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clanrickarde

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Everything posted by clanrickarde

  1. Have any of you painted your own socket? I am looking at painting my own "chrome finish" as a do it yourself project. I find that the expense of having it professionally done to be prohibitive from a purely fiscal attitude. Each socket we wear has a finite life span so I do not want to pay big bucks. I pay enough for each socket via out of pocket costs and deductibles after the insurance pays and I do not then want to invest big bucks in a paint job for a leg that will end up sitting on a shelf once it's day is over. I am looking at a kit from a company called "Alsa Corp" consisting of a basecoat, chrome finish spray paint and a clear coat. It looks like it should provide a good quality finish for a lot less money. I suppose the basic carbon fiber socket needs some kind of sanding to prepare the surface for the black basecoat primer. Likely just some fine grit sanding and cleaning. have any of you done your own socket? Were you happy with the result? Mine is already black carbon fiber and is pretty smooth other than having that herringbone pattern common to layered carbon fiber.
  2. clanrickarde

    DIY Paint Job Prosthetic Socket

    Actually GTOPI is the outfit I find to be overpriced. i have obtained quotes from small firms that do not specialize in prosthetics and they underbid GTOPI by leaps and bounds.
  3. clanrickarde

    DIY Paint Job Prosthetic Socket

    I'd rather do a reasonable job of it myself than pay someone an exorbitant price to do it. The one company that is high profile in the US is over the top expensive in my estimation.
  4. clanrickarde

    Hello all New Rbk Here

    Hi Chris. Welcome to the site. I had my Ertl RBK last year Nov 30th. Scooter accident 2 Jan 2009- about a total of 14 surgeries to fix all of my injuries incuding the right ankle. After one year I am on my second definitive socket (seal in suction socket Ossur) and I am doing very well averaging 13-14 hours a day in the leg. Best of luck going forward.
  5. clanrickarde

    Question about driving as an RBK amputee

    I am a RBK and have been driving with the left foot accelerator mod since several weeks after surgery. It is, in my opinion the best and most comfortable as well as safe scenario for driving.
  6. After taking delivery of my first permanent socket back in the first week of May.....now in late August I require 12 plus ply socks to fill it by early to mid-afternoon. After a visit to the leg man Friday he told me he will put me in a seal in liner/suction socket set-up. I'll not need a suspension sleeve with that and as a result it should result in a lot more knee flex and comfort. I'd like to hear from those of you with experience in a BK seal in liner suction socket. My limb is now well along in terms of its maturity at nearly nine months post Ertl. 99% of the dull ache I used to have at night while sleeping is gone....I no longer use a compression sock as it simply is not needed. No phantoms or sensations to speak of. If you have comments or experience please chime in. Thanks
  7. clanrickarde

    New Socket / seal in liner/suction socket

    The liner kit came with a full contingent of proximal socks for the purpose of dealing with future shrinkage. I also have the roll on Silipos items suggested. I can actually feel to much squeeze all along the front of the tibia from several inches above the end as well as too much in back. During my original phase of check sockets back in Jan/April ...the distal end was the offender as far as discomfort (seems typical for a lot of us) I am sure I will get there with this one. I'd almost like a new casting done first thing in the morning without being encased in the socket at all.
  8. clanrickarde

    New Socket / seal in liner/suction socket

    I got my check socket for this seal in set-up on 22 September. First time in the socket late in the afternoon. I was surprised at how extremely tight the fit was. Quite literally devastatingly tight. But having no experience I went home with the socket to try er out. Friday morning proved to be quite a trial getting into it due to the normal upsize in the limb overnight. It became clear that it was far too tight. Monday I called the prosthetist and went in late morning. He took a heat gun to the plastic socket ...softened it up and had me step in while it was soft so that it would conform. I have gone the rest of the week with it and although easier to get into in the morning it still seems to tight. After all day in the set-up I get some redness along the tibia end and it is not near as comfortable by far as permanent socket number one and 14 ply of socks. I plan to call on Monday and suggest I go in and have him size it via the melt method while I am large in the morning. My residual limb has an hour glass shape...large just below the knee tapering thin and than large at the bony ertl bridge. The leg man and I agree that that hourglass shape effects a natural locking mechanism for me. That being said I think I need to be sized large so that this set-up is optimally comfortable from the first minute in the morning. Being loose does not seem like it is going to be a problem for me. I have the Ossur Iceross X-5 seal in liner. I hope it gets better because I will not buy a permanent version of this socket until I know it is at least as comfortable as the first permanent socket for 13-14 hours a day. I do love the great flexibility/range of movement in the knee. Is it normal for the suction socket to be so unnervingly tight from the outset?
  9. clanrickarde

    Phantom and stump pain- shared experiances

    At 9.5 months post Ertl I rarely experience any phantoms of any kind. On Friday while driving to get casted for definitive socket #2 I did feel a five second minor zinger in my absent right foot. It was not that bad. I feel for those who describe their zingers as being high level pain equated with a feeling of a knife to their phantom limb. I consider myself blessed.
  10. clanrickarde

    New Socket / seal in liner/suction socket

    I am not familiar with this sheath? Does it roll on directly over the bare residual limb with no sock ? I take it these Silipos sheaths come in several thickness levels from one or two millimeters?
  11. clanrickarde

    Adaptskin

    How many of you are aware of a product called Adaptskin? I ordered a free sample and have been using it for three days and ...so far it seems to be a product that does what it says it does. Applied after cleaning the residual limb it is absorbed and does provide what seems a barrier to protect skin from abrasion, friction and skin breakdown. It is not cheap...but I expect it lasts a while even if used twice a day. Go to WWW.adaptlabs.com to order a free sample of the product.
  12. clanrickarde

    Adaptskin

    Petrolatum, beeswax, cyclomethicone, coconut oil, modified lanolin USP and Lemon oil. This is for the viscosity 50. The 90 viscosity is the same minus the cyclomethicone.
  13. clanrickarde

    New Socket / seal in liner/suction socket

    I think the leg man feels I am very stable at this point....especially at the distal end. I pile on half socks on the bottom end. The top half of the distal end I view as being about as settled as it can get. The bone bridge is self evident in defining the top half of the distal end. Sure I can expect to still atrophy some degree of muscle tissue from the calf but I hope this socket will last a good eight months or so. I am sure when he casts me he will undersize it just a bit. He did that with the first perm socket. He does not use the computer generated casting but uses the old sytle method.
  14. clanrickarde

    New Socket / seal in liner/suction socket

    I tend to think that going forward the degree of shrinkage will be less than what I have seen in the last five months. The limb seems very stable at this point. Is it not possible to add any socks for some shrinkage with this set-up?
  15. clanrickarde

    Anti-perspirant

    What is a good brand of antiperspirant that can be simply sprayed on to greatly reduce sweating inside the liner? I am a still new RBK and I want to reduce the amount of moisture (sweat) inside the liner. Less sweat should reduce itching and potential for skin breakdown I'd think. But, I dont want to use anything that is bad for the gel liner.
  16. clanrickarde

    Adaptskin

    I have continued to see improvement in skin condition despite raising my "stick" time in the leg. I average about 14 hours a day ....and overall the degree of perspiration is minimal. Adaptskin does help on the key weight bearing areas and behind the knee where some chafing tends to occur. I look forward to the point where I go to some type of system that requires no suspension sleeve.
  17. clanrickarde

    Jeans

    Seems to me the best alternative. I will wait awhile to the point I shrink some more and the next socket will be smaller.
  18. clanrickarde

    Jeans

    Has anyone taken a pair of jeans to a tailor and had them install a zipper long enough to allow for easy donning?
  19. clanrickarde

    PLP Study at the VA

    Here here! I consider myself either very lucky or my lack of Phantom pain or sensation to be attributed to the "Ertl." At any rate i consider myself very fortunate at nearly seven months post surgery to be free of that cross.
  20. clanrickarde

    Kitty here

    So sorry for your loss. I do think it is harder to lose a limb suddenly and traumatically than it is to lose it after a long medical fight to save a foot or an ankle. When mine was taken on Nov 30th 2010 it was not without some trepidation but after looking at and dealing with a non functional right ankle for two years it seemed a blessing. I will be six months post-op at the end of May. I use my prosthesis on average 12 hours a day at this point.....usually the first four to six hours are comfortable so to speak and then the rest of the day becomes slowly more sore. Some days are better than others. It is a good idea not to focus on the near future but keep looking ahead in terms of 4 to 6 weeks of progress and keep faith that things will improve. After my surgery and before my prosthesis I went back to work with a left foot accelerator pedal and a walker and my employer happened to have a "hoveround" type three wheeler I used to navigate the building. My job is largely computer stuff so that was a blessing. I used to stop at the supermarket on the way home to pick up groceries and the short trek from "handicap" parking spot to the store on the walker really drew stares. I got used to it. At this point I wear camping pants with my prosthesis (zip off lower leg) and do not bother to even hide the prosthesis. I have become and continue to become more comfortable in my own skin and less sensitive to any stares. Most of the time I pay zero attention to them and just go about my business. It seems hard for your now Kitty but trust us it will get better.
  21. clanrickarde

    New guy in town

    Hi Joe...being an LBK I would guess you may need a special setup for shifting. My buddy is , like me an RBK but his was three years ago and he rides regularly. He likes to tell a joke of an instance in the last few months where he was racing another riding friend on a long open stretch of highway......turns out he lost the drag race cause he missed a shift with his GOOD leg.
  22. clanrickarde

    reconstruction recovery

    I used a walker to bear partial weight when walking with the first test sockets. I really believe it is simply an adaptation exercise early on as the limb is still present with significant edema and does not reveal itself for the purpose of deifinitive weight bearing until it settles down. Initially the distal end of the tibia was a very hot spot for me and it was hard for the leg man to deal with it as it was hidden by fluid (edema) . The fourth test socket which I took delivery of eight days ago has been a near to perfect fit ...bears weight where it should with no tendency to bottom out and no feeling of viselike pressure on the end of the limb. My residual limb seems to slide easily into the prosthetic and at the end of the day it pops out without feeling like its stuck. The previous sockets often felt that way. Once that bone bridge matures and the myoplasty work (spelling) takes hold the end of the limb becomes a brute I believe. My leg man told me of one veteran Ertl recipient (25 plus years) and described the strenght of that individuals limb being adequate as a pile driver. That is of course an exaggeration but one can visualize the analogy. The ability to bear some weight on the bottom makes prosthetic possibilities greatly enhanced and the Ertl recipient once fully matured may be looser in a socket with less discomfort as the end of the limb will sustain some weight. You will get where you want to go hang in there and you will get past the early discomfort. Best of luck.
  23. clanrickarde

    reconstruction recovery

    Hi Nadine. My name is Kevin and I am an RBK recent. Surgery was Nov 30th, 2010. Mine was a result of a two year effort to save a badly mnagled ankle (violent pilon fracture motorcycle accident) My doctor here in Tucson did an Ertl on me. I first stepped in to a test socket on Jan 17th just a bit over six weeks post surgery. I was dismayed at first how painful it seemed but in time it has gotten much better. On Jan 17th my residual limb still had lots of healing left to do and was much larger than it is now April 30th. I think they like to get us in a prosthetic as early as possible simply to begin the adaptation. My limb now tapers very smoothly below the knee and the shrinkage and healing are self evident. The suture lines are nearly gone and I have a sense that the Ertl bone bridge is well on its way to full healing ossification. I also have a lot less pain now then back in January. I hope and expect to experience in the next three months by the end of July another 50% to 60% reduction in pain directly at the residual end. I have virtually zero phantom pain or sensation. I am curious ...did they put you in a shrinker sock within a day of surgery? I have heard that some Ertl practitioners do not like to compress the Ertl limb too much after surgery but according to my leg man that varies. I had a juzo shrinker on one day after surgery and consistently after that and it does not appear to have done any harm.
  24. clanrickarde

    Ertl Amputation It Is....

    Mary, i am sure you will be happy with your Ertl. Having it done by one of the namesakes is certainly a plus. I simply had mine done by a surgeon who is aware of the procedire and was trained in it. Best of luck going forward.
  25. clanrickarde

    Anti-perspirant

    Good information from all of you. Thanks. The third test socket did not last long. I shrunk up really quick and needed at times 10/13 ply of socks to get comfortable. Even then far too much pressure on the front distal tibia. I took delivery of number four last Friday. It is a modified setup this time with an Ohio Willow Wood progressive hybrid gel liner 9 mm on the very end 6mm at the tibia and then gradually down to very thin behind the knee and to the top. Mike Dunston is my leg man with Hanger....and it looks like we got it about right this time. I spent 12 hours today...eight the day before and about five and a half each Friday and Saturday. No signs of bruising or redness on the end of "Stanley". And I have yet to don even one sock since Friday. Sweating is greatly reduced as the liner is a better fit for me and that thick cushioning is a God send for me. I have an Ertl and at five months post op I believe that bridge and the surrounding tissue are finally maturing a bit. Since Ertl amps are supposed to be able to tolerate some banging on the end this bodes well. I think this socket will end up finished as my first permanent socket. I doubt it will last long though. I fully expect the end of my limb to turn into the "tip of the spear" over the next four/six months. The stronger it gets and more desensitized it gets I know the better off I will be. I saw my Ortho surgeon today and she had a trainee/intern/resident with her (She is an assistant prof at the University of Az UMC Med school.) I told her how gratified I was that she did perform the Ertl on me and I even told the trainee to make the Ertl standard procedure where applicable in his future as a surgeon. If I had not had an Ertl after all I have read/researched I do believe I would have a great sense of disappointment. So far virtually zero Phantoms of any kind or sensations. I am either lucky or fortunate I am not sure.
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