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Heather Mills - Amputee Forum
Caveman

The kit you want

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Hello All,

Had an extended out of hours discussion with my prosthetist.

A number of amputees with requisite skills tweak and modify their prostheses to give them better function for specific activities, very few people can do this.

Some examples

I have seen a fascinating leg a guy uses for mountain bike racing with external tendons;

I am looking to develop a flying leg that will give full movement of the yoke with out fouling on the socket and would also like a tweak that allows easier operation of the toe brakes.

Other target activities could be motorcycling, skiing, cycling, diving, ice skating, roller blading, kite surfing etc. All can be done with standard kit, but there is room for many improvements.

I see the probable users as those that are relatively active that want to get back to pre-amputation activities with greater facility than they currently do.

If a service were to be provided to build such kit is there any interest out there? If so, I will look at getting the balls in motion and setting up all commercial and medical accreditations that will be required to get the job done properly. I look forward to some hearing some views!

thanks.

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Hi Caveman,

The "kit" idea sounds very interesting. :biggrin: It might be a challenge to develop as we are using many different kinds of prosthetics. A direction sheet would be great too for the different prosthetics.

Beth Marie

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Don't want to be a party pooper, but I just don't think there's a market. It would cost money to set up, and then you'd never recoup the outlay. It sounds great, but bespoke alterations to people's limbs that are mostly paid for by the NHS or insurance.... you're going to invalidate warranties and potentially create other problems by solving another. I think it's a non starter.

I really don't want to sound negative, because it's a great idea, it just won't fly. I suspect the eventual lack of replies to this thread will hint at that. The ideas are one thing, doing it in a bespoke way is quite another.

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Hi Caveman,

The "kit" idea sounds very interesting. :biggrin: It might be a challenge to develop as we are using many different kinds of prosthetics. A direction sheet would be great too for the different prosthetics.

Beth Marie

I think Caveman is using "kit" in the Brit. slang sense, in this case it would be "equipment" - loosely translated. http://english2american.com/dictionary/k.html#kit

So, if I understand the proposal, it's to develop a facility that designs/builds prosthetic accessories for specialized use - maybe to a more specialized degree than your avg prosthetics outfit.

N

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Hiya Caveman,

It sounds like a good idea to me in principle but as someone who is relatively active and who the service would probably be aimed at, my main concern with it would be cost ie. what would it cost me? The main problem being that what I can do with my current set up whilst not perfect is pretty ok. I am never going to be an oscar pistorus - I'm not an athlete in any way shape or form - and so for me whilst I like being able to do stuff like cycling, running etc. what I have and what I can get from "normal" prosthetic will do for me, unless the improvements I can get are relatively cheap and easy.

So I suppose what I'm saying is that if you could provide the service to people fairly cheaply then I can see that they might want to use it. On the other hand though, if it is pricey, then I think people would be somewhat less keen...

Does that make sense?

F x

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Reading it again, I realise you don't mean bespoke, but I think my points are the same, Fiona hints at the cost sensitivity, that's one thing, combine that with the limited market and I think that's what makes it unlikely to succeed. Those that want modifications or extra parts made will carry on doing it themselves if they really need it done.

Having said all that, do it... it'd be a nice thing to make succeed if you can.

Prove me wrong.

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thanks for the initial thoughts.

The idea is not to develop new components taking on the likes of Otto Bock etc, but to tweak the package to add more than standard utility. What is usually delivered is a piece of kit that gets you mobile, whether that is £25k of C-leg, carbon fibre socket on sophisticated foot or basic NHS but servicable kit.

I am fortunate in having:

1. a rheo knee, freedom innovations foot, and comfortable liner socket,

2. a mauch knee, elation foot and suction socket

3. a shower leg with suction socket

all are good general purpose legs but am sure the setups can be tweaked to do more; I may be wrong, I am only a year into being an amputee.

It is probable that the cost of making a specialist leg for each activity/sport would be too high for most thereby making the concept not viable, but would work if it was the main leg but issued with tweaks for preferred "other activities" (Fiona)

OBL As allway difficut to disagree

Will see what the response is. lots of discussions get zero response in any event, which does not help! (eg discussion on flying for my part - offer to take people up and no takers)

Nekkyj's reading is correct.

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My idea was that once i get more active and start doing more sports if i come across a problem and my leg is'nt suited to it id make somethng myself to get round the problem.

So i think its a good idea but as OBL pointed out there are alot problems to solve.

I imagne getting the products avaliable on the NHS would be stupidly hard but would make it avaliable to loads more people without the worry of cost maybe as their second leg.

If things could be made cheap enough for people to buy just as something to make there life a bit easyer im sure alot would be sold but then just the materials used in most legs cost loads so im not sure how it could work.

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I think Caveman is using "kit" in the Brit. slang sense, in this case it would be "equipment" - loosely translated. http://english2american.com/dictionary/k.html#kit

I wouldnt trust everything you read on that site,

haggis n a small Scottish mammal, unfortunately known better for the unpleasant-tasting dish it is often made into. There has been a lot of concern here lately that over-farming may endanger the remaining population - if you want to help, please voice your concerns to The World-Wide Fund for Nature. Please make it clear that you're American, and that you were made aware of the poor creature's plight by this fine piece of work.

:laugh:

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(eg discussion on flying for my part - offer to take people up and no takers)

I don't remember seeing that one, I'm in a position to get to Lasham on a nice day if you're looking for someone to take up.... :wink:

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Interesting idea Caveman? But as 1BL points out getting the NHS involved will be a no go. I have sat on forums with them for years, basic function is their philosophy. I bought a leg I play golf on and for serious walking. I have 2 NHS legs which is the norm, my trust are struggling to supply me with liners at the moment due to suppliers not fulfilling obligations. Try contacting http://www.apllg.org.uk/limbpower.html for support............don’t hold your breath though! :tongue:

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Interesting idea Caveman? But as 1BL points out getting the NHS involved will be a no go. I have sat on forums with them for years, basic function is their philosophy. I bought a leg I play golf on and for serious walking. I have 2 NHS legs which is the norm, my trust are struggling to supply me with liners at the moment due to suppliers not fulfilling obligations. Try contacting http://www.apllg.org.uk/limbpower.html for support............don’t hold your breath though! :tongue:

Thanks Paul

I view it as a private activity rather than NHS. I too have 2 NHS legs and am blessed with a good prosthetist!

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(eg discussion on flying for my part - offer to take people up and no takers)

I don't remember seeing that one, I'm in a position to get to Lasham on a nice day if you're looking for someone to take up.... :wink:

Lets sort somthng out later is sept. Will be tere not flying for the 757 pull on sat then off to france for 10days on survey. send an email for dates and for direct comms

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