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Heather Mills - Amputee Forum
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hip disartic

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Hi Everyone,

I am feeling a little discouraged at my progress with my socket. Being such a high amputation we have been modifying a canadian hip arrangement. I am wondering if anyone else is out there who has a comfortable socket and how that is achieved. At the moment we are trying a bike pant with an insert of a gel pad to provide some cushioning on all those sensitive bits! I have to say I am faster on crutches but have some determination to get this leg working and something I can use some of the time to free up a hand! Then at least I can carry my wine! or my cuppa! Any thoughts would be helpful.

Cheers and a happy new year to all

Linda

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Hi Linda

Hip disarticulates have a particularly tough time adjusting to a prosthetic. It's very difficult. Every HD I know feels discouraged and "slow" with a new arty leg, so please don't feel alone when it frustrates you.

Sorry that I don't have any words of absolute wisdom, but I live with an HD too, so I understand how hard it is.

I wish you the best...

Ally

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Hello Linda:

Like Ally, (HI!!!), I personally do not have any experience with a HD socket. I was around one fellow who was trying to make a go of it.

I do know that alot of your potential success will be entirley on the skill set of your prot guy.

ED

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My Inspirational Ed!!!!!!!!! HI back ((((hugs))))) hope you are well well well!

Linda, I have heard of a guy in the States who specialised in making legs for HD's. I saw a video of an HD walking and I was astounded!!!!!

Sorry that I have no further info on him, maybe someone else does, but it does go to show that it is a definite possibilty for an HD to walk better (eish, yes BETTER) than us longer-legged people.

xxxxxxxxxxxxxxx

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Hi Linda,

Such a great post to find! I am a new hip disartic as of Feb 10, 2009.

I haven’t as yet begun with my prosthetic yet. My incision is healing very slowly and I have to wait for it to be completely healed. The waiting is driving me crazy! I have also been told many times that the success of a HD prosthetic depends on the fit of the socket, and the successful fit of the socket depends on a skilled prosthetist. That is why is so difficult right now for me. I am trying to decide between two prosthetic companies and I am not sure which one I will get the better care. I see your posts was from Jan. How are you doing now? Have things improved any?

PS. Ally, I am so curious now to know what person you heard of here in the states that specializes in HD legs. Was it someone at Prosthetic and Orthotic Solutions International (POSI) in Marlton, NJ?

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Hi Linda,

Such a great post to find! I am a new hip disartic as of Feb 10, 2009.

I haven’t as yet begun with my prosthetic yet. My incision is healing very slowly and I have to wait for it to be completely healed. The waiting is driving me crazy! I have also been told many times that the success of a HD prosthetic depends on the fit of the socket, and the successful fit of the socket depends on a skilled prosthetist. That is why is so difficult right now for me. I am trying to decide between two prosthetic companies and I am not sure which one I will get the better care. I see your posts was from Jan. How are you doing now? Have things improved any?

PS. Ally, I am so curious now to know what person you heard of here in the states that specializes in HD legs. Was it someone at Prosthetic and Orthotic Solutions International (POSI) in Marlton, NJ?

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Hi Chrissy,

I hope your recovery is going along. I do remember my incision did have a few hiccups along the way. As to the prosthetic leg..... it has been very slow. Getting the socket fit is all. My original prosthetist left and a new one took over who had not made a leg like this before but very keen to take on the project and learn. I am not an insurance job so my leg is being made on what is called here - Artificial Limb Scheme - this effectively means that it is made by National health and there is little or no access to things like c-legs, anything that costs lots of money! However in my case I believe that if the socket fit is right then the componentry will work. I had contact with a prosthetist in Maryland who works out of the military hospital that rehabilitates amputees from Iraq and Afghanistan. We still have a little contact with him. I am going to be recast once we have sorted out the gel lining and how that works. He is casting another woman whom I know this week so it will be interesting to see how that goes. I live in South Australia, which is a small state and many prosthetists would never have seen let alone made a leg for an HD. I am not sure what kind of leg you are being offered? I can send you some pics of the leg I have at the moment. I can walk on it with one crutch at home but outside would use two. I guess I am not too confident of not being knocked over. However I go out without a leg and just the crutches easily.

I swim about 4 times a week to build up some stamina as it does take energy and strength to walk with the leg for any length of time. I will keep you posted and happy to answer any questions.

Take care, Linda

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Hi Linda,

Glad to here back from you. After hearing your story, I am realizing that it is very difficult to find anyone who has experience with HD amputees. Most have never seen one or see one very rarely. Hopefully anyone who sees this post who knows of any experienced HD prosthetists will post any information they have.

I live in the US, in Philadelphia. I also am dealing with issues with health insurance. I have found a prosthetic company who does have experience with HD amputees. It is quite a distance away. The problem is they are not in my health insurance companies "network" of companies, so they will not cover anything. They want me to go to another company they have chosen that is within their network. I have meet with them, and they seem quite knowledgeable, but do not have extensive experience with HD prosthetics. Even if I do use them, it will be a fight to be able to get a C-leg, which I definitely want!!

My goal is to walk with my prosthetic without crutches, and both prosthetists have told me they feel that is definitely possible due to the fact that I am fairly young (42) and in good shape. I do walk with crutches easily and that will be the biggest obstacle once I start using my prosthetic not to just give up and just use the crutches.

I would definitely be interested in seeing photos of your prosthetic. Please keep me posted on your progress and experiences.

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Hi Linda,

Glad to here back from you. After hearing your story, I am realizing that it is very difficult to find anyone who has experience with HD amputees. Most have never seen one or see one very rarely. Hopefully anyone who sees this post who knows of any experienced HD prosthetists will post any information they have.

I live in the US, in Philadelphia. I also am dealing with issues with health insurance. I have found a prosthetic company who does have experience with HD amputees. It is quite a distance away. The problem is they are not in my health insurance companies "network" of companies, so they will not cover anything. They want me to go to another company they have chosen that is within their network. I have meet with them, and they seem quite knowledgeable, but do not have extensive experience with HD prosthetics. Even if I do use them, it will be a fight to be able to get a C-leg, which I definitely want!!

My goal is to walk with my prosthetic without crutches, and both prosthetists have told me they feel that is definitely possible due to the fact that I am fairly young (42) and in good shape. I do walk with crutches easily and that will be the biggest obstacle once I start using my prosthetic not to just give up and just use the crutches.

I would definitely be interested in seeing photos of your prosthetic. Please keep me posted on your progress and experiences.

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Have been wracking my poor tired brain about this HD specialist leg person.

My CP met a woman from one of these forums when he was in the States on a course a few years back. She was the HD that was walking so beautifully. Eish, for now that's all I can remember.......

I will continue the trail through the fibers of my muddled mind....

:mellow:

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Have been wracking my poor tired brain about this HD specialist leg person.

My CP met a woman from one of these forums when he was in the States on a course a few years back. She was the HD that was walking so beautifully. Eish, for now that's all I can remember.......

I will continue the trail through the fibers of my muddled mind....

:mellow:

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Linda - this forum can be a b*gger in the beginning to get used to :biggrin:

If you want to reply AND quote on a specific item, then click on the <REPLY> button which is INSIDE the box of the post you want to reply to.

If you want to simply continue the thread without quoting another post, then click on the <ADD REPLY> button which is right at the bottom right, underneath all the posts in the thread.

Luck....

:smile:

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Spoke with my CP and he told me that his best referal in the US for HD prosthetics would be Dave Luttig. Apparantly he is known world-wide and also the inventor of the Luttig Hip Strud system.

A "step" in the right direction? :rolleyes:

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Ally,

Thanks for being so persistent in finding out that information. I live here in OZ but will certainly google him and tell my young prothetist his name. As Chrissy says it certainly is a step forward!! And I feel as if I have taken several steps back!!

Cheers, Linda

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Hi Chrissy,

The name of the prothetist that I saw who works with the veterans is called Mike Corcoran and he is from Medical Centre Orthotics and Prosthetics, 2421 Linden Lane, Silver Spring, Maryland20910. The Phone number is 301.585.5347.

He may be another source of info for you.

Take care, Linda

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