better story as to how their injury occurred like hiking, skiing, rock climbing... Good luck, Jane
  25. Jane K


    Hi Everyone, I am a town clerk and tax collector for my town of approximately 4,000 folks. While it is a "desk job" there is rarely any quiet, sedentary, times. I stumbled into this job almost 22 years ago. Back then I was a real estate broker looking to get into work that offered some benefits like health insurance. There has been many times in the past 7 years of medical hell that I am grateful to have a job with insurance and the wonderful support of coworkers! Jane