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Neal

The Silence of the Amps

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It is way too quiet here lately. Isn't anyone having a problem?

We all get busy with life.

I do know that Higgy's husband had shoulder replacement surgery. He did well and is home awaiting rehab. Between the physical terrorists and Tammie, my thoughts are with Jon. LOL

I finally got released by the surgeon following my revision surgery back in Sept. I had one little spot that had to be reopened and closed again in Oct. It was a tough little bugger to heal. I still have a tiny spot that can be painful, but I think I've finally gotten over that. My right ear has been stopped up for the past week. I'm taking MucinexD, a steroid, and an antibiotic. I go to an ear specialist tomorrow. I hope he has some good news as this is driving me crazier than I am already.

Let's hear what's been going on with you guys.

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It has been quiet hasn't it.

I am horrendously busy with work at the moment (my part time job is taking full time hours) and also with training since I agreed (heaven knows why) to go for my second dan black belt in Tae Kwon Do at the April grading. At least all the training will help me with my other aim of being fit enough and my leg being strong enough to get to the top of the Statue of Liberty when Chris and I go to New York in September for our wedding anniversary (and his retirement at the end of September from 30 years as a police officer).

What's everybody else up to?

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Thanks for waking the board up, Neal!

I've spent the past week getting to know the folks who will probably be my new leg team. It took me a while to get referred to a provider up here, but my HMO's "first choice" provider is a Hanger office. It's about 15 miles from home...but a LOT of things are about 15 miles apart up here, and my prosthetist actually lives in the same town as I do...and makes house calls. Soooooo.....I'll give it a try and see how he works out! He seems like an easy guy to talk to, and he has some interesting ideas on shaping the stump and fitting a socket. He thinks he can decrease the tendency of my prosthesis to rotate slightly inward on busy days. This week he wants to try some "slight adjustments" to my alignment to see if I can get some additional advantages out of my foot, so hopefully that will give me an idea of what I could expect from him. If this turns out to not be a good working relationship, there are other contracted providers I could be assigned to.

And I agree...I feel pretty sorry for Jon! I have a number of friends who have been through shoulder surgery, and it's not been an easy recovery..........

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I have been busy with my cancer treatments. Had a CT early last week and an oncologist visit Friday.

Will be starting new treatment in the next two weeks.

Also been busy looking for a new car for the wife. Her car was 11 years old. Had paint damage from

an accident a few years back and that's what totaled it. Nothing else wrong with it! Had the salvage title.

Got a new car for her this weekend.

Ed

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I hope you find a good working relationship with this new legman. It is so important for us to have that. It would be difficult to start new relationships with doctors, dentists, legmen and hair people when you move so far away. We tend to get so comfortable with the ones we've used for awhile. I don't ever want to give up my family doc. He is the greatest. I had to change dentists when my old one retired. The replacement is pretty good, but more expensive. I recently changed legmen also. I like the work of the new guy, but I will never share a relationship with him like I had with Theron. He's very nice and made a good leg. That's what matters right now.

Did the treatment not work Ed? I'm glad you got a new car. I used to trade every year or two, but that is too expensive these days. I kept my '93 until 2007. I've had this one since. There isn't anything wrong with it and it's paid for. Besides, I like driving it. My other car is a van. It's a 2002 with 120,000 miles. I had to rebuild the transmission last fall, but it runs pretty good.

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I'm with Cheryl. Thanks for waking up the forum! I haven't been doing too much. It's Mardi Gras season here and we've been to a couple of balls and that's always fun. Been helping out a little with a friend of mine, 50 yrs old, who had a massive stroke. She was able to get that clot buster drug within the time frame and is doing amazingly well. I tell her we're the blind leading the blind! We went from freezing cold weather to 75 and HUMID! Ick. My hair is a giant fuzz ball! Love hearing what everyone is up to.

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On tour at the moment. Haven't spoken to my wife for three days I've been that busy. Still find time to check in but usually at 4am

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On tour at the moment. Haven't spoken to my wife for three days I've been that busy. Still find time to check in but usually at 4am

:blink: Bet she loves U even if U call her @4AM. I had forgotten U were on the road quite often. :smile:

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It's nice to know what everyone is up to.

I'm thinking that Jon & Tammie have got things well under control.

I hope that you get all healed up finally Neal.

You've got some things to look forward to Sue. Working and keeping busy like that will help make the time pass by quicker and you wiull be in NYC before you know it.

Best wishes with the new relationships Cheryl. Sounds like some adventure.

Hang in there Ed. I wish you well and success with your treatments. Best wishes with your wifes new car. Drive it in good health.

Happy Mardi Gras time Marcia. I hope to see you at the national convention this year. Good health and best wishes to you and Don.

Who are you touing with Grum? Do you need any help mixing sound? I''m looking for a job.

1. I was force retired year end after 30 with local county government here. Started collecting a pension, but it's not what I was making to support my daughter with. I can't start collecting Social Security for at least another 6 years or so. But as always, I'm making the most out of every day and keeping my chin up and staying very busy.

2. Last month I went Knoxville TN and completed training to be a Amputee Coalition Peer Trainer.

3. This past weekend I trained my first Peer Visitor class and certified everyone. It was a great first class and wonderful experience.

4. On Thursday of this week, I leave for Monterey, California to play my washboard Saturday at the Monterey Dixieland music festival concert. I have participated at this event going back a number of years. It's a real blast from my past that I now have the time to connect with again. I am looking forward to visiting Cheri while I'm out there. The last time that I went to Monterey was before I knew Cheri, so this makes the trip so much better now! I'm supposed to be returning next Monday.

http://www.dixieland-monterey.com/

http://www.washboards.com/

Thanks for the update everybody and to Neal for starting the thread !

post-53-0-34674700-1298953706_thumb.jpg

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I think if you ask Jon, tis not I that is the problem this time... nor any terrorist.. unless his orthopedic surgeon is one...which at this point, he's probably thinking he is. He's doing fairly well, but seems to be having more joint pain this time with the shoulder... and quite a bit of swelling.I keep telling him, if he doesn't mind, I'm going to drive by the big magnet at the salvage yard where we recycle our cans, just to see if he will stick to it!!!!! :biggrin:

We're hoping to see everyone in KC.

Neal, I know where you live!!!!!!!!!!! :laugh::laugh: Want snowed in again? I have friends in HIGH places you know!!! :laugh::laugh:

JV, sounds like you are planning on making this one?

Trekkie..... sorry to hear that you are doing cancer treatments.... I will keep you in my prayers..

Cheryl and Marcia...... do you think you ladies are going to make the conference this year? It will be a while before the next one.. Remember, the game plan is to go to every other year now after this one..

Hope to see you all there!!!!

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OMG Tammie. I can just see you driving under the magnet with Jon. I wouldn't put it past you one minute. You are one little powerhouse.

I'm so glad that everyone is well and busy. Good to hear from so many. The forum just needs a little jump start every now and then.

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Hi everyone,

I haven't been on for ages and ages! I've been busy getting married, setting up our new company, family things and getting ready for more surgery!!

Still having major probs with neuromas - I have 3 of them in my stump, and I've had 3 revisions already to remove them. Tried and tested all the drug therapies that are available, had the nerve injected, but the biggest neuroma, just won't stop growing and it's so painful!

About to have my thigh opened, pull through the nerves from my stump into my thigh and bury them there, where they're not load bearing my prosthesis. The alternative is to spend more time in my wheelchair. I struggle on crutches as my 'good' knee has osteoarthritis.

Apart from that I'm good!

Sue

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Congratulations on getting married Sue. Hope things go well with your new company. I hate to hear about your neuromas. I've not had much trouble with nerves in the stump, just painful infected hair follicles. I had revision surgeries in Sept/Oct to hopefully prevent them.

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Congrats on everything, Sue! Hope you get that neuroma out of the way soon. I've never had one and I can only imagine how painful it must be.

Let's keep this thread going. I love love love hearing what everybody's up to. :smile:

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Thanks guys,

It's actually really lovely to be back here again! I'd kind of lost sight of how important this site is, to so many people - both old and new!

I aim to check in a lot more regularly.

Sue

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4. On Thursday of this week, I leave for Monterey, California to play my washboard Saturday at the Monterey Dixieland music festival concert. I have participated at this event going back a number of years. It's a real blast from my past that I now have the time to connect with again. I am looking forward to visiting Cheri while I'm out there. The last time that I went to Monterey was before I knew Cheri, so this makes the trip so much better now! I'm supposed to be returning next Monday.

http://www.dixieland-monterey.com/

http://www.washboards.com/

Monterey California was great. Cheri says hi and said that she would stop by and say hello to everyone soon.

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Not much doing out this way........winter here is soooooooooooo long and this year I have been "home" since last September. Been working with my fellow BAKs here and am starting to train a new one next week. I expect to have another legless real life boot camp again this summer.

Am heading to the southern Carribean on a 10 day cruise.........alone 'cause I can't find anyone to travel with. Then I'll be back for a bit in order to get my work done for the next winter. In June I am heading to Kansas City for the conference and bringing another BAK with me. In mid July or sooner, I will be driving to the east coast of this country and will spend a month or two there. Once back home, my plans include a trip or to to Calgary and Edmonton in the fall.

For sure next winter I will not stay herre. Not sure what my plans will be but they will either include renting someplace warm for several months OR........screw it.........a one or two week trip every month until the snow is done.

I still struggle to master my arty legs. Living in the snow affects the time I use them.

Play in a band every Friday night now with a bunch of other old farts. Very seldom do I ever get home before 4:00 am. Have been building my guitar collection..........three basses (Fender Jazz, Rickenbacker 4003, Breedlove acoustic / electric), two electric six strings (Fender Telecaster and a Dean cheapy that I am using as a disposable training aid to play standing up with), a six string Breelove acoustic / electric that I LOVE!!!....and I picked up a mandolin to learn.

Other then that.......life's pretty boring..................oh ya...............the other BAK and I are staying an extra day in Kansas City to attend the NASCAR race being held there on the weekend of the ACA conference.

ED

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:cool: You ROCK Ed!!! :rolleyes:

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"Pretty boring," Ed? Yeah, I've learned that nasty winter weather can make for some boring times...but it sounds to me like you're managing to keep things pretty lively! Friday night band gigs? That's great! :smile:

I want to put a question up for you and any other amps who live in snowy winter climes...this is the first year that I've been really close to deep winter snow, and I'm not even sure how I'd go about getting out in it...or even if I should THINK about getting out in it. As a single BK, with a lousy sense of balance and a "good" foot that's twisted outward, is there anything I can do to navigate on a few feet of new powder? Or do I just drive up and look at it longingly from the car???

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I want to put a question up for you and any other amps who live in snowy winter climes...this is the first year that I've been really close to deep winter snow, and I'm not even sure how I'd go about getting out in it...or even if I should THINK about getting out in it. As a single BK, with a lousy sense of balance and a "good" foot that's twisted outward, is there anything I can do to navigate on a few feet of new powder? Or do I just drive up and look at it longingly from the car???

Find an assistive skiing program like the one that I attended and hit the slopes.

http://www.nehsa.org/

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I have been very busy over the past few months too. As far as my amp and pegleg is concerned, there's nothing much to say. I've had this new leg with a flexible foot for about a year now and it's just fabby! The only think of note has come from from my involvement with Diabetes UK as a media volunteer. It's mainly concerned with my dealing with diabetes (incredibly badly) I did a stint on ITV news on Diabetes Awareness Day and some interviews with BBC radio 5 and some national press. I was also asked to do some filming for Jamie Oliver's "Dream School". The production company sent a crew and a couple of the lads to my little flat and we chatted. I suppose I was a reverse role model. I'm still not sure if or when I'll be on. If I'm going to be a TV star (not) I'll post it on here...if you miss it I'll post the address on the on demand site.

Best wishes to all amps of whatever configuration!

Regards

Roger

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Thanks for the "reminder," Johnny! I've never been a skier...was always told that the position of my right foot and ankle would make it "a fracture waiting to happen." Sooooo...I keep forgetting that adapted skiing stuff exists!

We've lost our local snow already, but I'll have to check it out for next winter...if there's not an adapted ski program in the immediate area, I'm only about a half-day's drive from Lake Tahoe up here, and I'd certainly think that THEY would have something aimed at the "alternative skier" population!

It's good to hear from you, too, Roger...do keep us posted on your TV appearance! Jamie Oliver was over here several months back, doing his "school food" thing...I'm still not sure how much of an impact he had, but it certainly wasn't due to a lack of enthusiasm or effort on his part. The man is quite passionate about decent vittles!

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I'm with Ann, Ed. You definitely rock! Congrats to you, Roger. I think you're gonna be the next TV star! You're both fabulous. Hell, we're all fabulous!

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I'm with Ann, Ed. You definitely rock! Congrats to you, Roger. I think you're gonna be the next TV star! You're both fabulous. Hell, we're all fabulous!

It's been quite a while since I was here but have a few Q's to post hopefully in the "right" places! HAve sent a number of people here so hopefully they can learn more and get help if needed.

CHERYLYM_

I too have a dicky foot that points due---well right now it is East! Towards the outside of my leg. The ankle was screwed up from birth and got worse and compromised the foot which I lost half of back about 5 years ago. two years before the OTHER leg---ironic eye roll here!!!---the GOOD leg!!!---got smushed and had to be amp'd. For some reason my husband thought it would be a good idea if I learned how to SKI. Now the idea of the height terrified me, the chair lift terrified me, and the idea of clamping planks on my feet and hurtling my body down a perfectly good mountain TERRIFIED me. But--I tried it. Twice. And twice I WALKED down the mountain. After the ski came OFF of the Twisty Foot. Painfully but thank G-d NOT brokenly. That was reserved for my kid who broke his arm snowboarding with two perfectly GOOD feet and legs! LOL!!! Well what we will do for love! And I will say that I have no desire to try "adaptive" ski equipment. BUT I do live in the heart of the Big Mountains of the North East and they DO have clinics and people who will set you up with things to ski with. One I have seen is a "seat ski" where the ski is under a little seat--I think there is a sort of steering handle to guide you. I might almost say stick to sledding if you can get UP afterwards!

As to getting around on FOOT in the snow---well--I try to keep away from actual deep snow. After all that IS what I slipped and fell on and broke the foot/ankle! Since it has this tendency to be slippery and un-predictable. That said if you can find snow without ice under or on top of it---and you can smush your foot into a firm stable position, you CAN walk on it. But I would invest in a little gadget for a cane----not sure what the "official" name is but it is a small metal piece that has a clamp with screws that goes AROUND the stick shaft and then has a "swing" section that has SPIKES on the end. You press a section to swing it up and out of the way or down to use. A few things tho--DO NOT USE ON FLOORING. EVER!!!! On a carpet you would be OK. But on a hard floor it will slide out from under you ASAP. Leaving you dangling in mid air before meeting that floor. Not good! So flip it up before you go onto a smooth floor! And the really "hard" slick ice---the kind that is there for the long run and that you could ice skate on---the spike will do the same thing on that. But for slush and snow and mud and uneven rocky (not boulders!) terrain---it is a G-dsend. Nobel Prize to the inventor! I am sure your pharmacy can order you one and I think the Vermont Country Store has it in their catalog or you can call them and ask for it. I even use in in the summer if I know I am going to be on slick grass at yard sales or en event.

In the meantime---I have been busy with Grand Child #2, who lives with us in a very crowded house! Grand Child # 1 has been going to Head Start and that has been fun--except for the endless snow days and the endless school vacations! We also had a quite serious flu rip thru here which sent both kids to the hospital. In our "off time" we have been shopping for a warm place to retire--NOT Florida!!!! And our youngest is getting married in 2012 and I have but ONE piece of advice to prospective brides, groom and their parents--ELOPE!!!!!!! Please!!!!!! The same kid did however graduate with outstanding grades in Engineering and is GAINFULLY EMPLOYED in his field in his town so I can hardly complain. LOL!!!! I am working on getting my pros "fine tuned" and am in one way pleased to hear that losing weight has been successful EXCEPT for the fact that I cannot afford a new casting now. So I am hoping my Leg Guy can come up with some way to avoid this. I am pretty sure that my insurance---those lovely people who REFUSED to buy me a prosthetic AT ALL in the beginning---will NOT be interested in picking up the cost of a new socket. And I cannot imagine how much they will want ME to "pony up" for my "share". Whatever it is it is not do-able.

And a "funny"---Had to go see a clinic MD---not my GP who was--somewhere warm. Anyways---I had a small callous where the end of my bone has been poking since the amp and where I jammed it almost thru the skin one time when I had a mechanical scooter start to go over and slammed my leg into the ground. This is usually an annoyance but this time I had actual drainage. As a diabetic who lost my TOES on the "Good Foot" to a fast moving rare bacteria I of course PANIC when I see these things. And I had a tiny in-grown hair on the same leg a few inches away that was a teensy bit pink. I covered them with Tegaderm and went to the MD who knew NOTHING about amputees; prosthetics or apparently diabetics. He was much more concerned with the ingrown hair than the actual pus oozing spot! After badgering him into giving me the PROPER anti-biotics he decided it was HIS turn to bully ME. I was told that I needed to KEEP LOSING WEIGHT (well thanks for acknowledging the weight I have ALREADY lost!!!!) BUT that I was NO LONGER TO WALK. HUH???? Really???? How exactly was I to DO this???? HE really didn't have an answer to that but I basically was told to take the leg off toss it in a corner sit down and wait to die. Oh and LOSE some damn weight while you do that!!!! I guess he never counted on the fact that there are other ways to get to the fridge and the store. But we got a huge laugh over this. Felt like I was teaching Diabetics 101 and Prosthetics 101. For free!!!!! And he decided that I was using Saran Wrap or something for the covering--instead of the clear Tegaderm a plastic surgeon at Dartmouth recommended btw! Well anyways the anti-b's and the Tegaderm cleared everything up. And the callous seems to have resolved!!!! Maybe all it needed all along was the Tegaderm! Which btw I buy in quantity on ebay for pennies vs hundreds of $$$$ at the drug store or thru my mail order pharm.

Good idea for this thread!!!!!!

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Tegaderm on e-bay??? That's wonderful news...I never thought of that one! I haven't had a Tegaderm-worthy wound in a few years, now, but the the stuff is absolutely wonderful at wound protection and healing.

Thanks for the snow tips, also...it's funny, but just a couple of nights after posting my snow question, I saw a story on the local news about adaptive skiing programs in the area. They focused on a fellow who's a triple amputee -- bilateral above-knee and right below-elbow -- who was out there skiing quite happily and successfully. (Made me feel pretty darn wimpy!)

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