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Heather Mills - Amputee Forum

Kait

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About Kait

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    Newbie

Previous Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    Potential BKA
  • Amputation Cause:
    Chronic pain
  1. Hi I'm new here. I'm 20 years old and I'm in college. I was born with a congenital condition but I didn't know until I was a senior in high school. I was a really competitive long distance runner and it's actually how I found out. I landed on a stick wrong on a 10 miler and it damaged what's known as a tarsal coalition. It's pretty rare. I've only talked to one person who has it in the last 3 years. It's basically where bones in the foot didn't separate in the womb all the way. I had 3 TCs and 3 resection surgeries. Now I have advanced degeneration in a neighboring joint in my right foot ( they don't know why) and long list of bone problems associated with it. I have chronic pain that makes it almost impossible to walk some days. I'm only able to do the bare minimum to get what i need done. I also have nerve problems in my foot that started after my third surgery. I can barely move my toes and have decreased movement in the rest of my foot and it's twitchy😂. I'm getting a nerve test soon for that. I've actually gone all the way to Mayo Clinic. The only option they are giving me is a hindfoot fusion and my parents made me schedule surgery for the summer. I've done extensive research on fusion and I feel like I'm signing my future away. I'm so young that there is no way i won't come won't need further surgeries and have arthritis through out my body. And that's without taking into consideration the limitations a fusion gives you even if it took most pain away. I don't think I will ever be happy with a fusion. I've been researching and reading about amputations for a year now and I really think amputation is the best option. I feel like it could give me my life back that a fusion could never do. I'm more scared of having extensive limitations than any sort of limb loss. I've tried talking to my family and people I'm close to about amputation but I've gotten a lot of backlash. Everytime I try to tell my doctors what I want to do but I chicken out because I don't even really know why. I guess would you fuse or amputate? How do you even convince people amputation is the right thing to do? Any advice is appreciated
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