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Heather Mills - Amputee Forum


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Everything posted by Afet

  1. OK, this is a 'spin off' from ED's thread in the Prosthetics and Related forum about Gait Training. I had mentioned in a reply that, after physiotherapy that I received, I was able to get up from sitting USING JUST MY LEG STRENGTH, without needing to push with my arms. It had come to my attention that others would like to know how to do this too. Considering that we don't all get the same level of physiotherapy after our amputations - if any at all! - I thought that it would be very useful if we were to have a section here with our 'HOW TO' type of explanations on how we do things. So, I'll start with an explanation of how to do the above, but please feel free to add your own. That's the reason this is here anyway. If you are adding your own, I think it would be helpful if we added our level of amputation in our post, because, for example, my tips may not apply to an AK amputee, and so on. HOW TO GET UP FROM SITTING, WITHOUT USING YOUR ARM STRENGTH Type of amputee I am: Bilateral Below Knee If you're a particularly new amputee or out of practise, I'd recommend having someone nearby to help you (or to act as padding!) should something go wrong. Anyway, here we go: * First of all, you need to come to the edge of your seat. * Ensure that your feet are at a comfortable distance apart - not too close together or too far apart. * Make sure that they are not too far away (distance wise) from your whole body. I usually put my legs at a 90 degree angle. * Get a feel for where your feet are. * Try and feel that THE CENTRE OF YOUR FOOT/FEET are on the ground. * Practise pushing down on your feet whilst you are still sitting. * When ready, push down on your feet, whilst leaning forward at the same time. * Lean as forward as you need to go (without toppling over), pushing down on your feet at the same time. * Once up, breathe in and enjoy the view! YOU MADE IT!! This took me a bit of practise, but I eventually got it! You'd need to have done some form of leg exercises before hand, to strengthen the muscles in your legs and glutes (backside) - exercises which I may post myself if no-one else volunteers it. Good luck! You can do it!! B)
  2. Afet


    Hi everyone, A little while back, you may remember that I included in a post a link to a below knee amputee manual that I thought was quite interesting. It's got information on many things, including your prosthesis, bandaging techniques and stump care. Well, I've also found an above knee amputee manual too. So here's your chance to have a look at each of these, if you want to. A Manual for Below Knee Amputees A Manual for Above Knee Amputees
  3. Afet


    Thank you to all of you who have written here, thanking me for serving loyally as one of the Moderating Team. I am truly moved beyond words. Joining the team was an honour and I enjoyed it very much. I learnt many things, and I thank Johnny for giving me the opportunity to develop. I have also made some lifelong, loyal, friends for which I'll always be grateful. However, the time has now come to leave you and focus my energies and strengths on other things. I sincerely wish this forum, and all its members, every success for the future. Afet
  4. I received this story today. If anyone from here gets to be involved in one of the trials, would you mind sharing your experiences here? I'm interested to see how this works and how much of an improvement it is to regular casting methods. Thanks :) -------------------------------------- HI-TECH HOPE FOR AMPUTEE PATIENTS MILLIONS of amputees will soon have their lives transformed by a state-of the- art artificial limb. Experts in Scotland have invented a system which uses 3D technology to design a custom built socket for a new arm or leg. They say that badly fitting prosthetics can cause agonising ulcers and one in four is thrown away because they do not fit properly. But now amputees are being offered a pain-free alternative which promises patients a unique artificial limb. Dr Christos Kapatos, of Glasgow's Kelvin Institute, developed the SOCKET-FIT at St rathclyde University 's department of bioengineering. He said: "There is nothing like this in the market and it will make an incredible difference to amputees." He added: "The soft tissues of the body were not designed to take any load and prosthetics can feel uncomfortable. "We have now devised a way that will make prosthetic limbs as comfortable as possible. It is ulceration and problem free." Around 65,000 people in the UK have lost a limb and experts claim the number of patients needing amputations is on the rise due to conditions such as diabetes. SOCKET-FIT takes an ultrasound of the stump and creates a 3D image of the unique design for each person. That customised model is then used to carve out the socket which is fitted to the patient. Clinical trials of SOCKET-FIT will start in September. Article taken from this page of the Daily Record website.
  5. I was sent this story today, and thought I'd share it with everyone here. It's quite inspirational, and her message is one that many here share... B) ---------------------- Amputee chooses to lose the crutches The accident tore off part of her leg, broke her neck, burned her with battery acid and left her in the hospital for months. She still can’t remember the day in September 1985 when a motorcycle accident left her on crutches for years, with surgery after surgery and medication after medication to her name. But she will always remember Tuesday. It was the day she taught her first class at the Davenport West YMCA. Christie Hagedorn is an amputee, right below her left knee. She wears a prosthetic leg. She is hoping her journey from lying strapped in a hospital bed at the age of 20 to being able to lift weights, swim, walk on the treadmill and do step aerobic classes at the age of 41 will inspire others to turn to exercise. “If I can do it and my leg is not flying off …” she says with a big, well-known smile punctuating her equally well-known sense of humor. Hagedorn, who is married with four children, was active in sports growing up in Geneseo, Ill. So when a doctor told her 10 years after her accident to think about further amputating her leg because of the problems she was encountering with infection, she asked why she couldn’t try exercise instead. She enlisted the help of a professional. “I got my strength back in my hip flexors. I got more mobility in my knee,” she said. “I started walking without crutches and no more sores.” For Christmas 1996, her husband bought her a membership to the Scott County Family Y. “That was the start of me getting my life back, simple pain exercise,” she said. Hagedorn returned to the gym while raising and home schooling her children. She did cardio and built her confidence and strength in the weight room. At the urging of others, she periodically thought about making helping others be fit a career. When her youngest turned 18 in February, Hagedorn went to work for the Y. It had been 20½ years since the accident. “It truly is a God experience,” she said of her journey to health. Told many times by many people that she couldn’t do lots of things, her response is: “What do you mean? You can’t tell me I can’t do something.” She rollerblades and swims and drives a stick shift with much glee, she said. However, Hagedorn does continue to grieve for her leg, she said, adding that “everything changes when you are an amputee.” She overcomes her grief by remembering that she’s not only alive, but able to live. Her goal now is for other amputees, and others with physical obstacles, to see what she has gotten out of regular exercise. “It’s incredible how the body responds. I don’t want people to think they can’t do something. I don’t want their ailment to be a negative.” Story taken from this page of the Quad City Times website, which has pics.
  6. Mel, At first, I thought it was what Muz has just described too, but then I realised that they'd use an ULTRASOUND scan of your stump, as opposed to a computer captured 3D image. (I don't even know the proper terminology for it ) I have had test sockets made using that beast Muz has posted, but No, it didn't work for me either. It all seemed so hopeful, but alas, I'm back to the white stuff too <_< Which evidently works better in my case :)
  7. Afet

    Hello Everyone

    Hi Kimbo and welcome to the forum :D My name is Afet and I've been a bilateral below knee amputee since July 2003. Join in when you can and enjoy it here! B)
  8. Thanks for saving the day with your in-depth answer, Marcus :D
  9. Afet

    Funding Approved!

    I'm also wishing you the very best, Roz :)
  10. That's exactly who I was thinking of when I said that "many here share her message"!!!! :lol:
  11. Afet

    Reflex action

    When either taking my legs off or putting them on, occasionally, one (or both) of them fall down. What really bugs me though is the amount of times I've gone to "save" that falling leg with one of my poor little stumps Whack! <_< Ouch! :o What makes it worse is that you'd think I'd learn not to do it because of the pain I sometimes get from being such a div
  12. Afet

    Reflex action

    Good one! :lol: :lol: :D
  13. Afet


    Very well said, Linda :) Jim, congratulations on beating the odds and living a very satisfying life B) Glad that you're here, sharing your "experience, strength and hope" with us ;)
  14. Ohhh, I see what you mean (I did wonder if you meant the sleeves NOT the whole leg ) Well, I don't think any water can get through them, but is more likely to get in the tiny gap between skin and sleeve. Having said that, when I've rolled down the sleeve after using the legs in the shower, I noticed that my liners were still dry inside. So it appears that not much got through. I would imagine that the newer the sleeve, the more chance that it will be tight enough to stop water getting in that way. I wouldn't like to get it wrong though. Perhaps Marcus can tell us what he thinks?? OVER HERE MARCUS!! :lol:
  15. No, not daft at all, Rob. My prosthetist tells me that they are totally non-corrodible. He told me that the pylon shouldn't corrode but it is covered with foam, for added protection. The feet on them are a pair of SACH feet, which, I am told, are basically wood. I don't particularly like walking in them, and wanted something better, but he told me that these are totally non-corrosive and he's unwilling to give me anything that may corrode and put me in danger, should they get damaged in the water and subsequently snap off :o I haven't swam in them yet, nor am I particularly likely to dive in them, but I am told that they'd be ok to wear in the pool or the sea, though most amps prefer to take them off to swim. They'd definitely be ok if I wore them around those environments anyway. And, as you know, they held up in the shower ;) :P
  16. Yep... that's the one. It's worn half over your prosthesis, and you roll the over half over your thigh when wearing your prosthesis. I have a pair of IceFlex Endurance sleeves, from Ossur, that I used to wear on my suction sockets, but now wear with my water activity legs. Here's a pic:
  17. Afet

    Have We Met Before?

    Hi Muz, Good idea! :D I have only met one person from here so far, as I was in their neck of the woods. I had an appointment in that area and was with my mum. It was a gorgeous day, so this person drove us to a pub where we had lunch then dropped us off at the seaside, which was a lovely thing to do. It was really nice meeting this person, that day :) I haven't mentioned names, so if that person comes along and reads this, then you are welcome to say it was you. I don't mind at all :) I am totally NOT against meeting others. I would love to! In fact, I had hoped to be at the ACA Conference this year to meet whoever went from here, but I had to change my plans :( You definitely haven't met anyone from this forum, Muz??
  18. OK, so as you can guess from the title, I have something I want to share, but wasn't quite sure where I should put it. I feel kinda stupid putting it here though, because I am not an athlete or a "high achiever" .. but I did something today which I feel is a major accomplishment ... for me. OK, so you all ready to hear it? Here goes... Today, for the first time in over 3 years... I took a shower ... STANDING UP!!!! :D :D :D Wooooohooooo! I was issued with my water activity legs a few weeks ago, so thought I'd better test them out. And Oh My God, I was standing up!!! B) B) For some of you, this may sound so ridiculous, but I had resigned myself to a life of sitting down in the shower (on a bath board or shower chair) which, I have to say, NEVER feels right <_< So there I am today, STANDING in the shower, not quite believing it. Excited at the thought of shampooing and rinsing my hair whilst standing up!! :D And Ally, believe me girl, along with the screams of happiness, I was doing a happy dance all for myself in there :lol: ;)
  19. Afet

    Guess what I did today?

    Thank you, Gil :D I totally agree. These kind of "smaller" achievements may seem insignificant to others, but to us, they are the things that mean we are reclaiming our independence and feeling like ourselves again :)
  20. Afet

    this is what my phantom pains look like.....

    Cheryl, Your words here have been playing on my mind ever since I read this post yesterday. I don't know why, but your "visualisation" struck a chord with me. It's such a poignant, yet befitting, mental image. I made do with a simple, tearful, goodbye to my legs, and I suppose I did send them off after thanking them. But, in retrospect, I wish I had thought of a visualisation like yours.
  21. Afet

    Seal In Liner vs. Pin System

    Marilyn, You can add me to the list of bilaterals that have tried the Seal In sockets I, like Mike, was asked to help out in a trial for the Seal In's at my Limb Centre. They were quite new at the time (Spring 2004) so a few guys from Ossur came to demonstrate how best to cast for them. I'll bet we had the same "head" guy, Mike. Was it one of these 'Ask the Experts' from the Ossur site?? ;) Anyway, my left stump was being casted by the Ossur expert, with him leaving the right one for a Limb Centre staff to do. As the staff member cast it, I could tell it wasn't being done the same way as the Ossur guy's <_< Later that afternoon, both check sockets were ready to try on. The left one (Ossur guy's) fit like a glove. The right one, however, needed a bit of tweaking and if I remember correctly, we even had to add a 'demi' sock. Finally, they were both on and felt really good. It's true what they say... they really do feel more like your own leg (compared to the regular suction sockets I was wearing at the time) Anyway, after a successful day of being a guinea pig, my then prosthetist scheduled an appointment... for FOUR weeks later! Big mistake <_< The sockets would never fit comfortably again. Actually, the left one (Ossur guy's) always would, but the right one was unwearable. What followed was many months of tinkering, tweaking, recasting, giving up, retrying, etc on that right socket. Then I had a change of prosthetist. My now new prosthetist wanted to keep trying, so he recast me too (I think a couple of times) until we finally felt we had something resembling comfortable. However, at that time, we had also noticed a problem. The Seal In sockets have these valves that, once pressed, release the vaccuum and thus release the leg. Mine, however, WOULD NOT RELEASE MY LEG!! We'd end up with my prosthetist, pulling on my leg for dear life, with me holding onto my chair for even dearer life until it would finally begin to budge My prosthetist got in touch with Ossur, who told him jokingly that's it's usually the other way round and that he had to be the odd one out (apparently, the usual problem with these sockets were that they'd lose suction, so legs were falling off all over the world! ) Trust this to happen to me So another valve was ordered, but for whatever reason, it never materialised. By this time, my prosthetist had made me a pair of pin legs, which I was very happy with, so I never really bothered chasing it up. So, Marilyn, my personal opinion is that if you are happy with your pin legs, then stick with them. There's just too many things that could go wrong with the Seal In's (fit, suction, valve, etc.) and it seems that the best fit occurs when you have an Ossur Expert come cast you! :P Yes, it's true that if the fit's good, because of the close fit the socket has, it will feel more like your own leg and be very comfortable, but that kind of fit is not that easy to attain. As said before, I am extremely happy with my pair of pin legs and I love the speed at which I can take them off... just a press of that button and I'm out! Having said all that, however, I would be willing to bet that if I were to try that left Seal In socket again, it would fit me just as well as it did that day back in Spring 2004. It really was a perfect fit...
  22. Afet

    hot or cold?

    Perhaps you could start a new topic with that question, Marilyn :) Because I, for one, would have alot to say on that matter, but I wouldn't want to take Paul's thread so off topic
  23. Afet

    I'm Devastated

    Lisa, You don't have to excuse yourself for feeling how you do ... we, of all people, can understand the roller coaster of emotions that amputation can bring. I think we all get bad days, some even years after their amputation (like me, for a start ). It's bound to happen. As you said, amputation is a life changing event. But you're within your right to feel strongly about the person that caused your amputation. Allow yourself to feel how you want to feel - for as long as it takes - and then get back to feeling positive again. You've done really well so far. By doing that, you will show this person (and more importantly, yourself) that they may have taken your leg, but certainly not your life :)
  24. Afet

    ACA Conference 2006 Review

    What a great photo!!! :D :D :D It's so good to see all the faces of the gang ;) Thanks Johnny :D Afet (who thinks Johnny had been on the booze as he posted that pic post :P)