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ian

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About ian

  • Rank
    Newbie
  • Birthday 12/01/1950

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  • Location
    Norfolk, England

Profile Fields

  • Membership Type:
    Amputee
  • Amputation Type:
    High amputation above right leg
  • Amputation Date:
    2 October 1995
  • Amputation Cause:
    Motorbike accident in India
  1. Interesting what Ally and everyone has said on the subject. I suppose one needs some sort of 'trigger' to make one stop? If one trigger doesn't, try another one. Generally, amputees know smoking can make things worst for them, yet perhaps the incidence of smoking is higher among amputees? (I could be wrong) Is it something to do with the fact, they accept that they might die earlier? Lack of motiation for living to the full? Its harder for some amputees to live life to the full, especiallly if they feel more or less 'alone'. Perhaps we should focus on trying to improve the quality of life 'for everyone' - the incidence of smoking may naturally fall away? What do you think? Ian
  2. ian

    Liner burn...

    Hi Jen Interesting what you say about suction liners. My consultant wants me to try one out (without the prosthesis) and see what sort of reaction I get with the stump. I wonder why the prosthesis tends to weigh so heavy. Lot of wieght for relatively little muscle (AK compared with BK) to drag around! Ian
  3. ian

    Liner burn...

    Hello Thomas. Thanks for your comments. Yes, I have worn the prosthesis for longer than 4 hours, in inevitable circumstances. The more I walk, the more stump bother I get. The prostheisis needs some fine tunng to be more comfortable - but stump discomfort/pain is the basic problem to solve first. It seems the stump has a brain of itself - and doesn't like to be enclosed! Ian
  4. ian

    Liner burn...

    Hi Lizzie No, its not bone or musle pain. Some sort of dull ache building up from inside. Becomes pain if I have socket on, for longer. Something to do with nerves? But there seems no neuroma. Most strange. Ian
  5. ian

    Liner burn...

    Hi Thomas and Lizzie Thanks for your interesting reply. Its good that you can wear it for 12-14 hours a day! Do you generally find that you have to restrict your movements in order to keep the 'leg' on for longer? I wonder why I seem to eventually get internal stump (skin is OK) discomfort? I wonderd if it is something to do with the difficult and messy circumstances around my amputation? It is one of my aims to find a solution that enables me to stay on my 'feet' almost all day. Ian
  6. ian

    Liner burn...

    Interesting to read everyone's comments about liners. I use a Alpha liner with a 'pin' type of prosthesis. Since the stump seems to react with the liner after a period of time, I have to take the 'leg' off and rest for a while - due to stump discomfort. (leading to stump pain) Generally I can wear the leg for roughly about 4 hours at a time. Are there any AK amputees out there who can wear their prosthesis all day long without any trouble? Ian
  7. Our 'Mr Positive Thinker' (OneBlueLeg) has a point. It is all very well for us to dream of amputees having vastly better equipment in future...but we have to think about our own situation and the realities of the present. It took thousands of years to turn Night into Day, at the flick of an electric switch. The 'ideal' life for an amputee still hasn't arrived yet. We need to try to make the best of what we have now in the limited circumstances we may find ourselves in. Until the 'future' arrives, should we be focusing on social issues (how we manage life and fit into society) rather than technological ones? Regards Ian
  8. Folks... If you are interested in the Victhom Human Bionics thing, you may like to take a look at Osseointegration. This idea seems quite relevant to some AK amputees who face hassles with thier standard prosthesis. Osseointegration involves joining metal to stump bone. The concept is already being done, with operations being done, mainly in Sweden and Australia. For further information look at the links through: http://rehabtech.eng.monash.edu.au/OPRA/ Does anyone know what the UK's NHS is doing about Osseointegration? Regards Ian
  9. Thanks to Laura G for her efforts in bringing us the fascinating information about Victhom Human Bionics. In trying to 'copy' the natural movements of a missing knee and limbs, it seems there are two broad ways doing it: 1. Studying natural human movement by observation etc., and trying to translate 'limb control' mesages 'artifically' into a processor. (which than controls the artificial knee) 2. In a more natual way, trying to understand how nerves work, before 'decoding' them into processor that controls the artificial knee. At least, someone is attempting to do this. (Mohamad Sawan, as reported in Washington Post article of 12th April 2004. I imagine nerve messages are incredibly complex, but being able to finally decode them will have huge 'knock on' future benefit for amputees etc. What is urgently needed NOW, is a kind of 'Pain O Meter' which will tell doctors etc. WHAT TYPE of pain (as well as WHEN) an amputee has. This device could than lead on to a kind of 'Message O Meter', which could tell us what kind of limb 'control messages' the brain is trying to tell us. This could lead to even better prosthesis being made. Even if Vichom are successful in bringing out their prosthesis, it won't be long before someone else comes up with a even better prosthesis... Ian
  10. Hi Folks After getting useful feedback from wonderful members, I am wondering about the following: 1. Does anyone know of a prosthetist in UK with lots of experience, technical skill and sensitivity - regarding a wide range of AK prosthetic requirements? I think I would be quite prepared to travel in order to see the right person - who perhaps may be working in either the private sector (preferably independently of limb manufacturers!?) or NHS? 2. It seems to be a good idea to try out different combinations of prosthetic devices (for a reasonable period of time!) BEFORE actually deciding (and selecting) on what works for me. Is this possible? 3. It looks as if a particular prosthetic solution may work for one AK amputee - but not another with a similiar level and need? Do you agree? Perhaps I am asking rather difficult questions! But finding the right solutions could help me to save time and money in the long run! Any ideas? Regards Ian
  11. ian

    New!

    Hi Hickster Many thanks for your views and suggestions. I have been an amputee for 8 years - all this time my only link as an amputee was with the NHS here in UK. (Are you UK based?) Only now I am beginning to make contact with other amputees and tring to probe into what may be possible and perhaps may be harder to do, regarding an amputee like me, with a 7 inch stump. I wonder if there is a general lack of information regarding the technicalities and practicalities regarding various types of amputation, avaiable to amputees. The general problem with the amputee side of NHS is perhaps a bit like the rest of NHS. The doctors tell us what they think is best for us, rather than informing the patient the various options, pointing out the pros, and cons. of each option and allowing the patient more say in deciding what may be the best option... Without the right input, we amputees tend to plod on through the time consuming method of trial and error... It is interesting what you say about the C-leg. I thought it may generally help to reduce the amount of energy my short stump has to expend in just walking? With my present prosthesis, I find walking on uneven surfaces pretty difficult to do. It would be nice to have a 'leg' that can cope with some terrain and is not too exhausting to use on normal country walking. As I mentioned to 'Oneblueleg', I would be prepared to travel further to other parts of UK to find the right folks who can give me impartial advice, give good gait training and let me try out different 'leg's (including the C-leg) before choosing the 'right' one/s suitable for me. Any ideas? Regards Ian
  12. ian

    New!

    Ian (oneblueleg) Many thanks for your input. Yes, I have been to NHS Oxford and Portsmouth places for the 'leg'. I quess the best thing is for me to try and meet folks who can give me good advice and can help with quality gait training. I will be quite prepared to travel to other parts of England to get this done - as it is a priority area for me. Your idea leading to trying out different 'legs' sounds good! Is there anywhere in UK where I can do that? I wonder if it may be best for me to have a 'private' leg, but it would be good for me to try out a 'leg' e.g. the C-leg, before committing myself to buying it? Would that possible? Regards Ian
  13. ian

    New!

    Brenda I typed out a message for you and then hit 'Report to'. I wonder if that was the wrong thing to do! So I am doing it again for 'Reply to', Many thanks for your reply. I checked out the websites you kindly recommended. The one of Dennis and Todd (and its links) is really good! I suppose I will have to work hard at trying to find folks in UK who can give me good advice and help with gait training. This will take time - not easy for me, as I am quite busy with other things. I do realize that this is a priority area for me which needs to be sorted out. It was interesting that another AK amputee didn't find the C-leg helpful. Since I have a short stump, a lot of energy is expended in using the prosthesis for walking. I suppose the C-leg doesn't really help to reduce that walking effort and energy that the remaining stump muscle has to use? Regards Ian
  14. ian

    New!

    OneBlueLeg Many thanks for your (and Brenda's) helpful response. It would be really good for me to know of other AK amputees who also have a 7 inch stump in order to compare notes - and try to see what may be possible and what is rather difficult to do... The mirror idea of yours is really good. I now plan to get one installed in the house to see myself walking to it. To improve walking and things, perhaps I need to go somewhere where they can focus on improving walking habits? Any ideas? I live near Southampton, England. Thanks! Ian
  15. ian

    New!

    Brenda Thanks for your two quick responses. As you kindly suggested, I looked up the info. about BK and AK 100 metres. I was very impressed, especially with the AK achieving 12 something seconds! Most encouraging! I think my problem is not: 1. Having someone to properly advise me on choosing the right kind of prosthesis/s. 2. Having someone to show me how to use the full potential of the prosthesis. I hope someone may be able to suggest who in UK may be able to help with the above. I suppose it is not so easy to find someone to advise on suitable prosthesis who is not motivated by money - and is impartial. Regards Ian
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