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Heather Mills - Amputee Forum
Ally

Prosthetists, Amputees & Responsibility

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Well, I am sure check sockets are a good idea, however, I had a check socket for one limb made about a year ago, (b/k) I didn't actually get a fitting for this limb until October it was quite uncomfortable at the fitting with the check socket and I was told that the alterations could be quite easily done and they went ahead and made the "real" socket which was equally uncomfortable. They then decided to remake the limb, but I was not recasted and did not get another check socket, had a fitting with the second "real" socket in February, leg was uncomfortable in a different place and still doesn't fit so gone back to a limb I have been wearing for ten years.

Years ago, I never had check sockets made and usually got better fitting limbs. However I do realize that the problems do not arise just because I am now having check sockets made. I am just very disillusioned with my Centre!

Ann

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But Marcus, what if the check socket doesn't fit, even if they push bits out, trim edges etc. ? Ideally I suppose the final socket shouldn't be made until the check socket is quite comfortable.

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Me too. I thought that was standard procedure.

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Really interesting thread, I have to agree with much of you have to say Ally, with a couple of caveats.

I don't entirely agree with the "Rule of thumb - if it's sore, it doesn't fit!". When I first had a total contact socket a few years ago, it was such a change from my open ended quad socket, that it was very uncomfortable, and felt very tight and restrictive, however, I had confidence in my prosthetist and so I persevered with it and am so glad I did, I've never looked back.

Also

Lynne says "They don't deal with people being proactive very well! "

I'll politely give my opinion on being proactive. I don't know anything about your case obviously, so I'm not commenting about you or any other one individual. My experience has taught me that however much I think I know about prosthetic components and their comparisons, I am contantly finding that there is more to discover. I believe that unless proven otherwise, the years of study and knowledge your prosthetist (and/or prescribing consultant) has invested, (and in many cases years of experience) is something to be respected. I wouldn't demand the use of a specific product to my prosthetist regardless of whether I knew him/her or had any previous knowledge of their abilities. I would want open and frank discussion about the pros and cons of certain products, but it's important to realise that the correct presciption for me is unlikely to be the best prescription for you and visa versa. We may even be of similar built and activity, however there may be other factors to take into account. There are subtlties that it's difficult for the best people to understand. It's not as simple as everyone having the 'best knee' whatever that is, or the latest innovation, sometimes old proven methods/components are just as valid a precribing choice.

In summary, I think, you need to develop a good relationship with health professionals and hope all parties understand they don't have all the knowledge.

Just my opinions...

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As a new amputee I would be the first to admit that I know very little about prosthetics and have the greatest respect for those who do. I agree with a post Ally made somewhere earlier, about an amputees responsibility to gain knowlege and research everything as much as they can. Not so we can say, I know better, but surely so we can understand how things work, how they will effect or benefit our lives. Even, so we can understand why 'the best' is not neccesarily the right thing for us. Surely that is what being proactive is about. It's about being involved in the whole process.

This is my body, I want to be involved in any decisions made about it. Is that really too much to ask?

In summary, I think, you need to develop a good relationship with health professionals and hope all parties understand they don't have all the knowledge.

You say that your comments are not personal to me but you use the word You as if directly aimed at me! Or am I misreading that?

I'll leave it at that as I'm tired and have yet another fitting tomorrow in my socket that is too tight, that does cause pain and swelling and does not fit! :(

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You say that your comments are not personal to me but you use the word You as if directly aimed at me! Or am I misreading that?

Yes, you are misreading that .... I meant the royal you, as in all of us... I said it wasn't personalised because.... get this.... it wasn't personalised... don't be so sensitive... it's the problem with the typed word... it's still a problem with forum's, it's dry and one dimensional...

Good luck with your fitting, we've all been there, I really hope it goes well for you...

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sorry just feeling a bit vulnerable, guess we all get like that sometimes.

You are right about the written word, it's so easily mis interpreted.

Off to hospital now , thanks for well wishes :rolleyes:

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Just got back from the hospital.

The socket is still tight but I managed to put it on. It has to be put on, on a really acute angle, I don't really understand why; but it does.

I even managed to walk up and down the bars a few times. :D

I asked them to measure my stump and it had gone down a bit so the leg did go on easier, although it is still very hard to get it off. A bit like pulling wellington boots off, just more painful :lol:

We have decided to persevere with this socket because my stump will go down, I just have to do a little at a time so it doesn't get too sore and swollen.

It felt so good to be upright.

They want me to see the consultant on Tuesday as well as begining walk training , can't wait.

Ally, I asked which type of socket it was and they said it was a quad socket, held on with a TES belt.

Thanks for all the advice and support everyone, I feel much better about it all today.

Have a good bank holiday(UK) they promise us sunshine but I bet it rains, it always does! Hope it doesn't, I've only got half a roof! :o

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Hi,

My first set of prosthesis were the best I'd ever worn. They weren't perfect, I did have my share of bad days, but in lookng back over the years, they were the most comfortable.

Here's my idea for the best functioning prosthetic office.

1. A group of individuals who specialize in different areas. Meaning, a person who is best at castings. Hand it over to the person who is best at making the check sockets. Next hand the job over to the person who is best suited for gait analysis & the "tweaking" process. When all that is comfortanbly adjusted, the prosthesis is handed off to the specialist in fabrication.

2. The office is packed with catalogs & samples of the prosthetic components to actually SEE, before ordering.

3. A coffee & or soda machine in the waiting room. (we all know you're there for the day!)

Feel free to add to the list.

Linda

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add a television or some other form of entertainment, and to make sure that its clean and comfortable

Absolutely Marcus, theres nothing worse than watching a dirty TV ;) :P

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I'll bet that they were PTB prostheses with Pelite liners. . .

You must be psychic. ;)

Absolutely Marcus, theres nothing worse than watching a dirty TV 

As opposed to just watching dirty TV Muz. ;)

Linda

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Likewise Linda, my first proper limbs were also the most comfortable, they were also PTB's, but with leather linings.

Agree with your list Unfortunately my current centre is small, one prosthetist who sees one patient at a time, so I think about 2 hours is the longest slot you get, so haven't got a hope of getting any of them but can dream.

Lynne, hope things work out with this leg bet you will be so pleased to get walking.

Marcus - why are limbs nowadays either way too tight or way too big, or is it just the ones I get?

Ann

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I like gel liners, but think that you get the best of both designs if the prosthetist makes the socket fit comfortably without the squish of the gel, and then makes room for the liner in the finished socket.

If your prosthetist casts over the liner, how do you ask him to do it this way without offending him?

Also, when did gel liners come into the picture?

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Asking me for tips on how not to offend people  :angry:  :lol:  :lol:  :lol:

What was I thinking??

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The soft gel ones (alpha liners) came into the picture in the mid-90s after someone got the idea to melt down fake worms used for fishing into a liner.

I know fishing gets a bit boring when you're not catching, but I can't begin to imagine where this idea came from :lol: :angry:

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The soft gel ones (alpha liners) came into the picture in the mid-90s after someone got the idea to melt down fake worms used for fishing into a liner. 

Gee, I'm not catching anything today. Think I'll make some liiners for prosthetic legs out of these here worms...hmm.... <_<

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GEEZ ALLY... THANKS FOR THINKING ABOUT THE NEW AKA... HAD MINE 2-28-05... GOT MY LEG 4-28-05...I LEFT IT ALL UP TO THE CP.. AND HE HELPED EDUCATE ME... I JUST KNEW NOTHING ABOUT NOT WHAT KIND OF QUESTIONS TO ASK...ONE THING HE DID SAY WHEN HE CAME TO THE HOSPITAL WAS'' I HAVE TO GET VERY UP CLOSE AND PERSONAL" I DIDN'T KNOW WHAT HE MEANT TILL I WHEN TO BE MEASURED FOR THE SOCKET....AND FINDING MY ISHIUM...BOY.....I HAVE HAD 2 SOCKETS (JUST GOT MY 2ND FRI.....

THE MOST DIFFICULT THING I HAVE INCOUNTERED IS FINDING AN AMPUTEE TRAINED PHYSICAL THERAPIST....WENT TO THE ACA CONFERENCE IN DALLAS THIS MONTH AND SPENT A WHOLE DAY IN THE BOB GAILEY MOBILITY CLINIC AND DISCOVERED NONE OF MY PT'S HAVE TAUGHT ME THE BASICS OF WALKING AS AN AMPUTEE....

WHILE I WAS THERE ALSO DISCOVERED THAT SOME NICELY DRESSED AKA'S HAD ZIPPERS SEWN IN THEIR SEAMS OF THEIR PANTS TO EASE DRESSING AND LOOK NICE...

ONE THING I HAVE NOTICED... I DON'T HAVE A LEFT FOOT TO HELP TAKE MY RIGHT SHOE OFF :o

THANKS FOR YOUR HELP... KEEP POSTING TO HELP US NEW AKAS.....

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