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Heather Mills - Amputee Forum
anne.brook

The journey has now begun

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Although in some ways I am a fraud because it my daughter and not me that is the amputee, I feel part of your wonderful family.

Hi Anne. Good to see your writings again.. I was wondering about you three ladies just the other day.

If I have said it once on here, I've said it 50 times. WHEN YOU HAVE LOVED ONES, THIS IS A "WE" THING. Nobody with a family and loved ones or friends. goes through an amputation alone. Even those that think that they are alone have new found friends - doctors and nurses who really do care.

I have told my wife many times, that I went through the physical part, but she had it worse - she went through the mental and emotional part. I would not want our two roles reversed. I could not take it nearly as well as she did, if they were.

You have more than earned your stripes and paid your dues here. Don"t you ever doubt it. You, and all of the other parents and loved ones of an amputee, who are as genuine as you are.

If ANYONE here had thought for a second that you were a fraud - believe me, you would have heard about it long before now. I know. So put your mind to rest, and let's not hear about that anymore. You are just as much at home here as the anyone. Okay??

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Thank you, you wonderful people for caring. I will tell you now, because if I don't, I expect my daughter will. My health has taken a dive in recent times. I have been a long time sufferer of Osteo arthritis, and it looks as if I need my left knee and hip replaced. But the real bummer in that My family doctor thinks I now also have Rheumatoid arthriris, I am going to the hospital tomorrow and to have blood tests etc on Wednesday.

I thank the Lord that he allowed me to see Victoria through her trials and tribulations, and who knows she might just have to return the favour whilst I am in hospital.

My bones might be old and cranky, but at least I have managed to keep my sense of humour. Those who know me say it's because I'm nuts, perhaps they're right.

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Anne, I'm so sorry to hear of your own health concerns. {{hugs}}

You know that you have everyone's prayers and thoughts! I'm praying that things aren't as bad as they are suspecting!

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Take care, Anne. Please keep us posted.

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Anne, I'm sorry to hear that you're now having problems, and I hope they turn out to be not as severe as feared. I have several friends who have had various joints replaced... while it's not something to be done lightly, they have all felt that the degree of improvement they received was worth it.

Now's the time to "go easy on yourself"... keep yourself well-rested and healthy, so you can be prepared for whatever develops!

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Hi All. The time really flies, I have just noticed that it's May since I gave you an update on Victoria. Things have continued to progress for her, so much so that she starts a new job tomorrow with Ikea in their Customer Services Department. Needless to say she is very nervous since it has been five years since her horrific accident and all that followed.

I just know that she will make a huge success of her new challenge, just as she rose to all the other challenges she has faced in recent years. But hey, you all know that I'm just a proud mom.

Unfortunately the new man in her life turned out to be a horror and we are still trying to get him to move on. Even though their relationship broke down, Victoria has gained another daughter as his daughter wanted to stay with her after he left, but she's a nice girl and the same age as Victoria's daughter. We have just taken her into our family.

On a different note, my tests turned out to be less than I would have hoped for and I now have rheumatoid arthritis as well as osteo arthritis. I have now been put on steroids, and although they greatly reduce the pain, I am concerned about the nasty side effects. I have told my specialist that I sill take the prednisilone for one month for some relief from the pain, but after that if he can't find an alternative, I will live with the pain and leave the pills alone.

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Guest bearlover

:) Hi! Ann, Holey smokes I have been wondering about you! That is great Vicky is starting a new job!! Teriffic..I'm sure she will do well. Sorry to hear the new guy turned out to be a tosser! That can only mean somoone else is in store for her. She sounds like she is more stable with her weight. Great.

So sorry to hera about your health. It must be very painful for you, you are a strong lady and will be ok. Hey thanks for the up date.. keep in touch!! :)

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Victoria has just completed her first week at her new job. She looks so proud to at last be a useful member of society.

This is where I hope we can get some advice. Her job is fairly sedentary, sitting at a desk mainly using the telephone. However, at the end of the day, she is finding that she is really sore and can't wait to take her leg off.

She normally puts her leg on at around 7am, and gets home around 6 in the evening, but has been donig that for many months now.

Could the air conditioning at work affect the stump? could sitting on a particular type of chair make a difference?

Any advice would be much appreciated.

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Hi, Anne! I somehow managed to miss your previous post... thanks so much for the update on Vicky, and I'm sorry to hear about your arthritis. I hope things improve for you on that front... I know it can be difficult to control the discomfort.

Re: Vicky's situation, I hope that some of our AKs can offer specifits on seating, as I know that's a major "comfort issue" with AK sockets! As a BK, I know that I had to make a few changes in my seating and work station when I went back to my office after my surgery. In my case, I found I needed a desk chair with arms (to aid in getting up and down... I'm still not too good at rising from a rolling swivel chair) and GOOD back support. I also needed to stop using the space under my desk for general storage, as I found it helped if I could stretch my leg out periodically during the workday. (The back of the knee can be a pressure point with a BK prosthesis.)

I'm guessing here that Vicky is spending much more time sitting in the same position than she was before returning to work. I'm also guessing that she wasn't sitting on an office chair at home. Both of those things mean that she's likely to be having some muscle stiffness, which may be translating into extra pressure on her socket; additionally, an office chair offers much less padding than a comfy chair at home... that may be increasing pressure on the socket as well. Can she pinpoint where the pain is coming from? If so, perhaps she can devise ways to "off-load" weight (and therefore, pressure) from that area when sitting.

I'd hope that, being IKEA, her employer would have access to a variety of chairs for her to try...? It may take some "trial and error" to find out what works well, but I'll bet she can do it!

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Hi there - what type of socket does Vicky use?

I have been an AK for 12 years, and I've done my fair share of sitting at a desk for 8 to 10 hours at a time. Since I have been using a MAS socket, sitting for long periods of time doesn't bother me half as much as it used to when I wore an IC and a Quad socket.

Sometimes with an IC socket, you squash muscles and nerves around the bum area which translates into stump pain. In my first year of being an amp, I would take my leg off half way through the day. Would her work environment allow this?

Every 2 hours or so she should be getting up and taking a walk around. Making coffee is a good excuse. And sitting on a soft pillow may also help. Until I got a MAS socket, I went everywhere with a cushion.

And on a personal note, I am so very pleased that Vicky is doing well. Yay for her!

Love

Ally

:)

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Guest bearlover

I found that leaving my leg in one position too long creates odd sensations and pain. I have to move it or change positions often.

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Air conditioning will help shrink a stump just as humidity will cause swelling. I have found sitting in a chair that is high enough to allow my foot to rest flat on the floor while my leg is slightly higher at the hip and lower at the knee works best for me. It is good to get up and walk for a few minutes once every hour.

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Thanks for the info folks. I will pass it on to Victoria.

Ally I am not sure what type of socket she has, but I will ask her when she gets home from work tonight. I know that the belt she wears around her waist is an osso bock.

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Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

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Guest bearlover
Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

I can certaintly understand that! I will not take off my leg in front of certain people and even family members. I understand Victoria completely. :)

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Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

I can certaintly understand that! I will not take off my leg in front of certain people and even family members. I understand Victoria completely. :)

I understand that too, its because the prosthetic limb becomes part of you and your identity.

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Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

I can certaintly understand that! I will not take off my leg in front of certain people and even family members. I understand Victoria completely. :)

I understand that too, its because the prosthetic limb becomes part of you and your identity.

Although I would not have thought it possible I'll take my leg off anywhere. I may be an amputee but I certainly don't need to be uncomfortable. My prosthesis is not ME. I exist without it. If someone doesn't like it or is offended by it TOUGH!

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Me too, Judy! I am sensitive to small children who don't know me. I don't want to scare them. My grandkids are so cool with it, other children most likely would be too.

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Guest bearlover

Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

I can certaintly understand that! I will not take off my leg in front of certain people and even family members. I understand Victoria completely. :)

I understand that too, its because the prosthetic limb becomes part of you and your identity.

My amputraton or prosthetic dose not identify who Iam..Iam about many other things than my prosthetic. :)

Although I would not have thought it possible I'll take my leg off anywhere. I may be an amputee but I certainly don't need to be uncomfortable. My prosthesis is not ME. I exist without it. If someone doesn't like it or is offended by it TOUGH!

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Guest bearlover

Sorry Ally, I only answered the first part. Victoria won't use her wheelchair and she doesn't like anyone seeing her without her leg on so I guess that's a no no. When she gets home from work the first thing she does is takes her leg off.

That useless piece of !x!x!x! she had for a husband caused more harm than enough.

I can certaintly understand that! I will not take off my leg in front of certain people and even family members. I understand Victoria completely. :)

I understand that too, its because the prosthetic limb becomes part of you and your identity.

My amputraton or prosthetic dose not identify who Iam..Iam about many other things than my prosthetic. :)

Although I would not have thought it possible I'll take my leg off anywhere. I may be an amputee but I certainly don't need to be uncomfortable. My prosthesis is not ME. I exist without it. If someone doesn't like it or is offended by it TOUGH!

My prosthetic dose not identify who Iam..Iam about many more things than my prosthetic.

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Hi all

Sorry it has been so long since my last post. I know mum has been keeping you posted on updates.

As you are all aware I am now back in the workplace and although tired from all the learning, I am loving it.

Ally I am unsure what my sockets name is apart from a few rude words at the moment :angry: . My problem is not so much from stump pain but more from the blisters that I seem to have appearing in my groin on an almost daily basis. I am using a skin protector called Cavilon which is meant to act like a second skin to give the area double protection from friction and sweating, as well as Lyofoam which is a non adhesive foam to add extra cushioning. I have come to the conclusion it may well be down to the fact that for the last yr or so I have lived mainly in lose fitting jogging bottoms, now I am not allowed to wear these so have been wearing Jeans which I think squashes my socket into my groin more causing friction. I have today been out and invested in some loose fitting smart trousers which, hopefully, being that they are not such a heavy material will not do this.

I would like to thank you all for your continued support. You really are a wealth of knowledge.

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Guest bearlover

Hi Vicki! Happy to see you post, It sounds like you have come a long way...!! Keep up the good work! :)

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Thank you Bearlover. Yes I most definately agree with you when I look back to where I was a year ago and where I am now it is so far apart it is amazing. I get my off days like I expect many of you do but doesn't everybody?

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Hi Vicky - yip, I relate. I used to get blisters in the groin area and also rub myself raw on my behind.

When you're due for another socket, you should make some enquiries about the MAS socket. Not everyone can make one, but when they are made correctly, they are stunning. They are cut very low in the groin (doesn't touch you there at all) and the butt area, and also in the front. It's a wonderful comfy design.

You're doing so well!

Ally

:)

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Thank you Ally. I am actually at the hospital on Wednesday for a casting (fingers crossed) for a spare/swimming leg). I will discuss the socket then.

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