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Heather Mills - Amputee Forum
Desperatewalker

Having problems with NHS prosthetics in the UK

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Hi, I'm new to this site. Wondering if anyone else in the UK is having probs getting what they need from NHS services? And if yes, have you found ways of dealing with it? Would value people's thoughts/ideas/suggestions.

Thanks!

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Hi Desperatewalker

Sorry to read you are having problems. Generally, think the usual route to complain is via your Centre first, then upwards to Trust and Commissioning Team. NHS England is now Commissioning Prosthetics as a specialist service. Hope you are able to get things sorted.

Were you aware of this https://petition.parliament.uk/petitions/105361

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Welcome to the site--great group of people. I live in Canada, so can't be much help. Although Amputee Coalition in the US does not handle problems in England, but my have some suggestions how to proceed.

Peace, Beth Marie

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Hi desperatewalker! OK well let me start off by saying your not alone. With that you may draw the inference this means there is very very limited funds that centers draw upon for prosthetics and their ultimate provision. To be able to grasp what your issue is could you tell us your amputation type, how long have you been an amputee, what is your current provision, your level of mobility or capability and finally which DSC you attend . Off the bat I can tell you from personal experience that if you can demonstrate levels of capability, need and beneficial results from provision , the there are numerous limbs the NHS can provide to assist in helping you fulfill your potential.

If you are ultimately looking for that shiny plug in kit lime the ex military lads get via the NHS then your likely to be wasting your time. Unfortunately there is a real two tier prosthetics provision system in our NHS where ex military ( using redirected public funds from the NHS - into a special funding scheme for ex military only) not only get fastracked access to NHS specialist center treatment but are also given exclusive access to prosthetic componentry that civilian users are not considered for and unable to be provided with. Disgusting and unfair YES of course it is- limb loss is traumatic and devastating regardless of how we end up with it. Many of us do not get the chance to choose a scenario where that risk is increased or demolished - ex military to some extent had the opportunity not to sign up and thus reduce their exposure to such risks - I'm sure most of us civies would love to of had a chance to do something to help avoid our limbloss. Anyway that's a whole nest of hornets for another post and day!!!

So let me know about the things I mentioned and we'll take it from there- I'm sure I can help you see it from a rational perspective and realistic viewpoint. One last thing - being the NHS be prepared for the long haul and to jump through the proverbial hoops to get the stuff you need. Do you also have any underlying conditions that caused or contributed to your amputation or are you otherwise fit and well? Hope I've helped a bit and I'll do what I can to steer you in the right direction .

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Finally, a tiny bit of publicity....such a shame it wasn't picked up by the other media and given more prominence.

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New to this forum, but NHS Wales is poor, Scotland get what they want and England I guess must be a bit hit and miss!

I live in Wales and a gym limb is a metal pole with wooden foot.

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  • I am having problems with my norwich centre who are refusing to maintain my spare limb. Due to cost.I am a left leg above knee for 23 years at this time you were given 1 walking leg and either a swimming leg or a lower spec walking leg.I chose the later. In all this time I've had one of my two original limbs replaced 2 years ago after an 20 month battle with the NHS over the type of limb they would supply, not a very high spec either.don't think I have been a particular drain on the NHS, but looks like I now have another battle to fight.:sad: fed up of this but am determined to win,and my advice to anyone else is to fight your corner!  The company that provides the service to my area NHS trust is OPCARE who's parent company is ORTHO EUROPE. 

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