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Heather Mills - Amputee Forum

JohnnyV

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Everything posted by JohnnyV

  1. JohnnyV

    Return after many years

    Welcome back Glen !! A lot has changed in 15 years. There is a lot more social media option for individuals effected by limb loss. As a result, the traffic on this site has slowed down, but it's still here. Glad that you decided to still be here too. Best,
  2. JohnnyV

    OttoBock Triton Harmony

    I have boney promonances with my fibula and back in the early 80’s had my meniscus removed. So an offset was plate was added to my prosthetic improving my comfort level which increasied my ability for a higher level of activity. Regrettably that was determined 4-5 years ago and took switching my Prosthetist. The point is that I got there because I stayed on it.
  3. JohnnyV

    OttoBock Triton Harmony

    All the time that I tried to get the seal in or Vacuum to work and I ended up staying with a pin. It's not for everyone.
  4. JohnnyV

    Prevention of Phantom Pain

    I have lived with it for almost 16 years and find it to be the worst from weather changes and early in the morning when I get up out of bed to relieve myself and than try to go back to sleep. I use to have trouble going to sleep, but I now usually tire myself so that I can go right to sleep. My limb can get cold at night this time of year too but not sure if that plays into the neuropathy firing up.
  5. http://www.heathermills.org/latest-news/2017/10/20/personal-truths-rehabilitation-and-support
  6. JohnnyV

    Looking for support (for daughter)

    Thank you for the update Marion. Glad to hear of Lauren's continued progress. Look into the No Barriers Summit and see if that would be something that she would be interested in participating in. It's going to be in Lake Tahoe this year. Best,
  7. JohnnyV

    Newbie

    I too had phantom limb pain early on almost 15 years ago. I still have it. Not as bad as it was, but still a regular annoyance. I no longer take medication regularly for it. I have a neuroma that gets fired up from time to time which I take anti-seizure medication (neurontin) for the pain. Glad to hear that your fall wasn't serious. Welcome to the forum. Glad you found us !
  8. JohnnyV

    Pin lock pain issue

    Bring it back for an adjustment. The pin could be too long which would cause you to hit bottom.
  9. JohnnyV

    No clue

    There is no normal. Everyone has their own story. Start out by telling us your story Skip.
  10. JohnnyV

    Harmony Liner

    Let your prosthetist know about this. Vacuum systems are higher maintenance requiring much needed understanding. Your prosthetist is responsible for helping to empower you with that information. You can always call Ottobock customer care as well.
  11. JohnnyV

    OttoBock Triton Harmony

    Not familiar with the problem. Just be very cautious about infection. And since you are dealing with the VA, don't be shy and just be a walk in ASAP. Thank you for your service and best wishes !
  12. JohnnyV

    Looking for support (for daughter)

    This is a recent very empowering story that made me think of you and your daughter. So I decided to share it with all of the forum following your thread. I hope that you enjoy watching it as much as I did.
  13. JohnnyV

    Looking for support (for daughter)

    http://wickedreport.com/25-years-old-girl-without-arms-got-sport-pilot-certificate-inspirational-story/
  14. JohnnyV

    Looking for support (for daughter)

    Happy New Year to you and your family Marion Thank you for the update !
  15. JohnnyV

    Do I have a neuroma?

    Yes Lisa. It could be a neuroma. I have had a neuroma for 13 years since my amputation in 2002 and looking into a revision surgery to address the pain that I experience, especially after a higher level of activity. Medications are not a permanent solution and I have not wanted to undergo surgery. Follow up with a health care professional to discuss your options. Best wishes !
  16. JohnnyV

    Looking for support (for daughter)

    I am very sorry for your family's loss with my deepest sympathy.
  17. JohnnyV

    News from Downunder

    I resemble that remark and have no regrets with getting old ! Thank you for the birthday wishes and also for the update. Best wishes to all !!!
  18. JohnnyV

    Looking for support (for daughter)

    We would love to have Lauren join us here on the forum. And a lot of us, not all of us, are active on facebook as well. Thank you for the update !
  19. I know a bi-lateral amputee that drives a truck with prosthetic legs so it can be done. Best wishes going forward !
  20. JohnnyV

    Happy Birthday, Johnny!

    Thank you Cheryl !!!!! It feels great to be alive !!!!!!
  21. JohnnyV

    Looking for support (for daughter)

    Marion, I am in Colorado right now beginning our Footprints Adventure for adults. I told the Executive Director about you and Lauren and said there was a conflict with your schedule to attend this years camp adventure.so she told me about another program that I know you would very interested. It's called Skills for Life and can be found through http://armdynamics.com I hope that this helps. Regards,
  22. JohnnyV

    Looking for support (for daughter)

    Marion, Nice profile picture ! I have another resource that I would like you and Lauren to review and consider. It's called Footprints and I am on my way to Colorado next week to participate in their adult program. The Young Adult program, which would be perfect for Lauren is August 6th through the 12th. These are the kinds of experiences that can feed that positive energy that Lauren is trying so very hard to create. She will be given an opportunity to meet her peers. I believe that the timing would be perfect for this one. You both will have to decide that. Give Brittany at Footprints a call, tell her that I sent you her way. She will be more than happy to answer your question and make you both feel comfortable with their program. Watch the video on the website first and you will see what I mean. http://www.footprintsadventures.org/ Kind regards,
  23. JohnnyV

    Looking for support (for daughter)

    Marion, Please contact the Helping Hands Foundation at http://helpinghandsgroup.org/ . They are a great outreach source where you will find a new family of friends and support. Best wishes for much success to you and of course to Lauren in her rehabilitation process, as she finds her way on this new journey. Kind regards,
  24. JohnnyV

    Tumbleweed Time again?

    Yes. Of course. Big brother is watching.
  25. Here Here or is it hear hear !!! Great news Cheryl. Wishing you the very best !!
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