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Heather Mills - Amputee Forum
nellyboy

uk amp get2gether

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Hello Everyone

Whilst I am fairly new (6 months) to this game, I have found this site a great way to meet people, but there is nothing better than seeing people face-to-face.

I have a great deal of experience in organising major events/conferences and fundraising, and would be interested in helping to organise a uk conference for amputee's.

The event would likely to be in October to get the best priced accommodation, somewhere central in the uk and over a weekend fri-mon.

It would consist of discussions, speakers, trade/specialist areas, and social events.

The cost would depend on the hiring of a venue, however i would expect that the set-up costs, expenses, marketing etc to be paid for by sponsorship.

Initially i am looking for a rough guide to numbers of those interested in attending this type of event from then i would be looking for people with various skills to be on the committee to organise the event.

Please tell me your views or if a event already exists!

Many thanks

NEIL :rolleyes:

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Neil - I do not know of any similar event in the Uk but depending on when and where it was I would probably be interested. My only hesitation would be that I am quite shy of new people/situations so would be a little uncomfortable coming to something where I didn't know anybody. On the other hand I would be happy to help with organising it if I could be of any use.

Sue

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Great idea, I did suggest this on another forum and got I think two replies so didn't follow it up any further but am always interested to meet others.

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I've suggested this before too and if I remember correctly, I was one of the ones who answered you, Rikk.

Neil & Sue ~ I'll send you the same sort of info that I sent Rikk. It's actually a huge task & I think you'd need to do some serious networking before you set up something like this.

Lizzie :)

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I've seen these events suggested before and I always ignore them because I'm not particularly interested.

I've never actually thought about why I'm not interested. The fact that these things never seem to come off has made me think about why for the first time. I thought I'd share my thoughts.

I've been an amputee for about 24 years, so I've been in this 'state' for longer than not so I'm quite used to the 'condition'. I consider myself 'normal' in most ways :huh: , and the thought of meeting a whole group of other 'normal' people who just happen to have one pretty minor similarity with me doesn't float my boat.

Don't get me wrong, I'm sure you're all really nice people. If I were to be in the same part of the country as you and we knew of each other's whereabouts, we might have coffee or a beer. I don't know though, that just the fact we are amputees gives us enough in common for it to be worth it to have a big get together.

When first I was an amputee, I remember thinking that whenever I met another amputee, we were going to have so much in common and we'd have plenty to talk about. Experience has shown me that's not the case, I meet amputees regularly and we're all very diverse sorts of people. The fact we are amputees is incidental, so I can't imagine it, in itself, is reason enough to get together.

I just thought it was fairer to answer, than just ignore.

Hopefully that doesn't insult or upset anyone, I'm just being honest.

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Neil, as you already know I'm up for this and am willing to help. Rikk, I was the other person to answer your post.

OBL, I agree with everything you have said. I have managed on my own for nearly 42 yrs. I then had my amputation a year ago this month, told that I would not be able to wear arty legs because of the damage they caused. I was at the end, I could not believe that was it, found this forum and got myself back on track. Everybody on here has helped and that includes you. I'm hoping that we can become one big voice that can change things and offer live help to those that need it.

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I've seen these events suggested before and I always ignore them because I'm not particularly interested.

I've never actually thought about why I'm not interested. The fact that these things never seem to come off has made me think about why for the first time. I thought I'd share my thoughts.

I've been an amputee for about 24 years, so I've been in this 'state' for longer than not so I'm quite used to the 'condition'. I consider myself 'normal' in most ways :huh: , and the thought of meeting a whole group of other 'normal' people who just happen to have one pretty minor similarity with me doesn't float my boat.

Don't get me wrong, I'm sure you're all really nice people. If I were to be in the same part of the country as you and we knew of each other's whereabouts, we might have coffee or a beer. I don't know though, that just the fact we are amputees gives us enough in common for it to be worth it to have a big get together.

When first I was an amputee, I remember thinking that whenever I met another amputee, we were going to have so much in common and we'd have plenty to talk about. Experience has shown me that's not the case, I meet amputees regularly and we're all very diverse sorts of people. The fact we are amputees is incidental, so I can't imagine it, in itself, is reason enough to get together.

I just thought it was fairer to answer, than just ignore.

Hopefully that doesn't insult or upset anyone, I'm just being honest.

Hmm...I thought you were 'in the business', so to speak? :huh: If I am correct, then not everyone is as lucky as you to be able to meet other people who can provide peer support, who can empathise and who can share experiences & information.

I'd personally like to see a UK version of the US amp 'get together' that we hear so much about. :D

No, we don't have to live in each other's shoes (excuse the pun :P) but we can do a lot to make things easier for new amps and their families...whilst socialising too. :)

Lizzie :)

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I have to agree with Lizzie here. I have been to three ACA conferences and always come away with a great feeling from receiving/giving help from/to others. The fact that we had an immence amount of fun doing it was incedental. If I were in England, I would attend. This is an online support group. It is a great resource for those of us who have the occasional problem. Meeting other amputees face-to-face is priceless. You don't have to be self-conscious and you can share with others what makes your life easier.

OBL, I would think that you could network your company some as well as lend a little help and advice to those who haven't been at this game for 24 years. Your company might just want to help sponsor this event.

Great idea Neil. Good luck with scheduling. It sounds like a big job.

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hi Neil,

I'd attend, just coz i'm a nosey git!

I go to an event where there are lots of differently abled people including many amputees.

It's the NABD bike rally in may(11-13) near Jodrell bank, all welcome. the NABD help to get people on the road on 2 or 3 wheels and try to overcome every problem, Amputation is a regular occurrance in the biking community and the NABD rally is a place i always feel like i fit in.

whilst agree with a lot of what OBL says, i would be interested enough to go along.

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Lizzie... you've missed the point, 'peer support' is not necessarily found from other amputees... I've not found amputees to be any more supportive than many other people in my life... that was precisely my point... I see a collection of amputees to not be much different than a collection of any other group... and I don't need 'support'. That's not to say that I may not be of any support to others, but from my experience I don't think I'd offer much.

Neal... I've PM'd Neil (nellyboy)... there may be something I could do if enough people were interested... I don't think it's a bad idea and I wish him luck.

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Lizzie... you've missed the point, 'peer support' is not necessarily found from other amputees... I've not found amputees to be any more supportive than many other people in my life... that was precisely my point... I see a collection of amputees to not be much different than a collection of any other group... and I don't need 'support'. That's not to say that I may not be of any support to others, but from my experience I don't think I'd offer much.

I disagree with you, oneblueleg. For those amps who post on and/or read discussion forums like this, we either give or receive peer support. Although I chatter away :huh: & I've gained some special friends from these forums :D, I'd really rather meet people face-to-face.

And, btw, I think you do yourself a disservice. Why shouldn't you be able to offer as much as the next amp? After all, Sparky has already said how much you have helped him. Oneblueleg, from the little I know of you, I think you'd be able to show a new amp how to incorporate their amputation into their life. So that, yes, it is important, but it's only part of them as a person. :)

Lizzie :)

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Hi Neil,

Good idea count me in, as I’m relatively new (two years) to all this and would love the chance to chat with some more experienced people. The one thing that I have found since my accident is that I haven’t had no contact with other amps,(never had any contact before neither) Even at my limb centre I was put in a room on my own and so missed out on the chance to chat.

This forum is good but there is nothing like face to face communication.

And as Hazel said count me in coz I’m a nosey git as well. ……………………Mick

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Lizzie... you've missed the point, 'peer support' is not necessarily found from other amputees... I've not found amputees to be any more supportive than many other people in my life... that was precisely my point... I see a collection of amputees to not be much different than a collection of any other group... and I don't need 'support'. That's not to say that I may not be of any support to others, but from my experience I don't think I'd offer much.

I disagree with you, oneblueleg. For those amps who post on and/or read discussion forums like this, we either give or receive peer support. Although I chatter away :blush: & I've gained some special friends from these forums :D, I'd really rather meet people face-to-face.

And, btw, I think you do yourself a disservice. Why shouldn't you be able to offer as much as the next amp? After all, Sparky has already said how much you have helped him. Oneblueleg, from the little I know of you, I think you'd be able to show a new amp how to incorporate their amputation into their life. So that, yes, it is important, but it's only part of them as a person. :)

Lizzie :)

Apologies Sparky, I appreciate what you say... I'm glad I could be of service ;) ...

Lizzie... I appreciate what you say too, thank you... I'll just shut up now though... I gave my honest opinion, that's all... as I said, I just thought it fairer to answer... it would have been easier not to in hindsight, though I have listened to what you've said.

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Excellent idea! I'd love to come. The people who have given me most hope have been fellow amps and I'd really appreciate the opportunity to meet people.

Incidentally I wonder what the collective noun is for a bunch of amputees? It's a pity that "pride" has been appropriated by thouse mangy felines!

Falstaff

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And, btw, I think you do yourself a disservice. Why shouldn't you be able to offer as much as the next amp? After all, Sparky has already said how much you have helped him. Oneblueleg, from the little I know of you, I think you'd be able to show a new amp how to incorporate their amputation into their life. So that, yes, it is important, but it's only part of them as a person. :)

That is the point I was trying to make. I'm not asking you to love me OBL, your knowledge and experience is priceless to a newbie like me. And like Mick I was always kept away from other amps at the limb centre, I only saw another amp if appointments overlaped. We (Derbys/Notts amps) have started a support group for our area and I hoping that takes off.

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Hi

Wouldn't this idea be better to be organized through a group like step's that already have a back ground of organising event's like this.?

As much as I can agree that it would be nice to meet some of the people I have made friends with on this forum it might a let down if only a few turned up for a conference.

I think this would have to be a long term thinking matter before it happened.

Pat.

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Hi

Wouldn't this idea be better to be organized through a group like step's that already have a back ground of organising event's like this.?

As much as I can agree that it would be nice to meet some of the people I have made friends with on this forum it might a let down if only a few turned up for a conference.

I think this would have to be a long term thinking matter before it happened.

Pat.

Hi Pat

Many thanks for your comments, from what i understand steps is a charity aimed at amputee children so whilst they may offer advice i don't think they would be up for organising it. My whole aim of this topic is to generate interest to see if it would be viable, i am also networking this topic across the country to clinics etc. I have also asked for assistance from the limloss centre and the douglas bader foundation. I do not expect this idea to take of this year, although that would be good if it did even if it was in a small way.

I have said i have experince in this area and feel that other members of this group have other skills that would help us all to acheive this.

I value your comments and thank you for adding to this topic

best wishes

neil

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Good luck, Neil. This will be a huge undertaking but well worth it if you can get it together. I have attended 2 ACA conferences and found the experience priceless.

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Hi Neil

No Step's is a meeting held at many Limb centre's in the UK.

We attend about once every 3 month's they are also connected the Limbless Association.

We are all adults that attend but all amputee's are welcome.

Pat.

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No Step's is a meeting held at many Limb centre's in the UK.

We attend about once every 3 month's they are also connected the Limbless Association.

We are all adults that attend but all amputee's are welcome.

I think you two are talking at cross purposes. :)

The STEPS that Neil is referring to is a charity (set up in the 1970's in NW England) to help support and provide info to parents of children who have a lower limb deficiency (including hip dysplasia & 'club foot'). The upper limb equivalent is REACH.

Pat, I think you're referring to an amp support group at your limb centre. I've already suggested to Neil (via PM) that he contacts steve@c-legs (on this board) as he's excellent at networking and he has tons of contacts with user groups and amp support groups throughout the UK.

It's going to be very hard work, Neil. I hope you are creating a good team to help you? :)

Lizzie :)

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I'd be interested, I think it's very important to be able to meet with other amps face to face.

MICK SAID

The one thing that I have found since my accident is that I haven’t had no contact with other amps,(never had any contact before neither) Even at my limb centre I was put in a room on my own and so missed out on the chance to chat.

I obviously don't count then Mick :P :D

Theres a reason they put you in a room on your own :lol:

Lynne

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Sorry Lynne, I was thinking male amps & walking on prosthic limbs (very bad habit I know) no offence was meant and I hope no offence was taken.

That didn’t come out the way I meant it. :P :P Errrrrrrrrrrrrrrrrr amps that are further down that road in there recovery than me, (no still doesn’t sound right) boy am I digging a hole for myself. :o :o

Lets redo my post, I only know one young lady who is an amp and due to some really really rotten circumstances I haven’t been able to “pick her brain” on walking techniques YET and I really have got this unhealthy thirst for knowledge about getting more mobile ect……………………… phew!!!!! hope that clears that up.

You could be right about why they stick me in a room on my own. :lol: ....................mick (getting out of here before i really put my foot in it)

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“pick her brain” on walking techniques YET and I really have got this unhealthy thirst for knowledge about getting more mobile

Errrr.... I think people would be picking your brain, not the other way round Mick :lol: :lol:

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