Jump to content
Heather Mills - Amputee Forum
terrih69

And now my journeys began.......

Recommended Posts

i went for something to eat with my husband and parents and could see this woman on another table staring, infact i would go as far as she was looking at me with total disgust, i have to confess to having a wicked sense of humour and couldnt help myself.... everytime i was talking to my parents i was concious that out of the corner of my eye i could see this woman and she wasnt giving up..... so i lifted my stump and waved at her with it! she went scarlet and funnily enough stopped staring!

I wouldn't worry, Terri - I think most of us have done that or something similar!

You'll find that just pointing or waving (your hand) or smiling (or all three) works very well too. Sheila's right - you'll find your own way of coping soon enough.

Just so you know, children who stare usually respond well to 'Am I staring at you? (No) Well, stop staring at me please, as it's very rude'.

Lizzie :)

Share this post


Link to post
Share on other sites

Hi Terry:

Keep up the great attitude and I wouldn't worry about what anyone else thinks. It sounds like everyone has already given great advice and I agree with all of them, we get used to everything in our own way. Me personally make fun of it all and just have a great time with it. I had a little kid walk under my stump while in the grocery line and kept asking mister where did your leg go and his mom was uncomfortable so I said I was a magician and put it in my back pocket, from there I just kept goin on like that and by the end the whole line was laughing and it made everyone comfortable and new friends. That always helps to teach people its all ok were just like you. Take care and keep talkin to us.

Mind over matter does work and so does a smile its all contagious!!!!!!!!!!!

Pete

Share this post


Link to post
Share on other sites

hi all

just an update, had an appointment today to have the dressing changed, everything has settled nicely and looks clean and dry! well chuffed ;)

We have decided on a name for my stump, my kids have decided it looks like monsters inc's friend 'micky' (his one eyed friend) theres me worrying how my kids were going to cope and just after a week after the surgery it has a name!!

need to ask for some advice here.. what are peoples opinions on the drug 'gabapentin'? i have had several pretty uncomfortable days of phantom pains and my practise nurse wants to put me on this drug, me personally i would like to try some 'non drug' methods first. i have heard that increasing your vitamin A and E intake via diet and the TENS machine are pretty good?? any ideas would be greatly appreciated. i feel that i am on enough medication at present as it is.

thanks again for everyones support, it has been a great help over the last few months, both before and after the operation.

take care and look forward to further words of wisdom! :P

Share this post


Link to post
Share on other sites

Terri--

I am so thrilled that you are doing so well after your surgery! It sounds like you're a very caring Mom, who's concern for your kids & how they deal with this situation. I think it's great that you allow your children to find a way of coping with your surgery and naming your stump.

I have never used the drug gabapentin (sp?). My pain specialist has me on Cymbalta for the phantom pains. I'm sure other will have some "non-drug" ideas.

Take care of yourself and keep us updated on your progress.

Patti

Share this post


Link to post
Share on other sites

hi all

have had a really good 24 hours, my other half managed to get hold of a TENs machine for me and i have had little or no phantom pains or cramps since! (coincedence or help i dont know.... but pleased to have a break from them)

Ventured out to the foodstore today (mentioning no names) and decided on a coffee and something to eat.... i was totally disgusted with the lack of consideration for people in wheelchairs, the tables were so close together, that it was almost impossible to move round them, the actual tables themselves were too low to sit up against! and i found people ignoring me and talking to my husband! Ihave to keep reminding people that my leg was amputated and not my tongue! i can still talk for myself!

i soon learnt the '3 times rule', you ask people to move, suggest they move and then if they dont, run them over!! works wonders ;)

I am beginning to think that (i say this loosely) 'able bodied people' should spend 24 hours in a wheelchair, just so they can appreciate what we have to go through, maybe then they would be less ignorant! worth a thought i suppose! <_<

hope everyones ok, thanks again for the words of wisdom

'Keep smiling!'

Terri :D

Share this post


Link to post
Share on other sites

Tell me about it, Terri! Some people drive me mad, when I'm in my chair! :rolleyes:

Although, you still sound as though you're doing great! :D

Lizzie :)

Share this post


Link to post
Share on other sites
i soon learnt the '3 times rule', you ask people to move, suggest they move and then if they dont, run them over!! works wonders ;)

I like you rules :lol:

I do the same way.....and after you mangled them down, you ask for excuse ;)

Normally they can`t say anything, because they just bite on their tongue, because they don´t want to cry for pain.

Maybe you try it with wheelchairbasketball...there you can learn some bad tricks.

Ciao Thomas

Share this post


Link to post
Share on other sites
I am beginning to think that (i say this loosely) 'able bodied people' should spend 24 hours in a wheelchair, just so they can appreciate what we have to go through, maybe then they would be less ignorant! worth a thought i suppose!  <_<

Able bodied people in a wheelchair .... Now there's a thought

Have a look at this Makes interesting reading

Share this post


Link to post
Share on other sites

Well Mike,

I think its a difference between this old chair and a modern leightweight active chair.

When you get used to a chair, it is like motorbiking...i know, a bad comparison. ;)

The biggest problem in my opinion are people who straight look over you or stop when you are rolling along a mall. I am mostly rolling around with a higher speed as normal pedestrians, so the have often no chance not to be hurt by me.

If the would react as they do in normal traffic, there would be no problem.

Btw....I could do in my chair these 4 inch.... :lol:

Ciao Thomas

Share this post


Link to post
Share on other sites

I think the article you posted was excellent, Mike. Thank you.

The writer's thoughts, based on his experiences that day, are really sobering. I wish that all able-bodied people could read it.

Share this post


Link to post
Share on other sites

Yes, thanks for posting the article Mike,

It actually really reminds me of last year when I was still without leg. I decided to get around on crutches, and so didn't have to overcome most of the obstacles that the author talks about in his article, but obviously became far more aware of them than I ever was before.

I remember one day in April or May, when the weather was just starting to warm up I went out to a pub on the southbank of the Thames in London with a few friends. We were sitting outside, but after about half an hour I had to go to the loo - which was inside the pub. In the door I went, down two old narrow steep steps, then down four or five more old narrow steep steps, across a flat bit where the bar was, and then up 4 more old narrow steep steps, across another flat bit, through a heavy swing door, and lo and behold - there was a wheelchair accessible lift which led up to a disabled toilet - completely crazy - how anybody in a wheelchair could have got to that bl**dy lift in the first place I still haven't worked out.

Fiona

Share this post


Link to post
Share on other sites

hi all

we are now on day 12 and things are good! been back to see my surgeon and he doesnt see the need to see me again now, he is very pleased! all handed over to the amputation consultant now!

Had the first lot of stitches out and go back to my GP for the remaining ones on friday. They have fitted my first reducer sock, which i have to slowly start wearing, not the most glamourous! reminds me of one of nora batty's stockings! :P

I have then had my first fitting booked for 3rd april :D

still having a few issues with phantom pain, but hey! cant have all good can i?

hope everyone is well, and thanks again for all the support through this! its been such a big help to know that what and how i feel is totally normal :huh:

will keep you guys updated, best wishes to you all

Terri B)

Share this post


Link to post
Share on other sites
reminds me of one of nora batty's stockings!  :P 

Ohhhhh Norah Batty's stockings ... Stop it ..... getting all excited now :lol: :lol:

Pleased it is still going so well for you Terri, keep that positive attitude going.

Share this post


Link to post
Share on other sites

Awesome Terri - I am so pleased for you. It sounds like everything is full steam ahead for you, even if it IS in Nora Batty's stockings.

And a bit of phantom pain....pfftttt....you will get through that. We all do. For me, it's an excuse to throw my toys around every now and then B) And with the smoking having stopped now, well, I am a woman to be reckoned with :lol:

Seriously - you are really moving ahead. April will come so quickly. Looking forward to hearing how things go with you from now on.

Well done,

Love

Ally

Share this post


Link to post
Share on other sites

Pleased things seem to be going well for you.

Keep positive and you will progress real well.

Hey - I remember Nora Batty had admirers even though she did wear those

'orrible stockings --maybe it was the stockings that turned old Compo on.

Now there's a thought????

John

Share this post


Link to post
Share on other sites
They have fitted my first reducer sock, which i have to slowly start wearing, not the most glamourous! reminds me of one of nora batty's stockings! :P

Shrinker socks are just gorgeous, aren't they? ;) At the moment, I'm alternating between a Juzo (shrinker) and a Farabloc sock, which looks remarkably a vacuum cleaner bag! :huh:

Lizzie :)

Share this post


Link to post
Share on other sites

i think everybody here has some of this "beautiful" socks in use or in stock....so we are a kind of "order of the stump shrinker"? :lol:

Share this post


Link to post
Share on other sites

[Farabloc sock, which looks remarkably a vacuum cleaner bag!

QUOTE]

Would that be a Hoover, Electolux or maybe a Goblin ??? :D :D

Can't be a Dyson :D :lol: :D

so we are a kind of "order of the stump shrinker"?

We could all become M.O.S.S. members :rolleyes::huh:

John

Share this post


Link to post
Share on other sites
Farabloc sock, which looks remarkably a vacuum cleaner bag!

Would that be a Hoover, Electolux or maybe a Goblin ???

Seeing as you asked, John...they look like a grey version of the Hoover Junior cloth bag. :huh:

Lizzie :)

Share this post


Link to post
Share on other sites

hi all

i think all us 'reducer sock wearers' could start our own 'nora batty appreciation group!'

thanks again you guys for all your advice ;)

Terri

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

×