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Heather Mills - Amputee Forum
mandidee

I'm new here - Just saying Hi

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Hi everyone, I am new to this site but am happy to be here. I am a 25 year old AKA and very happy that I am missing my limb. Ok, maybe not very happy, but I certainly wouldn't change it. I was born with PFFD which affected my left leg leaving me classified as an AKA and (in simple terms) missing the ball and socket joint in my left hip. I am in the process of haveing a new leg "made" for me. I am in love with the design and I was able to have it decorated with Detroit Lions fabric...very cool!!!

As I stated I was born with my disability and was fortunate to have an awesome family so I feel that I have adjusted very well and am completely comfortable with my leg. I was a child with a disability (fairly recently) and would be more than willing to talk to kids and/or anyone who might need help adjusting to the lifestyle of an amputee.

I was just hoping to connect with other amputees to chat and share experiences and stories. Thanks for your time!!!

post-12-1095267433.jpg

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Hi Mandidee,

Welcome to the forum! B)

I am also 25 yrs old, but am a bilateral BK amputee resulting from an infection in 2003. So, really, I'm quite new to this myself!

It's good that you are kind enough to share your experiences with others and offer support to help others adjust to their new lifestyle. I am sure that you have helped many people already, as you are now doing by joining us here! :D

Where are you from? Do you do peer visitations where you are?

Look forward to seeing more posts from you! B)

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Hi Mandidee, welcome to the forum, nice pic. :D I am so pleased that you have such an awesome family for support and that you are completely comfortable and willing to share that support to others, that's very thoughtful. Please feel free to join in, whenever or wherever, we appreciate your comments. :D

Sheila lbk

Maine USA

Keep Smiling :)

Live for today and let tomorrow be, for the future is not ours to see.

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Hiya Mandidee and welcome to the nest.

Your family sound awesome.

Pull up a chair and join in, Iv'e been her only a couple of months but the people here are awesome and always willing to share and comfort you.

Cat

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Bunny1.gif

Welcome to the forum! There are a great bunch of folks who post here, hope you find good energy and good information here to assist you :)

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A pleasure to meet you :D

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Hi Mandidee

:D Welcome :D

It nice to meet you ........ great photo ......... your new leg sounds great !

Debbie

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Wow, thanks for such a warm welcome. Very warm atmosphere here! I am from a tiny little city in lower Michigan. I have a wonderful husband, Dan, and two dogs, Snoopy (Black Lab) and Scooby (BloodHound). I am a Rehab Services Tech performing ultrasounds and other modalities on amputees. I am also a full time student in the radiography program at the local community college.

My family is great, like Josh's mum, they are very supportive and encouraging. My dad is, and always will be, my hero! I have one sister, she is married with two gorgeous kids that I love to death! I had a brother whom passed away before I was born due to cancer. My parents are strong people, I think that is where I get my strength, it's passed on from them. They've been through a lot in their lives, although you would never know it. My dad has a huge family, 10 brothers and sisters....they all live close by and are a fairly tight-knit clan. I love it!

I guess that's about all that I can think of to share about myself. I am very happy to be a part of this group, thank you all for such a nice welcome!!!!

PS

I will post pics of my new leg when I get it, I am soooo excited!

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Welcome Mandidee,

My name is Brian and I am a 27 year old right above-knee amputee. I lost my leg in May due to a tumor and infection. I just recently got my first prosthesis and began physical therapy. I think it's great that you want to reach out to youngsters with disabilities. I can't wait to see your Detroit Lions leg. I'm a die-hard fan of the Chicago Bears (who will avenge their loss to Detroit! :P ). This forum is a great place for amputees to share experience, advice, inspiration and even humor.

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Welcome to the forums Mandidee, I'm sure you'll like it here.

I was also born with lower limb defects and had my amputation at 18 months of age. I am now 31 and have been AKA nearly all my life.

Your family sounds great and you have a lot of good energy I'm sure will make a good addition to our online community.

Edit: What is PFFD?

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I am 25 as well, and have been paralyzed since birth. I recently (may 10, 2004) became an amputee due to a huge infection in my leg and pelvis. The removed my entire left leg and about half of my pelvis. I feel family is a huge part of being a well-adjusted kid, but even more so when the kid is disabled growing up.

Welcome to the forum. We may not always get along...but it is really cool, to get all kinds of advice and stories from around the world.

:blink: (LC)

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Hi Mandidee, welcome to our website. I haven't had my amputation yet (long story, everyone is fed up of hearing) :blink: . Hope you'll have plenty of advice, once it all happens.

Love from

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Hi Mandidee,

Welcome to our forum family we're glad you have joined us. This is a great place for everything from venting to asking questions. With your experience you'll make a great addition to the family so pull up your comfy chair and enjoy the stay.

You can read my story in the introduction section of the forum.(that's if you choose to)

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Hi Mandi

Im 25 too, well in my dreams I am. Ive been an amputee since April and have just started to use the forum. Its been a big help to me already :D

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You can read my story there too I think......and I'm 25 too.......honest :rolleyes:

Cat

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Thank you all do much for the responses.

For Mandy:

Is your name Mandy? I assume that it is from your screen name. Mine is too, only spelled Mandi. The stats on PFFD are all so controversial. I have read that it affects 1 in 50,000 births and recently I read that it affects 1 in 500,000 births....guess it depends on the author! Anyway, PFFD means PROXIMAL FEMORAL FOCAL DEFICIENCY....that means that during the embryological development of a fetus, the proximal end of the femur doesn't progress normally. Basically I am missing the ball and socket joint in my left hip and I am an AKA due to the femure not growing into a normal limb. I had an amputation done on my foot before I was 5. Here's a great site for more info:

http://www.naz.edu:9000/~jakneiss/PFFD.html

For Ladycapulet:

You are an inspiration! Wow, I am very facinated with your story!!!!

For Bearface:

The Lions are going to clean up this year!!!! Even though Charles Rogers is broken again! I cannot wait til the end of the season so that i can brag up the roster!!!! He. He.

For BritinFrance:

You live in Detroit and don't like the Lions! What a tragedy! He. He. I am a huge fan of the Lions and Pistons. I hit the casinos in Greek Town once in awhile....I am about 2 hours away from Detroit.

For Tint and Cat: You both crack me up!

Did anyone watch Survivor last night?????? There is a young man with an artifical leg on there - I am cheering for him to win!!!!!!!

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Hi Mandi

Yes, my name is Mandy (spelt with a 'y' :P). I have only recently started delving into what caused my birth defect as I am trying to figure out if it is hereditary. Thanks for the explanation of PFFD, I think I have read about it.

My defect was mostly from my knee down. I had no knee to speak of and was missing my tibia as well as missing bones in my foot. From my baby pictures it looks as though I have incision wounds on my leg but apparently that is where my leg was resting against my Mom's pelvis! Strange all the things that can happen in the womb. Needless to say the large majority of them are not hereditary, which is good news for us :).

I see we have yet another similarity - our birth dates! Mine is June 14th so howdy fellow Gemini ;)

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We seem to have a lot in common...I, too, just recently began looking into what exactly PFFD is and the causes. It seems odd to me, but I had never really thought much about it until now. I have always been a volunteer for the Red Cross and an advocate for several other health related causes, but it never once crossed my mind to make a difference in a field that I can easily relate to....like amputees.

So, upon realizing that, I stepped out of the administrative end of my profession and into the clinical. I am now working with people with artifical limbs. And, have developed quite an interest regarding what in the heck causes these sporatic birth defects....I have yet to find any concrete answers, just several theories, but I continue to search. Hopefully someday someone will have some answers...

I am really excited to be talking to other amputees in this format...very relaxed and easy going! :D

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Oops I forgot to add....my birthday is June 12th 1979

:D

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Hiya and Welcome,

I'm a Right Below Knee amp since November 5th 2003 - so not quite a year yet! I had an accident with a wall and ended up with a crush injury that led to amputation - but well....things happen in life I suppose.

I live in Cardiff - Wales - UK and I'm 35 and mum to 2 boys (9 and 7) - very, very lively! :lol:

This is a great place for advice, support and info.

Sue - Cardiff - UK :rolleyes:

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Hey Cute Girl! Not trying to pick up on you, just talking from my "mom heart"! You have the greatest eyes by the way! ;)

So glad you joined us. I can sure relate to the comments about researching the "causes" of birth defects. I was born with spina bifida, NO other history in my large family. It was a huge concern during the pregnancies of my FOUR kiddos...we were blessed, all four are healthy. (I am almost 38, by the way).

My birth defect caused a twisted/deformed foot that they operated on over and over again until I got the hint and had them cut it OFF in Jan. of this year, and am now living an athletic life for the first time in my life....loving every day with my new leg.

I plan to get my SEAHAWKS logo laminated into my new socket in the next few weeks. Have followed them since I was a teenager and every year I say "THIS is the year they go to the super bowl..." so let me put that out there now, at the start of this fresh new season....they are doing great so far.... :D

Again, great to have you on board...this is a fun place. I dont check in as often as I used to but love the times I do get to catch up, like today!

Judy

Utah

LBK

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Thanks mandi.

Not to toot my own horn (toot toot B) ) but I try to stay upbeat and inspirational. I honestly get a charge out of people when they think I can't do something and I do it without assistance. (dimented I know :D )

I think you are inspirational as well. I am going to University to get my criminal justice bachelor's. I would like to be an ADA attorney. I have always wanted to work in law...but never thought to do something I knew until I got seriously sick about 5 yrs ago. Still took me a little while..but I'm on track now... Making all A's too.

I think it is great that you are assisting other amputee's and giving them the little boost of confidence they may need.

If no one else mentioned it...there is a Survivor thread going on in the general forum...thought you might be interested.

:ph34r:

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